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View Full Version : Interstitial Cystitis or bladder cancer??



bulan
03-11-14, 18:58
Friends with Interstitial Cystitis (or bladder cancer)... I just got my urine culture test result back, showing that I don't have a UTI, but that there is still some bacteria in the urine. I certainly feel like something's wrong--mostly lots of burning in the bladder and lower pelvic area. The only time I'm not in pain is when I'm on the toilet, emptying my bladder. For that reason, I'm being sent to a Urologist.

I've done that thing I know I shouldn't do, and I've Googled bladder cancer. They say blood is almost always present in urine when someone has bladder cancer, and I was not told there was any blood in my urine. But I'm anxious nonetheless. You know how it is... once the Doctor sends me to a specialist, I begin to worry what sinister things they'll find inside me.

Does anyone happen to know what it means when a urine culture comes back negative, but there is still the presence of bacteria? And has anyone been through a cystoscopy before?

---------- Post added at 13:58 ---------- Previous post was at 13:56 ----------

I'm trying hard to remind myself that my symptoms only began when temperatures here in Canada went down and I began to get really cold feet here at home. (There's a study linking IC with cold feet here: http://www.ncbi.nlm.nih.gov/pubmed/1345322)

Then there's also the fact that I have fibromyalgia, chronic fatigue, and IBS, all of which overlap with IC. But I wonder, if I was susceptible to IC because of all these other conditions I have, then why didn't it start years ago already?

Anyway, isn't it exhausting that health anxiety makes us fear the last likely outcome and ignore the most likely explanation of our symptoms? A big part of my battle is making myself believe that the most common (and benign) explanation for my pain is probably the right one...

Still, if anyone can answer my questions above, I'd be grateful!!

Beckie4567
03-11-14, 19:51
Hi bulan I'm going thro something very simulate myself and if u ever want to chat it wud be good to talk to someone going thro same thing I had what was a uti I think which I've had 3 lots of anti biotics for but I'm left with the symptom of having to wee every hour and the pressure and aching bladder :( I too worry about lots of things I wudnt worry about bladder cancer tho as u wud of had blood in you urine test they sent to lab and obv they didn't find that other wise the doc wud of do e more tests .
I went bk to docs today and they have send I've been left with irratable bladder and have given me medication which I hope works :(

bulan
03-11-14, 20:10
I hope your new meds work too, Beckie. There was one time, about 15 years ago, when I had my first bladder infection. The symptoms returned shortly after I finished my antibiotics, but after another urine test, I was told that I did not have an infection. So I also have had the same experience as you... That's when I heard of Interstitial Cystitis for the first time, although they gave me nothing for it at that time. I simply had to live with it... so I got a remedy from our family's homeopathic doctor, which seemed to clear it up. (Although, I've heard that IC can clear up on its own too.) And I haven't had IC symptoms again until now, and boy, I had forgotten how painful it was! :/

Beckie4567
03-11-14, 20:28
Well I think I must of had an initial infection and it must of irratble my bladder I dunno I just hope these mess work it's miserable :( needing the lol all the time :( especially going out. I'm sure you've just got an irrated bladder have they not mentioned this to you x