*Fallen Angel*
07-08-13, 14:19
Hello
I'm so glad I found this site, it's a godsend to find other people who understand HA. About 18 months ago I started with pulsatile tinitus in my right ear and I started feeling off balance. Referred to ENT who found nothing wrong and told me to go away and live with it. So I googled it and came up with acoustic neuroma and all sorts. I went back to the GP who said he would refer me for an MRI but I got myself so wound up that I had a tumour I ended up going privately. Good news was brain was fine but a lump was found in my neck. They didn't know what it was but thought it was benign. I was then referred to Walton Neuro Centre and 2 MRIs later they still don't know what it is. The good news is it doesn't affect me and it's not grown. However since then I have had a catalogue of things.
The ringing in my ear stopped but the dizziness didn't. Back and to to the drs, kept getting prescribed different things but nothing worked. About 8 weeks ago Dr suggested a full range of blood tests. They all came back fine except ferritin and iron. I am now being treated for iron deficient anaemia. I had a repeat blood test 2 weeks ago and the iron has come up slightly but not the ferritin. I have also had a coaelic blood test that I'm waiting the results of. I have felt so unwell and honestly thought I was going to die. But slowly I started to feel better with the iron. Except about 4 weeks ago I started getting really bad period like pain. I get ovulation pain so knew it wasn't that. Of course I googled and thought I had cyst or even ovarian cancer as I was getting bloated and comparing myself to the silent killer. So back to the drs who had a good feel of my stomach and said he felt nothing untoward and throught it might be a reaction to the iron or IBS. It did actually go for about 5 days and I thought great! But now it's back:mad: It just aches all over my abdomen from navel to tops of legs. I get lower back pain and hip pan on my left hand side. I asked Dr about a cyst but he said probably not. He wants to wait the coaelic result and take it from there. Of course I keep thinking it's O cancer or bowel cancer. I do suffer from extreme anxiety so know it could be that but it's so damn uncomfortable and sometimes painful.
My whole family are totally fed up with me and me thinking I've got cancer etc. They think I want to be ill and can't understand why I keep thinking that the next illness I get will be the bad one.
It's just so relentless. Sorry for the epic.
I'm so glad I found this site, it's a godsend to find other people who understand HA. About 18 months ago I started with pulsatile tinitus in my right ear and I started feeling off balance. Referred to ENT who found nothing wrong and told me to go away and live with it. So I googled it and came up with acoustic neuroma and all sorts. I went back to the GP who said he would refer me for an MRI but I got myself so wound up that I had a tumour I ended up going privately. Good news was brain was fine but a lump was found in my neck. They didn't know what it was but thought it was benign. I was then referred to Walton Neuro Centre and 2 MRIs later they still don't know what it is. The good news is it doesn't affect me and it's not grown. However since then I have had a catalogue of things.
The ringing in my ear stopped but the dizziness didn't. Back and to to the drs, kept getting prescribed different things but nothing worked. About 8 weeks ago Dr suggested a full range of blood tests. They all came back fine except ferritin and iron. I am now being treated for iron deficient anaemia. I had a repeat blood test 2 weeks ago and the iron has come up slightly but not the ferritin. I have also had a coaelic blood test that I'm waiting the results of. I have felt so unwell and honestly thought I was going to die. But slowly I started to feel better with the iron. Except about 4 weeks ago I started getting really bad period like pain. I get ovulation pain so knew it wasn't that. Of course I googled and thought I had cyst or even ovarian cancer as I was getting bloated and comparing myself to the silent killer. So back to the drs who had a good feel of my stomach and said he felt nothing untoward and throught it might be a reaction to the iron or IBS. It did actually go for about 5 days and I thought great! But now it's back:mad: It just aches all over my abdomen from navel to tops of legs. I get lower back pain and hip pan on my left hand side. I asked Dr about a cyst but he said probably not. He wants to wait the coaelic result and take it from there. Of course I keep thinking it's O cancer or bowel cancer. I do suffer from extreme anxiety so know it could be that but it's so damn uncomfortable and sometimes painful.
My whole family are totally fed up with me and me thinking I've got cancer etc. They think I want to be ill and can't understand why I keep thinking that the next illness I get will be the bad one.
It's just so relentless. Sorry for the epic.