View Full Version : Terrified!!!!!! Its not better but worse.
looking4answers
30-11-11, 00:42
I spent five days in the hospital on the heart floor and the monitiored me 24/7. Before I ever went to the dr tht caused me to end up in the hospital I would get theses weird skip beats out of nowhere. They would go bet beat skip beat skip fast fast fast kip beat ,then like a half of beat very slowly beat beat beat beat fast beat bet beat beat ,then slowly beat skip beat beat beat. I have tofind aa gass of water nd drinkbig gulps then lay on myleftside for it to quit. I had this in e hospital when monitored and they told me they didnt see anything even when on ekg i have been told they didnt see anything. Everyday when I get up and make body changes in position they strt doing this. Other days Zi can wlk hard and fast and myheart never gets over 84 . I dont understand this. Is stress causing this or am I losing my mind or is there something wrong and no one believes me. I had an angiogram where it shows any lockage in the arteries,nothing it also shows heart function,nothing there either. Ihad ct scans from the top of my head tomy feet. Nothing but the adrenal thing and kidney thing ,which hasnt been said to cause heart problems. I take a beta blocker,alpha blocker,calcium channel blocker and angio retensive blocker ,valim and asprin.These meds are for heart attck victims, and people with angina and people with high blood pressure and they are suppose to be taking care of me. They arent helping and imso scared as this problem gets wrse everyday. I have question drs over and over with no explination and told there is nothing wrong with my heart I dont undertand. Am ijust going to die and then they say,ohhemust have had something wrong with his heart or amijust loing my friggin mind????? Im so upset because I feel its one or the othet. I dont know what ese to do. Sometimes the weird skipping starts when I use the bathroom or have a bowel movement but thats associated with adrenal problems which my endocrologist says I dont have. What should I do HELP?
macc noodle
30-11-11, 08:28
Michael
If there is nothing wrong with your heart, why so many meds ???? It does seem a bit perplexing to me.
I suffer rapid heartbeat associated with my hormones and it can happen for no particular reason ................... also my anxiety exacerbates the problem.
I really do think that you are suffering an acute form of health anxiety, which is reflected in the threads you start and posts you make in here, which is not being addressed by the professionals, hence the constant dread and worry which is ruling your life.
I am sorry that you are not getting the answers that you need but hope that you will before too long.
Macc Noodle
nomorepanic
30-11-11, 13:45
Are these weird skipped beats not just ecptoics and palpitations?
looking4answers
01-12-11, 02:18
Mac, the meds are in case I was to go hypertensive crisis and or pheo crisis. Either can be caused by adrenal problems and or kiney problems and frankly I think they are over medicating me " just in case" so far even when I was freaking out my bp has never been over 120/ 73 so its probally pretty low most of the time. Yes I do suffer from health anxiety but goingthrough what I am is not helping. First of all I have an incidental adrenal anomea, thats suppose to be better. than cancer although they have to be observed and tested every 3 moths for at least four years in case they become active and or grow bigger thus creating problems. At this stage the drs still arent sure about the cancer factor in the kidney. One says its cancer,one calls it " that thing" and another doesnt or hasnt specified either way. Also I have been to a urologist that isnt 100 percent sure its cancer but wants to cut everything out,kidney,adrenal gland etc etc etc and then worry about the rest later. Although there is only a 50 percent survival rate in surgery. They cut out part of a rib then feel your lungs with carbon dixoide to make sure they dont collapse then they put cathaders upthe artery in your leg to control blood pressure and also the renal artery and so much more not counting chances of going into heat failure with anathesia or heart failure. So much that can go wrong . You are DAMN right I have health anxiety thats enough to scare the livibg daylights out of anyone and yes in the meantime im looking for a therapist and actually shopping in other parts of the world for alternate treament. Sorry my insecurieties bother you but if it were you I think you would be posting like no tomorrow!
Nic,to answer you im familar with etopics and palatations .I have had themm all my life but this is something different. They start by a pressure between my stomach and throat then my heart wil skip every other beat a few times then no matter how fast it was beating it feels as though it goes into a half of heartbeat that just bumps . Very slowly like bump bump bump bump bump bump like my heart will come to a complete stop. To tell you the truth they actually feels like one half of a heartbeat.
When I was in the hospital my wife went to the ekg bp monitoring station and told tjem my heart didnt seem to be beating right. She felt it too. The nurse on duty and person monitioring. it said we see a normal heartbeat. When I was in er with a constant ekg I told them I felt it skipping and they didnt see it. All these feelings were the same as now.I went to my drs visit the first time and the nurse said my blood pressure was 120/73 but pulse was 108.The dr comes in and looks at me funny feels both wrist and says I dont think your heart ws 108. I didnt say that the nurse told him that. My heart is bizarre. Somedays I could run jump and do anything and my heart would never get over 84 . Other days i can get up walk across the kitchen floor and back or go use the bathroom and it will be in the 90's or 100's skipping and acting weird.
