Freaked
12-06-13, 18:47
Unlike many here, I've actually been hoping for a medical diagnosis, because it's been painfully obvious I'm sick. I can no longer stand for more than two minutes or climb stairs and I've collapsed a few times. But apparently if your tests are mostly normal, docs aren't that concerned if your heart races every time you're upright or if you fall and the nurses have to catch you.
I've been pretty sure I was either dying or had a thing called postural orthostatic tachycardia syndrome. Most of the common potentially deadly conditions have been tested for, so it's hopefully pots. Problem is that most docs have never heard of it, and my cardiologist started fobbing me off once my tests were normal. I was ending up in a and e so much during bad episodes that a psychiatrist said I had a somataform disorder, which basically means that your mind creates crazy symps, which was just ridiculous as my probs started with a bad flu. Other docs said other things: post-viral fatigue, chronic fatigue syndrome. I was getting help for the extreme anxiety my symps had given me, but physically I was as bad as ever, waiting for a far off appointment with a specialist and in the meantime having all sorts of tests ordered by different people.
But today, my cardiologist called me with the results of some tests (normal thank god) and casually mentions that he thinks it's pots and is going to send out compression stockings. I could have sworn he'd never heard of it and just thought I was crazy.
FINALLY AFTER FOUR MONTHS SOME HELP :ohmy:
I've been pretty sure I was either dying or had a thing called postural orthostatic tachycardia syndrome. Most of the common potentially deadly conditions have been tested for, so it's hopefully pots. Problem is that most docs have never heard of it, and my cardiologist started fobbing me off once my tests were normal. I was ending up in a and e so much during bad episodes that a psychiatrist said I had a somataform disorder, which basically means that your mind creates crazy symps, which was just ridiculous as my probs started with a bad flu. Other docs said other things: post-viral fatigue, chronic fatigue syndrome. I was getting help for the extreme anxiety my symps had given me, but physically I was as bad as ever, waiting for a far off appointment with a specialist and in the meantime having all sorts of tests ordered by different people.
But today, my cardiologist called me with the results of some tests (normal thank god) and casually mentions that he thinks it's pots and is going to send out compression stockings. I could have sworn he'd never heard of it and just thought I was crazy.
FINALLY AFTER FOUR MONTHS SOME HELP :ohmy: