Please help - mouth ulcer not healing [Archive]

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28-12-13, 09:21

**Old post - just added update at end.**

Please someone help me. I am terrified. Hear me out:

In January I woke up with intense pain in my mouth. I thought it was toothache it was so painful. I got emergency dentist app and he said it was a cut on my gum. Gave me antibiotics and away I went.

The pain went away and I forgot all about it. Until then other week which is when I put my tongue up to see it and felt the little cut.

It looks like a tiny ulcer and now I am so scared I have ca because I have the following symptoms and it's obviously been there all these months:

Ulcer that not healed
Sore neck
Sore ear
Something feels stuck at back of throat.

The little ulcer is right up top of gum and fold of the cheek.

I went to the dentist last week about it and the ulcer is so difficult to find that the dentist didn't see it. But it's definitely there. Anyway he took X-rays and said he thought it was an abscess although not certain which out of two teeth it is. So I have to get a panoramic X-ray on 31st.

Now I am very scared as I think it's maybe actually scc. I feel sick with fear.

Annie0904

28-12-13, 10:06

Dentists are well trained to detect cancer cells in the mouth so if he didnt seem worried then I wouldnt be either. He wouldnt have mentioned abcess otherwise. You say you had an ulcer last january. It could be that they are just recurring in this area for some reason such ad food catching there or something. Other symptoms could be anxiety/tension

28-12-13, 12:36

Hi

Thanks. I'm worried he didn't see it as its very awkward to see. :(

The dentist I saw in January said it was a scratch on gum not ulcer and to be honest i didnt look for it. But when I put my tongue up I feel it and that's when I looked and it's like a little ulcer.

Does mouth ca grow? It feels exactly as it did in January.

I just can stop worrying its oral ca.

---------- Post added at 12:36 ---------- Previous post was at 10:28 ----------

Anyone?

Fishmanpa

28-12-13, 14:02

From your post on Dec 2nd.

"So I had a follow up appointment with an ENT consultant about fluid in my ears.

Tests showed its clearing.

I told him I feel like something stuck near my right tOnsil and I also mentioned about the lymph nodes I can feel. He examined my neck and said he does not feel anything that shouldn't be there. He asked me to point the node out which I did and he said there was nothing to feel.

Nxt he put a camera scope into my nose and down to my throat and said everything is perfectly healthy, nothing at all wrong?!

And yet I can't stop worrying about these lymph nodes and cancer. He said he is willing to bet his mortgage that I dOnt have cancer. He said out of all the people he has seen today I am one of the healthiest.

What can someone say here that a medical professional hasn't already said? I had SCC Stage IV. In my opinion, you don't have it based on what I know of the situation. My fiance' has some of the same issues with tonsil issues and a daily allergy pill took care of it.

Positive thoughts

Pomchi

28-12-13, 14:19

Fishmanpa

28-12-13, 14:28

Hi, Fishmanpa,

I have no comment on this thread - just wanted to say it made me laugh to see you writing "my fiancée" already!

Brilliant! :D

---------- Post added at 14:19 ---------- Previous post was at 14:09 ----------

Sorry on reading that back it doesn't sound quite how I meant it to.

I mean that it's very sweet. Think I'll just shut up now

:) We've been together for 3 years, 2.5 as domestic partners. It's nice to be "formally" together in the eyes of society and for her. She's already looking at wedding dresses! *sigh* ~lol~ I'm very happy and she's ecstatic!

Positive thoughts

28-12-13, 14:33

Fishmanpa

Thanks. This mouth sore is on my gum, right hand side of back wisdom tooth. It's tucked under the cheek fold and gum line.

I didn't mention to ENT as I hadn't removers about it.

With the scope would there have been other signs?

Fishmanpa

28-12-13, 14:40

With the scope would there have been other signs?

