View Full Version : Worrying about my son
My oldest son (25) has not been well for a couple pf months and the doctor has been treating him for labrynthitis. He saw an ENT specialist today and was told that he does not have labrynthitis and has referred him to a neurologist. He will see the neurologist on Thursday. Since he told me I have started to feel really anxious and panicking :weep: I know know one can give me answers but I just wanted to share it with someone.
:hugs: Annie.
I know you said he doesn't have it, but what is Labyrinthitis, if you don't mind me asking?
Annie this is good news, I have been dizzy since June and am finally seeing ent next month, I bet your son can't wait to get to the bottom of it. Sadly a huge amount of dizzy people never get a diagnosis in the end it's just something you need to live with till it goes. Try not to worry xxx
---------- Post added at 18:00 ---------- Previous post was at 17:59 ----------
It's an infection in the middle ear, they treated me for it too for 3 months!!!! X
:hugs: Annie.
I know you said he doesn't have it, but what is Labyrinthitis, if you don't mind me asking?
I have probably spelt it wrong but it is something to do with the middle ear. He hasn't been able to go out or drive the car for a few months now and is hardly able to do anything because he is so dizzy all the time.
---------- Post added at 18:04 ---------- Previous post was at 18:02 ----------
I worry enough when it is me ill but I would rather be ill myself than have my kids ill. I just don't know what it could be and don't really want to look so will have to stay calm until Thursday.
Oh it's an ear thing then? My Dad has had problems with his ears since he was a young boy, and been to the Dr & hospital loads (and I mean loads) of times but they've never been able to give him a definitive answer (he gets dizzy often, can't go up high/on a flight etc. and gets pain in his ears). He finally had enough recently and paid to see a private Audiologist. She told him that his problems are all due to him having (and I quote!) "the ear canals of a 6 month old baby" lol Apparently the inner parts of his ear are so narrow that she had to use a baby's instrument to look at them, and she said that this is definitely contributing to his problems, as they're getting so easily blocked up. He's now waiting for (another) referral to EENT at the hospital.
I hope your dad gets sorted now they know what it is, it is awful waiting for appointments.
Labs is hard to diagnose, in fact i dont think there is an actual test for it, there are several versions of inner ear problems, there is also something which is similiar to being on a ship, cant remember the name but it makes you feel like you're swaying. Inner ear problems affect the balance and its not nice. Dont let it worry you as a lot of the time dizziness comes and goes by itself.
Yes, poor thing. I think between his infantile ears and his obnoxious gallbladder he's had enough of hospitals this year, lol.
Incidentally, I saw a piece on Embarrassing Bodies recently where a woman who was dizzy all the time saw a Neurologist. The tests all seemed very innocent, and nothing to be concerned over. Fingers & toes crossed for you & your son :)
Labs is hard to diagnose, in fact i dont think there is an actual test for it, there are several versions of inner ear problems, there is also something which is similiar to being on a ship, cant remember the name but it makes you feel like you're swaying. Inner ear problems affect the balance and its not nice. Dont let it worry you as a lot of the time dizziness comes and goes by itself.
He actually said that he feels like he is walking on a ship all the time but the ENT said it isn't an ENT problem and wants him to see a neurologist.
I think that is just the next step Annie, it's called passing the buck, or patient in this case! I saw that embarrassing bodies too, sometimes you just have to put up with it I suppose till it gets better x
He was fed up with the doctor so they actually paid for the consultation with the ENT to try to get things sorted. He is worried about his job with being off so much.
paranoidtree
22-10-12, 18:25
oh Annie, i'm sorry to hear you are worried but hopefully your son will get some answers and you can relax. :hugs:
oh Annie, i'm sorry to hear you are worried but hopefully your son will get some answers and you can relax. :hugs:
Thank you :)
Edward_1980
22-10-12, 18:49
Very sorry Annie. I'll be thinking of both you and your son :hugs:
Very sorry Annie. I'll be thinking of both you and your son :hugs:
Thank you Edward :)
Hi Annie Have just read your post. Try not to worry - my mother in law and sister in law both have problems with dizzyness and they have both had lots of medical investigations - it takes so long and the majority of the time, its just a process of elimination. I'm sure your son will be ok - dizzyness/balance problems are so common, I have vertigo all the time. My son has a chronic medical condition and its so worrying but somehow I find the strength to cope - its not easy being a mum!
