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mdel
25-05-17, 20:54
I'm suffering HA again, this disease isn't letting me stop researching stuff onctje internet. And now I read that there are several cases of people who get their diagnoses about 3 years later or even more because they had a slow growing or indolent kind of Non-Hodkins lymphoma.
I'm still having my enlarged lymph nodes of about 1.2cm in my neck and submandibular ones. I have many of them. About 7 or 8, some are tiny, others are 1cm+. I also have a posterior cervical one (well it's more behind my right shoulder in my back) but it's about 5mm. Oh and I know this because of an ultrasound that I took (the specialist showed me some of them, she said it's normal but I don't trust ultrasounds since it can't diagnose anything)
It's been over 4 years :( and I'm a young person I'm 23. I'm just in the beginning of my life. Why me? Why am I crazy?

Fishmanpa
25-05-17, 21:13
Question: Since nodes can be up to 2cm and still considered normal, have the nodes been clinically diagnosed as "enlarged"? I ask because it's absolutely unheard of for nodes to stay enlarged for that period of time unless they're "shotty" from being poked and prodded to death.

And you're not crazy, you have anxiety which is way easier to treat than some sinister illness.

Positive thoughts

mdel
25-05-17, 22:02
Then if no one had non-cancer enlarged nodes for more than 4 years why does it make me the exception? Isn't it way easier to believe that I have cancer instead of thinking that I can be 1 in 1 million with an extremely rare benign disease?

Fishmanpa
25-05-17, 22:10
Then if no one had non-cancer enlarged nodes for more than 4 years why does it make me the exception? Isn't it way easier to believe that I have cancer instead of thinking that I can be 1 in 1 million with an extremely rare benign disease?


I already went to about 5 ENTs (1 of them oncologist, 2 hematologist, 1 infectologist and 1 allergist)...
touched my lymph nodes and said that they were normal and not to worry about it because ... they performed me full blood tests and infections test (like HIV, mononucleosis, etc..) and they also performed me X Ray of chest and head, and an ultrasound of soft tissues of neck.

After all tests they only found some 1 cm or less nodes in my neck and nothing else so the final results were (no adenopathy found, and normal tyroid glandule).

None of my ENT think my lymph nodes are malignant.

You do have an illness mdel. It's called anxiety. That's what you should be treating.

Positive thoughts

mdel
25-05-17, 22:18
Ok... so, even if they are normal, can I delete them all with surgery? I don't want them there... they are useless, broken lymph nodes or something. Like when I was very young about 5 years old I got my tonsils and adenoids removed by laser surgery. Isn't it easy like that?

Fishmanpa
25-05-17, 23:04
Ok... so, even if they are normal, can I delete them all with surgery? I don't want them there... they are useless, broken lymph nodes or something. Like when I was very young about 5 years old I got my tonsils and adenoids removed by laser surgery. Isn't it easy like that?

No... plain and simple. No surgeon in their right mind would do that. In fact, you couldn't even pay out of pocket for that. You need your lymph nodes. They are the body's sewer system. They filter out nasties. I implore you to seek professional help for your mental illness. Your mindset is skewed. I have real physical conditions that can put me 6 feet under. You have a condition that's essentially doing that above ground. How many years have you wasted worrying about something that doesn't exist?

Positive thoughts

mdel
25-05-17, 23:31
You are a good person. I see you help a lot of people here and this is not the first time I get help from you. How did all diseases started? Why is the world that unfair? People should have exactly the same amount of time to live and things would be very different.
How are you feeling right now? Is it curable? I hope you get better