No use.... I'm OCD I can't shake off my ALS fears :,-(

[panicperson]

I'm stuck in a reassurance cycle!!!
I am so convinced I have ALS. I don't want to seek GP advice as one they will dismiss it, two in scared they agree!!
Can't win either way!


Stiff neck
Twitches
Tingles in shoulder blade and legs
Cold wet sensation
Hot sensation
Slur speech
Clicking joints
Tired wrists

Cry
Cry
Cry.

I'm saying "it's anxiety related" but I don't believe myself.
Another shit night ahead

---------- Post added at 21:25 ---------- Previous post was at 20:30 ----------

:-(

[sparkle_1979]

It's good old anxiety I get all these too. I don't have als

---------- Post added at 23:19 ---------- Previous post was at 23:18 ----------

My neck clicks, knees, I twitch, burning sensation... Internal shaking..

[Rachel W]

I just want to let you know that I have OCD and also have always been a worrier. I rarely worried incessantly about my health until I found I had distortion in my eye, was told it was neurological as my retinas were healthy and it kicked off fears of MS. I thought my legs then felt weak and then I was SO stressed all the time I kept twitching.
Of course then I looked up weakness and twitching and guess what comes up? Yes, you've guessed it, ALS.

I then started to feel that my right hand felt weak and awkward, and then I started thinking about my speech and it became slurred on some words. I was getting twitches constantly, my neck felt weak, I was a wreck.

I was too afraid to go to the doctor until twitches in my hand made me so convinced that the doctor was the only choice.

My partner actually called a specialist at a hospital and got me in just two weeks later, and he happened to specialise in ALS.
He was very patient and listened to everything (he was probably in his mid to later 60s and was really great). He gave me a very thorough neurological exam and told me he was 99% sure I was fine but he would give me some tests to reassure me. This was a Monday and he actually had me go in on the Thursday as he was in the lab that day and he would do them himself which I thought was pretty amazing.

I went, the tests took about an hour. After he told me I was all clear and I was fine, I then repeated my worries about my speech and he said, "Well, I can stick the needle (that reads muscle electrical signals) in your tongue to check.". I said okay and he did and even that was fine. He made sure that I left with EVERYTHING checked as he must have realised that I would start doubting again if he didn't.

I asked him if anxiety could really cause these issues and he said something that has stuck with me: "Anxiety can do whatever it wants."

I must admit, even after this doubts started to creep back in, but eventually I was busy with other things, nothing got worse and once I started relaxing even the twitches reduced. I am a very anxious person and I still get some twitching, but now I know that they are benign, they can feel pretty nice, like a mini massage.

I also get the water feeling, but usually it feels like warm water pouring down my leg (no I am not wetting myself...LOL) and my neck also feels weak at times. Stress makes you tense up, causes nerves to get trapped or overactive, muscles get tired...so many things, but all pretty much benign.

Please let yourself get over this. You ARE fine.

[panicperson]

Thanks for your detailed reply. I am glad your ok.
I don't think I would get pass my GP to see a specialist :-/
I suppose I will just have to wait and see how I go.
It's a good pint re anxiety. It's crazy how it controls u physically and mentally.
My OCD is seeking reassurance. I haven't managed a full 7 days x

[Bigboyuk]

Thanks for your detailed reply. I am glad your ok.
I don't think I would get pass my GP to see a specialist :-/
I suppose I will just have to wait and see how I go.
It's a good pint re anxiety. It's crazy how it controls u physically and mentally.
My OCD is seeking reassurance. I haven't managed a full 7 days xUnless you ask your Gp you will never know, the good news is you can self refer to a lot MH support places, You could try Mind there are in most major towns and cities or the Wellbeing service give them a call :) ATB

[ServerError]

This thread is five years old...