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Fishmanpa
19-03-14, 19:49
So last night I had an itch on the right side of my neck. When I scratched it I felt something hard. Seems like almost overnight a node has swollen. Unfortunately, this is not painful, rock hard and stationary and about 2cm or so. I didn't notice it before but then I'm not one to poke and prod myself.

To say I'm a bit stressed is an understatement. It could be anything but with my history, just about a year out of treatment, a 50/50 shot at this returning in the first two years, it's just a tad stressful :( I wrote my team at Johns Hopkins and they responded immediately. I have an appointment Monday the 24th with my ENT/surgeon. I'm waiting to hear if they'll want a scan or not. The immediate response and appointment just added to the stress but I'm glad I have a team like that on my side.

I was free and clear a month ago when I was scoped, poked and prodded and I know that things like this don't just "pop up" but this isn't like I asked Dr. Google or suffer with HA... I had stage IV cancer! It's got to be an infection in my jaw or ear although I have no discomfort.... Arrrgggg! You can plainly see it on the side of my neck under my right ear/jaw.

Anyway... positive thoughts and prayers appreciated. Now I'm the one on pins and needles waiting to see my ENT.

Elen
19-03-14, 19:54
So sorry to hear this.

Try not to let your mind run away worrying about the "what ifs".

Great that you have an appointment on Monday I am sure that you will be in all our thoughts until you get a diagnosis.

Would imagine that if you got the all clear so recently that chances are it is an infection of some sort.

tc

Worriedwellornot
19-03-14, 19:57
So sorry to hear this Fish. You will get through this. All our positive thoughts and wishes. You are the voice of reason on this forum. X x

LunaLiuna
19-03-14, 19:58
Praying and thinking of you Fishmanpa! There's no use speculating as you know. Stay positive :)

Jonesle
19-03-14, 20:00
As above. My thoughts are with you x

almamatters
19-03-14, 20:08
Thinking of you hoping for a positive outcome. x

LeFi_81
19-03-14, 20:20
That will keep me awake at night too :unsure: Most of us here will bounce right off earth!!!

Facts are that 1 month ago you were healthy. Second fact is that you have the best treatment this world has to offer. Third fact is you do not know what it is, so try to take it step by step.

:flowers:

Lin71
19-03-14, 20:20
Hopefully the fact that you were clear a month ago bodes well.

Sending you positive thoughts and good strong healthy vibes :)

Dying_Swan
19-03-14, 20:20
Hi Fishmanpa

Just want to send positive thoughts and best wishes your way. Will be keeping everything crossed that you get good news on Monday

xxx

JustJules
19-03-14, 20:35
Fishmanpa...so sorry to read this but hopefully you will be posting positive news on Monday evening. Will be praying for you. Take care. X

3tikes
19-03-14, 20:48
Sending you lots and lots and lots of positive thoughts.
Wishing you all the very best for Monday x

KLP
19-03-14, 20:59
Fishmanpa. Try and occupy yourself over the next few days and not let it occupy your mind, my thoughts and prayers will be very prominent and let it occupy our minds. Thinking off you buddy. Xxxxx big hug :hugs:

mummyanxious
19-03-14, 21:02
Best wishes FMP x

TooMuchToLiveFor
19-03-14, 21:13
Hey Friend,

Life sure does stay exciting, doesn't it? :huh:

Okay, you are right in that things like this DON'T just happen overnight, and the fact that you were just given the all clear such a short, short time ago does lend itself to the rational thinking that this must be infection. I would be lying if I said I didn't have knots in my stomach right now for you…., but more because I hate the fact that you are going to have to deal with the terrible anticipatory anxiety than the fact that I think it is likely to turn out to be something sinister.

You know you will be covered in love and prayers as we await hearing about your appointment on Monday. Consider checking in with the appropriate part of your team for a short script of "Mommy's Little Helpers" if you think that would help alleviate further scanxiety problems.

Huge hug from here in Kansas!

---------- Post added at 16:13 ---------- Previous post was at 16:08 ----------

Also, since you aren't a "poker" or "prodder"- is it possible that this isn't a new thing and that it was already cleared by the docs a month ago?

