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View Full Version : Haemorrhage in my eye + somewhat swollen optic nerve



Au101
05-01-17, 19:07
Hi,

So, just before Christmas, I was sitting at this very computer when I experienced a kind of spot in my vision. You know when you look at a bright light, and then afterwards you have that sort of spot in your eye? Well it reminded me a lot of that. Just out of nowhere, and it took a while to go down. That obviously made me a bit worried, and then the next day I was reading and there was kind of a coloured patch that I could see on the left page as I was trying to read the right one. I got a bit concerned and then after that I kept seeing little spots and flashes and all that stuff, which I have seen before to tell you the truth, but never the rest of it, just the little spots and flashes every now and again, as I go about my day.

So in the end I decided to go to the opticians about it and well he said I've got a small haemorrhage and my optic nerve may be a bit swollen as well. There were other things, I mean, he was talking about how my eye was basically a bit unusual with this value and that value and whatever, but he said there's a lot of variation in what's 'normal' and maybe that's 'normal' for me. So basically, he concluded that there were no immediate alarm bells, but the haemorrhage, at my age (24), he couldn't explain. Basically, it doesn't make sense and what he's worried about is not necessarily the haemorrhage, which is a small thing in itself, but what might have caused it. So he's sent me to a GP, but that's not until Monday.

And, well, I'm quite scared to tell you the truth and I wondered if anyone had any words of comfort?

Some of you probably know the feeling. You read all these articles in the news, like, I went to the opticians and she found a brain tumour the size of a tangerine or whatever. And, well, I'm worried. He mentioned that maybe, after testing blood pressure and stuff, the doctor might want to do an MRI or a CT scan to get a look at the optic nerve.

He also asked me if I get thirsty a lot (yes, very), and about nausea. I have been feeling nauseous in the mornings sometimes in recent months, but tummy cramps is more common that actual nausea. I lead a pretty unhealthy lifestyle and I don't sleep very well. I've had IBS in the past, so I was actually worrying a little bit about the occasional nausea before today, but I thought it was probably just what happens when you go to bed about 04:00 one night, get up about 11:00 then next day, and then end up getting up about 15:00 the day after that ....

Fishmanpa
05-01-17, 19:22
I'll just send you positive thoughts as I've not heard of anything like this. The eye doctor is doing the right thing by having you follow up with your GP and as with most cases, if he felt you were in a serious situation, he would have referred you immediately to the hospital. Just stay as chill as you can and see your doc Monday. Let us know how you make out.

Regardless, at 24, this should serve as a wake up call to improve your lifestyle.

Positive thoughts

swajj
06-01-17, 00:11
When you say the optician do you mean optometrist or ophthalmologist? The first one prescribes glasses the second is an actual doctor.

ww1399
06-01-17, 00:32
My eye doctor informed me that my left optic nerve is larger than my right. No big deal, I was probably born like that.

Au101
06-01-17, 02:02
When you say the optician do you mean optometrist or ophthalmologist? The first one prescribes glasses the second is an actual doctor.
Well, he does do eye tests and glasses and stuff, but I gather he is also a doctor, but specialising in the eyes. I'm not, I have to say, too clued up on his credentials, or the different types of eye doctor, and obviously he's sending me to my GP because it's a bit out of his scope, but I was talking to receptionist whilst I had my eye drops in and she was trying to reassure me by saying that he's a doctor, very knowledgeable, and if there's a problem, he's definitely the man to get to the bottom of it, so yeah, I don't think he's just: can you read out these letters.

swajj
06-01-17, 02:22
If he is a doctor he will be called Dr (insert name) lol

Ophthalmologists don't usually prescribe glasses.

worriermama
06-01-17, 07:25
Hi there! My mom had an eye bleed several years ago. Hers was discovered by the optometrist as well. When they saw it they kind of freaked out, sent her to the "real" eye doctor (ophthalmologist). Bottom line, she is fine and so is her vision. She does have glaucoma (not severe) but she already knew that and her pressure is often normal when she gets checked. Sometimes these things happen with no real obvious cause, or a minor, non-threatening one!

Let us know how the appointment goes but I really think you'll be just fine. I myself have had all kinds of mystery spots and splotches in my peripheral vision for almost ten years now. Doctors diagnosed idiopathic optic migraine. I don't even think that's a correct diagnosis, but who knows. The point is I thought I was going to blind for a long time and now I've just accepted that I see weird stuff in my peripheral vision and it's totally inconsequential. Had my retinas photographed and everything. Bodies are weird. Best of luck to you!