He examined your mouth, throat and everywhere else on the oral cavity. He's a medical professional. What do you think? :)

Positive thoughts

Wanted to add: There was a member on one of the cancer forums... she was the one that prompted me to look into HA further. In a period of 6 months she saw no less than 12 different doctors, 5 dentists, had scopes, CAT and PET scans. Demanded biopsies (paid out of pocket!). She was convinced she had cancer. She complained of pain and a mouth ulcer much the same as you. There was NOTHING wrong. After the board pretty much told here there was nothing we could do for her, she eventually stopped posting. You can continue to chase your tail but if this was cancer, you would be getting pretty sick by now.

jillyb

28-12-13, 17:11

Maybe it's not an ulcer. I have a little lump on my gum and it is scar tissue from a previous infection. I was worried sick until I was told this.

29-12-13, 13:59

Thanks

Fishmanpa the ENT did not check my upper gums. This is right in the corner between my upper gum and cheek. Where my bak right wisdom tooth is.

Jilly there is a mouth ulcer there. I saw another dentist last night and she said she does not think its is cancer.

I have the X-ray on tues so will see what comes of that. Can't stop worrying I've missed this and it's too late.

Fishmanpa

29-12-13, 14:05

I'll leave you with this...

When you do finally catch your tail, I believe you'll find it's only a tail.

Positive thoughts and good luck!

29-12-13, 15:23

I'm terrified. When I pick the white stuff it's a little hole, open sore.

It's honestly been there for so long.

Althea

29-12-13, 17:23

It'll be there for longer if you pick at it. Think about what you're saying--whenever a scab is knocked or picked off there's an open sore under it, right? That's normal--and the dentist said it was fine.

26-02-17, 05:25

Update:

I'm just looking back at my old posts and just wanted to update as I know there is nothing worse when you read a post and never find out the outcome.

Anyway I hadthe panoramic X-ray. Nothing was seen, no abscess,nothing. I still did not believe it so I was referred to a specialist at the dental hospital who thoroughly checked and the conclusion is it's just my gum. There was nothing sinister. Obv I was making it sore from the constant picking and checking.

Anyway if I put my tongue to the same place now yip it still feels the same. I've had ha for over 6 years and I'm still falling for it's tricks.

Josh1234

26-02-17, 15:55

How's your ALS?

26-02-17, 16:52

How's your ALS?

lol

Well honest answer it's still a battle to accept I don't have it and that the issues I have are noticing 'normal' body sensations, anxiety, benign and post natal hormone related (I.e the foot and leg pain). But we won't get into the symptoms.

However I have come a long way. Hence being able to be at a place where I'm not posting for reassurance. I have not looked at the als forum for a few days where as normally I would look multiple times a day. I realise that whatever I'm expecting to read on the als forum is futile as it only raises my anxiety, discount any positive threads I read and anyway it's not my story. I am having more moments of clarity where I catch myself catastophising and I have a wtf kinda moment like how can I even jump to that conclusion lol. But mostly it's a battle.

I am in weekly cbt, meds working as the compulsive checking is massively reduced. It's ok though as I have been down the path to recovery before and it's ok. It's strange to describe my thinking still makes me believe I have it or before it would be cancer but I get to a place where I am able to say to an extend what will be, will be. If it happens it happens I can't change it. Then eventually as time goes on I get back to a place where ha has hardly any presence in my life. I'm a good bit away from that but still going.

Thanks for asking!

---------- Post added at 16:52 ---------- Previous post was at 16:48 ----------

In fact that's why I was looking at previous posts for years ago as I could clearly see the pattern jumping from one thing to the next. See when I looked at my posting history say nov/Dec I couldn't even make those connections. I discounted it all.

That's one of the things I miss about AZ as I used to post there tested ago and it had all my history and I always wanted to print it all out as a reminder of where my mind had been.

MyNameIsTerry

26-02-17, 17:23

There's a way to do that. Subscribe to the threads and then they will be listed in your subscribed threads function in your menu. It may not be as advanced but it's a workaround and saves applying a search.

Well done on cutting down compulsions to check those forums. The more you resist that, the more you will create extinction, what ERP is built on, and it will weaken the obsession underpinning it all.

Fishmanpa

26-02-17, 17:23

Going back and updating can actually be therapeutic as it helps you see all your fears as unwarranted and as you said, it exposes the patterns of your anxiety.

