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Serenity1990
30-01-14, 12:45
Hello guys, firstly thanks for the great forum, I've been reading this site a lot over the past few weeks and it's been very helpful. I've just joined up today, and was after some opinions and experiences from others in a similar boat. Apologies this is a little long-winded, but any responses would be greatly appreciated. :)

A little bit about me, I'm a tutor/researcher and postgraduate student in economics, I have no history of anxiety or anything similar, and no current diagnosis. However I suspect I might well be suffering from something of that nature now, which is why I'd like some input and opinions from yourselves.

Until December just gone I was a picture of health, went to the gym three times a week, and had only been particularly ill once before (with biliary colic probably caused by a passing stone in early 2013). Just before christmas this changed dramatically.

I was on a short flight back from Scotland after an internship interview when I was feeling short of breath and light headed, my heart rate going very fast. I got off the plane and was in a bit of a weird state, I felt very dizzy and sat down in a coffee shop for a couple of hours, assuming it was something to do with the flight and altitude (coupled with the fact I'd been very busy recently and not sleeping well). I got myself checked out by one of the airport's first aiders, he said he thought I had some sort of virus coming on but nothing concerned him enough to want to call an ambulance, so I was sent on my way. I went home, got some sleep and was fine the next day.

About a week later I was driving up the motorway when I suddenly felt very short of breath, pressure feeling on my chest, with slight chest pain. I pulled over at the services, and I was suddenly shivering, despite the inside air temperature in the car reading 26 degrees. I managed to complete my journey and stopped off at one of the NHS drop-in centres. They were concerned as I had low blood pressure on one of the ten readings they did, so sent me to hospital to make sure I didn't have a clot or pneumothorax in my lung. After six hours of blood tests and chest X-rays, ECGs and other such things (all of which came back negative though I had a slightly raised white cell count) they decided it was probably a pleuretic pain resultant of a bad chest infection a few weeks prior, so they sent me on my way with an instruction to rest and a promise I'd feel better in 2-3 weeks. I was happy with this, and on my way. The breathless/dizzy spells

A couple of weeks later (first week of Jan) I suddenly became very dizzy and short of breath, after doing some work on the computer for a couple of hours. I got quite bad chest pain and was worried something might be happening. Palpitations started and someone called me an ambulance. The paramedics thought it was probably nothing but sent me to hospital anyway, where I had two more ECGs, blood tests (again with high WBC count) another chest X-ray, and all came back fine. They sent me on my way, but I was feeling like a bit of a hypochondriac.

It was now I was a little confused, as I felt something was seriously wrong but doctors didn't seem to agree. I was now also having aches all over my body, especially at the back of my legs. I began to consult Dr. Google, who told me I might have coronary heart or artery disease. I began to become convinced this was the case, and suddenly over dinner I had lost my appetite, became light-headed, and was struggling to swallow. The right side of my face went numb/droopy, followed by my leg and arm. I knew (not from my googling but from my first aid training years before) that this could be the sign of a stroke, and once again an ambulance was called. The paramedics didn't seem too worried but took me to hospital anyway. I was seen by an A&E doctor who thought it was possible I'd had a TIA, then seen by a stroke doctor who thought it was incredibly unlikely. I was booked in for a brain MRI which I had last week (and am still awaiting results). Something similar has happened three or four times since, all but one of them when I was worrying about what was wrong with me.

I had a (privately booked) osteopath appointment from the original pleuretic pain, which I still attended. The osteopath is excellent, we've used her for years for back pain and she was a hospital nurse for two decades. She thought the breathlessness was caused by a musculo-skeletal issue, and the rest of the issues caused by a virus which had become sub-clinical.

I also saw my GP, who asked if I was "a worrier", and said that he needed to make sure it wasn't anything to do with the brain so wait for the MRI results, but that he thought it was unlikely.

I continued to feel very achey, mostly down by right side but then all over. My right arm and leg felt weak, I was getting fasciculations all over, and burning sensations on my skin. I consulted Dr. Google again and decided I must have MS (partly due to symptoms and partly as my grandmother had it). I spent about a week in bed convinced of this beyond all doubt, and not being able to cope with the 18 week wait to see a NHS neurologist I booked a private appointment with one at a central London hospital; this guy is one of the best in his field, and a specialist in MS. He did a detailed neurological examination, took full history etc, and advised that he could't say anything 100% without an MRI (results still aren't in) but that he stongly suspected it would be either a viral or post-viral type of thing. The only abnormality he could find was a raised heart rate (over 100), where it's usually 60-65 due to the cardio I do.

