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pinnor
08-04-16, 12:00
Hello everyone, first post.

I'm 31, have been suffering from anxiety in various forms since 11 years old. I've covered most of the different conditions, panic disorder, agoraphobia, pure O OCD, GAD...though I've overcome both agoraphobia and OCD with therapy and CBT. Have had loads of therapy and additionally 2 lots of CBT, currently am in therapy with a wonderful, life-saving therapist 2x a week for the last 3.5 years. I'm also a psychotherapist myself by profession.

Last year I was doing well, but this year I'm in a very bad place again. My anxiety is really stopping me from functioning at work. I have cut down to 2 days a week because of this. My anxiety seems to be a mixture of GAD and panic disorder. At my worst I worry constantly. Recently when I'm working I get extremely anxious. I get brain fog and it's a massive struggle to respond to my client or supervisor. I can still do it just about but it exhausts me. And sometimes it erupts into panic attacks too, or something close to that, during work. The more it happens the more I dread going into work. And work exhausts me so much I spend most of the rest of the week recovering, largely unable to socialise. I often spend two days in bed after working. I've also become anxious about doing things like going to the bank, going shopping far from my house etc. I can do these things but have all the usual anxious symptoms and again it's exhausting. Soon I know I will be too anxious to go in to work, or will need to quit, as it just gets worse...unless I get some meds to get me through this harsh period whilst I keep working on the underlying issues in therapy. The moment I feel I am no longer helping my own clients, I feel for ethical reasons I will need to quit. But this will destroy me, lower my confidence further, and make my anxiety worse.

Went to GP and tried to get pregalabin or buspirone. He'd never heard of buspirone and his reaction to preg, was as if I'd suggested heroin! All he offered was a short course of diazepam or anti-depressant. For various reasons (including bad personal experience) I am very anti anti-depressants. I chose the diazepam and it works wonders. It basically makes me how I was before the anxiety at work became unbearable. I only take it at work. But I am worried about tolerance rising and then potentially withdrawal. And the diaz I have been given will soon run out. I think I need to take 15mg per week to get through my two days of work.

I have an appointment with a psychiatrist and wondered what my options were.

I won't take an AD.

I'd like to try pregalabin because of it apparently being less tolerance/dependence forming than benzos. But it seems it's only licensed for long-term, rather than occasional use. Also it's only licensed for GAD, whilst my condition seems to be both GAD and panic disorder (at work I will both worry and also have panic-esque symptoms).

I wonder if a psychiatrist might consider prescribing it off label? Or would it not work for only occasional use?

If not, what are my other, non-AD options?

I would also consider just taking preg all the time, as my worry affects me the rest of the time as well, but it's only unbearable at work. If I took it all the time I would probably be able to work more days. But it seems to me the most sensible option is to continue working 2 days a week until I solve the underlying problems which are causing me to be so anxious.

Thank you so much for reading, sorry it became such a long post.

dukdevil
08-04-16, 16:12
Exact same situation here, only get anxiety at work and going back next Thursday after long term sick leave. I went in for a meeting this week and anxiety flared. Decided to go back on Lyrica I was on it before. I used to take 450mg a day but now I'm only taking 300mg as of tomorrow. I don't suffer with anxiety outside of the workplace anymore I was very very unwell before.

Thanks

Alma

pinnor
08-04-16, 19:27
Exact same situation here, only get anxiety at work and going back next Thursday after long term sick leave. I went in for a meeting this week and anxiety flared. Decided to go back on Lyrica I was on it before. I used to take 450mg a day but now I'm only taking 300mg as of tomorrow. I don't suffer with anxiety outside of the workplace anymore I was very very unwell before.

Thanks

Alma

Thanks for your reply. It must be a fairly common situation that people can function (just about! in my case) in some life situations but struggle more in others. That's good you were able to go back onto it. Was your GP happy for you to use it occasionally? Good luck with it all. Best wishes.

SmilingAlbert
08-04-16, 23:18
hi pinnor

sorry to hear of your issues

i think you need to find a good psych.

it is said that Pregabalin impacts angst similarly to diaz, though perhaps not as quickly.

i think given the importance of this - ie you cant work without help - i would forget about on/off preg and just take it regularly.

there have been folk here who take it prn, but not many - it is not a panic attack fixer like Diaz, certainly. But it sounds like it may help you.

best wishes

albert

pinnor
09-04-16, 13:04
hi pinnor

sorry to hear of your issues

i think you need to find a good psych.

it is said that Pregabalin impacts angst similarly to diaz, though perhaps not as quickly.

i think given the importance of this - ie you cant work without help - i would forget about on/off preg and just take it regularly.

there have been folk here who take it prn, but not many - it is not a panic attack fixer like Diaz, certainly. But it sounds like it may help you.

best wishes

albert

Thanks so much for your post and your wishes. I will discuss all this with the psych I am meeting with. It costs so much though (the appointment) so I hope then the GP will take over with her recommendation. I think you are right and it might help me greatly to take this all the time.

