guitarman
10-08-17, 16:52
Hi All,
I'm new to posting, but have been reading for a 6 months or so and found a lot of comfort (even if it doesn't normally last!) from these forums, so thank you everyone who contributes :)
My journey is like most peoples - MS fears which eventually go to ALS fears and then flip flops between the two. I'm rational enough (for now) to not be worried by ALS, but MS is the one I always go back to as my symptoms seem so close.
In particular it's the changes to my vision. I find I rally struggle with visual disturbances - floaters, light sensitivity and after images, like most people.... but the one no one ever mentions is when I look at a blank wall or any bright surfaces I see like strange shapes. Like its kind of blurry and just... disturbed. It's really hard to describe. Anyway I have been to the doctors (lots) had an mri - fine, blood tests - fine, opticians did full checks and tests - all fine. I've read lots of places that say vision problems is the first sign of MS - and I have constant thigh pain, creaky joints, twitches here there and everywhere... which I have learnt to just live with... But eyes are very hard to ignore!!! It's a constant reminder...
I accept I have anxiety, which started following a panic attack a few years ago, but it's SO hard to accept that this change in my vision is purely a mental thing... yet I am hyper aware of everything.
Would just love to hear if anyone else has had these visual problems. If yes, how long for and did they worsen?
Thanks for listening, and positive thoughts people - we're our own worst enemies most times! :)
I'm new to posting, but have been reading for a 6 months or so and found a lot of comfort (even if it doesn't normally last!) from these forums, so thank you everyone who contributes :)
My journey is like most peoples - MS fears which eventually go to ALS fears and then flip flops between the two. I'm rational enough (for now) to not be worried by ALS, but MS is the one I always go back to as my symptoms seem so close.
In particular it's the changes to my vision. I find I rally struggle with visual disturbances - floaters, light sensitivity and after images, like most people.... but the one no one ever mentions is when I look at a blank wall or any bright surfaces I see like strange shapes. Like its kind of blurry and just... disturbed. It's really hard to describe. Anyway I have been to the doctors (lots) had an mri - fine, blood tests - fine, opticians did full checks and tests - all fine. I've read lots of places that say vision problems is the first sign of MS - and I have constant thigh pain, creaky joints, twitches here there and everywhere... which I have learnt to just live with... But eyes are very hard to ignore!!! It's a constant reminder...
I accept I have anxiety, which started following a panic attack a few years ago, but it's SO hard to accept that this change in my vision is purely a mental thing... yet I am hyper aware of everything.
Would just love to hear if anyone else has had these visual problems. If yes, how long for and did they worsen?
Thanks for listening, and positive thoughts people - we're our own worst enemies most times! :)