So after a 2 month wait, the day I was scheduled to go for my EMG arrived. I didn’t sleep last night. I barely managed to find childcare for my kids while I was at the appointment... 7 more hours and it was all over, and I was on to the waiting phase for my results. Of course as luck would have it, I get a phone call this morning saying my appointment has been cancelled and postponed for a week. I’m devastated, crushed... My twitching has been non-stop and I’ve been experiencing horrible cramping in my feet. I’m crying putting my kids to bed every night, terrified of ALS. I needed to be on to the next phase. It’s been a 2 month waiting game of anxiety. Waiting another week for the EMG now, and yet another week for results because they are behind from all of the cancelled appointments is just such a cruel joke.
I want to feel like I can breathe again, without this terrifying fear looming over me...