Wilburis
06-01-17, 08:53
Hi

If he thought it was serious, you would have been sent straight up to the hospital.

Good luck xx

Au101
09-01-17, 21:23
Well it, it didn't really go as well as I'd hoped, I collected a letter from my optician on my way do the doctor's, but the optician had apparently already phoned the surgery and he recommended an urgent referral to a neurologist for a brain scan, which my GP rubber stamped.

She said to me, you know, you can't not have the scan, because if there's something there, things will get very bad very quickly and we will need to act fast if, well, you know, in my words not hers, if there is something there (which there might not be) and if I want a good chance of coming out of this alright, I can't sit on my hands, so we need to have a look and we need to set my mind to rest, or begin treatment. But she also said, you know, it's very unlikely, she seemed to be taking the angle of, like, this may be serious, so it's important to find out, but it's very rare, it's probably nothing, we just need to get the neurologist involved and confirm that.

But equally, she didn't have a good alternative explanation. It could just be an anomaly, it could all be nothing, but what I don't have right now is a diagnosis of something - something mild and minor and not worth worrying about. It's either just one of those things, bodies are weird, everyone's different, or - or it's all a bit scary, really.

Having said all of that, doctors can be trigger happy, people go in for scans and tests and this and that all the time because something's a bit wrong here, or there's something funny there and it's nothing more often than not. But it's hard not to feel like all roads are leading to Rome.

She did tell me I probably didn't need to worry and she didn't seem to think I needed to be as scared as I was. But equally (maybe she was just feeling sorry for me), she didn't look too happy and she certainly agreed with the optician than an urgent referral to the neurologist was needed, which is pretty terrifying.

She was able to reassure me that, if there is something, we've probably caught it early, but there again, that's not quite as reassuring as, 'there's probably nothing there' ...

Wilburis
09-01-17, 21:33
sorry to hear this.

How long will yo have to wait for the scan?

x

Au101
09-01-17, 21:41
sorry to hear this.

How long will yo have to wait for the scan?

x

Thank you :)

I don't really know for sure yet. The doctor said they have pathways to act quickly and usually they'll contact me within a couple of days or so and get things organised quickly.

Which I suppose is for the best, I mean, such things are usually a lot more tame if caught early and very very dangerous indeed if left to their own devices.

I'm also not sure how many more days like the last few I can take.

However, there's a rather large part of me that could quite happily exist forever in this place where there's still hope it's nothing. And I guess I have a reasonable chance of being told it's nothing by the neurologist and being free to live normally and happily again. But there's always the chance that another medical professional will tell me what I was hoping not to hear and that's a scary thought, so one part of me wouldn't mind a wait before I have to walk into a hospital. The rest of me knows I need to get this over with though, of course.

emmalj0
09-01-17, 21:42
In may I went for routine eye exam I was told to go straight to a and E as both my optic discs were swollen. I was so scared. In the meantime iv had mri which was clear thank God, however I'm waiting to c neurologist as there's a thing called idiopathic intercranial hypertension which is too much spinal fluid being produced. This causes optic disc swelling, nausea, visual disturbances. I'm wait to c if I need lumbar puncture to c what my opening pressure is as this is only way they can tell. I don't believe it's life threatening however u can go blind if left untreated. I'm still waiting since may. Maybe this is what u have that's y will want to do mri etc to rule things out x

Wilburis
09-01-17, 21:47
Hi

Do you have private medical insurance?

You could probably get seen quicker.

What sort of scan do they want you to have? MRI?

Jut to say, Im thinking of you x

---------- Post added at 21:47 ---------- Previous post was at 21:44 ----------

Before i forget, my mother had to have an MRI as her optician noticed her optic nerve was swollen.

Nothing was wrong!

x

Au101
09-01-17, 21:53
Thank you both, lizzie for your kind words of comfort and emmalj0, it's obviously always a bit of a comfort when you hear from someone else who has had a similar experience and for whom it all turned out to be fine. I'm sorry you're having a long wait and I'm sorry your worries are still with you, but at least the really scary stuff's been ruled out. Nobody wants a lumbar puncture, but it's better than going blind and I'm sure it won't be long before you're getting the treatment you need, or you're told everything's fine :) Take care out there.

