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zippy
05-12-12, 17:46
I am scared once again.
I have had m.e/cfs for 11 yrs and i know all my symptoms etc. I started a week gone monday with vertigo when i tried to get up out of bed and when i sat up. I get it when i lay down and turn over and i feel off balance all day. I keep getting a pressure feeling in the side of my head. I have been panicking about brain tumors and now my right arm and leg keep feeling weak.
I have been to see 4 different gp's within 9 days who all don't seem alarmed.I have said about the brain tumor worries and they just seem to dismiss it. I don't think they realise how awful it is to suffer with anxiety and how much we worry. I have seen a gp today who said it needed looked at properly and is sending me to an ear,nose and throat specialist. I am glad but then i worry he must think it's serious because he is sending me, you can't win. I told him my worry that it's a brain tumor and he said i don't think it's that.
I will worry now until i get my apt. I am making myself ill, loose bowels,waking up early sweating, nausea, pressure in head and vertigo every time i turn my head. All these symptoms feed my fears.
I am waiting to see an immunologist too about my m.e/cfs and i worry it's progressing and this is how i am going to be now :weep:

Annie0904
05-12-12, 17:50
If he thought it was a brain tumour he wouldn't be sending you to an ear, nose and throat specialist. My son had similar symptoms and was sent to an ear, nose and throat specialist and he also paid privately to see a neurologist. He was told that he has irritation in his inner ear, I am sure yours will be something similar.

zippy
05-12-12, 17:57
Thanks annie0904. Did your son have vertigo etc? I have mild earache in my left ear as well. It's quite scary when you go to get up out of bed and the rooms spinning.

Annie0904
05-12-12, 19:21
Yes he said he felt like he was walking on a ship in a stormy sea and also felt very dizzy and headaches and earache.

zippy
05-12-12, 19:47
Thanks, his he better now?

Annie0904
05-12-12, 19:54
Not completely, it has taken a few months but he managed to walk to the doctors fine yesterday. He was also getting bad motion sickness with it but was able to travel this week. I was really worried about him for a while, thinking the worst the same as you, but we need to trust the doctors, they know a lot more about these symptoms than we do and Dr Google doesn't know anything.

zippy
05-12-12, 20:01
I know it's just hard having things wrong when you have health anxiety on top of it. I just wish i could think rationally like a normal person and not always jump to the wrong conclusions and make myself 100 times worse. I create all sorts of symptoms and then don't know what's with the original ailment :blush:
Glad he's feeling a little better.
My gp mentioned labyrinthitis and menieres or it could be a virus but you know what it's like you never believe.

Annie0904
05-12-12, 20:16
My son's doctor said labyrinthitis which effects the inner ear and causes all the balance problems and his scan confirmed it was his inner ear. He was given some sort of exercises to do. I will ask him about them when I can get hold of him (his phone is busy).

zippy
05-12-12, 20:33
Yes i have heard that there are exercises you can do but my doctor said until i know what's definitely wrong not to do them yet.

Annie0904
05-12-12, 20:36
okay..they are just eye and head movement exercises called Cawthorne-Cooksey exercises but you had better wait until your doctor says to do them.

zippy
05-12-12, 21:16
Ok thanks for that i haven't heard of those i will have a little look.

---------- Post added at 21:16 ---------- Previous post was at 21:09 ----------

I have just looked at them and they look gentle enough. I will see what i am like in the next few days and i might give them a try. Thankyou.

Annie0904
05-12-12, 21:29
I hope you start to feel better soon :hugs: