Orange Lightning
22-03-15, 11:02
I can't get over my symptoms, and it's been 3 years since they began! I can't live a full life like this; I feel like I'm slowly going to go mad at this rate!!
I've seen ENTs, Gastro specialists, GPs, Emergency Room doctors, I've traveled across the country and ordered online tests out of desperation. I have no idea what is happening to my body, and neither does anyone else I've seen.
- My nose is permenantly blocked and almost impossible to breath through. If I lean back in a seat, take a hot shower, excercise or sit in my car it gets worse, and has begun to get worse since sunny weather set in. I have no known allergies, and even if I did I've tried 5 different things which have all failed me - right now I'm on Flixonase and Cetirizine Hydrochloride. I've tried other allergy meds too, as well as sinus rinses and decongestants, steam inhalation and plenty more besides - if you suggest it, I've tried it.
- When things get at their worst, I get so much post nasal drip my airways block and I literally cannot breath properly. It isn't hyperventilation; I know how that feels. My body cannot get enough air, so it makes me gasp. I have to hunch over to get any air in - if I sit hunched over at a computer, things improve. Only "Oxymetazoline Hydrochloride" forces opens my sinuses, but I still don't get a runny nose and when it wears off, things become twice as bad as before. Also this stuff works for everyone, not just me, so it doesn't assist in proving what I have.
- I haven't had a runny nose for 3 years, which means I can't clean out my sinuses when something like this happens. It keeps me awake at night, gives me migraines and makes me tired and depressed.
- On top of that, I'm struggling to prove I have LPR reflux to doctors, which can't be controlled either. Every single medication diet change and lifestyle change I've tried has backfired on me. There is NOTHING I can do about it.
I want to be able to walk, talk, breathe, exercise, laugh and enjoy life like a normal person, but right now I'm scared to even get out of bed - and even then sometimes the problems follow me into bed too! I have no idea what is happening to me, but it makes me scared to keep living. I'm afraid one day the airways will block up so much even the emergency rooms won't be able to save me, and I dread the arrival of summer now in case it has something to do with heat.
I know for a fact it isn't an allergy. I get hayfever but I know how it feels when I do. I'd get an itchy throat, itchy eyes, and most importantly, a runny nose. That's not bad at all, I could live with that, but I haven't even had that for 3 years!
An ENT scoped my nose in winter - too late to catch some of my symptoms - and said nothing was wrong with my nose. Of course that means nobody believes me now, and everyone says all my symptoms are to do with anxiety. Surely that's nonsense? How can anxiety cause so many specific problems, under such specific conditions, and especially when I'm NOT ANXIOUS about life?!
I've seen ENTs, Gastro specialists, GPs, Emergency Room doctors, I've traveled across the country and ordered online tests out of desperation. I have no idea what is happening to my body, and neither does anyone else I've seen.
- My nose is permenantly blocked and almost impossible to breath through. If I lean back in a seat, take a hot shower, excercise or sit in my car it gets worse, and has begun to get worse since sunny weather set in. I have no known allergies, and even if I did I've tried 5 different things which have all failed me - right now I'm on Flixonase and Cetirizine Hydrochloride. I've tried other allergy meds too, as well as sinus rinses and decongestants, steam inhalation and plenty more besides - if you suggest it, I've tried it.
- When things get at their worst, I get so much post nasal drip my airways block and I literally cannot breath properly. It isn't hyperventilation; I know how that feels. My body cannot get enough air, so it makes me gasp. I have to hunch over to get any air in - if I sit hunched over at a computer, things improve. Only "Oxymetazoline Hydrochloride" forces opens my sinuses, but I still don't get a runny nose and when it wears off, things become twice as bad as before. Also this stuff works for everyone, not just me, so it doesn't assist in proving what I have.
- I haven't had a runny nose for 3 years, which means I can't clean out my sinuses when something like this happens. It keeps me awake at night, gives me migraines and makes me tired and depressed.
- On top of that, I'm struggling to prove I have LPR reflux to doctors, which can't be controlled either. Every single medication diet change and lifestyle change I've tried has backfired on me. There is NOTHING I can do about it.
I want to be able to walk, talk, breathe, exercise, laugh and enjoy life like a normal person, but right now I'm scared to even get out of bed - and even then sometimes the problems follow me into bed too! I have no idea what is happening to me, but it makes me scared to keep living. I'm afraid one day the airways will block up so much even the emergency rooms won't be able to save me, and I dread the arrival of summer now in case it has something to do with heat.
I know for a fact it isn't an allergy. I get hayfever but I know how it feels when I do. I'd get an itchy throat, itchy eyes, and most importantly, a runny nose. That's not bad at all, I could live with that, but I haven't even had that for 3 years!
An ENT scoped my nose in winter - too late to catch some of my symptoms - and said nothing was wrong with my nose. Of course that means nobody believes me now, and everyone says all my symptoms are to do with anxiety. Surely that's nonsense? How can anxiety cause so many specific problems, under such specific conditions, and especially when I'm NOT ANXIOUS about life?!