Um, she said 'brain scan' but I think because she wanted to make sure I understood, I guess the choice of kit will be the neurologist's, if they even decide that a scan is necessary after all. The doctor seemed to think the optician was confident a scan was needed, but, I've had worried doctors send me to specialists in the past and, y'know, the specialist takes a look and wonders what all the fuss was about, but I dunno, it is all looking serious. Anyway, I think it's likely to be an MRI, the optician definitely mentioned MRI and I think the GP spake those letters too, although I was pretty scared then and kind of hoping for a way out, so I'm not sure I picked everything up.

I don't have private cover, nor do I have a lot of disposable income, but I do have some savings built up for a rainy day. The NHS seem to be working quickly so far, though, it'll definitely be on the table if the referral comes through with dates which are a long way off, but certainly from where I'm sitting right now, it doesn't look to me, at the moment, like the private sector would be able to be so much faster it would be worth the price, but my outlook on that may change if I'm still waiting on the letter/phone call/whatever towards the end of the week.

Wilburis
09-01-17, 21:58
Please keep in touch.

:hugs::hugs:

xx

Zestyz
09-01-17, 22:39
Hi there, im sorry your anxious over this. If there was something seriously wrong he would have phoned the hospital to get you seen then and there.
Sometimes the little veins at the back of your eye can burst but it usually reabsorbes and repairs itself.
What tests has he sent you to the Drs for ?

Au101
09-01-17, 22:48
Hi there, im sorry your anxious over this. If there was something seriously wrong he would have phoned the hospital to get you seen then and there.
Sometimes the little veins at the back of your eye can burst but it usually reabsorbes and repairs itself.
What tests has he sent you to the Drs for ?

The optician did the usual test where he shined a bright vertical bar of light into my eye and moved it about to have a look inside. That's when he noticed the haemorrhage first. So he put eye drops in to get a better look, then did an OCT scan. On the basis of that, he wrote a letter to my GP and phoned her up to recommend an urgent referral to a neurologist for, in her words, 'a brain scan'. After the OCT scan had completed he was talking to me and he mentioned that an MRI or a CT scan may be undertaken to (if I recall correctly) 'image the optic nerve', although my GP seemed to me to be talking more as if a general brain scan would be taken to look at it and see if there was anything there that could be putting pressure on the optic disc and could have caused the haemorrhage. The OCT scan also appeared to show my left eye was a little oddly shaped. I believe he said that I'm short-sighted, but not that short-sighted, and the scan made it look like I was more short-sighted than I am. Ergo, I gather, the thinking may be that there's something pushing and causing my eye to be a little out of shape. That's worried me talking. The other side of me also remembers that he did say that none of the values were so alarming that he would need to tell me to get to A&E and it could be normal for me, because everybody's different, it could be one of those things. But then it could be ...

LE
10-01-17, 00:02
Hi sorry you are gojng through this. Just to say I had an optician appointment in Nov. Although not same as you but I failed the visual field test twice. They were referring me to the hospital but I went to a&e and was admitted. Had a brain MRI scan and it was clear. I've since seen a neurologist who said he can't find anything neurologically wrong. I have an appointment with an opthamologist at the end of the month to get to the bottom of it. However the neurologist said sometimes these things just happen.

I hope you get seen quickly. The waiting and the worrying is the worst.

swajj
10-01-17, 00:16
It could be normal for you. They are the words that I would focus on if I were you. My eye specialist has told me that I have astigmatism which causes the lens of my eye to be shaped differently. Remember neither the optician or the GP are experts and therefore they would err on the side of caution. So sending you to see a neurologist would be the next logical step.

Au101
10-01-17, 00:32
It could be normal for you. They are the words that I would focus on if I were you. My eye specialist has told me that I have astigmatism which causes the lens of my eye to be shaped differently. Remember neither the optician or the GP are experts and therefore they would err on the side of caution. So sending you to see a neurologist would be the next logical step.
I appreciate those words and I know what you mean.

There's a part of me that's stuck on the fact that two doctors have recommended I see a neurologist.

