meunier
06-05-12, 12:35
It is refreshing to find these groups ....
Here's my story ... Wish it wasn't .... like so many.
I don't know why this happened, but on Good Friday I had a nap and awoke to find that I had a stiff jaw and perceived that I had no sensation on the back third of my throat when swallowing. I thought I might have had - or was having a stroke - so took myself to an A&E. In the exam they could not elicit a gag on the left side. The doctor came back and said 'you have something on your brain stem' Very comforting. The weekend was utter agony. Couldn't concentrate. Went to my GP on the Tuesday who elevated the matter so I could see a neurologist. In the meantime I had a private brain stem MRI. Came back completely normal. Went to neurologist appointment and she assured me that I didn't have MS (which is what my GP had suggested might be the case) and elicited a gag on both sides. Now have the sensation on right side of throat back ...
BUT two weeks ago yesterday I started to feeling muscle tightness/spasms in my arms. As if my muscles were being strangled. That moved to my thighs. Even showed my flatmate my muscles pulsating beneath the skin just to reassure myself it wasn't in my head. Have had pins and needles - I sense around my ankles. In the mornings I always awake with some sort of numbness and dry mouth. Had blood tests and my Vitamin D rating came back with a 'insufficiency' - e.g. 32 - as opposed to an outright deficiency. On my GP's instruction I have started taking supplements. Don't know how long this takes to kick in.
Decided to have second MRI on brain - just to put my own mind to rest. Did so last week. Don't think the neuro-radiologist EVEN LOOKED AT IT. Came back with the same report about the para-nasal pathways being clear ... Those pathways are in the brian stem NOT IN THE BRAIN. Feel totally fobbed off and resent having paid for it.
This has led to another weekend of anxiety. Now I feel as if the bone in my right buttock is stiffened ... but I am trying to ignore this ...
Perhaps writing this will help me. Blessedly I can still type .... even though my fingers can sometimes feel week.
Is this ALL in my head??????? I am willing to consider the possibility ...
One thing I DO know ... I wish it would all JUST GO AWAY ...
Whatever else, here at least you are you are not alone ...
Thanks so for that !!!!
Here's my story ... Wish it wasn't .... like so many.
I don't know why this happened, but on Good Friday I had a nap and awoke to find that I had a stiff jaw and perceived that I had no sensation on the back third of my throat when swallowing. I thought I might have had - or was having a stroke - so took myself to an A&E. In the exam they could not elicit a gag on the left side. The doctor came back and said 'you have something on your brain stem' Very comforting. The weekend was utter agony. Couldn't concentrate. Went to my GP on the Tuesday who elevated the matter so I could see a neurologist. In the meantime I had a private brain stem MRI. Came back completely normal. Went to neurologist appointment and she assured me that I didn't have MS (which is what my GP had suggested might be the case) and elicited a gag on both sides. Now have the sensation on right side of throat back ...
BUT two weeks ago yesterday I started to feeling muscle tightness/spasms in my arms. As if my muscles were being strangled. That moved to my thighs. Even showed my flatmate my muscles pulsating beneath the skin just to reassure myself it wasn't in my head. Have had pins and needles - I sense around my ankles. In the mornings I always awake with some sort of numbness and dry mouth. Had blood tests and my Vitamin D rating came back with a 'insufficiency' - e.g. 32 - as opposed to an outright deficiency. On my GP's instruction I have started taking supplements. Don't know how long this takes to kick in.
Decided to have second MRI on brain - just to put my own mind to rest. Did so last week. Don't think the neuro-radiologist EVEN LOOKED AT IT. Came back with the same report about the para-nasal pathways being clear ... Those pathways are in the brian stem NOT IN THE BRAIN. Feel totally fobbed off and resent having paid for it.
This has led to another weekend of anxiety. Now I feel as if the bone in my right buttock is stiffened ... but I am trying to ignore this ...
Perhaps writing this will help me. Blessedly I can still type .... even though my fingers can sometimes feel week.
Is this ALL in my head??????? I am willing to consider the possibility ...
One thing I DO know ... I wish it would all JUST GO AWAY ...
Whatever else, here at least you are you are not alone ...
Thanks so for that !!!!