I did read something about kidney failure causing issues like these but surely if my kidney was filing they would have noticed with all the blood work and scans they did and urine samples surely they would notice something but there is one other possibilitiy that might be causing it. The meds im taking number one complaint is stomach problems and gas and heartburn.Who knows? Even my beta blocker warns though if you are taking this med and dont have hear problems it can give you heart block or conjestive heart failure. I ask my dr about this and he sais its a gold standard med and he feels the benefits outweighs the risk. Nic, all I know is whatever is going on with the heart isnt the same as before not the typical palps or etopics
---------- Post added at 02:18 ---------- Previous post was at 02:15 ----------
Ps Mac....hope i didnt sound hateful,im just a tad upset....sorry
If all those tests have said your heart is fine then it is. What you are describing can be anxiety. You are lucky in the fact that you have had alot of tests done and all come back clear. If you are concerend with the medications you are on then discuss with your doctor. It does sound like you have a very good strong heart.
I had a similar experience a few years back spending a week in hospital after thinking I had had a heart attack. They put you on certain medications as a point of coarse. All my tests including angiogram came back clear. My Doctor said it was up to me if I wanted to stay on the medications, so apart from blood pressure I stopped the rest.
Your nerves are so sensitised that you notice every little symptom. The only way through this is to try and not be so reactive to every beat of your heart. Very hard to do I know. The more you tune into it the worse it gets. I used to be always checking my pulse or feeling my heart. The truth is I diodnt know what was normal or not but I was convinced something was up.
First just make a conscious effort to stop checking your pulse and heart. Just take a few deep breaths and continue on without adding fear. Stop reading up on side effects of medication. By law the companies have to put every possible side effect on there. Most people dont get any at all.
You have answered your questions by saying sometimes everything is fine.
Unfortuanetly only you can make it worse or better.
Read some Claire Weekes. She explains your symptoms well and believe me you are not alone.
My neighbour, who is 72 had a heart attack last year, and has had high BP, which has now settled. The only medication he takes is an aspirin a day. There doesnt seem to be any reason for the amount of drugs you are taking, and definitely not valium as this isnt prescribed for heart problems.
With the amount of tests you have had recently, all basically coming back clear with nothing major or urgent to worry about, it would seem your problems are mainly coming from the health anxiety ( you have mentioned before the worries you have about serious illnesses ) and this is what needs treating.
You can carry on having all these tests for various things, but they really arent going to help if the cause of the symptoms is your mind, and not anything physical.
Also, stop constantly monitoring your heart ! you obviously do this as you know exactly what your heart rate is all the time. The heart is designed to change its rate all the time as your body position changes, different exercise and exertion rates, differing stimulus that can make you more excited or relaxed etc.... None of us have a constant heart rate that doesnt change, THAT would be worrying !
My neighbour, who is 72 had a heart attack last year, and has had high BP, which has now settled. The only medication he takes is an aspirin a day. There doesnt seem to be any reason for the amount of drugs you are taking, and definitely not valium as this isnt prescribed for heart problems.
With the amount of tests you have had recently, all basically coming back clear with nothing major or urgent to worry about, it would seem your problems are mainly coming from the health anxiety ( you have mentioned before the worries you have about serious illnesses ) and this is what needs treating.
You can carry on having all these tests for various things, but they really arent going to help if the cause of the symptoms is your mind, and not anything physical.
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With respect Mike ..Michael has a mass on his Adrenal gland and Kidney ..The Valium was given for his anxious state not his heart ...Hardly NOTHING MAJOR to worry about ?? Of course he has HEALTH ANXIETY ..who wouldnt under these circumstances ? ..
Michael you need to ask these questions to your Dr ,I can understand your concerns but you arent helping yourslef Googling and checking your heart out al the time .Too much knowledge from the wrong source is a BAD THING ..you must get your answers from your Dr .Even if drugs are perscribed it doesnt necessarily mean you have to take them ..Its your body at the end of the day ,but get the full facts before you decide what to do .As for the 50%chance of survival from an op ..I think you,ll find the alternative doesnt bear thinking about .Where did you get the info about that statisic ? Hope your appointment comes though soon and you get the results and answers you need .All this waiting isnt doing you any good whatsoever ..Thinking of you :hugs:luv Sue xxx
When I said nothing major or urgent, I meant that if there was something the docs were really concerned about, they would operate straight away, they wouldnt hang around so long umming and aahing and trying to work out exactly what it was and what to do. Lots of people get strange lumps and bumps and growths, and most are benign and not harmful, and the docs can diagnose these pretty easily
IIRC from earlier posts, Michael said he had been on the valium for quite a long time ?
I do sympathise totally, but as you mention, googling and heart checking isnt going to help put his mind at rest at all, if anything it will make things worse as you can convince yourself you have something terrible, and the only people who can provide definite answers are the doctors.
macc noodle
01-12-11, 18:17
Mac, the meds are in case I was to go hypertensive crisis and or pheo crisis. Either can be caused by adrenal problems and or kiney problems and frankly I think they are over medicating me " just in case" so far even when I was freaking out my bp has never been over 120/ 73 so its probally pretty low most of the time. Yes I do suffer from health anxiety but goingthrough what I am is not helping. First of all I have an incidental adrenal anomea, thats suppose to be better. than cancer although they have to be observed and tested every 3 moths for at least four years in case they become active and or grow bigger thus creating problems. At this stage the drs still arent sure about the cancer factor in the kidney. One says its cancer,one calls it " that thing" and another doesnt or hasnt specified either way. Also I have been to a urologist that isnt 100 percent sure its cancer but wants to cut everything out,kidney,adrenal gland etc etc etc and then worry about the rest later. Although there is only a 50 percent survival rate in surgery. They cut out part of a rib then feel your lungs with carbon dixoide to make sure they dont collapse then they put cathaders upthe artery in your leg to control blood pressure and also the renal artery and so much more not counting chances of going into heat failure with anathesia or heart failure. So much that can go wrong . You are DAMN right I have health anxiety thats enough to scare the livibg daylights out of anyone and yes in the meantime im looking for a therapist and actually shopping in other parts of the world for alternate treament. Sorry my insecurieties bother you but if it were you I think you would be posting like no tomorrow!
Ps Mac....hope i didnt sound hateful,im just a tad upset....sorry
Ah well Michael - my post was not meant as any criticism of you and your insecurities do not bother me - don't think I actually said that !!!!
And actually Michael I have suffered health anxiety for a very long time and fully understand and sympathise with your position BUT no I would not be posting like there was no tomorrow because in reality none of us in here are medically qualified to comment on your health or to do anything other than make the sort of post I made.
If I were in your shoes, I would be questioning why the overmedication on a "just in case" scenario and I would also question why there is no consensus on the kidney/adrenal issues - let's be honest here - this has been dragging on far too long for you and your dear wife and you need a clear path or diagnosis and possible treatments/outcomes so that you can have some choice and input into the process. I would be banging down every door for some clarity here and for some sensitive treatment of the position you have been placed in.
I am on your side Michael and just hoping that you get the treatment you deserve and require without further hesitation on the medical professions behalf.
Take care and good luck.
Macc Noodle
looking4answers
01-12-11, 21:26
Sorry for all the fuss... I cant get straight answers . The drs here are like that and I always wondered why my friends went to major cities to go to the dr, now I know. I have a cousin that is a parametic that is urging me to go to Houston as he has stated the samething about the drs here. He said if therecis ANY suspicion I have cancer I should run not walk quickly to go to Houston. He has been there over 30 years and knows the drs and hospitals. The drs here know everything I mentioned here and arent willing to answer questions and they knowcmy complaints about my heart and arent concrrned. I am not awarecf my heart but it makes me aware f IT and when it doesc you can bet I do check it. I dont go around monitoring it all the time. Yes I took librium for years but was off three months as the drs dont presribe that here anymore the dr gave me valium as its the same family of drugs and it helps. Yes I need to stop googling and go to Houston to some real drs but I didnt want to leave home but now my choices are go there orcstag here and have no one to ask about what is going ob. I need to make some deciscins and quit complaining. Sorry for my repeates complaints
nomorepanic
01-12-11, 21:30
Michael
I do hope you get things sorted soon.
Sending you some love and hugs xxx
I just say Health Anxiety is bloody terrible.Living day by day checking pulse and BP is not good,I do hope you get answers soon.
Love Petra xx:hugs:
No fuss. Hang in there and do what you have to do to get the answers.
