update,,,cant get help,,

[imported_n/a]

firstly can i say thank you to all the very kind people who replyed to my first post,,as your all probably all aware meg provided me with some great information,,thanks meg i called mr wangs secratery last week and left a message for dr wang,no reply,,i called him this morning actually got to talk to the guy very nice chap explained my situation ,he was not impressed my doctor couldnt give me access to the therapy ;i,e,c,b,t,he went on to say he did not actually specilise in that area,and was willing to recomend a close friend of his a doctor waseem aladin,so i gave mr wang my telephone no for this dr aladin to contact me,,he also said i must stress darre the treatment does not come cheap,,he said i could wait for the nhs which could take upto nine months if i could find a doctor willing to refer me or i could go private with this dr aladin,which would cost 80,to 100 pounds per session at a possible 5-7 sessions{ouch},,as you can guess no-one can out a price on your health and i would be more than happy to seek this treatment as i am getting rather desparate now,but due to keeping this to myself for so long i have enevatable i have used up nearly all my savings and really would only have enough to maybe have 4,,5 sessions at the most,,so i am now gonna wait for this dr aladin to call me,,thanks meg,,,,i went to see my dr again this morning to ask for help yet again,,i felt a little more positive today because i was seeing a lady dr ,,i went in explained my situation,,that i couldnt get more than 2-3 miles from my home due to avoiding the panic attacks over the years and i said to her i couldnt make it into town and she said get a taxi and LAUGHED as you can guess i got quite upset and left the surgery with again no offer of help which left me devastated this morning,,i wrote a very nasty letter of complaint and took it back there today,,i will let you all know the outcome if any,,i cannot believe it i really fell let down by the system and am really at the end of my tether after finally admitting to people that i have a problem and finding the strenght to fight it,,i now however am starting to regret all of this as there are obviously no people out there ready to help other than you guys,,what do i do now where do i go from here i really am not sure,,i am very tired of fighting this espesially when there is no profsional help,i havent been out all day and not really sure if i can be bothered to go out tomorow,,just something anything a glimmer to look forward to some help somewhere,,any thank you all again for your continued support it really does mean so much,,,xxdarren,,xx

[womble]

Hi Darren - you are so right to complain about the lack of treatment you are getting. That doctor needs a punch on the nose
(don't really do it Darren - just imagine it!)

I have also found it really hard to get appropriate treatment - especially CBT. I keep getting referred to "counsellors" who are very nice but are not specialised. One told me that I was obviously a little bit stressed and have I tried taking a nice long bath every evening? Must have smelt that day. But it was a serious underestimateion of how this problem affects our lives.

I cannot go further than about three miles from my home too - there must be something magical about the number 3. I think it's becuase at least with about three miles you can drive like a raving maniac to get back home while you are still panicking to sit the panic out there ( by which time it has usually gone anyway cos you're going home)

I find tho whenever I got to the doctors - everything is down to stress. I think if I went with a broken leg they would say anxiety caused it.

Darren - keep going, there are ways to live despite these attacks , we all know exactly how you are feeling. I could easily pass for a normal person if U didn't know what I am really like!

Hope to talk to you all in the chatroom - if I can ever stay awake long enough.

Take care all Debbie XXXXXXX

[Meg]

Ok Darren - Plan B

Community Psychiatric Nurse, Westlands, Wheeler Street, Hull HU 3 5 QE.

Tel: 01482 574555

Ring the above number between 9- 5 and ask to speak to one of the community nurses. It is the inpat unit so it's a bit fraught so be patient . There are CPN who will go out and do assessments on people at home throughout Hull I'm told.

They may be able to work the system back to get you referred.

You need to put in a complaint via the PCT . Number and address to follow.