RoseEve
19-03-14, 21:46
Praying for you <3

Button1
19-03-14, 22:11
If you were clear a month ago, the overwhelming chances are that this is nothing more than an infection. It's perfectly possible to have symptom free bugs, I've had that myself. Stay strong and calm x

wins829
19-03-14, 22:12
You will be fine. Praying for you.

Round in circles
19-03-14, 22:19
Really hope this turns out to be nothing serious. I'm glad you have an appointment sooner rather than later Fishmanpa. Try not to keep looking at it in the mirror. I know that would freak me out even more. Sending you a hug and a 1000 piece jigsaw to keep you occupied till Monday. :hugs:

puzzledlass
19-03-14, 22:24
Of course you are in my thoughts. Keep us posted ok?

Positive Thoughts.

Fishmanpa
19-03-14, 22:27
It's funny guys and gals... I "know" all this stuff... I'm actually pretty calm considering but my body is reacting from the stress... dry mouth, a bit shaky, no appetite.... you know exactly what I'm saying because most of you have experienced the symptoms.

It would be one thing if I felt sick and had a fever etc. Having gone through this like I did with heart attacks, I know and recall vividly what the lump felt like in August 2012 when the journey started. It really does feel much the same. No other symptoms except the swollen hard node. I did notice that that back of my throat and tongue felt a bit swollen the last week or two but I've had that from the end of treatment on in varying degrees so it didn't raise any red flags.

Anyway... thank goodness for hanging around here as I recognize and acknowledge the physical ramifications of anxiety and stress eh? I just need to take my own advice and keep on thinking "It ain't cancer until they say it's cancer".

My GP prescribed some chill pills and I'll pick them up on the way home from picking up my Chiquita from work ;) If I post with a bit of punchiness, you'll know why ~lol~

Positive thoughts


Positive thoughts

cpe1978
19-03-14, 22:29
Hi Mark - I think I will just say good luck and you are in my thoughts. Even given your history, it strikes me that having been pretty robustly scanned only a month ago that your odds are good. I don't come by here so much at the moment, but you can betcha I will be back on Monday to see how you are.

If you ever need to chat give me a shout.

Tanner40
19-03-14, 22:52
Fishmanpa, you know that my thoughts, hopes and prayers will be with you from now until Monday. Here is hoping that this is nothing but an infection of some sorts. Even though you know what anxiety is like from all of us, and from your scanxiety, it is still difficult to deal with the thoughts and the anticipation.
As you say, it's not cancer until someone says it's cancer.
And that is what you have to continue to remember. If you need to talk, yell at me. I'm here and thinking of you.

Sar89
20-03-14, 00:12
Ahhh fishmanpa I'm sorry to hear ur so stressed I'm sure it is just something and nothing I always get lumps and bumps on my body they are normal part of life but with ur history I don't blame u for being scared... I'm sure it will be nothing if u was all clear a month ago cancer doesn't just appear in a month. Thoughts are with u x

LF87
20-03-14, 00:38
Hi Fishmanpa,
Just saw this post. Just a little message to say I hope everything turns out ok. I'm sure it will, having had all those checks done so recently.
Take care, you'll be in my thoughts. X

iainm
20-03-14, 00:43
hi pa so sorry to hear u could be ill again im so sure ur fine cos why would the man upstairs take a miricale from us , u have been such a help to so many on here that we couldnt be without you , you have helped me through the darkest times in my life and u have probably saved lives without even knowing it , now its our time for u , so I hope and pray that u are fine cos even when the sun is gone and its dark ur the ray of sunshine who makes this horrible illness make sense in our heads and pull us from rock bottom back up in one post, not many can do that best wishes to u sir xxxxxxxxxxxxxxxx

NotCool
20-03-14, 00:58
Hang tough and keep focus on the facts that bode into a positive outcome - first, you were clear a month ago, second, judging from your quote "I did notice that that back of my throat and tongue felt a bit swollen the last week or two but I've had that from the end of treatment on in varying degrees so it didn't raise any red flags", it seems very likely it's an aftermath of your treatment, or further adding to the thought, that it's just some kind of an infection, which brings us to the third fact - infections aren't always visible, the human body can fight infections without any visible physical symptoms, so it's entirely possible that there was something going on and you weren't even aware.

I'm not on this forum long, but I've seen how big of an impact you leave on it - you contribute the post in almost every thread, including a few of mine, always finding positive thoughts. I wish you good luck on your monday scan, and try to force on yourself this notorious positive attitude of yours until you get scan results back!

