Ddcoo
09-02-13, 12:22
Hi everyone and thank you for your messages this week. I haven't been on my computer this week so sorry there was no news from me, but I am a bit better today, so thought I would fill you in on the week's news.
I felt really poorly until yesterday which I presume was as a result of the chemotherapy, it floored me. The exhaustion was something I have never experienced before. On Wednesday I needed a shower before going to Leeds for treatment, I got in the shower and couldn't stand up, I don't know where my legs went to but they deserted to me and I had to lean against the wall for support. I have now got a shower stool in case I feel like that again next time I have my chemotherapy session on 28th February. Then of course the chemo gradually destroys your blood cells as it kills off any cancer cells and takes two weeks before the good cells start to build up again and also my resistance to any bugs/germs is decreased, so I am trying to keep away from folk with coughs and colds etc.
The radiation sessions under the mask were a bit scarey this week as I haven't seen my Macmillan nurse this week, and she was so good at talking me through the session with deep breathing etc. So I had to go it alone and do the best I could to stay calm. I found myself tensing up and not breathing evenly and then I thought I was going to panic and got a jelly legged feeling while lying on the table. I have managed to get through the 5 sessions this week though and find that quite an achievement for me, and ONLY 26 MORE RADIATION TREATMENTS TO GO!
Physically OK at the moment but through starting to feel quite dry, as if you have a dry/sore throat. My neck is starting to look a bit red and feels warm, but I use Aqueous cream on it 3 times a day and I have a special bottle of Mu Guard which is like putting a teflon coating on the inside of my mouth. I rinse my mouth with salt water first, then use the mouth guard, swill it around for 2 mins then spit it out, then I leave it for an hour before I eat of drink anything. So that is the boring bit.
It is all much the same just at the moment and I am not looking forward to the rest of the treatment, BUT I am grateful for the opportunity to be cured and I must remember that it costing a fortune for all this treatment I am being given.
Just a few thanks you's to those who have left me messages this week.
To Wolfie for sending me positivity, it is so appreciated.
To Cattia who is willing me to be strong; it must be working!
To EEk who still says I am amazing, but I know I am not as my survival is the only thing that spurs me on.
To Tessar for her witting and wonderful way of writing that makes me smile and even cry attimes - keep the words coming my friend.
To Magic for the hugs - I need those.
To Anxious Gal, who expresses herself so well, I appreciate your help and tips.
Finally to Justin, who cheered me up no end to know that you have been out and WON another game of cricket, enjoyed the experience and who still hasn't died!! I don't mean that nastily Justin, you are going to live
to see a lot more cricket matches and I want to know about them all, I am so proud of you.
So there we have the week and I have worried, cried, shaken, and bumbled my way through it, and yet you still all tell me I am being brave, and I still say I am not but it is you folk that are getting me through this part of my life and as always I am so grateful to you all, and I mean it when I say if I can help anyone out there that thinks they can't cope just to contact me and if I can do it then anyone can. Love you all. Di x
I felt really poorly until yesterday which I presume was as a result of the chemotherapy, it floored me. The exhaustion was something I have never experienced before. On Wednesday I needed a shower before going to Leeds for treatment, I got in the shower and couldn't stand up, I don't know where my legs went to but they deserted to me and I had to lean against the wall for support. I have now got a shower stool in case I feel like that again next time I have my chemotherapy session on 28th February. Then of course the chemo gradually destroys your blood cells as it kills off any cancer cells and takes two weeks before the good cells start to build up again and also my resistance to any bugs/germs is decreased, so I am trying to keep away from folk with coughs and colds etc.
The radiation sessions under the mask were a bit scarey this week as I haven't seen my Macmillan nurse this week, and she was so good at talking me through the session with deep breathing etc. So I had to go it alone and do the best I could to stay calm. I found myself tensing up and not breathing evenly and then I thought I was going to panic and got a jelly legged feeling while lying on the table. I have managed to get through the 5 sessions this week though and find that quite an achievement for me, and ONLY 26 MORE RADIATION TREATMENTS TO GO!
Physically OK at the moment but through starting to feel quite dry, as if you have a dry/sore throat. My neck is starting to look a bit red and feels warm, but I use Aqueous cream on it 3 times a day and I have a special bottle of Mu Guard which is like putting a teflon coating on the inside of my mouth. I rinse my mouth with salt water first, then use the mouth guard, swill it around for 2 mins then spit it out, then I leave it for an hour before I eat of drink anything. So that is the boring bit.
It is all much the same just at the moment and I am not looking forward to the rest of the treatment, BUT I am grateful for the opportunity to be cured and I must remember that it costing a fortune for all this treatment I am being given.
Just a few thanks you's to those who have left me messages this week.
To Wolfie for sending me positivity, it is so appreciated.
To Cattia who is willing me to be strong; it must be working!
To EEk who still says I am amazing, but I know I am not as my survival is the only thing that spurs me on.
To Tessar for her witting and wonderful way of writing that makes me smile and even cry attimes - keep the words coming my friend.
To Magic for the hugs - I need those.
To Anxious Gal, who expresses herself so well, I appreciate your help and tips.
Finally to Justin, who cheered me up no end to know that you have been out and WON another game of cricket, enjoyed the experience and who still hasn't died!! I don't mean that nastily Justin, you are going to live
to see a lot more cricket matches and I want to know about them all, I am so proud of you.
So there we have the week and I have worried, cried, shaken, and bumbled my way through it, and yet you still all tell me I am being brave, and I still say I am not but it is you folk that are getting me through this part of my life and as always I am so grateful to you all, and I mean it when I say if I can help anyone out there that thinks they can't cope just to contact me and if I can do it then anyone can. Love you all. Di x