I had Labyrinthitis years ago, I was always feeling out of balance couldnt go to work or do anything I was home for months, went to the doctor,sent me to the eye ear hospital they though it was just wax, got the ears cleaned out still didnt improve, took months to go away.. I still get it on and off its a horrible feeling like you are swaying like on a ship I have always suffered with my ears.. Good luck with the tests....
Thank you everyone for your replies, will let you know what happens when he sees the neurologist x
MRS STRESS ED
23-10-12, 11:11
sorry to here your son isnt to well ,hope everything turns out okay ,love to you both Annie xxxxxxxxxxxxxxxxxxx Jude :hugs:
Thank you Jude. I didn't get much sleep last night, things always seem worse during the night xxxx
Edward_1980
23-10-12, 11:15
Sorry you didn't get much sleep Annie. I know that when things worry us they always seem to be worse at night because we are in bed thinking all the time. Chin up if you can and hopefully all will become clear soon :hugs:
MRS STRESS ED
23-10-12, 11:17
I no what you mean Annie nights always bad I think we have to much time to overthink things ,but please god everything will be okay xxxxxxxxxxxxxxxxxxxxxxxx:hugs: Jude
Today is the day my son sees the neurologist. I woke up in a panic this morning, my eyes are all hazy and I just feel like crying.
Still no further forward, waiting for a scan in the next few weeks. I called my doctor because I was so anxious and he said to try not to worry because they would have sent him for a scan straight away and not put him on the waiting list if they thought it was serious. Still doesn't stop me being anxious though.
MissHDynamite
26-10-12, 18:50
No point in me telling you not to worry because you wouldn't be a loving mum if you didn't :)
I am sure he will be fine.. so keep positive xx
I am worrying more than he is! I offered to pay for the scan for him but he said he will wait for the appointment. I know he is saying that though because he knows I can't really afford it but I would rather do without anything for me to know that he is ok.
MissHDynamite
26-10-12, 19:01
Yes, I can understand that. To be honest, as a mum, I would do the same and especially if it helps to ease your stress too :)
Tell him your doing it and that's that! lol xx They are never too old to do as they are told.. that's what I tell my nearly 21 year old :D x
My Mum gives me her best "Mum look" when I try to refuse offers of help. I feel bad that I'm 30, married and still (occasionally) have my parents paying for things for me, but their perspective is that they're still my parents, no matter how old I get!
Mine is 25 and married :) Doesn't stop me worrying about him though :D
---------- Post added at 19:06 ---------- Previous post was at 19:04 ----------
My parents are still the same with me and I'm 54!!
I think the thing with parents (and correct me if I'm wrong ladies) is that unlike you yourself, they remember well when you were a tiny helpless bundle who needed them for everything. They still see that bundle in you, and their instinct to protect it never really goes away.
If I'm walking with my Dad for instance, he still automatically shifts around as we walk so he's always on the side of the path nearest the street, so that if there were to be an accident he would take the hit before me :wub:
MissHDynamite
26-10-12, 19:11
See, we're all the same.. if we've got it, they can have it. And I am 47 and on Monday my dad is coming over to see me.. he tells me he is going to cover my bills for the next month so I can get back on my feet.. bless him :). Age doesn't come into it when your a parent x
Hope everything is ok with your son Annie!! XX
MissHDynamite
26-10-12, 19:17
lol.. we're all the same.. if we've got it, thay can have it :)
I am 47 and been informed by my dad today that he is coming on Monday to give me the money to cover my bills for the next month so I can get on my feet.. bless him :) Age doesn't come into it when your a parent xx
---------- Post added at 19:17 ---------- Previous post was at 19:16 ----------
oops.. did that post twice lol
Thank you for your kind words everyone :) xx
I have just been talking to my son and he has his scan tomorrow so hoping everything will be okay.
---------- Post added at 12:58 ---------- Previous post was at 12:53 ----------
He is having 2 scans, 1 on his brain and another on some other part of his nervous system.