Leslie735
20-03-14, 00:58
I will keep you in my prayers! I'm sure it's just an infection or your immune system fighting off something since you just got the "all clear" a month ago. Either way, I'm sure you are worried and I don't blame you. *hugs*

anxious_thoughts
20-03-14, 01:56
Praying for you and hoping for a positive outcome xx

tracieann
20-03-14, 09:09
You are my admired and cared for on this forum Fishmanpa we are all behind you 100 percent you are in all our thoughts and prayers you are strong and will get through this God bless you gooduck Monday xx

MrAndy
20-03-14, 09:25
my thoughts and prayers are with you

HoneyLove
20-03-14, 09:30
Thinking of you Fishmanpa, I hope it turns out to be nothing xx

LE
20-03-14, 15:21
Thinking of you Fishmanpa. I hope all ok. Just hope it's a quick weekend or you so you. An see your doctor.x

Hypo
20-03-14, 16:33
Thinking of you.

Now it is your turn to lean on us xx

unsure_about_this
20-03-14, 17:47
I hope it is nothing serious.

Marie36
20-03-14, 19:50
Thinking of you..as a new member you have been so supportive whether it be by responding or seeing your responses to others..take care x

MRS STRESS ED
20-03-14, 21:24
Let's hope and pray its nothing sinister , my brother had a lump in his neck turned out to be nothing thank god wishing you the same outcome ,its hardly supprising you are having symptoms off stress given your history positive thoughts your a strong person got everything crossed for you x

Gemmal
20-03-14, 22:05
Thinking of you fishmanpa and sending you very positive thoughts !

Cú Chulainn
20-03-14, 22:10
Hi Fishmanpa

Just want to send positive thoughts and best wishes your way.
You're getting yourself tested so thats for the best and remember that because your past history the medical people are just erring on the side of caution if they send you for loads of tests

Lisa.w1979
20-03-14, 22:16
I'm new here and have never interacted with you, but you're in my thoughts and prayers.

sahara
20-03-14, 22:55
Keeping all my fingers and toes crossed for you. As you say it would be odd for it to just appear a month after the all clear. Plus we can all fight infections we aren't aware of fighting. Symptoms aren't always apparent x

bingjam
20-03-14, 22:55
You always have great answers for alot of the people on here, including me when im in a panic and your always straight to the point... so everyone on here is herr for you now :)

Hope its nothing bad and it comes round quick for you... sending you possitive thoughts.. keep us posted..
Good luck

X

Wildlife_Queen
20-03-14, 23:10
Sending lots of positive thoughts your way!! <33

TooMuchToLiveFor
21-03-14, 00:48
Hey, my friend,

Just checking back in to let you know I am thinking of you and have been praying for you throughout the day.

Are you keeping the dragon at bay?

CeeCeeCee
21-03-14, 00:55
Just saw this post Fish, I'm sure this is something unconnected, you are bound to be concerned though, try and remember that you have had the most vigorous of tests very recently and that you were actually feeling really well. You will surely be fine, just try and stay positive :-)

Fishmanpa
21-03-14, 01:20
Hi guys and gals

Thanks again for the positive thoughts. It means a lot. My GP prescribed a med for the stress (Buspirone hydrochloride 7.5mg). I started taking it last night. Don't really know if I feel anything or not.

I've had extreme whole body itchiness the last couple of nights. It's intense enough that it I awaken scratching. It's awful! I'm sure it's stress related but I've never had anything like this before. A benadryl and medicated skin cream take the edge off but barely.

So that's how it's going. The node is still swollen, hard and hasn't gone down at all. It's just wait and see. I fully expect my ENT will do a FNAB (fine needle aspiration biopsy) in the office and send me for a scan stat.

Positive thoughts

Leslie735
21-03-14, 03:11
Continued prayers!

Fishmanpa
22-03-14, 12:55
UPDATE:

I'm not a doctor but this seems to be a systemic issue. I had the node on my neck swell to epic proportions an then several others (armpit, groin) swell up as well. Accompanying this was an entire body itch that was unlike anything I've ever experienced. Hydrodortisone cream and benedryl barely took the edge off. I've had several sleepless nights due to the itching. As of this morning, it appears the nodes are not as swollen. The itch is just as annoying however and I'm bruised all over my body.