But the counter to that is, you're right, obviously the optician doesn't have the kit in his office and, you know, nobody wants to get sued, so what does he do when he spots a potential sign of something worrying, well he refers it to the people with the kit, because that's the safe thing to do. (Obviously I've no doubt he's also concerned about the wellbeing of his patients, don't get me wrong for a moment, I'm sure that's more important to him.) And then of course once he's recommended that, well unless the GP is confident enough to stake a clinical negligence case on the experienced optician being wrong, she rubber stamps it and sends me off, so nothing's certain yet, but still, the least I would have hoped for was a grudging agreement that it was probably worth the scan because of the height of the stakes, rather than the phrase 'you can't not have it', even if, in context, that phrase wasn't as scary as it might be in other contexts :P

swajj
10-01-17, 00:43
I remember having a mammogram and breast ultrasound which showed some breast calcifications. When my gynaecologist looked at the scans he sent me to see a breast specialist. His words to me were something like "I'n 100 percent sure that it is nothing but so you don't sue me sometime in the future I am sending you to see the breast specialist". So yeah we live in a litigious society and your optician and GP would be aware of that too. ��

Au101
10-01-17, 01:15
I remember having a mammogram and breast ultrasound which showed some breast calcifications. When my gynaecologist looked at the scans he sent me to see a breast specialist. His words to me were something like "I'n 100 percent sure that it is nothing but so you don't sue me sometime in the future I am sending you to see the breast specialist". So yeah we live in a litigious society and your optician and GP would be aware of that too. ��

:) Always a nice thought!

Can I ask about the meaning of your name?

swajj
10-01-17, 01:55
Yes you can but it isn't deep lol

It is the first letter of my name, my husband's name and our 3 children's names. ��

---------- Post added at 11:25 ---------- Previous post was at 11:22 ----------

:)

Au101
10-01-17, 02:25
Yes you can but it isn't deep lol

It is the first letter of my name, my husband's name and our 3 children's names. ��

---------- Post added at 11:25 ---------- Previous post was at 11:22 ----------

:)
No I think that's nice :)

I asked really because of the double j, it drew my attention.

Au101
10-01-17, 15:33
09:30 tomorrow I'm having the scan.

Wilburis
10-01-17, 19:36
Hi

That was quick!

Do you know what scan it is? CT or MRI?

Xx

Au101
10-01-17, 19:48
Hi

That was quick!

Do you know what scan it is? CT or MRI?

Xx

It was quick. Like we said, probably for the best, but in some ways I could have done with a few days' buffer.

I still don't actually know what scan it is, I can't help but wish people were being a little bit less urgent with me, it'd help me feel there was less to worry about! :P

Wilburis
10-01-17, 20:07
Yes but if you had more time you may well start Googling and start coming up with all sorts.

Do you have anyone to go with you ?

Au101
10-01-17, 20:23
Yeah, Mum & Dad :)

Wilburis
10-01-17, 20:25
That's good .

I'll be thinking about you tomorrow.

I sincerely hope everything goes well.

:hugs:

Au101
10-01-17, 21:08
Thank you! :)

swajj
11-01-17, 01:27
I agree with Lizzie. If the whole process had been slower it would have given you more time to think about it. I hope you can be told the results of the scan soon after you have it. Please let us know. :)

Au101
11-01-17, 18:33
Thank you to everyone who's shown me support on here :) Really :)

Okay, so, phew, it's been, it's been a long day, I'm exhausted.

I got there, bright and early, and I was seen by an optician who did a visual field test, she shone a light in my eye (presumably to check the response), she had a chat with me and then she passed me on to another eye person, who did another OCT - although it was a bit different to the one I had at the optician's - then I was passed on to a nurse, who checked the pressures in my eyes, and then finally to a doctor.

The doctor reviewed it all, shone a light in my eye and had a good look around. His words were, I don't think it's a disc haemorrhage, but I see what he (the optician)'s talking about. So he decided to pass it on to the consultant for a second opinion.

Finally the consultant did recommend a CT scan, which I had today.

A little over 2 hours later, by then completely exhausted, I finally heard that the CT came back normal and the consultant's happy.

I've gotta go back in a month for a follow-up and I, well, I would've preferred not to have had a dose of radiation to the head, all other things being equal, but, touch wood and whatever else, I think I can breathe a sigh of relief​.