Annie
I know how you are feeling having just gone through the same with my daughter. let's all hope for a positive result xx
Ricardo, I am sure if I could know that my son was fine and you with your daughter then you and I would start to feel much better ourselves. It is so hard being a parent and seeing your children suffer. The difficult part for both of us is that we don't know what is causing the problems with our children. I hope that something will be found to help both my son and your daughter to be well again. xx
AWWW Annie my oldest son is 25 also, and I would be freaking out, just as you are. (you have every reason, that is your little peanut) Even if he was 100, you will still be standing by his side. We live for our children, and the rule is nothing can happen to them. I will send you a huge hug :bighug1: to let me know you are both in my thoughts, and I will anxiously be waiting over here to know that he is fine. (I know in my heart, he will do just fine) The wait is the worse. It sounds like you have raised such, a nice, strong, son, and I wouldn't expect anything else from you Annie, you are one of the kindest people I know. (he's gonna do great) My father-in-law has what they call Vertigo, and it has to do with the inner ear. (same symptoms, as your son) He loses his balance, at times, kinda sways to one side, or the other. Dizzy, really gets in the way of everyday life. They do have medicine that helps a lot. (and the good news is, he's fine) My heart breaks for you, you are not going to feel better, until you get to the bottom of this. I am over here waiting, and thinking of you both.:bighug1::bighug1::bighug1::bighug1: Debbi
Thank you so much Debbi for your kind words, they mean a lot to me :bighug1: xx
Dafyddjohndavies
09-11-12, 14:30
Hi Annie,
Thought I would add to this thread as i am not far off your sons age (28) and I too suffer with dizziness and about am currently booked in to see the ENT.
I've suffered from this since I was 22 and it has come and gone. I believe I'm suffering from Meniers Disease and hope to get a diagnosis soon. My mum sounds exactly like you, she is very anxious and has bad anxiety issues. She and I have been taking a herb called Rhodiola Rosea and it has really really helped her anxiety issues. She says that the voice in her head has finally shut up and she can now deal with things like a "normal" person. The change in her has been impressive. Maybe this would be of benefit to you?
As for worrying about your son, there's nothing I can say to help you other than if it was really serious then he would not be the one comforting you? He would be in hospital, or on the fast track to results. The majority of dizzyness cases resolve themselves eventually and those that don't have some successfull treatments.
Just out of curiosity, does he feel a fullness in one year? And also does one ear feel a little bit deafer than the other?
---------- Post added at 14:30 ---------- Previous post was at 14:26 ----------
Also to add to what i've written above..
Do you suffer from dizziness/vertigo type symptoms? It took me a long time to realise it was an inner ear problem causing my anxiety/panic issues and thought my symptoms were from anxiety rather than from something physical. Meniers Disease is hereditary, but not life threatening and very manageable.
You may well be suffering the same as him but unaware? (I don't know the details of your anxiety though so this is a stab in the dark)
Hello Annie
You may remember that I too have anxieties over my son so I completely understand what you are going through. We are having a really bad time of it at the present and waiting for some results. It is only natural you feel the way you do because you are his mum and dont want them to go through anything. I hope he gets on ok and really wish you well. My mother in law has menieres and I know she had to have loads of scans/tests before it was diagnosed so a lot of the time its a process of elimination. If it is menieres, it is manageable and he will be able to get on with his life which is ultimately what you want for him I know. Good luck and best wishes. xx
He has seen and ENT specialist and it is nothing to do with his ears. I don't really know anything about menieres.
Louise I do remember about your son and it is so difficult and worrying waiting for results. :hugs: x
My son had the scans this morning and the neurologist will contact him sometime this week for the results...more waiting!
Annie,
What was the scan, like my daughter's a full head scan I presume.