I see my ENT/Surgeon Monday so I'll get squared away there. I was due to see him in a couple months anyway. I have to head down for a swallow study, full bloods and a visit with my MO in May anyway. Such is the life of a survivor.

I'll let you know what I find out as I'd like to know what the heck has hit me. I've never experienced anything like this. Perhaps, like the gout, neuropathy and all the other side effects, this is part of the "new normal" and they'll add yet another drug to my arsenal.

Positive thoughts

almamatters
22-03-14, 12:57
I am glad you have updated your thread, I admire how you are so calm and logical about things, I truly am wishing you all the best for your appointment. :)

Tanner40
22-03-14, 12:58
Great to hear that the nodes are not quite as swollen. Maybe you will be adding something to your arsenal soon. Still thinking about you every day and you've been in my prayers.

TooMuchToLiveFor
22-03-14, 13:25
Thanks for the update, FMP! You truly have been on my mind and in my prayers off and on throughout each day.

Magic
22-03-14, 15:13
Fishmanpa, Here's thinking of you. Wishing you all the best for Tuesday xx

SarahH
22-03-14, 16:46
:hugs:How did I miss this thread :doh:....thinking of you FMP

JB1985
22-03-14, 17:23
Wishing you all the best Fishmanpa.

sahara
23-03-14, 01:13
I have been thinking about you all weekend. Hope all is good and as others say I learn so much from you. All the best for Monday x

LeFi_81
23-03-14, 20:21
Wishing you a restful night :-)

3tikes
23-03-14, 21:21
Wishing you well for tomorrow Fishmanpa x

Worriedwellornot
23-03-14, 21:43
Positive vibes FMP x

wins829
23-03-14, 21:48
Wish you the best luck for tomorrow.

angrry
23-03-14, 22:20
hi fishmanpa.....I haven't posted in a very long time...but I wanted to wish you all the best tomorrow...you will be in my thoughts....think positive

Izzytheanxietyqueen
23-03-14, 22:26
I'm sorry to hear that I hope and pray for you and positive vibes I'm sending your way xx

TooMuchToLiveFor
24-03-14, 02:21
Hey FMP-
Just letting you know I continue to pray for you, and that I will be looking to hear a good report from you tomorrow.

Sleep tight and don't let the bed bugs bite (in tribute to all of your itching!)!!

Fishmanpa
24-03-14, 13:26
Hey FMP-
Just letting you know I continue to pray for you, and that I will be looking to hear a good report from you tomorrow.

Sleep tight and don't let the bed bugs bite (in tribute to all of your itching!)!!

Thanks TooMuch :)

I actually thought that maybe a possibility but we checked thoroughly. Besides it wasn't affecting my fiance' and normally one doesn't get swollen glands. My thinking is that it some kind of viral thing. It was a pretty intense physical reaction whatever it was. We're leaving in a couple hours. I'll report back this evening.

Positive thoughts

rebeccad
24-03-14, 17:49
I'm late adding to this thread , fishmanpa you've helped me loads before and lots of other people , I've got everything crossed
For you please keep us updated , god bless x

TooMuchToLiveFor
24-03-14, 21:38
Soooo……just hanging around waiting for you to fill us in on today. :hugs:

cpe1978
24-03-14, 21:50
I know.....I am waiting to go to bed but keep checking back here for hopefully good news.

JustJules
24-03-14, 21:52
I know...I keep checking in to see if there is any news. Been thinking about him all day. Hope and pray he's okay. :unsure:

Tanner40
24-03-14, 22:09
Just checking in, as have been holding positive thoughts for you today.

claireypoo
24-03-14, 22:15
Thinking of you FMP X

sahara
24-03-14, 22:47
Hope it's going FMP, thinking of you x

---------- Post added at 22:47 ---------- Previous post was at 22:39 ----------

Going OK!! Is what I meant to say xxx

wins829
24-03-14, 23:01
Hope everything is ok. Thinking of you.

TooMuchToLiveFor
25-03-14, 01:27
Man, FMP, sure wishing you had a smart phone about now so you could update us from wherever you are. Getting a little antsy……..still praying for you and sending you loads of positive thoughts!

Fishmanpa
25-03-14, 01:32
So....... It pretty much went as I expected based on my history.

Despite the fact that the swollen node on my neck had gone down considerably and the very unusual way this all started, my ENT is very concerned. He had a CT with contrast done stat while we were there but was unable to arrange a FNAB (biopsy) of the node. He has no idea why it swelled as rapidly as it did or the reason behind the intense itching (which is finally easing).

The CT showed "thickening" and "tissue inflammation" but he thinks it could be due to whatever it was that hit me. The node itself didn't present as too concerning but they're not taking any chances. This was based on what he saw but it has to be reviewed by the CT specialists. I have to go back to Baltimore for the biopsy. Contrary to the standard mantra he said "In a situation like yours we assume it's cancer until we can prove otherwise". I appreciate their concern and thoroughness but I'm a bit in freak out mode right now :(

So I'll know in a day or so when I'm heading back down to Baltimore and until then, it's a waiting game.

Positive thoughts and prayers.

TooMuchToLiveFor
25-03-14, 01:43
Oh, Honey, I'm so sorry you are going through this right now. I want so much to tell you to focus on the positive…..I want to remind you that you do not know anything for sure yet, and that the doctors are just doing their job well…..however, until you get the all clear-- freak out mode is probably the only natural reaction. To be honest, I am very anxious for you as well, but trying to remind myself of the same things.

How is your Chiquita?

Ugh. I hate this waiting game for you……..just know as much as an online friend can be- I am here to support you. Hang in there. Deep breaths.

Tanner40
25-03-14, 02:01
Fishmanpa, been thinking about you and so damn sorry that you're going through this waiting game right now. Freak out mode would be the normality of this situation for the moment. Keep your head up and try your best to think positive thoughts. I know that im going to do just that. Praying for you and you know I'm here if there is anything I can do.

RoseEve
25-03-14, 02:05
Praying for you. Try to focus on the positive :hugs:

puzzledlass
25-03-14, 02:53
All my prayers and thoughts are coming your way. xoxoxo

paula78
25-03-14, 03:33
Sending you ((hugs)) this is awful for you, and were all thinking of you, your in my thoughts, stay focussed and keep positive were all here for you x

KLP
25-03-14, 08:02
Morning FMP,

The swelling has gone down? Which surely is a good thing.

I can understand their view point and why their on the side of caution, regarding what you've said I'm staying positive.

mummyanxious
25-03-14, 08:13
Sorry to hear this FMP but I've got my fingers and toes crossed for you!

3tikes
25-03-14, 08:42
:hugs: and positive thoughts x

Humly
25-03-14, 09:31
Sending best wishes. I hope it all turns out fine. x

wins829
25-03-14, 09:56
Hope everything come back good.

LF87
25-03-14, 10:29
Hi Fishman.
Sorry to hear you're going through this. I hope it all turns out ok. Stay positive, I'll be thinking of you.
Take care x

Lisa.w1979
25-03-14, 10:59
Thinking of you and praying you get good news, or at least no bad news. xxx

TooMuchToLiveFor
25-03-14, 11:33
FMP-
I thought about you a lot throughout the night, and once my initial anxiety settled I was able to see this situation through more positive (and maybe even rational) eyes. I agree with KLP- the swelling is down, the itching is subsiding (I think- is that right?), and the fact still stands that you had a NED just a little over a month ago. I would assume swelling would not go down if this was a cancerous gland?

The doctors are absolutely doing everything the way they should- the choice of wording of "assuming it is cancer until proven otherwise" could have maybe had better bedside verbiage, but this all still seems to presenting itself in an odd way to be some kind of reoccurrence. If you didn't have the history that you do, I am guessing this would be being handled very differently?

All I am trying to say is that the dragon has the potential to run wild here. There could not be a bigger trigger for you than the possibility of the "beast." Until you have clear facts in that direction- you need to draw on all your strength to focus only on the truth of what you know….not the "could be's."

Until there is any factual reason to think otherwise- let's focus on your mantra of positive thoughts and fill in all around them with lots of prayer. :hugs:

JustJules
25-03-14, 13:04
I too didn't sleep well last night thinking about you FMP....even thought about getting up and checking the ipad to see if you had updated us but knew I'd be even more restless then.

If anyone can get through this awful waiting and the anxiety it must be causing, then it's you, but we know you're only human too FMP and so it must be a real effort for you.

