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MissSunshine
29-10-15, 10:12
I had some blood tests taken as I wanted to make sure my IBS and acid reflux was just that.
The only thing that came back was low ferritin, ( low iron)
The doctor wanted me to go on irontablets but what with my bad ibs I know they can screw with your stomach and the last thing I want is to make it worse. I asked to be put on the liquid form as I was prescribed this during my pregnancy and was fine but she said it costs too much on the NHS. So she said to change my diet with iron rich foods. I can't help but think this isn't enough! And I will turn anemic
My level is 11 and normal is 12-250
I'm freaking out because even tho she said it may be because of my periods and poor diet I'm thinking its Coeliac or a ulcer or bleeding else where :(

I'm so scared!

Fishmanpa
29-10-15, 11:37
I'm freaking out because even tho she said it may be because of my periods and poor diet I'm thinking its Coeliac or a ulcer or bleeding else where :(

I'm so scared!

No... its low iron! So, you have a choice, do nothing and have continued issues or do something (like just take the dang tablet), and improve. OR... pay out of pocket for the liquid form.

Good luck and positive thoughts

MissSunshine
29-10-15, 12:01
I'd love to just take the tablet,
But the tablets she's offering me are known to mess up your stomach, even those who do not have ibs have troubles,
My trouble is this ibs is making me loose weight, and at the moment my stomach is fine, if I take the tablets it will just bring back my stomach problems, I can't afford the liquid form either. I feel like crap right now :(

---------- Post added at 12:01 ---------- Previous post was at 11:51 ----------

I feel like everyone is fed up with me :(
I'm waiting for cbt but untill then I need support
The doctors are fed up of me ringing them but I need someone to talk to as I'm so bad with my health anxiety now no one understands in my life what health anxiety is and my partner is fed up of me talking about it too I feel so alone :(
I'm loosing weight and no cares imconstantly in pain because of my ibs and now I need to take iron tablets is going to make me so much worse yet I need to take them over wise I will be come anemic I'm loosing my mind

MyNameIsTerry
29-10-15, 12:10
So, the GP puts cost of a liquid iron above patient welfare. It's liquid iron, not a life saving expensive drug so it's not going to be that expensive.

You can get liquid iron supplements yourself. They sell the mineral water version in my local Tesco and pregnant women on here have mentioned it being recommended by their midwives. How about trying that? They do it on a permanent 3 for 2 deal.

Fishmanpa
29-10-15, 12:14
I don't think people are fed up with you. People can offer suggestions and advice (and they do) but its up to you to follow through. If you don't or counter it with the "yeah buts", it can be frustrating to watch.

So your choices are: Do nothing, take the tablet (or some additional iron supplement), buy the liquid or eat more iron rich foods (you'll be eating food that will help you gain weight and increase your iron.). That's it really. Low iron is not a serious medical condition. In fact, it's one of the more common issues people face and is quite easily remedied.


Positive thoughts

MissSunshine
29-10-15, 12:23
I'm so glad someone understands I got so upset over the fact they didn't think I'd need it and making me feel bad because try actually said I'm wasting NHS money.
But I'm loosing weight because of my stock problems :(
Thank you I will try that xx

---------- Post added at 12:23 ---------- Previous post was at 12:20 ----------

Fishmanpa I just can't help it when a doctor says I have something wrong my head thinks the worst, but hey that's why I'm on this form I have health anxiety!
The doctors are seriously fed up with me they keep asking when I'm getting my appointment and sigh when I ring up with another problem, but I need reassurance all the time.
I'm gonna try the water supplement as mentioned above I hope that helps because I really don't want t go on the tablets!

MyNameIsTerry
29-10-15, 13:11
It's supposed to be gentle on the system as opposed to the tablets. Iron in supplements always gave me constipation so this is the form I would try if I needed it as people on here have said it doesn't affect them and during pregnancy constipation is already a problem from what I've always heard so if they (and midwives) are recommending it, it must be gentle.

