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Thread: Another twitcher worried about ALS :(

  1. #11

    Re: Another twitcher worried about ALS :(

    Thank you everyone for your reassurances! Fishmanpa I will read the link you posted above again and again I think the thing that’s really getting me now is the slurring :( I feel I can’t say certain words fast enough...so what do I do? Keep saying tongue twisters ! Argh!!! Thank you all for your positive words....I am truly grateful!

  2. #12
    Join Date
    Aug 2013
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    24,682

    Re: Another twitcher worried about ALS :(

    Quote Originally Posted by Dentalmaniac View Post
    I think the thing that’s really getting me now is the slurring :(
    Unless people are asking if you're drunk, it's all in your head

    Positive thoughts
    __________________
    "Eat. Drink. Enjoy the work you do. Be thankful for the blessings God gives you in this life. Live, love and seek out the things that bring your heart joy. The rest is meaningless... Like chasing the wind." King Solomon

    The best help is the help you give yourself! http://cbt4panic.org/

  3. #13

    Re: Another twitcher worried about ALS :(

    Nope people are not asking that yet, but I feel like I can't say certain sounds well especially if they're right after certain other ones. Almost have to give a lot of effort and therefore my speech is slow :( I guess time will tell!!! In the meantime, I will take all your positive responses and keep telling myself that my worry can't change anything. I hate this rabbit hole that I have gotten myself into :( Thank you all for listening to me!

  4. #14
    Join Date
    Dec 2013
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    612

    Re: Another twitcher worried about ALS :(

    Quote Originally Posted by Dentalmaniac View Post
    Nope people are not asking that yet, but I feel like I can't say certain sounds well especially if they're right after certain other ones. Almost have to give a lot of effort and therefore my speech is slow :( I guess time will tell!!! In the meantime, I will take all your positive responses and keep telling myself that my worry can't change anything. I hate this rabbit hole that I have gotten myself into :( Thank you all for listening to me!
    Can you whistle?
    __________________
    To wear your heart on your sleeve isn't a very good plan; you should wear it inside, where it functions best.

    Margaret Thatcher

  5. #15

    Re: Another twitcher worried about ALS :(

    Yes I can whistle just fine. Why do you ask Andrash?

  6. #16
    Join Date
    Aug 2013
    Posts
    24,682

    Re: Another twitcher worried about ALS :(

    Quote Originally Posted by Andrash View Post
    Can you whistle?
    Good Question

    Positive thoughts
    __________________
    "Eat. Drink. Enjoy the work you do. Be thankful for the blessings God gives you in this life. Live, love and seek out the things that bring your heart joy. The rest is meaningless... Like chasing the wind." King Solomon

    The best help is the help you give yourself! http://cbt4panic.org/

  7. #17
    Join Date
    Dec 2013
    Posts
    612

    Re: Another twitcher worried about ALS :(

    Quote Originally Posted by Dentalmaniac View Post
    Yes I can whistle just fine. Why do you ask Andrash?
    Because if you can whistle (and you can) you don't have ALS. Definitely. 100%.
    __________________
    To wear your heart on your sleeve isn't a very good plan; you should wear it inside, where it functions best.

    Margaret Thatcher

  8. #18

    Re: Another twitcher worried about ALS :(

    Now that made me smile

  9. #19
    Join Date
    Dec 2013
    Posts
    612

    Re: Another twitcher worried about ALS :(

    Quote Originally Posted by Dentalmaniac View Post
    Now that made me smile
    That is the truth If you had bulbar onset ALS, the damage to your facial muscles would have made it completely impossible for you to whistle. No matter how hard you tried you would not have made a sound. Therefore, you 100% do not have ALS.
    __________________
    To wear your heart on your sleeve isn't a very good plan; you should wear it inside, where it functions best.

    Margaret Thatcher

  10. #20

    Re: Another twitcher worried about ALS :(

    Thank you Andrash for your reassurance. I had a better morning yesterday after reading your post but went downhill last night with a big tears blowout as we were out with friends for dinner last night followed by a really depressing wake up this morning. I feel like I need to make a doctors appointment but then am petrified if my fears come true :(

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