Don't get me wrong, I am the worse person in the world for fretting myself silly over symptoms and illnesses but honestly, when I read some of the posts today it makes me want to shout at everybody for only 'thinking' something could be wrong when somebody is actually going through hell for real. It certainly puts a lot of stuff into perspective for me today.

Will be praying for a positive outcome for you -:bighug1:

SarahH
25-03-14, 14:15
.....just thinking of you.... as is everyone:hugs:


sarah

Fishmanpa
25-03-14, 14:33
Thanks Everyone,

I'd be lying if I said I was Ok. That being said, there's a part of me perhaps in denial. Maybe I'm just grasping at straws...I don't know.

The whole thing from how it started until now.... The node is down even more from yesterday and I'm not itching at all. Even the swelling on the ink on my leg is almost gone. It just not behaving like it was the first time.

I appreciate my teams diligence and will follow through with the biopsy (that is if there's a node to biopsy in a few days) Regardless, it's worth the 5+ hour round trip to be told... "It's not cancer...".

I truly appreciate the outpouring of concern, positive thoughts and prayers. I'll keep you posted.

Positive thoughts

SarahH
25-03-14, 14:36
....you are an inspiration to us all FMP...xxx

Lucy11
25-03-14, 15:37
I don't post on here anymore for various reasons.....but I make an exception for you FMP!! You kindly replied to one of my posts recently when I had a bit of a rant! I am sure all will turn out to he fine for you. I will eat my daughter's guitar if I am wrong! 😊 (funny English expressions!)

Leslie735
25-03-14, 15:57
Continued prayers for you FMP! I'm sure everything will be just fine, I know it's hard to believe that right now. :hugs:

Gemmal
25-03-14, 16:33
Sorry to hear that FMP , you are In my thoughts and prayers !

Let's hope your ent is just being super super cautious and you will be fine ! Before you know it you will be using phrases such as " back in march I had a scare " and probably reassuring me that I'm fine for the 1000th time :d :d

Thinking of you lots !

Gemma

TooMuchToLiveFor
25-03-14, 16:35
Sorry to hear that FMP , you are In my thoughts and prayers !

Let's hope your ent is just being super super cautious and you will be fine ! Before you know it you will be using phrases such as " back in march I had a scare " and probably reassuring me that I'm fine for the 1000th time :d :d

Thinking of you lots !

Gemma

Love this, Gemma!!!

almamatters
25-03-14, 17:50
Thinking of you, hope that all turns out ok :) x

tracieann
25-03-14, 18:56
Fishmanpa sorry your having to go through this but glad your Ent is thorough I worked for a brilliant Ent surgeon who always erred on the side of caution hopefully all will be ok Praying for you Good luck

sahara
25-03-14, 22:56
I just have a feeling everything is good and also everything you have said sounds so positive. Surely the node wouldn't shrink. They are just being ultra cautious which is what you want. Big hugs and positive vibes xxxxx

KLP
25-03-14, 22:57
Sending positive vibes, fellow muso. Xx

LunaLiuna
25-03-14, 23:07
I'm sure they're just being cautious, I'll be praying for you here, I'm sure many others will be as well. Good luck :)

Freeky
26-03-14, 00:01
We're all behind you with support! Best of luck with the biopsy!!

HoneyLove
26-03-14, 09:36
I'm sad to hear this news FMP, but I will keep my hopes up that the biopsy will prove negative. If there's any support we can send, just say the word.

xx

BumbleGirl
26-03-14, 09:52
I'm thinking of you. Fingers crossed it is nothing serious xxx

LeFi_81
26-03-14, 15:04
There is a certain coldness to the clinical approach of medicine and science. Still, rather safe than sorry.

Even though it is a tough time, your attitude FMP, is still right. This too will go over. Making you an even stronger warrior!

Fishmanpa
26-03-14, 20:27
UPDATE:

I spoke to my ENT's office and they said I should see my GP and call back.

So I did. She has no idea what caused the node to swell and the itching etc. No one seems to know but this whole thing seems to be systemic as it's now progressed to my chest. I'm a little hoarse and my ears itch. Their best guess is "something viral". I was given an antibiotic to take anyway.