There are several different manufacturers that I have seen on sale and my Tesco sells two of them. The water based one is the one I've seen recommended on here and is I just really high iron water from a mineral source in the UK so it's very natural. It comes in sachets. It might cheaper online bit it depends on the 3 for 2 deal. They sell it in month long packs as well.

Your surgery sound like they are ignorant of anxiety disorders to me. It's obvious someone with HA is going to be down there more, it's a well documented symptom. No doctor should make you feel bad for being unwell, that just tells me they don't particularly believe in mental health disorders out of ignorance, whether they are old fashioned, uneducated or just unpleasant people.

You are NOT wasting NHS money - whats wrong with someone with GI issues asking for a gentler form of something known to make such problems worse? Having HA is also NOT a waste of NHS money either. How they can dare to claim that in a system ferrying drunks to A&E every night is just garbage!

---------- Post added at 13:11 ---------- Previous post was at 12:38 ----------

Spatone it's called. Just remembered.

pulisa
29-10-15, 13:13
I've found Spatone to be helpful. It's a liquid iron formula and doesn't cause bowel problems. Probably the Tesco version is cheaper though

---------- Post added at 13:13 ---------- Previous post was at 13:12 ----------

Sorry Terry-just noticed you'd posted the same!

MyNameIsTerry
29-10-15, 13:50
That's the one, pulisa. It looks a good one and all natural too as it comes out of the spring that way. I notice on Amazon it gets good reviews for the same reasons over the problems the tablets bring. I'm glad it helped you. I've never tried iron supplements, other than in multivitamins which always bound me up, but it might be worth trying this with my fatigue issues.

MissSunshine
29-10-15, 16:54
MyNameIsTerry thank you- you know exactly what I'm trying to say, unfortunately my doctors do not understand health and anxiety at all.
And it is as mental illness the way I'm being treated is shocking I just got my appointment through today for my CBT so I'm on my way to getting myself on track but at the moment they are leaving me with no one to turn too
The fact they want to put me on a tablet that will make me worse then I am already is shocking. I will just have to pay for my own supplement which is abit disheartening as you said people who fall into A&E drunk that's what I call wasting NHS money.
I will try spa tone thank you both,
Will check out the cheaper version from tesco first tho :)

2Anxious
29-10-15, 17:43
You can't afford £10 or so for an iron supplement? Have you tried the tablets? They might not cause any problems for you.

Seems a bit silly to get yourself so worked up over low iron levels. Try and relax.

http://www.tesco.com/groceries/product/details/?id=285353353

Check these out. One serving (which isn't a lot) gives you 90% RDA of Iron. You could eat two servings if you need to put weight on. Eat beans, lots of green veg and try and get a supplement you can handle.

Your levels will shoot up in no time.

Fishmanpa
29-10-15, 17:51
You can't afford £10 or so for an iron supplement? Have you tried the tablets? They might not cause any problems for you.

Seems a bit silly to get yourself so worked up over low iron levels. Try and relax.

http://www.tesco.com/groceries/product/details/?id=285353353

Check these out. One serving (which isn't a lot) gives you 90% RDA of Iron. You could eat two servings if you need to put weight on. Eat chickpeas, lots of green veg and try and get a supplement you can handle.

Your levels will shoot up in no time.

IMO, this is not about the NHS or an insensitive doctor. While it's true that not all medical professionals are sensitive concerning anxiety as they could be, this is more about a perceived fear about the chance that a iron tablet may not agree with your stomach and a rather extreme reaction to a slightly low (1 point) iron reading .

You basically reiterated my point. To assume that the tablets are going to cause an issue and use that as the reason not to try them and to get worked up over a low iron level (one point lower mind you) is not reasonable. The worst thing that can happen is they disagree and you stop taking them and find something else. Like you're saying, a tab that agrees with your stomach and foods higher in iron and you kill two birds with one stone (gain weight and raise your iron levels).