Keep going - good luck





Meg

'There can only be true courage when first there is genuine fear'

Dr.David Livingstone

[imported_n/a]

thanks debbie it is really nice to know i am not on my own here ,,and will look forward to talking to you,,thanks debxxdarrenxx

[imported_n/a]

thank you again meg you really are so helpful,,unfortunatly the westlands at wheeler st is where my physciatrist is based and have seen him there on a number of occasions and he also said the same as my dr,,no facilies in hull,and he actually said see the councellor and they will refer you,,ha well that is just passing thebuck as i have already asked my councellor and she said she dosent have the authority to refer people ,,mmmmthanks again megxxdarrenxx

[Meg]

Something is very odd here .

How come your counsellor can refer you to something that supposedly doesn't exist !?

The bottom line is that everywhere within England and Wales has this facility - it's within the Clinical Service Framework and within the NICE recommendations even though the waiting time might be lengthy.




Meg

'There can only be true courage when first there is genuine fear'

Dr.David Livingstone

[twister]

Dont want to sound silly but have you thought about contacting your local councillor about the lack of mental health facilities help you are getting?

Emily

[imported_n/a]

thanks em never really thought of that i will look into it cheers emxx

[imported_n/a]

hi meg think you may of misread ,,my counceelor also says she cannot refer me,,its upto my doc ,,

[jollywalrus]

Hi Darren,
I am so sorry that you are not getting the help you need. I am very lucky where I live. We have a mental health unit with a duty psychiatric nurse. You just walk in and say "Help Please" and without a referal the nurse on duty will assess your needs. Sometimes just talking to her for an hour can relieve some of the symptoms. It's just knowing someone cares.
We all care about you Darren, you are not on your own.
Best wishes,
Christine

[stimpy]

Darren, I'm so sorry.

I bet that visit to the doctor did wonders for your self esteem.
As if you don't feel bad enough already.
Doctors are meant to help you, not make you feel worse!

I'm disgusted that a doctor can laugh at people with a disability.
Would the same doctor have laughed at you if you only had one arm or one leg?
After all Panic Disorder is a disability. A Nervous Disability, just because it doesn't show on the outside, that doesn't mean that it doesn't exsist.

That really does deserve a letter of complaint.

If you have no joy with the surgery directly, I would advice contacting NHS Direct on 0845 4647 and they will give you advice on taking the complaint to a higher authority.

100 Quid a session sounds a bit steep to me. I had private treatment and it only cost me £30.

I personally would give this lady a try:
Marie Campbell
222 Westbourne Avenue
Hull
East Yorkshire
United Kingdom HU5 3JB

01482 348714

If she can't help you, she might no someone who can.

You did the right thing sharing this with us, you shouldn't have to go through this alone.
Good Luck.


Love, light and Best wishes
Liz xxx
With hard work and determination and all the things you know.
The world is there for you to take. There's nowhere you can't go.


[:p]Scatty Eccentric & 'Poet Laureate to panic and anxiety'

[Jules31]

Darren

That dr's treatment of you was disgusting. You are right to complain. I've been in your boat when I had to see someone other than my usual dr. He implied I was making things up and told me not to go back unless I had something else wrong.

Hang in there and take the advice everyone else has suggested. I have paid £40 and £50 for CBT sessions.

We are all for you and you will get yourself sorted, eventually

Hugs
Jules

[imported_n/a]

thanks christine your thoughts are most most welcome,,you are so very lucky to have such a wonderful dr,,thanks again chris,xxdarrenxx

[imported_n/a]

thanks liz,,i will most certainatly give this lady a call,,you are right 100 quid is a little steep but can we really put a price on our health,,i am also thinking of giving hypnotherapy another go,,he said i was too anxious last time ,,but think i may give it another go cause i have chilled a little since been on this site with all you lovely people,,thanks lizxxxdarrenxx

[imported_n/a]

hey thanks jules it does see] to be getting a little easier since been on the site,,hey i wrote the letter of compaint right after walking out of the surgery,,not really a good idea cause i was still very much wound up but hey,,i still cannot believe she laughed at me and said get a taxi!!!i couldnt really understand her anyway,,foriener ,thats the polite way of putting it i guess,,thanks jules it really does mean so much that you guys are here for me,,xxxdarrenxx[8D]