Did they blood tests as well
They did an MRI scan on his head. I think he has already had blood tests.
starlight78
10-11-12, 18:00
Oh Annie, how worrying for you. Thinking of you and sending you lots of good wishes x x
Thank you Starlight :) xx
Annie I will anxiously wait here with you! (I know the wait is the hardest part) Especially for the mom/mum. We are supposed to fix everything, and when we can't we go crazy!:)
Annie I will anxiously wait here with you! (I know the wait is the hardest part) Especially for the mom/mum. We are supposed to fix everything, and when we can't we go crazy!:)
Thank you, I appreciate your support so much :)
let us know as soon as you hear something, i hope for the best possible result :hugs::hugs:
He said he will hear from the neurologist some time this week. I have asked him to let me know as soon as he does. He didn't let me know when he got the scan date and I found out from someone else. He said he didn't tell me because he knew I would worry SO I told him I worry more when I don't know! XX
He said he will hear from the neurologist some time this week. I have asked him to let me know as soon as he does. He didn't let me know when he got the scan date and I found out from someone else. He said he didn't tell me because he knew I would worry SO I told him I worry more when I don't know! XX
Know the feeling Annie, so many of us have the same thought pattern
If I don't have anything to worry about, I worry that I am not worrying!! :)
tell me about it. I went out today,first time in 7 months bar the doctors and dentists. Couldn't stop hyper ventilating,despite being drugged up,but I did it.
Well done on doing it..that is a positive and a big step forward :yesyes:
Just checking on you Annie, wanted to see if you heard any news. (no news is good news) that's what everyone tells me anyway. They say if it was really bad, they would have contacted you really fast. I hope this holds true. Please let me know. Really keeping you in my thoughts. :hugs:Debbi
I haven't heard anything yet Debbi. My husband is working near where my son lives this week and will go to see him tonight. (I live NE England, My son lives SE England) I am hoping he will hear something today. If it isn't good though I think they won't tell me until my husband is home. x
Hi Annie - I'm sure everything will be ok for your son but I understand how anxious you must be. Not knowing is the worst. I'm certain if something was wrong you would know by now so that's a positive. Sending big hugs. xx
He just has the scan on Saturday, but now I am worried that he might know but isn't telling me until he sees his Dad :doh: x
:hugs::hugs:You are strong, you will get through this! I can't imagine how difficult the waiting is.
I spoke to him on the phone this morning and he said they told him he would hear after Tuesday...well it is after Tuesday now...he said he will let me know as soon as he hears. x
Annie doing my daily check in, nothing yet? (you must be a nervous wreck my friend) I can't wait until this is over for you. Please let us know as soon as you can. I will be checking in, keeping my fingers crossed, you get great news soon. (really, really, really, soon!) :hugs:
No nothing yet :( Hopefully tomorrow. Thank you for your support, I appreciate it xx
Awww Annie, I will support you anytime. I know how strong anxiety feelings are, and they are not pleasant by no means. As a mom/mum of 4 I can relate to you so much. We are supposed to be able to fix every boo-boo they get, and boy if we can't we are a mess. I will stick by you, as long as you need me too. Our times are so different(5:00 now, just came in from work, what time is it for you?) but I will always get back to you, and if you can't sleep, I'm up, that's a plus. So I am here all hours for you. :)
10 pm here. I am already in bed and just watching the news before I go to sleep. I will let you know as soon as I hear anything. My youngest son called me this morning to tell me he is having problems with his jaw aching all the time (22 and still calls Mom) I told him to see his dentist as I think he has an undershot jaw and may need a shield over his bottom set of teeth to correct it. Always something when you have kids! xx
Hi Annie
Just to let you know that I am thinking about you as you have been so kind to me over the problems I have been having with mine. I sincerely hope you get good news xx
You do make me laugh,(and you are so right) my daughter called this morning, "I slept wrong, and my neck hurts, do you think something is wrong? Lol (apple didn't fall to far from the tree) Wonder were she gets it!:D Get some sleep my friend, hope this is over for you tomm. Nighty night. sleep tight.