Positive thoughts

MissSunshine
29-10-15, 20:19
With ibs if something sets off my stomach (I have a flare up) it could last weeks before it goes back to normal, stress and things I eat / medication has done that before.
The whole reason I took these tests was because I couldn't cope with the stomach pains so trying me with a tablet that I know will cause trouble would be the worst thing for me.
I will have to pay for the iron water as I can't handle anymore flare ups.

My anxiety has got the better of me I know but low Ferritin is also known for serious reasons like intestinal bleeding, this was my fear before taking the test as I've Been having stomach problems so to learn I have low iron has freaked me out
The doctor isn't sending me for further testing so that's comforting but can you understand why I'm so scared :(

MyNameIsTerry
29-10-15, 22:44
IMO, this is not about the NHS or an insensitive doctor. While it's true that not all medical professionals are sensitive concerning anxiety as they could be, this is more about a perceived fear about the chance that a iron tablet may not agree with your stomach and a rather extreme reaction to a slightly low (1 point) iron reading .

You basically reiterated my point. To assume that the tablets are going to cause an issue and use that as the reason not to try them and to get worked up over a low iron level (one point lower mind you) is not reasonable. The worst thing that can happen is they disagree and you stop taking them and find something else. Like you're saying, a tab that agrees with your stomach and foods higher in iron and you kill two birds with one stone (gain weight and raise your iron levels).

Positive thoughts

I agree with the food element but GP's dish the tablets out as there are some that are classified as medicines so it resolves the problem quickly whereas food adjustments can take much longer so they don't want to keep seeing the patient.

Considering liquid iron supplements are actually quite reasonably priced, I somehow doubt a medicinal version is expensive BUT they will cost more than tablets. Those tablets are well known for causing upsets to anyone regardless of having actual problems in areas so I don't think I would want to take them and feel worse.

I think a surgery losing their patience over repeat visits is a poor attitude to mental health. It's part of the stigma everyone wants to stop. Afterall, how many people do they see every day with minor issues they shouldn't even be there with? Are they complaining about them? Probably not if they are physical. They wouldn't dare complain about the elderly who are in there all the time. Medical stigma is an old fashioned and uncaring attitude regardless of the penny pinching.

Tesco don't make their own OP, it was Spatone I meant, sorry for the confusion.

Darwin73
29-10-15, 22:50
I've had anaemia and low Ferritin (6) for 20 plus years. When I first became anaemic, my Hb really was quite low, and I was prescribed a high dose of ferrous sulphate. These had a severe impact, especially pain wise, on my digestive system. After doing some research, I noticed that fewer stomach complains were noted with Ferrous Fumerate and asked my GP to prescribe these, which they happy for me to take. I can honestly say I've never once had a problem with them and have been on them on and off for years. Infact, when I was offered a blood transfusion after the birth of my first child, I decline and asked to make up the iron loss with ferrous Fumerate and within 3 weeks my Hb was almost back to normal levels.

dally
30-10-15, 07:08
Hi
I too was very anaemic HB 6.8. And ferritin level 2. Mg gp was actually wanting to give me a blood transfusion. But being extremely agarophobic, weak with anaemia and constant panic attacks, I could never have made it tocthe hospital.

It was caused by very heavy periods ( fibroids and polyps ) at the menopause and the whole thing lasted for about 7 years of hell.

They wanted to give me a hysterectomy, but again I just couldn't go into hospital due to agarophobia.. Full menopause sorted it all out thankvgoodness.

I also have ibsD
I took spatone on a week on week off
No iron tabs worked for me. All gave me D (usually constipates people!

I too was under weight. And I did eat a high sugar/fat diet for energy.
Not healthy I know!

I also researched foods high in iron, which will always b absorbedc60℅ more readily than tabs.
Check out iron rich foods on internet. There are plenty.
Good luck

MyNameIsTerry
30-10-15, 07:29
Thats good to know about the food, dally.

Your experience sounds extremely tough. Feeling bad from all that must have made your anxiety far worse and your panic attacks more likely. I know how my anxiety affects me when I'm hungry.