Positive thoughts

MyNameIsTerry

26-02-17, 17:24

26-02-17, 17:35

Thanks Terry I will try and figure that out I'm not too good with knowing how to do these things on forums lol.

Yes I notice a massive reduction just in the few days from not even looking at the als forum. The odd time I've considered it and rhenhave the mental discussion with myself of 'what's the point...it will only make you more anxious...etc etc lol.

---------- Post added at 17:31 ---------- Previous post was at 17:28 ----------

Going back and updating can actually be therapeutic as it helps you see all your fears as unwarranted and as you said, it exposes the patterns of your anxiety.

Positive thoughts

I know Fish and I am gobsmacked at the level of detail in which I have been fixated on the particular issue at that time. The things I note that I was noticing I could don't even notice now. It's not that things are any different it's my fixation that's shifted.

Wish I could get my AZ history now that is years and years of omg how did I think and notice these things. Well seeing I'm getting better. It's almost like I'm coming out of some sort of cloud lifting. Still worry about als tho but one day at a time lol

---------- Post added at 17:32 ---------- Previous post was at 17:31 ----------

P.s also want to thank you Fish as every single old post you have replied to me with your wisdom.

---------- Post added at 17:35 ---------- Previous post was at 17:32 ----------

There's a way to do that. Subscribe to the threads and then they will be listed in your subscribed threads function in your menu. It may not be as advanced but it's a workaround and saves applying a search.

Well done on cutting down compulsions to check those forums. The more you resist that, the more you will create extinction, what ERP is built on, and it will weaken the obsession underpinning it all.

Terry is there a way to update the start of the post so people know it's an old thread?

Just tried to edit the subject header but doesn't save the change. Would hate people to be replying to me taking time when it's not a current issue. Now my trying to do good seems to be causing more trouble:unsure:

MyNameIsTerry

26-02-17, 17:45

Yeah, that's good. My OCD was the mixed kind but compulsion was the worst part for me. I found the same. It's becomes intuitive the more you do it and one subconscious "do it" is closely followed by a "it has no point" the more you break out of compulsive activity.

I've just posted something about that on rainbow's thread about inserting activities that force you to add time to do other things in the way.

To subscribe, click on Thread Tools in your thread. It will give you options for updates too. Then you just click Quick Links at the top of the screen which has viewing them in the options.

---------- Post added at 17:45 ---------- Previous post was at 17:36 ----------

Updating the subject header just seems to change text inside threads. I think for the main title you need Admin privileges. They done it for me before no bother, I'm sure they won't mind if you ask.

Usually forums give that permission. I know they are upgrading so hopefully it will come with it.

Nic might know if there is a way to enable it? Maybe a plug in?

People have complained about the lack of follow up on this forum. Some have said they worry it means something bad did happen, which is typical anxiety thinking. They will welcome your updates.

Have a look at the Wayback Machine. It's a way to recover old webpages. SLA knows all about it. It could probably get at AZ before it was taken down. I don't know much about it's retrieval options though.

26-02-17, 17:48

Yeah, that's good. My OCD was the mixed kind but compulsion was the worst part for me. I found the same. It's becomes intuitive the more you do it and one subconscious "do it" is closely followed by a "it has no point" the more you break out of compulsive activity.

I've just posted something about that on rainbow's thread about inserting activities that force you to add time to do other things in the way.

To subscribe, click on Thread Tools in your thread. It will give you options for updates too. Then you just click Quick Links at the top of the screen which has viewing them in the options.

---------- Post added at 17:45 ---------- Previous post was at 17:36 ----------

Updating the subject header just seems to change text inside threads. I think for the main title you need Admin privileges. They done it for me before no bother, I'm sure they won't mind if you ask.

Usually forums give that permission. I know they are upgrading so hopefully it will come with it.

Nic might know if there is a way to enable it? Maybe a plug in?

Have a look at the Wayback Machine. It's a way to recover old webpages. SLA knows all about it. It could probably get at AZ before it was taken down. I don't know much about it's retrieval options though.

That's great Terry thanks. That's when I know I am starting get better when I can actually have thoughts that followit by nah it's not worth it and be able to stick to it.