Hi Annie
Just to let you know that I am thinking about you as you have been so kind to me over the problems I have been having with mine. I sincerely hope you get good news xx
Thank you Louise, I am always here if you need to chat:hugs: x
My daughter lived in Canada for a year and she used to phone to tell me every time she didn't feel well. I hope I can sleep tonight...Now you will think I am crazy if I tell you what I was dreaming about last night! I was dreaming I was in an English exam and had to write an essay on a football match! I woke up and was thinking so much about what to put in the essay that I couldn't get back to sleep! Why was I still worrying about an essay in a dream when I had woken up!! :roflmao:
Lol, Annie you are a piece of work, they broke the mold after they made you, you are one of a kind! (always good for a smile) :roflmao:
Lol, Annie you are a piece of work, they broke the mold after they made you, you are one of a kind! (always good for a smile) :roflmao:
Do you know one of our neighbours said the same thing to me when I was just 19! :D
Well I am off to sleep now..I hope I don't end up writing any more essays tonight...night night :)
Latest news is that my son has to wait for an appointment to get his results. :(
Gosh, they're really stringing it out aren't they Annie? Poor you :(
I know and that is with him going private! I dread to think how long it would have been if we had waited for a NHS referral. Luckily his work insurance will pay for it. x
Awwwwwww Annie, I feel so sorry.:weep: Why do they do that! :mad: hang in there, you will know something soon. (any essay's last night?)
Awwwwwww Annie, I feel so sorry.:weep: Why do they do that! :mad: hang in there, you will know something soon. (any essay's last night?)
No essays last night but that may be because I didn't sleep long enough to dream about anything, I just couldn't sleep last night. I spoke to my son on skype and he seems really cheerful, he never worries about things, doesn't take after me at all!:D He said he will call me as soon as he hears anything. xx
My son has heard from the neurologist and there was nothing on the scan to worry about but is did show some irritation in the inner ear which was probably from a viral infection. He has been given some exercises to do to help his balance. Just hope he starts to improve quickly. :)
At last some good news Annie, he will be fine.
It is good news Ricardo, I just hope he will be well enough to return to work soon.
Oh that must be a weight off your mind Annie - I know it's a weight off mine! :D
Thank you Leah and Laura xxxx
Laura how are you today? Did you manage to speak to the nurse?
Yea Annie I did thanks. She could only tell me so much, dad has to give permission first. But the long and short of it is that the cancer is scattered and not contained, that's why they can't operate. Just upped my meds tiday, feel so overwhelmed tiday so decided I needed to just up them and get on with it, but now I am terrified of feeling worse than I do right now :( xx
Annie that is great news!!! I am so happy for you and your son.
Annie that is great news!!! I am so happy for you and your son.
Thank you..I just hope he starts to improve quickly so that he can get around without feeling like he is on a rocking ship!! He is also getting lots of motion sickness when travelling which he has never ever suffered from before. Loves theme parks and rollercoasters! :roflmao: He was on a big rollercoaster once (shouldn't really laugh!) and he and his wife got hit by a duck! Well it hit the person in front and then them, they were covered in ducks blood and guts and when they got off they went to tell someone and they didn't even offer them any help at all! It has put me of rollercoasters not that I really liked them in the first place!
You sound a lot brighter today Annie, that's good.
You sound a lot brighter today Annie, that's good.
Apart from not much sleep and a bad headache :) I am going to try to drive to the supermarket now :ohmy:
Good luck Annie. Do you want to do my shopping while you're there? :winks:
Oh No..I was feeling better but the supermarket trip was a total disaster! I managed to drive there but then half way round the store, hubby realises he has left his wallet at home. he leaves me to go home for wallet. I suddenly started to get anxious feeling faint, managed to get every thing we needed but feeling very tearful...didn't have my bottle of water with me, more panic. Hubby got back to the shop I burst into tears, got the car keys off him and fled to the car. back home, can't stop shaking and crying. Going to have a cup of chamomile tea to see if that can calm me down. At the moment I don't think I ever want to go in a shop again but I guess as a positive I did stay in the shop until hubby got back (mainly because I had nowhere to run to!!)
Annnnnnnnnie that is such good news!:D So happy for you my friend. (so happy for your son also) You both must feel so much better. :hugs:
Yes it is good news :) at least one thing I can relax about! I just hope the exercises he has been given to do will help his balance improve again x
MissHDynamite
17-11-12, 13:30
Great news Annie! Thats one thing less to worry about :D Hope he feels better soon xx
That's such good news about your son Annie. I am very pleased for you. I have been wondering whether or not he had had any results but have been unable to log in (problem with our internet connection at home which is such a nuisance).
That's such good news about your son Annie. I am very pleased for you. I have been wondering whether or not he had had any results but have been unable to log in (problem with our internet connection at home which is such a nuisance).