I discussed the "scanxiety" with my GP and she's not surprised at all that I have a bit. The med she gave me is one I can take whenever I feel I need it so I can start a week or so prior to check ups and go off afterwards. There are no side effects associated with it as it's not an SSRI and mild by med standards.

The good news is that the CT scan was "unremarkable" and my ENT said not to get the biopsy and to see him again in May. If the node persists or grows larger contact him but for all intents and purposes, I'm Ok for now.

Can you say ~WHEW~?

Positive thoughts

puzzledlass
26-03-14, 20:30
PHEW!

flossy74
26-03-14, 20:32
Great news so pleased for you. :-)

RVP
26-03-14, 20:36
This is great news Fish :)

Worriedwellornot
26-03-14, 20:44
Brilliant Fish!

almamatters
26-03-14, 20:45
Really pleased for you, that is great news. :)

cpe1978
26-03-14, 20:55
Firstly FMP can I just quickly say how delighted that I am that you are still NED!

Secondly, I think there is a valuable lesson in this for everyone of us here in how you have coped under some immense pressure this last week or so. My hope is that were I in a similar situation, that I would cope half as well as you have.

Great that you can now move on again - haven't you got a wedding to plan?

Fishmanpa
26-03-14, 21:00
Firstly FMP can I just quickly say how delighted that I am that you are still NED!

Secondly, I think there is a valuable lesson in this for everyone of us here in how you have coped under some immense pressure this last week or so. My hope is that were I in a similar situation, that I would cope half as well as you have.

Great that you can now move on again - haven't you got a wedding to plan?


June 7th is the day :) AND I have my first gig since cancer a week from Saturday!

Positive thoughts

angrry
26-03-14, 21:10
great news!!...very happy to read this

Lin71
26-03-14, 21:26
Hi FMP

You're a remarkable person, but for now I think we can all say congratulations on being officially 'unremarkable', yay! :yesyes:

Enjoy looking forward to your gig and of course the wedding :)
Lin x

tracieann
26-03-14, 21:27
Hey that's amazing news so glad for you Fishmanpa you are,always so caring with all of us xxx look forward to your gig it's a good focus God bless you

KLP
26-03-14, 21:35
Oh FMP..... I am bursting with joy over the good news. *punches the air with happiness

I want you to rock out on next Saturday. Woooooooo hoooooooo!

:hugs:

Ats666
26-03-14, 21:49
That's great to hear...you are a very inspirational person xx

rebeccad
26-03-14, 22:01
Omg I'm so pleased , I feel like we all know you I kept coming back to check , you've helped me so many times and I am hopefully on the road to recovery , sending big (happy) hugs x

JustJules
26-03-14, 22:02
Oh fantastic news FMP!!!! Absolutely over the moon for you....you must be doing somersaults with relief!! :yesyes::bighug1:

ady1779
26-03-14, 22:12
Yea!!! I am so happy for you!! Congrats on the upcoming wedding and gig!

Tanner40
26-03-14, 23:17
Fishmanpa, go and sing your heart out. I am beyond thrilled to hear that you have a systemic infection,
LOL.
Seriously, I am so thrilled for you and yes, you need to get cracking on that wedding.

What an inspiration you have been!

ninnie
26-03-14, 23:34
:yahoo:

LF87
26-03-14, 23:41
Aww Fishman that's excellent news! So happy for you.
Enjoy the gig! Xxx

LE
27-03-14, 00:12
Yay!!

So please for you!x

Lisa.w1979
27-03-14, 00:46
Woohoo!! Brilliant news!!

Leslie735
27-03-14, 00:47
YAY!!!! So happy to hear the news! :)

jjjh
27-03-14, 00:53
I have been lurking these boards for a bit but rarely jump in...I wanted to now to congratulate you! You are such a help to so many people, I'm thrilled for you! Enjoy your good news!

Pet59
27-03-14, 07:53
I have just logged on and read through a lot of this. What you must have been going through is unthinkable!! All I can say is thank goodness you are OK and you have been so brave and dignified and even still helping others in your own despair.
I wish you all the best.

