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View Full Version : ALS fear back :(



RoseEve
03-01-14, 00:40
So I had this fear about 2 months ago when I first learned about this terrible disease. I thought I was over it but now my left thigh has been twitching almost constantly for 4 days. I've had muscle twitches before but never for this long. It's really concerning me because it's only in one spot although sometimes I feel like it's in a different place in my thigh. My leg also has been vibrating. I started taking zoloft about a week ago I don't know if that is causing it. Has anyone else experienced this. I'm worried about ALS or that it will never stop :(

rebeccad
03-01-14, 07:12
Hey you do not have ALS , I'm not a doctor but from my googling days twitching comes at the end if the illness and you wouldn't be able to feel it , into am twitching at the min and I have been through it many times , stress tiredness and overacting nerves are the culprit , now if I could only take my own advice lol x

cattia
03-01-14, 07:38
Yes, I agree, there are other signs of ALS that would be very, very noticable before the twitches, I'm not going to say what they are! It's one of those diseases that if you had it, you'd know something was very seriousy wrong. It's a very rare disease, twitching with anxiety is so, so common. You'll be fine!

meche
03-01-14, 09:43
I went through a phase last year of thinking I had ALS or MS. I never even knew ALS existed until Dr Google planted a very fast growing seed in my head. Suddenly I'm twitching and my muscles ache. I can laugh about it now but I spent hours hopping on one leg, jumping up stairs and testing my strength and balance because if you can do these things you don't have ALS! No wonder my muscles were aching! You'll be absolutely fine honey. Big hugs. xx

lfc65
03-01-14, 10:59
I've twitched/jolted/jerked on and off for many years. I went through a ALS phase about two years ago and did all the "tests" Meche mentioned (so glad it's not just me lol). I live in a bungalow so I used to do the stairs things at other people's houses.quite bizarre looking back......it is an incredibly rare disease. I rationalise by visualising a capacity Wembley Stadium and statistically just one person in the crowd will get it. Twitching is a very common sign of anxiety. You will be fine, honest xx

RoseEve
03-01-14, 12:53
Thank you all for your replies! I too have done all the strength tests. It's just such a terrible disease. I feel guilty for thinking I have it when people are really suffering with it.

pepsi
03-01-14, 14:17
Thats exactly how i felt but once i planted it into my head i was convinced i had it. My twitches still remain today i have buzzing in the back of my leg. My father died of parkinsons a year ago thats my fear. Im annoyed at how much these twitches are taking over .i hope yours ease perhaps a trip to thd drs mighy be helpful to you ? For me drs raises my anxiety.

Fishmanpa
03-01-14, 14:45
I know HA is tortuous and makes you think and do irrational things. I read things every day that make me go "Really?" ... Visualizing you all hopping around testing your balance and strength due to an irrational fear is another one of those moments. Rationally/statistically, you have a better chance of being hit by lighting or in a car accident than getting ALS yet you don't have an irrational fear of that.

I would think that hopping around on one foot (even in other people's homes) would be the line that was crossed in getting treatment for your HA ;)

Positive thoughts

RoseEve
03-01-14, 15:09
I'm sorry about your father Pepsi. I was just at the doctor because I thought I had a brain tumor. So I don't want to go back.

meche
03-01-14, 15:54
"I would think that hopping around on one foot (even in other people's homes) would be the line that was crossed in getting treatment for your HA ;)"

I didn't resort to that but then I didn't live in a bungalow - I had my very own set of stairs :winks:! Like I said, I can roll my eyes about it now and thinking back the whole situation was completely irrational.... but then a year ago rationality wasn't one of my better traits. My mind & body were highly anxious & very tired. Looking back I don't recognise that person because it's certainly not who I am today. It was another world to me, another existence. It will and does get better for everyone. xx

Fishmanpa
03-01-14, 16:09
"I would think that hopping around on one foot (even in other people's homes) would be the line that was crossed in getting treatment for your HA ;)"

I didn't resort to that but then I didn't live in a bungalow - I had my very own set of stairs :winks:! Like I said, I can roll my eyes about it now and thinking back the whole situation was completely irrational.... but then a year ago rationality wasn't one of my better traits. My mind & body were highly anxious & very tired. Looking back I don't recognise that person because it's certainly not who I am today. It was another world to me, another existence. It will and does get better for everyone. xx

I do know how an illness can make you a different person. My physical illness changed me during treatment to someone my fiance' didn't recognize and looking back, I didn't know who I was either. I also know mental illness changes you too as I have and currently am dealing with some depression resulting from my physical ailments and I'm not as positive as I usually am and have trouble getting motivated or enjoying the things I normally enjoy... But I never hopped around on one foot is all I'm saying... just trying to raise a smile is all ;)

meche
03-01-14, 16:28
Fishmanpa - you've really missed out. I insist you now go and hop around on one foot and jump up the stairs. It's fun! :):)
Seriously though, the power of the mind can cause us to think and act in really odd ways. Positivity was another of my failings but I carried on. Carried on with work, carried on with socialising and got on with the things I had to do. It was never easy and at times I wanted to lock myself away but I'm glad I didn't - I fear I would still be there today if I had. Hope you feel better soon. Your motivation will find you! xx

Fishmanpa
03-01-14, 16:37
Thanks Meche...

Considering what I've been through, I'm actually doing incredibly well. It's totally normal to suffer a bit of depression after a serious illness. This time, I recognized the signs and sought help. My counselor is awesome and the "perspective tuneup" is working. I think another month or so of sessions and I'll be Ok. Fortunately this time, no meds are needed. I had taken Zoloft in the past and I hated the way they made me feel.

It's encouraging to me to see so many taking control and seeking help. I know there is no "cure" but one can "heal" from anxiety. There are shining examples here on the boards. I see the positive in your posts all the time :)

Positive thoughts

PS - I'll skip on the hopping thank you and leave that to you guys! ~lol~

rebeccad
03-01-14, 17:12
I have also done the strength balance test along with other stupid things , seeing if I can walk in straight line and seeing his if I can unscrew lids over and over again it's silly now when I look back but at the time you really can't help it x

pepsi
03-01-14, 19:55
Thankyou....im interested to know what the dr said to you. Ive had a buzzing in the back of my leg all day and twitches on my scalp .