Re: Constant headaches 7 months
I honestly think that if you've been diagnosed with this benign yet very debilitating condition, and your pain is unmanageable...then you really should be discussing this with your consultant. I know you say you are disappointed with the treatment plan that he came up with, but I wonder if you are advocating strongly enough for yourself about how intolerable you are finding the pain?
Re: Constant headaches 7 months
I’ve written him a letter saying how pain is affecting me cos when I saw him broke down feel like I didn’t get my point across. Today so far I am thankfully having a better day had reflexology yesterday maybe that’s helped. I know I’m anxious can’t sit still
Re: Constant headaches 7 months
Hi guys I am really struggling with physical and mental health at mo. I have had a constant headache for almost 2 years now I'm under a specialist in Liverpool. My specialist seems to think it's a headache disorder cluster and hemicrania continua. I'm really stressing out and really concerned about having my mum's condition an avm anyerasum. Mum had headaches for months and was misdiagnosed which lead to stroke she was 53. I've had a recent mri and has come bk normal would an anyerasum be spotted really worried x
Re: Constant headaches 7 months
plz can someone help I'm at breaking point this isn't living its excisting.U probably know my headaches have been going on almost 2 years now constant and severe. my specialist in Liverpool put it down too cluster headaches and hemicra continuea. My last visit with him i feel cos i was upset from pain i didn't get my point across. he basically side no cafferine which ive stopped stop painkillers and no o2 felt very let down as he didn't offer any treatment like a nerve block which has helped for 5 months headache free. His response was go to bed til i see u next end of march. Went to my gp cos i couldn't cope with pain told them i cant go on like this. They put me on a drug called verapamil now ive done three things one had reflexlogy 2 cut out coffee tea etc and three this drug verapamil. Since i saw my gp a few weeks ago my headaches are there but not as bad? Now i cant sleep haven't for three months I'm exhausted ive tried everything. i feel my anxiety coming bk to as many of u know my mum was misdiagnoised with a blood vessel problem which burst she was 53 and ended up having a stroke a month later she passed. I asked my dr for a second opinion as this worrys me. Today i went for a private mri with contrast to have a close look at my blood vessels. I'm just so exhausted having my kids off this week has been so hard.
Re: Constant headaches 7 months
Hey there,
I used to have awful migraines from the time I was 16. I used many drugs to cope with pain. I also had cluster headaches now and again, but migraines 2 or 3 times a week for years. Some of them were god awful, id lose vision, throw up etc. I cannot even begin to imagine how you must be feeling. I was a basketcase with my 2~3 a week.
Does NHS fund accupuncture treatment? I never believed in accupuncture, but I moved to Taiwan 10 years ago. When my boyfriend (now husband and Taiwanese) moved in with me and saw the state of things he found me a great accupuncturist who specialized in migraines. I had 10 treatments of accupuncture and herbs and I was so so surprised at the difference it made, having not at all believed it could work. If you decide to try it, make sure you choose a very reputable accupuncturist. Someone who isnt well trained can make things worse. I have had maybe 2 migraines in the last 6 months, and was completely cured of my migraines for a few years. It truly works. I spoke to 4 or 5 other women at that office, and my husbands aunt, all who had severe migraines and were cured by accupuncture.
I have also heard good things about sensory deprivation tanks for migraines. If youre desperate (I know you are, ive been there), you could try these things.
Re: Constant headaches 7 months
Thank u jojo for your reply struggling so much at mo I'm also exhausted my gp has prescribed me zopiclone for a weeks see how i can get on. I'm also more concerned as my mum had a blood vessel problems which led to stroke and passed away at 53. My headaches have eased had reflexlogy cut cafferine out and on a headache preventive called verapamil. I decided to have a private mri head scan with contrast yesterday as I'm concerned. What was the last thing u mentioned whats that?
Re: Constant headaches 7 months
If you havent tried acupuncture, you should go. I know im sounding a bit pushy, but it does work. The needles also dont hurt at all if that is something youre worried about. If reflexology helped, acupuncture probably will too. There are recent study findings (in 2017) stating that accupuncture actually does reduce migraines the same as many medications, except after using acupuncture, the migraines dont usually return.
The sensory deprivation tank is like a tanning bed with water in it that is totally closed. I'm not quite sure of the specifics or how it works because i've never used one, but I have heard its helpful.
I can understand your fears because of your mom. I know it must be difficult to relax while you have this migraine, plus all of that hanging over your head. Hopefully the MRI will give you a definitive answer, but you do need to trust the findings of the professionals. I know that's hard to do with HA.
Re: Constant headaches 7 months
Thanks jo jo hopefully my results will be back early next week its just horrible not having a proper diagnoise got told I'm having cluster and hemicrania both conditions then my last time my specialist said migrarine so really confused. my mum got misdiagnoised so that's my fear. Ive had no sleep for three weeks now I'm exhastered feel tired but don't sleep. I'm at my wits end
Re: Constant headaches 7 months
My results have just come back normal thank god. My head feels a lot better just not sleeping haven't slept in a few weeks now i feel worn out. Ive tried everything warm bath before bed lavender herbal remendies i feel anxious again too I'm worried I'm gonna lose my job its only 2 hrs but love it there. Also i have a headache condition but don't know what importment thing is didn't show anything nasty
Re: Constant headaches 7 months
That's great news. Maybe you will start to sleep better now you are not as anxious about your headaches. I,he had insomnia for over 2 years. The Dr recommended cherry juice. I drink that late afternoon, chamomile tea early evening and horlicks at bedtime! It has improved somewhat . Hope things continue to improve for you.