Magic
27-03-14, 09:23
Good news fishman. Wishing all the best :yesyes::yahoo:xx

Humly
27-03-14, 09:30
I am so pleased for you. You are an inspiration x

LeFi_81
27-03-14, 09:40
You set a great example for me! I rejoice in the good news. :hugs:

Catherine S
27-03-14, 09:57
You're not drowning...only waving :byebye:

cut_out_stars
27-03-14, 10:28
I've been lurking about here recently.. keeping an eye on this thread in particular! I really didn't know what to say other than what hadn't already been said but I had to log on to say how pleased I am to read this news! What a relief this must be for you and your family :) :)

JB1985
27-03-14, 11:48
So happy to hear these great news!

Dying_Swan
27-03-14, 12:25
That's fantastic news. So pleased to hear it :)

eevee
27-03-14, 13:16
I'm new here, but have seen your encouraging posts everywhere. I'm so glad to hear the news! :D

Kirbear
27-03-14, 17:39
Keep checking back on this post and super pleased with your news :yesyes:
You appear to be the ultimate voice of reason on this site despite your own issues and for that it appears you have many fans :)

All the best for your upcoming gig!!

priestbridge
27-03-14, 23:36
Great news!

Earthmum
28-03-14, 03:21
Healing thoughts to you, !..

Fishmanpa
28-03-14, 15:05
Thanks again everyone :)

These last ten days were brutal to say the least. As I've seen so many describe, the aftermath since the relief of good news is total physical and mental exhaustion. I feel like I got hit by a truck!

It makes total sense why so many feel so physically ill all the time as you're body is on constant alert. Knowing the why's and how's as well as the how too's in dealing with this difficult time has helped me tremendously.

I've found that many survivors suffer from depression, anxiety and PTSD, sometimes manifesting itself years down the line. I'm fortunate in that for me it's mild and I have the "tools", thanks to you, to deal with it. Although my reality is somewhat different than most of you here, I do share and understand more than you might realize ;)

Positive thoughts

scrumking
28-03-14, 15:45
FMP,

You have and continue to be a great source of inspiration to me and have helped me tremendously (even though sometimes it may not seem like it to you lol) As odd as it sounds as we only communicate here I consider you a friend and mentor and am beyond glad this turned out for the good.

mummyanxious
28-03-14, 16:10
Didn't see this before, really pleased its good news :)

HoneyLove
28-03-14, 16:32
Wonderful news FMP, I think we're all breathing a sign of relief for you! :)

TooMuchToLiveFor
28-03-14, 19:41
I can honestly say my own anxiety has started lowering since reading this yesterday!!! No joke!
I agree with a previous poster (think it was scrumking) that even though we only communicate here- I consider you a friend too.

Going to be praying many prayers of thanks today. :)
So happy for you (and your Chiquita as she has been on my heart through all this)!!!

KLP
28-03-14, 20:34
I agree with a previous poster (think it was scrumking) that even though we only communicate here- I consider you a friend too.

May I second that?

Hi TMTLF :emot-wave:

anxious_thoughts
29-03-14, 01:10
Super happy to hear that, Fishmanpa! What great news :) x

sahara
29-03-14, 22:32
So happy for you :))))

Fishmanpa
29-03-14, 22:45
Again,

I'm humbled by all your support and kind words. I'm part of a few forums. The H&N cancer forums and this one. Rarely do you find such kind and supportive people on the internet.

Yes, I can call some here my friends, if even in the virtual sense. We share feelings, fears, joys and experiences in an open and honest way, publicly and privately, and it's truly a pleasure to be a part. Knowing that I'm able to help in some small way is a wonderful feeling and you (meaning all) have helped me in more ways than you know.

I stopped the meds for now as the stressful period has ended. It helped a lot to take the edge off the stress. The last couple of days I got to bed early and got some much needed sleep. I feel much better :)

Keep up the good work in healing. Download the CBT course (I actually sent the link to a couple of folks on the H&N cancer sites who suffer from "scanxiety"). It really does work but you have to work at it. Remember, anything worth having takes work. I know living with anxiety, as severe as some do, is truly not living. Know that you can get to the other side and out of the valley.

Positive thoughts

RoseEve
29-03-14, 23:12
Great news :)

Button1
30-03-14, 15:54
Fab news!

Brunette
31-03-14, 15:40
Not been by for a while but just to say that's great news FMP :)

Round in circles
05-04-14, 23:59
Really glad to hear the news Fish. Was hoping things would turn out ok for you. :)

Florance
06-04-14, 00:26
will be thinking of you and sending positive thoughts across the world to you, here's hoping its nothing to worry about x