You have nothing to apologise for Michael ..Complain away ..We are all concerned for you ,some are unaware of everything that has happened the past few months ...I do think that the tests and scans you have had, needed explaining to you and also what the Medication was needed for .I hope you find a new Specialist soon and you can start to move forward .with treatments diagnosis etc .Take care thinking of you luv Sue xxx:hugs:
Anxious_gal
04-12-11, 02:41
I'm so sorry the doctors are being so useless :(
Hope your doing ok :)
Anxious_gal
15-12-11, 01:26
:hugs:
Anxious_gal
19-12-11, 01:17
Hope you're doing ok
Anxious_gal
31-12-11, 05:37
I guess he's not doing ok :( I never thought to ask for any contact details as he posted so often. Anyways just checking so you know youre not forgotten :)
Maybe have break mishel,my thoughts with Michael and he is not forgotten
Petra xx:hugs:
Hope you are ok Michael ? If you read this please let us know how things are .Thinking of you .Luv Sue xx:hugs::bighug1:
yeah it seems odd that you are on all this medication when they are saying that nothing is wrong . i agree sounds like anxiety scaring the crap out of you as it does me ! its 6.19am and ive been up all night so tense with shooting chest pains weird preassures in my chest and it feels like its my heart , i had such a sharp feeling it almost wasnt even a pain just an extremely strong feeling that felt like it was in my heart and mainly under my left breast and my left arm where i was holding so much tension, it felt like such a strain ? or muscle spasm/clench with a nice big surge of adrenaline i jumped up ready to die convinced i was having a heart attack as soon as i shot up it stopped , i was upset shaky and tingly for a little while and was still thinking it was a heart attack but found this amazing website which relaxed me a lot! and here i am still alive ! just shattered scared to sleep incase i relax and it happens again :( ....................its all a very strange thing but you will be absolutely fine ! xxxxxxx
---------- Post added at 06:26 ---------- Previous post was at 06:25 ----------
:)yeah it seems odd that you are on all this medication when they are saying that nothing is wrong . i agree sounds like anxiety scaring the crap out of you as it does me ! its 6.19am and ive been up all night so tense with shooting chest pains weird preassures in my chest and it feels like its my heart , i had such a sharp feeling it almost wasnt even a pain just an extremely strong feeling that felt like it was in my heart and mainly under my left breast and my left arm where i was holding so much tension, it felt like such a strain ? or muscle spasm/clench with a nice big surge of adrenaline i jumped up ready to die convinced i was having a heart attack as soon as i shot up it stopped , i was upset shaky and tingly for a little while and was still thinking it was a heart attack but found this amazing website which relaxed me a lot! and here i am still alive ! just shattered scared to sleep incase i relax and it happens again :( ....................its all a very strange thing but you will be absolutely fine ! xxxxxxx
Hi Mike, Firstly sorry to hear about all what you are going through , from what i read it sounds like it could also be a side effect of all the medication you are on. Plus you are forever scanning your body so it is likely to pick up on the smallest change. I am a scanner and i get bothered and scared by so many things daily so you are not alone. The mass on your adrenal glands cant be helping much either but it could be a catch 22 as you need the meds but they might also be upsetting your system. You are not alone in worrying and you are very brave considering what you have to put up with. Take it a day at a time and find your comfort zone. And never give up asking until you are fully satisfied. Thanks for posting as so many of us are in the same boat and yet at times feel they have no where to turn or we wonder who else feels the same way. All the very best and sending you positive vibes.
Adrenal tumours can cause palpitations! You seem to have spent such a long time being anxious that that has become the norm for you which is such a shame. Anxiety feeds on itself and the more you worry, the more worried you become, it's a hard cycle to break. Have you tried yoga or meditation? Or just trying to find something that is so absorbing it takes your mind away from worrying about yourself? When I get sleep problems, I write stories in my head, dragging myself back to them if my attention wanders. 9 times out of 10 I fall asleep before I get too far into them. Most times I am writing/rewriting the same story, expanding it, changing what happens. It works for me, it might for you.
The main thing is, try to accept that whatever may be wrong with you hasn't actually finished you off or come close, that means there's hope Mike, and where's there's hope there's a modicum of relief to be had.
Does anyone know what has happened to Micheal? Hoping he's ok?
nomorepanic
16-03-12, 18:09
Look at the post under the technical forum pancho
Can someone tell me what happened to looking4answers? Been following these posts from years ago, can someone link me or give me info? Please?
happybunny13
07-10-19, 09:08
What happened to Micheal?
Happybunny, this thread hasn't been updated by the OP in well over seven years.
MyNameIsTerry
08-10-19, 02:12
Can someone tell me what happened to looking4answers? Been following these posts from years ago, can someone link me or give me info? Please?
What happened to Micheal?
https://www.nomorepanic.co.uk/showthread.php?111868-lookingforanswers&highlight=lookingforanswers
It would seem he never came back. Last logged on 12/12/2011 but some from this thread found him on Facebook 18/03/2012.
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