Alice1
14-01-15, 20:44
Hello.
Thank you for reading this if you do. I've been having possibly the worst few days of my life and don't feel like I can talk to anyone.
So I finally have my echo and ECG results on paper.
There was quite a bit the cardiologist didn't think to mention and t doesn't seem like my heart is as healthy and 'fine' as they say it is. I don't understand why they discharged me.
I feel like either they have ignored the results in front of them because I am young or they are just waiting for my condition to get worse and more severe symptoms to develop and will deal with that then.
The first thing was that the technical quality of the echo was 'fair' and 'poor'. Seeing as they estimate a lot of the values using equations, a poor quality image doesn't correlate with accurate estimates, apparently this might have been because I was tall and slim, hence the echo was challenging.
So my echo showed, most worrying to me, at least, but something they didn't EVEN mention; 'borderline elevated pulmonary artery pressure'. Pulmonary hypertension is serious business. People die so quickly (most untreated within 3 years and it just gets worse and worse until you get heart failure and lung problems and you die), as their symptoms just get worse and worse and there's no cure.
It states borderline PAP on my echo, however the values written down are 31-36mmHg.
Everything online states the threshold for normal is less than 25mmHg and the threshold for pulmonary hypertension should be low, especially since I'm 19.
I've been getting a lot of pain in my left arm and left side of my chest below my collar bone. it feels dull and achy and a bit like squeezing.
I've also recently noticed getting out of breath more easily. Walking down the street or going up stairs. At least I think I'm getting out of breath more easily, I am just not 100% sure.
I went to the gym today and felt really out of breath after only going for a little while, but later when I was working really really hard it sorted itself out and I seemed to be getting enough oxygen. I don't know what's going on there.
My echo also showed mild tricuspid regurgitation, often seen with pulmonary hypertension.
I haven't had many ectopics recently and to be honest have just been ignoring them and they haven't bothered me, cause at least they're not going to kill me like PH is. I got loads when I exercised though.
I didn't sleep at all on sunday night (spent 33 hours awake). And am having trouble getting to sleep.
We're going to my grandma's doctor in Poland and some more answers will be given hopefully.
I don't want pulmonary hypertension. I really don't want to die. I keep feeling like these are my last few months and I just scared to die so young. There's a small probability that the results were wrong as echocardiagrams often estimate them wrong, but they're probably not are they. Wrong results rarely happen.
I feel in a bit of a daze. I just want my mum to hug me and never let go so I can feel like there's nothing wrong with my heart or lungs and I won't die.
Thank you for reading this if you do. I've been having possibly the worst few days of my life and don't feel like I can talk to anyone.
So I finally have my echo and ECG results on paper.
There was quite a bit the cardiologist didn't think to mention and t doesn't seem like my heart is as healthy and 'fine' as they say it is. I don't understand why they discharged me.
I feel like either they have ignored the results in front of them because I am young or they are just waiting for my condition to get worse and more severe symptoms to develop and will deal with that then.
The first thing was that the technical quality of the echo was 'fair' and 'poor'. Seeing as they estimate a lot of the values using equations, a poor quality image doesn't correlate with accurate estimates, apparently this might have been because I was tall and slim, hence the echo was challenging.
So my echo showed, most worrying to me, at least, but something they didn't EVEN mention; 'borderline elevated pulmonary artery pressure'. Pulmonary hypertension is serious business. People die so quickly (most untreated within 3 years and it just gets worse and worse until you get heart failure and lung problems and you die), as their symptoms just get worse and worse and there's no cure.
It states borderline PAP on my echo, however the values written down are 31-36mmHg.
Everything online states the threshold for normal is less than 25mmHg and the threshold for pulmonary hypertension should be low, especially since I'm 19.
I've been getting a lot of pain in my left arm and left side of my chest below my collar bone. it feels dull and achy and a bit like squeezing.
I've also recently noticed getting out of breath more easily. Walking down the street or going up stairs. At least I think I'm getting out of breath more easily, I am just not 100% sure.
I went to the gym today and felt really out of breath after only going for a little while, but later when I was working really really hard it sorted itself out and I seemed to be getting enough oxygen. I don't know what's going on there.
My echo also showed mild tricuspid regurgitation, often seen with pulmonary hypertension.
I haven't had many ectopics recently and to be honest have just been ignoring them and they haven't bothered me, cause at least they're not going to kill me like PH is. I got loads when I exercised though.
I didn't sleep at all on sunday night (spent 33 hours awake). And am having trouble getting to sleep.
We're going to my grandma's doctor in Poland and some more answers will be given hopefully.
I don't want pulmonary hypertension. I really don't want to die. I keep feeling like these are my last few months and I just scared to die so young. There's a small probability that the results were wrong as echocardiagrams often estimate them wrong, but they're probably not are they. Wrong results rarely happen.
I feel in a bit of a daze. I just want my mum to hug me and never let go so I can feel like there's nothing wrong with my heart or lungs and I won't die.