Sophie1
31-05-15, 09:13
I know that ALS is incredibly rare and I am only seventeen, which means I am highly unlikely to have it. However I cannot stop thinking I have it, which is probably ridiculous. Not only am I convinced I have it, I am convinced I have bulbar onset, which is even more rare and affects older people.
I don't have slurred speech or loss of tounge movement, but I have had difficulty swallowing liquids for a while and I have a feeling of a lump in the throat. Everyone says I don't have true difficulty and it's just uncomfortable, but of course Google is making me extremely paranoid. Also I have this strange line on my tounge, which is convincing me I have atrophy.
I have heard that this illness is about failure and not feelings. i have a tingling in my throat before I drink and I get burning sensations. I also have had a burning ,numbness and tingling feeling in my tounge. So do these sensations mean I cannot have it?
I can drink fluids (it's just uncomfortable and sometimes I choke) and I find water easy to drink - it's mainly tea that I struggle with. I have read that thin liquids are an issue for people with ALS.
I have checked my tounge movement and it still moves like normal - just feels tingly and numb sometimes. It also hasn't shrunk and I can touch my nose with my tounge. I can also touch the sides of my mouth easily. Also I read that in bulbar onset, the gag reflex doesn't work, but I have checked also and it does work the same.
Sometimes I feel that my throat is tight and when I eat and drink I can feel a lump - I don't know if people with ALS get the lump sensation. Also my neck sometimes aches when I eat and thankfully I read that pain isn't accosiated with ALS. I find eating easier although it feels like food gets stuck sometimes.
My family tell me i definitely do not have it and my mother was a nurse who treated an ALS patient and said I don't have the signs. Also this patient was elderly. I've been to the doctors twice and they checked my mouth and throat and watched me swallow water and say everything looks fine.
I have had this for a few months now And sometimes it feels worse than other times and I can't always feel a lump.
If I have the sensory feelings, such as numbness, tingling and burning does that mean I definitely do not have ALS? I just want to be completely reassured as this fear is taking over my life.
I don't have slurred speech or loss of tounge movement, but I have had difficulty swallowing liquids for a while and I have a feeling of a lump in the throat. Everyone says I don't have true difficulty and it's just uncomfortable, but of course Google is making me extremely paranoid. Also I have this strange line on my tounge, which is convincing me I have atrophy.
I have heard that this illness is about failure and not feelings. i have a tingling in my throat before I drink and I get burning sensations. I also have had a burning ,numbness and tingling feeling in my tounge. So do these sensations mean I cannot have it?
I can drink fluids (it's just uncomfortable and sometimes I choke) and I find water easy to drink - it's mainly tea that I struggle with. I have read that thin liquids are an issue for people with ALS.
I have checked my tounge movement and it still moves like normal - just feels tingly and numb sometimes. It also hasn't shrunk and I can touch my nose with my tounge. I can also touch the sides of my mouth easily. Also I read that in bulbar onset, the gag reflex doesn't work, but I have checked also and it does work the same.
Sometimes I feel that my throat is tight and when I eat and drink I can feel a lump - I don't know if people with ALS get the lump sensation. Also my neck sometimes aches when I eat and thankfully I read that pain isn't accosiated with ALS. I find eating easier although it feels like food gets stuck sometimes.
My family tell me i definitely do not have it and my mother was a nurse who treated an ALS patient and said I don't have the signs. Also this patient was elderly. I've been to the doctors twice and they checked my mouth and throat and watched me swallow water and say everything looks fine.
I have had this for a few months now And sometimes it feels worse than other times and I can't always feel a lump.
If I have the sensory feelings, such as numbness, tingling and burning does that mean I definitely do not have ALS? I just want to be completely reassured as this fear is taking over my life.