Thank you Louise x
Still so happy for you, and your son!!!!!!!!!! :D
So after all this time, my son and his wife have arrived home for Christmas and my son has told me the truth..he wanted to tell me face to face and not on the phone. The scan showed that he has Chiari malformation type 1 and told me not to worry, but now I am worried. He said he is fine but has to have a yearly scan to check that there are no more changes. He has told me a little about it but don't know if I really took it in and don't want to ask Dr Google :(
My oldest son (25) has not been well for a couple pf months and the doctor has been treating him for labrynthitis. He saw an ENT specialist today and was told that he does not have labrynthitis and has referred him to a neurologist. He will see the neurologist on Thursday. Since he told me I have started to feel really anxious and panicking :weep: I know know one can give me answers but I just wanted to share it with someone.
hi annie i sufferd with dizzyness for over 18mths a few years back and my old doc kept saying it was the menopause or stress . but when i changed gp my new doc said that i had BVVP and referd me to ent specialist and he diognosed me with BVVP not sure if your doc has all ready rulled that out ? so just thought i would mention what i had and maybe it could be a possible cause of your sons dizzyness
hi annie i sufferd with dizzyness for over 18mths a few years back and my old doc kept saying it was the menopause or stress . but when i changed gp my new doc said that i had BVVP and referd me to ent specialist and he diognosed me with BVVP not sure if your doc has all ready rulled that out ? so just thought i would mention what i had and maybe it could be a possible cause of your sons dizzyness
My last post on this thread says what it is, he has just told me today when he and his wife arrived for Christmas. He hadn't wanted to tell me on the phone.
If you do want to read up a bit more about it Ann, the NHS website has a page on the condition which seems to explain it quite matter-of-factly. Would you like the direct link so that you don't have to go via Dr Google?
If you do want to read up a bit more about it Ann, the NHS website has a page on the condition which seems to explain it quite matter-of-factly. Would you like the direct link so that you don't have to go via Dr Google?
Yes please
Yes please
I've PM'd it to you x
I've PM'd it to you x
Thank you, I have read it and will try not to worry too much, I just hope it doesn't get worse as he gets older.
MissHDynamite
22-12-12, 23:32
Oh Annie.. Really sorry to hear that. I have not heard of that before so don't know what it is but I hope its nothing too serious. Please don't start worrying xx
It's not serious at the moment but the condition can get worse but they will monitor it every year x
MissHDynamite
22-12-12, 23:38
I will have a read up on it.. don't you go start worrying missus. They will keep checking up on him x
If I didn't have something to worry about I would be worrying about why I wasn't worrying! :D This is the link that explains it http://www.nhs.uk/conditions/chiari-malformation/Pages/Introduction.aspx
It is good though that they will keep checking him, I just hope he doesn't get any worse with it. x
MissHDynamite
22-12-12, 23:48
lol.. Just getting into bed now but will read up on that tomorrow.. think positive :) x
Just a follow up on this thread...My son called me to say he has had a letter from his consultant saying he wants him to have another MRI scan on his head to see how things are going. He said it would be a year and it is only a few months so should I be getting worried? :unsure: He has to go the end of this month.
---------- Post added at 23:15 ---------- Previous post was at 22:45 ----------
For those of you who don't know, he was diagnosed with Chiari Malformtion last November.
NE21 worrier
15-04-13, 23:26
Sorry to hear about your son, Annie. Hopefully this is still just a routine thing, despite the change in timescales. As MissH says, try to stay positive and not pre-judge the situation. Easier said than done, I should know!
Awwww Annie, I'm sorry you, and your son are going through this. I would also worry, and wonder. Try to look at it like this, he will be checked again, and you will know that he is doing wonderful. You will feel so much better when everything comes back good. Good luck Annie, I will be thinking of you both. :hugs:
hi annie, now this might seem stupid but i think he could be suffering from vertigo.i hope its nothing serious. its most probably something silly and very easy to sort out. i have my fingers crossed for you.x
Thanks everyone.
buckeroo..he has chairi malformation. It has already been confirmed by MRI scan but they want to check again to see if it is getting worse and that is what is worrying me.
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