Great Dr hasn't a clue whats wrong!

[Vigilante]

well thats where I'm at.

I have had symptoms/sensations for 2 years including and not limited to:

Headaches
Facial Pain/Sinus
Dizziness
Excessive Sweating
Excessive Salivation
Pins and Needles in Hands
Burning Sensations in Hands
Speech - tripping over words
Fatigue
Itching

Out of the 100 million blood tests I have had done the only things which keep coming back abnormal are Serum Vitamin B12 and Serum Immunoglobulin A (igA)

As of Thursdays blood test my B12 is now 4 x abnormal with the latest being 1150 on a scale of 250-660? and igA is also still abnormally high at 4.1 (no idea what scale and what units)

I have already been tested for blood cancers by a blood specialist, and deemed to be fine in that respect, the igA being polyclonal (real antibody) not monoclonal that happens in Myeloma.

The reason for the latest blood test was due to having this strange mouth symptoms come on over the past 2 weeks, which started like a virus before giving me dry mouth and facial pain, I am struggling to talk for whatever reason, my mouth feels tight my jaw aches, my gums feel irritable and the right side of my mouth feels like it sticks on my teeth when I talk.

Making me panic over neurological issues like brain tumors again.

I saw a few Drs the past week, apparently my face looks fine, no palsys or the like or so I'm told, my right saliva gland felt raised according to one Dr so he orded the blood tests and one for mumps was included although the results are not yet back on that.

I was told to contact the Dr over the results that had come back so far,

The Dr who called me back basically scrathed her head, shrugged her shoulders - well she gave many nice silent pauses before saying you was checked for blood cancers last year maybe your just abnormal with regards to the blood tests not everyones the same bla bla.

You know what I think of that? its ******** to say the least, igA happens to be your immune system doing something, wether it be against infections, cancers or even itself yet no one so far in the nhs seems to give a damn.....

I'm lost and worried sick

[chickpea]

I don't have any knowledge of blood test results and what they mean, more than being told normal or abnormal.

However, looking at the list of symptoms you give, there is nothing on there that couldn't be explained by common or garden anxiety.

I hope that gives you at least a little comfort.

[Vigilante]

hey chickpea, thanks

Yeah no doubt anxiety is playing some part in things, I always have had the tendency to jump to the worst case with any problem over the past 15 or so years, had myself dying of cancer about 100 times.

[CleverLittleViper]

I've had a lot of those symptoms with anxiety. More than likely, that is what is causing your symptoms.

Did you say your b12 levels were abnormal/low? If so, I'd recommend taking a good multivitamin, and see where you're at after that. Being low in b12 can have all kinds of nasty effects.

[chickpea]

Hey, don't beat yourself up about that - it's good that you recognise you're prone to over-worrying. Have you ever had any help with anxiety? The NMP CBT course (see the sticky red post at the top of the board) is excellent for explaining the thought processes involved in anxiety and helping overcome it - it may help you get a different perspective on your worries.

I have Crohn's and it's very common for sufferers to be deficient in B12. However, I know one poster on my support forum who has recently had readings as high as yours (so, in effect, even more abnormal) without any great concern.

Maybe your doctor just doesn't feel there' s anything to worry about, in the absence of other abnormal results or symptoms? Can you have your bloods re-tested?

[MyNameIsTerry]

It does sound frustrating. When a GP says things like "its just how you work", I tend to get suspicious of whether they know what they are talking about and I don't have HA. My GP has made similiar comments about things I've had due to anxiety such as from the grinding in my sleep and he just kept saying "people with anxiety get these issues" even when I asked him what I could do about it. I gave up and my dentist gave me far better advice from exercises for the muscles of that area to mouthguards, he even discussed whether I was under a lot of stress and relaxation techniques. My GP did none of this.

So, I can understand your frustration that they can't tell you what it means.

igA increases due to certain things, one being where it has been increased to fight infection. It would make sense anyone could be on the high side due to that but not for 2 years. I know things like this are scored to averages, like most things, but there will be a minimum & maximum range around this average (since many of us won't be spot on anyway, thats just how averages work) so maybe this is a question to ask as to whether you are outside of that expected range and if not, why.

[yenool]

This is just my opinion, but I think your symptoms are actually classic of a Vitamin B12 deficiency which are backed up by the abnormal readings. Your symptoms do match what I know to be the symptoms of a deficiency and they are within the accepted range of 110–1500 picograms per milliliter (pg/mL) but saying that please do not take this as a diagnosis as I am still not yet a qualified doctor but I think you need to ask the GP to retake the blood test, specifically testing for B12 levels and have a look at the link below, and if you do go back to the GP print it out and take it with you;


But if I am reading his post correctly he is saying his B12 is abnormally HIGH, 1150 on a range of 250 to 660.

A lot of those symptoms sound like they could be caused by anxiety to me.

[Vigilante]

Yes sorry I should have stated abnormally high not low, i was tested for it initially because of the symptoms and the possibility of them being caused by b12, its odd that it actually came out high as opposed to low.

[jonjones]

All these symptoms are due to adrenaline and tension
Headaches
Adrenaline and tension in scalp muscles
Facial Pain/Sinus
Tension, and sinus is known to be brought on by stress
Dizziness
Hyperventilating causes too much oxygen to be in blood, and also when stressed blood goes to other parts of the body away from head, s theres less oxygen and less blood in head area than normal. Its not serious but does cause dizziness.
Excessive Sweating
Your mood controls your sweat glands.The medical term for this is hyperhidrosis.
Excessive Salivation
Once again controlled by nervous system
Pins and Needles in Hands
from hyperventialting, less oxygen in blood so it become alkaline, causing pins and needles
Burning Sensations in Hands
This is caused by hyperventilating, which causes too much oxygen to enter the blood stream causing it to become too alkaline. When there isn´t enough carbon dioxide the body restricts blood flow to the extremities which results in these sensations

Speech - tripping over words
anxiety, slow down

Fatigue
adrenal fatigue, your body doesnt have enough adrenaline to combat the stress youre under
Itching
Im guessing this is due to the tingling etc making you want to itch?

Best,

Jon

[Vigilante]

Cheers Jon

You just made me think back a little because I also have high blood pressure, should have said above.

Dr Was quite concerned over it for a while, back in feb/march I had a bp of 160/115, she tested my urine 3 x and in one of those was too much adrenaline or its breakdown material.

But I'm negative for those benign tumours which can cause too much adrenaline.

So the adrenaline/stress/tension theory is most likely true.

[Cags48]

I would ask to get your bloods tested again