SmilingAlbert
09-04-16, 19:03
Yes, going private is tiresome I know, but given the horrendous delays in going the NHS route, it is worth doing - with any luck you'll only need 1-2 appointments, and then you take their recommendation to the NHS GP (ie. Preg) and get them to write you a NHS script.

It sometimes seems that the only way in the NHS to see a psych. quickly is when you get to a very extreme state, which is rubbish - but sadly demand for MH services is off the scale, and a GP friend tells me that 50% of her visits are MH related... I wish more GPs became MH experts to help ease the pressure on specialists.

This is the route I took, successfully, and many others round here. If they object, then find another GP, and tell them you can't afford to take them privately (Preg. is expensive). If you cant work due to yr illness, the cost to the taxman is much greater than a Preg prescription.

Good luck!

pinnor
11-04-16, 11:12
Yes, going private is tiresome I know, but given the horrendous delays in going the NHS route, it is worth doing - with any luck you'll only need 1-2 appointments, and then you take their recommendation to the NHS GP (ie. Preg) and get them to write you a NHS script.

It sometimes seems that the only way in the NHS to see a psych. quickly is when you get to a very extreme state, which is rubbish - but sadly demand for MH services is off the scale, and a GP friend tells me that 50% of her visits are MH related... I wish more GPs became MH experts to help ease the pressure on specialists.

This is the route I took, successfully, and many others round here. If they object, then find another GP, and tell them you can't afford to take them privately (Preg. is expensive). If you cant work due to yr illness, the cost to the taxman is much greater than a Preg prescription.

Good luck!

Thanks v much again for your reply. That is interesting (and shocking) that so many GP visits are MH related, considering the lack of provision/funding that is there. My appointment is tomorrow. I just really hope I'm not going to be £300 to be told to take another AD...if so I'll try and see the funny side, and keep persisting. I hate the powerlessness of the situation, it seems to make things worse when you are suffering from low self-esteem in the first place.

hanshan
11-04-16, 12:12
Pregabalin is approved as a long-term medication for GAD.

If that fits your condition, you should have no trouble with a psychiatrist, if other medications have been found unsuitable.

MyNameIsTerry
11-04-16, 23:04
Thanks v much again for your reply. That is interesting (and shocking) that so many GP visits are MH related, considering the lack of provision/funding that is there. My appointment is tomorrow. I just really hope I'm not going to be £300 to be told to take another AD...if so I'll try and see the funny side, and keep persisting. I hate the powerlessness of the situation, it seems to make things worse when you are suffering from low self-esteem in the first place.

If you have GAD, Pregabalin is listed as can be offered if other meds aren't tolerated. Obviously that doesn't cover Scotland though so they can be a fight. In England Buckinghamshire is a problem area where the local trust have blacklisted it for all use, including epilepsy, just to save money.

Outside of those it should be easier to get but GP's can be wary of the cost. Some just lie and say it's addictive, not approved, is misused, etc or maybe it's ignorance.

pinnor
12-04-16, 16:47
Saw the psych and she has indeed sent a letter to GP suggesting to prescribe pregabalin! She was really nice as well. She actually thought trazadone would be better for me but was happy to go with my suggestion instead. I guess I can try that if preg does not work, but I'm so happy not to go down the AD route at least for now. It was so different from seeing a doctor at my GP surgery.

So let's see what happens...first of all need the GP to actually prescribe, otherwise can get a private prescription but not sure if I can afford this. I am confident of finding a GP who will prescribe it after having got a letter from a psych.

Thank you to all who contributed to this thread.

hanshan
13-04-16, 05:59
Hi Pinnor,

It's highly unlikely that a GP will disregard a psychiatrist's advice for a MH prescription. Keep a photocopy or scan of the letter if you can. Good luck with it.

pinnor
13-04-16, 10:47
Hi Pinnor,

It's highly unlikely that a GP will disregard a psychiatrist's advice for a MH prescription. Keep a photocopy or scan of the letter if you can. Good luck with it.

I will do and thank you.