As I think you can all imagine, I probably won't feel truly happy until the follow-up at least, and it's a tiny bit of a shame that I don't have a definitive cause for the possible-haemorrhage, but if the CT scan's normal I'm pretty chuffed. And the consultant seemed to talk himself into going for the CT in the first place so I, (hopefully!), I can get on with living normally from now on :)

Anxytips
11-01-17, 18:44
Excellent news mate

Wilburis
11-01-17, 18:57
Woo woo!

Brilliant news!

I'm so pleased for you.

:hugs::hugs:

Au101
11-01-17, 20:27
Woo woo!

Brilliant news!

I'm so pleased for you.

:hugs::hugs:
Thank you :) You've been great :)

swajj
11-01-17, 23:19
This is wonderful news. I don't think you need to worry because I think the specialist is just being cautious. You can stop worrying about it because eye doctors don't take chances. The doctor wouldn't have told you to return in a month if he was at all concerened. I'm glad everything turned out well. :)

Au101
31-01-17, 15:57
Well, I guess it was never gonna be quite as easy as all of that, was it? :P

So, after the scan had been done, I saw a doctor who told me the scan was fine, the consultant was happy and I should come back in a month for a follow-up appointment.

On Friday 13th I then received a telephone call from the GP who had referred me saying that she had received a fax from the hospital saying that the referral had been refused and they wanted me to come in for optical exams. I explained that the test had already been carried out and was fine.

I duly received a letter (dated 12th January) informing me of an Ophthalmology appointment on Thursday 09th February 2017 at 15:15 at Whipps Cross. This, I understood, was my follow-up appointment.

On Saturday 21st January I then received two letters (dated 19th January), one informing me of a Neurology appointment on Wednesday 26th April 2017 at 09:25 at Whipps Cross and one informing me of an Ophthalmology appointment on Tuesday 28th February 2017 at 14:00 at The Royal London Hospital.

At this point I was confused, and a little bit scared. I'd thought it was over and I'd just be going back for a quick follow-up, but now I've got neurologists contacting me!

So, I phoned the Appointments Centre and asked what I should do. I was actually informed at that time that the only appointment the operator had on the system was the second ophthalmology appointment on Tuesday 28th February 2017 at 14:00 at The Royal London Hospital. What I hadn't realised when I made this phone call, though, was that the hospitals were different, I didn't read the letter through as thoroughly as I should have because it seemed like a clone of the earlier one. I think I probably phoned the direct line given on the second ophthalmology letter and not the one on the other letters. This is presumably why the operator only had the one appointment and the system. She told me I could attend either appointment, though, and I assumed the Neurology appointment was an error, as it was not on the system and seemed unnecessary.

And then, a few days ago, I was upset to come home to a fourth letter dated 24th January, rescheduling the Neurology appointment of 26 April and informing me of a new appointment on Wednesday 8th February 2017 at 10:40 at Whipps Cross hospital.

Confused, I ended up emailing and today I received the reply

"The plan was originally for you to have a follow up and see a neurologist whenever but after the consultant meeting our neurologist asked us to book you in to see her before your eye appointment, you can still ettend the eye appointment and reschedule the neurology appointment but the eye appointment will not be as efficient without the neuro findings."

This is a bit less than I was hoping for really, so now I'm nervously awaiting next Wednesday. Eep :/

Wilburis
31-01-17, 17:47
Hi

Hmmm, it's all a bit confusing.

:hugs:

Au101
31-01-17, 20:59
Hi

Hmmm, it's all a bit confusing.

:hugs:

Yessss...they said they would do a follow-up but both the doctor and the consultant were totally happy with the CT scan (which I still think the consultant talked himself into recommending in the first place), so a big part of me is sure it's just the follow-up. In a lot of ways, I'm more worried about how I'm gonna answer the doctors' questions. Because I'm sure fellow worriers will understand, it's easy for us to over-inflate things in our minds, and we notice things and worry about them that other people wouldn't even think about. Just the other day I made myself some jerk chicken and everybody had told me that scotch bonnet chillis were very hot, but when I tasted them, they didn't seem very strong. You know, I started worrying maybe I had lost the ability to taste hot food. I went to sleep very anxious and the first thing I did when I woke up was to get some chilli powder on a teaspoon and taste it.

So what I'm worried about is setting off another period of unnecessary worry and another set of tests because I would sort-of "oversell it" if you like. What I really need, I think, is just to be left to get on with it. Every time I've seen letters with NHS stamps on them, I've become very nervous, you know?