The same day as that appointment, joy of joys my dad started getting very similar neurological symptoms: twitching eye, burning of the skin, along with the aches and joint pain I've been getting. At this point I realised it probably wouldn't have been MS causing my symptoms, though I was still a little concerned that I've never heard of a virus causing these sort of problems.

Now I seem to be getting a little better, and have actually managed to partially return to work this week. However I'm still getting really weird symptoms. I'm getting headaches all over my head, eye pain, occasional fasciculations, raised heart rate (especially after even mild exertion such as climbing stairs), dizziness and constipation. I'm also finding it difficult to focus my eyes on occasions, and very aware of movement in my peripheral vision. I was hoping for the MRI results today but haven't heard anything as yet. I've been worried that I've either picked up a virus when in hospital that is hiding the real underlying problem as to why I was there in the first place, or I simply have the same virus as my father but made worse (and with additional symptoms) by anxiety.

I wouldn't have considered anxiety as a potential factor before, as I'm usually a very calm person. For example, when I was doing my first degree I was also a manager at a supermarket in a slightly rough area, and occasionally had to deal with attempted armed robberies and suchlike when I was running the store and I always remained completely calm through those sort of situations. However recently I suppose I have some weird symptoms of anxiety, for instance I had to live a lengthy witness statement to a court for something a little while back and despite feeling mentally calm and collected my heart rate started going nuts as soon as I stood in the witness box. I had a similar experience the first time I had to teach a seminar to a load of undergraduates. So is it possible to have anxiety without feeling really anxious?

Apologies for rambling on, but any information, support, questions or words of wisdom would be hugely appreciated. Whatever's going on it's been going on too long now (6-7 weeks), and I'm scared I'm not going to get better!

ricardo
30-01-14, 12:57
Hi there

Firstly I must stress that we are not doctors so one can only reply to you from the detailed description you have given.

You are obviously getting more and more understandably worried but to me it maybe that you had a lingering virus yet most of your symptoms are of anxiety and once that takes over it's like an avalanche and one gets more anxious and you use the dreaded Dr.Google which most probably increases your anxiety even more that it is out of control and manifests itself with physical symptoms, which is quite normal.

Serenity1990
30-01-14, 13:08
Thanks for the reply. (Y)

I know people on here aren't qualified to give a medical diagnosis (or maybe some are, who knows!), I was more hoping others might have similar experiences and could possibly share how they've dealt with such things. :)

Annie0904
30-01-14, 15:08
A lot of your symptoms do seem to be anxiety related especially with your tests coming back okay. It might help you to read some of the links on the left which will help you to identify anxiety symptoms.

Andrash
30-01-14, 15:18
Your early symptoms do indicated something, and doctors evaluated that to be a virus. I'm not a doctor, but your later symptoms are 99% anxiety-related, as describe what almost all of the visitors of the forum feel almost down to a T.

Health, wealth and happiness, and stay of Google-googling was the only mistake you made and probably guilty for the 90% of your unpleasant sensations. :)

star68
30-01-14, 22:24
I used to travel everywhere by myself, socialize with all kinds of people, work all over the place without a problem. When I had my first panic attack my life took 360 degrees turn, and I have never been the same since. I suffered agoraphobia, panic attacks, social phobia, as a result of that I felt what they call psychosomatic symptoms meaning your symptoms mimic different illnesses that perhaps you have not got, I am always looking for reassurance from the Doctors, I always have to explain to them that certain symptoms cannot be ignored and I need to be checked out. So be patient and see what the Doctors say, I had to go to psychotherapy and find deep inside my soul what was bothering me and it does help there are times we are not conscious about what is worrying us we cannot identify it by ourselves and we need the help of a professional. Keep us posted, best of luck to you!!:bighug1:

mrdave92
30-01-14, 22:33
Your story almost matches mine down to a tee. I've seen endless doctors and still experience all the symptoms and have been told it's stress/anxiety, tough to believe when the symptoms are so real and debilitating + I haven't had an MRI but it seems to be the case. Hope you're feeling better soon

Serenity1990
31-01-14, 09:47
Thanks for the replies guys. MRI results came back completely normal, I guess I now need to find a way to sort my head out. I suppose with these sort of symptoms everyone would be a little frightened, and I think I've coped with the 10 day wait for the scan results rather well considering what the doctors were doing it to rule out.