But obviously, the other part of me is not pleased to read that the neurologist has asked to bring my appointment forward. I mean, I'm sure it's just about expediency, but obviously I can't help feeling nervous!

Wilburis
31-01-17, 21:03
Hi

Can you not ask your GP about what is going on?

He must have a letter regarding your CT and the plan of action.

x

Au101
31-01-17, 21:34
Hi

Can you not ask your GP about what is going on?

He must have a letter regarding your CT and the plan of action.

x

Hmmm that's a good question :)

I honestly hadn't thought of that, although clearly there have been some crossed wires with my GP given that phone call I got. She'd probably have access to my file, though. I'm not sure I can face scheduling another appointment in at some point, though, I know the CT was okay and I gather this is just a consultation, it's just, it just means another couple of hospital visits when I'd really rather put it all behind me. I know I won't feel completely happy until there are no more appointments in the back of my mind worrying me and maybe not for a while after. But I think this is just the promised next phase, the follow-up. What's got me a little worried is that someone's clearly asked for it to be moved, but that doesn't necessarily mean anything. Presumably the consultant I saw, all these weeks later, relayed what he could remember of my visit at a meeting and the neurologist said, well, actually, maybe it'd be a good idea to juggle the appointments and I'll see him before the ophthalmologist. I don't think it's a big deal, I just don't like waiting. You're right, I could confirm this with my GP, but I'm not sure I fancy, like I say, scheduling the appointment and also, you know what it's like, I'd rather not look beneath my bed, in case there is a monster there after all :P It was so much easier waiting for my first appointment with my GP when I didn't know they wanted to do a brain scan, than it was waiting for my hospital appointment when I did know that! :P

Wilburis
31-01-17, 22:00
I remember you said your parents went with you to the hospital so i guess youre not very old? Apologies if I have this wrong.

What do your parents say about all of this?

Maybe you could speak to your GP on the telephone?

It may help to put your mind at ease.

:hugs:

Au101
31-01-17, 22:12
I remember you said your parents went with you to the hospital so i guess youre not very old? Apologies if I have this wrong.

What do your parents say about all of this?

Maybe you could speak to your GP on the telephone?

It may help to put your mind at ease.

:hugs:

Twenties, but currently girlfriend-less :P

They're been good, Mum & I had a bit of a heart-to-heart. I know my dad's a mite worried, he's a worrier like I am, but I - I know the CT was okay, I just know I really need to put this behind me, and I know there's no chance of that happening until I've had all my appointments and so - like I say, not to sound like a broken record - I'm really hoping I'm gonna be able to avoid having any more tests done or hospital visits scheduled!

You know, some of me wants to go along and say as little as possible and get sent home as quickly as possible. But also, you know, I've had these follow-up appointments hanging over me, so I've felt relieved, but not completely out of the woods, and so I've still been worrying about every little thing I see, the mildest tension headache, the faintest itchy eye and so - I mean - my symptoms haven't gone yet and I, I wanna get a proper answer. Because last time I just got told, you know, the CT's fine, maybe you just sneezed or something, and that was great to hear, but I'd like to see if I can't find out the full story, you know?

Wilburis
31-01-17, 22:26
Hi

You are very lucky to have such supportive parents that you can talk to.

I do understand. It's all the waiting - it makes me so anxious.

Just remind yourself that your CT was fine.

:bighug1::bighug1:

Au101
31-01-17, 22:37
Hi

You are very lucky to have such supportive parents that you can talk to.

I do understand. It's all the waiting - it makes me so anxious.

Just remind yourself that your CT was fine.

:bighug1::bighug1:

I am, but you too, and the other people in this thread.

Thank you :) Don't underestimate the difference you have made, I really appreciate it.