At work we have a free counselling service; I've never used something like this before so is this something people have found helps with anxiety?

saab
31-01-14, 11:27
There are some great books out there. Claire Weeks 'Self Help for your Nerves' is a life saver, and Richard Carlson 'Stop Thinking Start Living' is a great cbt book which helps you think more logically.

Your story will be familiar to most people on here - traumatic event, accident, or illness - triggers anxiety, and even after medical issues being ruled out the anxiety persists. When you are anxious, you notice sensations in your body that you would have ignored before. You tune in to stuff that is just normal body stuff.

It does sound like something was going on at some point, like a virus, but it's great that all your test results have been good. You have to practise acceptance of your doctors reassurance.

The Insight timer app has some good guided meditations. It's free, as is Tara Brach's meditation site. They have helped me to relax.

Andrash
31-01-14, 11:29
I'd definitely go for that free counselling option-I wish I'd been lucky to have it for free. It does help-helped me quite a bit, as a matter of fact. ;)

Serenity1990
02-02-14, 19:06
Thanks for the input guys, it's really helpful.

One other question. I've been feeling a tightness in my chest, almost like a pressure, which is relieved if I pull up whatever clothing is resting on it. Is this something others have experienced?

fedup36
02-02-14, 19:28
Serenity...
You sound just like me!
I am 25 and use to be confident, happy, do a lot of things by myself and I took a complete U turn on a business trip to Japan... I kept getting this tingling all over my scalp and numbness in my face an severe vertigo spells and kept blaming it on the flight...
Anyway the dizziness got worse, I kept feeling drunk, ended up losing my appetite and lost 2 stone! Like you I feared brain tumours, strokes and MS... I ended up being sent for an mri and like you it was negative.. I also like you thought it must be a virus... However I don't think it was due to the duration of these symptoms..
I feel better now but still not 100% I still get vertigo and a weird tightness in my chest and my symptoms still vary every day... I have also seen, cardiologist and neurosurgeons as my mri showed an arachnoid cyst! And I had an ecg which showed a short PR rate.. Both are benign.
Feel free to PM me if you want to chat :)

Serenity1990
02-02-14, 20:01
Hi fedup,

Thanks for the kind offer to PM, I might take you up on it but would like to keep as much as possible to the public forum in case reading this is familiar to someone and helps them too.

I had a read through some of your threads, and it all seems remarkably familiar, especially the "wearing my shoulders as earrings" bit! So many times these past few weeks I've found myself worrying with all sorts of physical symptoms, then relax my shoulders, face, and all my limbs one by one and feel so much better. I've now been diagnosed with a "post viral inflammatory process" (which is basically what they call ME when you've not had it for six months yet), and I find this quite plausible but I suspect whatever's wrong is hugely exacerbated by worrying.

I wish I could find a way out of this cycle, it's truly horrible. :(

cattia
02-02-14, 20:25
This very much reminds me of how my own HA started when I was in my early twenties. I had a flu like virus and afterwards I got various symptoms. I can even remember what they all were now, but certainly fatigue and exhaustion, heaviness in my limbs, dizziness, racing heart, tingling were some of them. To cut a very long story short, I decided that I had ME and because of this sunk into an episode of major anxiety and depression. I didn't sleep, couldn't eat, felt awful all the time, had trouble doing even the simplest of tasks and had multiple panic attacks.
What actually saved me at the time was a Dr recognising that I had depression. I was prescribed Prozac which within four weeks had a massive impact on me and I felt so much better almost overnight. I also did CBT and counselling which both helped. If I hadn't received such great help from the Dr I believe I could have gone on for years in that state and very easily been diagnosed with ME but for me it was post viral symptoms that triggered massive anxiety and once I dealt with that my health returned. I believe that many cases of ME have their roots in physiological processes and would encourage you not to fall into an ME diagnosis without focusing primarily on your anxiety as this may very well be the thing that has caused your body to react in this way.
The other thing I did which helped more than anything, was fund a good acupuncturist who treated my physical and psychological symptoms together, helping me to understand for the first time the connection between my mind and my body.

fedup36
02-02-14, 20:36
ME hadn't even crossed my mind..
The doctors think I have Vestibular Migraines triggered by anxiety and stress...
Also they think neck and shoulder issues contribute to the dizziness and migraines...
I think that I'm stuck in a vicious circle where a migraine will cause dizziness without the headache, then this causes anxiety, which causes tension, which causes dizziness, which causes anxiety which causes a migraine and there's the circle!
I've signed up to a gym this week and I am hoping that will help :)

Serenity1990
02-02-14, 20:38
This very much reminds me of how my own HA started when I was in my early twenties. I had a flu like virus and afterwards I got various symptoms. I can even remember what they all were now, but certainly fatigue and exhaustion, heaviness in my limbs, dizziness, racing heart, tingling were some of them. To cut a very long story short, I decided that I had ME and because of this sunk into an episode of major anxiety and depression. I didn't sleep, couldn't eat, felt awful all the time, had trouble doing even the simplest of tasks and had multiple panic attacks.
What actually saved me at the time was a Dr recognising that I had depression. I was prescribed Prozac which within four weeks had a massive impact on me and I felt so much better almost overnight. I also did CBT and counselling which both helped. If I hadn't received such great help from the Dr I believe I could have gone on for years in that state and very easily been diagnosed with ME but for me it was post viral symptoms that triggered massive anxiety and once I dealt with that my health returned. I believe that many cases of ME have their roots in physiological processes and would encourage you not to fall into an ME diagnosis without focusing primarily on your anxiety as this may very well be the thing that has caused your body to react in this way.
The other thing I did which helped more than anything, was fund a good acupuncturist who treated my physical and psychological symptoms together, helping me to understand for the first time the connection between my mind and my body.

Thank you for the input. I do happen to know an excellent acupuncturist who cured my mum of asthma twenty years ago; I'll try this ASAP. :)

---------- Post added at 20:38 ---------- Previous post was at 20:36 ----------


ME hadn't even crossed my mind..
The doctors think I have Vestibular Migraines triggered by anxiety and stress...
Also they think neck and shoulder issues contribute to the dizziness and migraines...
I think that I'm stuck in a vicious circle where a migraine will cause dizziness without the headache, then this causes anxiety, which causes tension, which causes dizziness, which causes anxiety which causes a migraine and there's the circle!
I've signed up to a gym this week and I am hoping that will help :)

Are those the migraines that cause numbness on one side? One doctor said this was the likely cause to me, though this wouldn't cause any of the symptoms which have began since.

fedup36
02-02-14, 20:41
They don't necessarily cause numbness however mine cause my face to go numb, not really the rest of my body... Each person has different migraine symptoms and I have a strong family history of them, I would say anxiety is 80% of this...

Serenity1990
02-02-14, 20:45
There's no migraine history in my family, in fact I'd barely even had a headache until last month. I was getting tight band headaches as well, though my osteopath found this to be rooted in tightness in my cervical spine, and got rid of it within 24 hours.

Serenity1990
07-02-14, 11:33
My GP thinks this is all anxiety, one doctor at the hospital thinks this is all migraines, another thinks it's a post-viral thing, another suggested it may have something to do with a gallbladder thing I had a little while back.

I'm really struggling to cope now; I've gone from being a fit, healthy twenty-something to a wreck in two months. Nobody seems to know 100% what's wrong with me and nobody seems that bothered either; I really feel like I can't got on like this much longer.

Last night I was feeling relatively ok, went to bed and got tremors all over. Slept quickly, woke up at 4am with a numb left hand and jaw, which developed into a tingling left arm and then weak left side. My breathing and heart rate were normal. How the hell can that be anxiety?

HoneyLove
07-02-14, 13:50
Do you think you might be clenching your jaw or grinding your teeth in your sleep?

Serenity1990
07-02-14, 14:39
It's certainly possible, I haven't noticed due to being asleep! :D

HoneyLove
07-02-14, 15:35
Well you might wake up with jaw/face pain or headaches, sometimes wake with your jaw clenched, have tooth damage or flattened molars from grinding, have jaw issues like clicking, crunching, muscle pain, or even sinus and ear issues like tinnitus, ear fullness and dizziness. I just ask because of what you mentioned about waking with a numb jaw and arm, and also many of your other symptoms sound like a mix of TMJ and migraine (which can be triggered by TMJ).

If you have a partner you could ask them if they, or if any of your family members, have noticed it. Be aware or clenching your jaw during the day too, you may be doing it without realising it.

Serenity1990
07-02-14, 15:41
Thank you so much for the input. When you say clench do you just mean resting with upper/lower teeth together, or doing so with force?

I've always had tinnitus, my only sinus issue is a chronic post-nasal drip which I seem to have inherited from my father!

LunaLiuna
07-02-14, 15:46
I only knew I was clenching when my brother noticed me doing it in my sleep :)

It can be any movement of your jaw. Grinding, clenching and incorrect bite are all common, but are usually unconsciously done.

Serenity1990
07-02-14, 15:57
Ok thanks for that. Are there any tips on how to avoid doing this in your sleep? :)

HoneyLove
07-02-14, 16:12
Clenching doesn't need to be forceful, it can simply mean having your teeth together rather than apart which is the natural position of the jaw. The jaw muscle is very powerful and can create havoc in the body, especially if it triggers migraine symptoms.

If you think you're doing it, it might be worth looking into. The generic name for any jaw problem like this is TMJ or TMJD which is simply short for temperomandibular joint, the name of your jaw joint. If you do a little research you will find a lot of information online.

If you feel tmj may be a problem then your dentist is the first person to see. They can help you with a mouth guard or jaw exercises as first steps :)

---------- Post added at 16:12 ---------- Previous post was at 16:10 ----------

BTW post nasal drip can be caused by tmj or acid reflux issues, both worth looking into if you've not had success with normal routes if enquiry :)

Serenity1990
07-02-14, 16:26
Funnily enough I've just started taking something for acid reflux two days ago, as I've been getting all the symptoms and my doctor thinks that my original issue (which triggered anxiety) could have been caused by this.

I have actually noticed myself standing around with my jaw clenched together these past few months, have been trying to correct it purely on vanity grounds (as it makes my face look squashed).

HoneyLove
07-02-14, 17:09
Well I think you have some interesting avenues to explore there, and ones that might make a lot more sense to you than these problem being caused by purely anxiety. Of course stress and anxiety can be major parts of TMJ, migraine and acid reflux, so don't discount it altogether and be sure to work on your stress levels.

You know acid reflux can also make you grind your teeth or clench your jaw at night? The two often go hand in hand, and I've certainly noticed that my night time clenching is a whole lot worse when I have an acid tummy. I too am taking something for acid reflux at the moment, and it helps a lot.

You might also find that with the reflux medication your post nasal drip clears up. When my reflux is playing up I get a really bad post nasal drip, especially in the mornings. The acid comes up easily at night when lying down and is known to irritate the sinuses among other things. This irritation at night makes me extra sensitive to things like perfumes and dust during the day too, when I'm not on the reflux drugs it makes my allergies so much more sensitive which I guess makes sense if my nose & throat are being so irritated by acid.

Anyway, I hope all of this helps you out, it sounds like you've been though an awful time lately x

Serenity1990
07-02-14, 17:24
I knew none of this, thank you all for the info!

I'm new to all this, I've only ever really been ill once before and am new to 'anxiety'. All input is hugely appreciated! :)

HoneyLove
07-02-14, 17:27
I'm glad you've found the info helpful :) These are all problems I've had myself over the last few years, and it took me a long time to figure them all out and see how they are connected. It's great when you can recognise similar symptoms in someone else and help them out, it means you might get the right help a lot sooner than some of us did!

Serenity1990
07-02-14, 18:01
It really is appreciated, I've just been feeling so helpless recently as nobody seems to really know what's going on with me, and as long as it doesn't look like I'm going to drop dead in the next ten minutes the doctors don't seem all too bothered either. These symptoms are terrifying, I feel like I should be under 24 observation in a hospital ward not at home!