Wilburis
31-01-17, 22:57
Wishing you well and please keep in touch.

xx

swajj
01-02-17, 09:38
It is appalling that they have messed around with the appointments. Don't overthink things because it could just be all part of the follow up process. Let us know how you go.

emmalj0
01-02-17, 18:32
Hi did you find out what the spot was. I'm currently undergoing tests as routine eye test showed I had swelling of both optic discs. Iv had brain mri which was normal, eye ultrasound, an oct scan of eyes, photos of eyes nothing sinister seen. Iv had a bright spot in my vision when blinking for a week now just left eye. Iv got my next appointment in three weeks I'm just panicking it's something bad like eye tumour but I can't c how word have been missed last scan was 24th November. Any help please

Au101
01-02-17, 21:41
I didn't no, like I say, regarding the "haemorrhage" (or what resembled a haemorrhage) the doctor was just like *shrug* maybe you just sneezed or something. Regarding what I saw, I still don't really know! I mean, maybe it was related to the haemorrhage or whatever it was, maybe it was neurological but not something that would show up on a CT scan (migraine or something). Maybe it was something to do with the eyes (visual strain or something) I don't know! I guess I may or may not find out more next week, which I guess is something I'm afraid of in a way.

I can so understand your panicking. I got told my CT scan was all clear, but especially with these appointment letters, remembering that is having diminishing returns. Of course I'm thinking - what if the neurologist has taken a look and seen something? Of course I'm thinking just because the CT was okay doesn't mean there isn't something really scary ... But you've had a lot of tests that have come back all clear, you're gonna be fine :) It's just the waiting for the appointment isn't it? You can't really put it out of your mind until they're all finished, whilst you've got appointments hanging over you the worry will always be with you. And while the worry is with you, any symptoms and possible symptoms will be as well, because you're thinking about them and worrying about them. Not to mention, I'm sure I've read on this site that anxiety can cause all kinds of effects on the vision.

Au101
07-02-17, 14:11
Alright, round 1 tomorrow :P

Wish me luck :)

Wilburis
07-02-17, 14:13
Hi

Good luck! :hugs:

Ill be thinking of you xx:flowers:

Au101
07-02-17, 19:24
Thank you both :)


Keep us posted. I went through and am currently going through an eye scare myself.

I feel your pain, I don't know if neurology enters into it for you as well, but to my mind, even if the neuro stuff is all good, nobody wants questions asked about their eyesight, it's the one sense you definitely don't wanna lose isn't it?

But you know us worriers, we get carried away, I'm sure you'll be fine! :) Plus, the stuff they can do with eyes these days gets more and more impressive with each passing day :)

Of course, it's much easier for me to say that to you than to remember it myself, and I'm sure you will feel the same way, but, fingers crossed :)

swajj
08-02-17, 07:44
I agree with you there have been enormous advances in this area. But the problem has to be identified before it can be treated. Good luck AU101 I hope it goes well for you.

LE
08-02-17, 09:17
Good luck. If it ant consollation I failed a visual field test as was referred for tests and all have come back normal too. MRI and was referred to a neurologist and an opthamologist. Thinking of you!

Au101
08-02-17, 12:35
Thanks everyone! :)

The neuro appointment was fine, had a quick interview, she said she actually probably didn't need to see me, but happily, she decided that, while I was there, she'd just do the standard kind of neuro tests - you know, look straight ahead and tell me which hand I'm moving, can you touch your nose, hitting you with a hammer to check your reflexes, asking you to push up with hands and feet and stuff, check everything's all fine. As I say, no problems, so I'm feeling pretty happy now.

Of course, I've still got ophthalmology tomorrow and I'm not completely unconcerned, because you know how it is, they could easily put me back into the system for another appointment just to be safe, and then I'll have all this again but, realistically, I'm pretty happy for now at least. Don't wanna speak to soon but, really can't complain about how today has gone, let's just say that :P

Wilburis
08-02-17, 12:42
Woo hoo!

Brilliant news.

Im so pleased for you.

xx :bighug1:

Au101
09-02-17, 17:10
Well hopefully that'll be that, he's discharged me and just given me a list of things to watch out for. He did say my optic nerve is a bit funnily shaped, but he said maybe that's just you and if the CT scan was normal, I can't see anything to worry about.

You know what it's like, I would've liked him to sound a bit more confident and could have done without the list of terrifying symptoms, I'll be down the doctor's with the slightest tummy ache if I'm not careful!

But, hey, at least it seems like it's done, the CT was fine, the neurologist was happy, I just need to be mindful, and probably take care of myself a bit better so I don't go giving myself tummy aches and then worrying myself silly over them ;)

Thanks for all your help people, this community's amazing, and my heartfelt best wishes to all those of you who've mentioned you're having similar concerns.

Wilburis
09-02-17, 17:19
Hey

Fabulous news!

What a relief.

xx:bighug1: