Nini91
03-10-17, 01:17
Hey all,
I'm new here (well new to posting anyway, I've been reading the forum for some months now) I know we all cant "diagnose" each other but it's nice to know that you aren't alone. So here it goes....
This all started in May of this year (mothers day to be exact) I had my first panic attack....the next three weeks were plagued with ER visits, intrusive thoughts, and mental breakdowns. Started to see a therapist and was able to keep it under control. Just when I thought I was on the right track and that anxiety could plague me no more...the twitching started (about a month later).
At first, it was just mild calf cramps that I just brushed off and then the twitching or "fasciculations" started in my thumb and then soon it was all over my body, it drove me mental...so I did what anyone would do (right?) and consulted Dr. Google (P.S. I know this is an awful habit and i need to stop..Im working on it lol) and low and behold....ALS....and down the rabbit hole I fell. It got to the point where I was crying every night because I was thinking my kids would only remember me as the mom who couldn't do anything. I even tried to plan out my last remaining years because I was so convinced I was only going to be alive for 3 more years.
I kind of talked myself off that ledge for a little while but then MS came into play, I was getting random spots of numbness, muscle twitches, vertigo, balance issues, and my vision would go in and out. I started a new job two weeks ago and on my second day I got a bout of vertigo so bad I almost fell...so to the ER I headed...I was there for almost 4 hours and had an MRI done....I expressed my fears of MS and he did a few tests and ordered the MRI..after that was done he told me he initially feared I had a brain tumor (trust me I thought so too) but he told me my MRI was fine, but I did have little white spots...that were "unspecific" and were unrelated to my current symptoms so it pointed away from MS. Wrong thing to say to me, I freaked out! He had to come back in and tell me that the neuro said I looked like I suffered from migraines (which I don't). So here I am freaking out that I'm going to go to the neuro on the 17th of this month and get my death sentence...and I can't think straight.
Here are my current symptoms:
Muscle Twitching (3 months) all over, feet, calves, tongue, lips, cheek, eye, arms, stomach, thighs, butt...literally anywhere your can twitch I twitch.
Balance issues (just feel like I'm always walking to one side, 1 month)
Random spots of numbness and tingling (only lasts a few min at a time)
Shaky Hands (hence my Parkinsons fear)
Increased Saliva (at least I think so)
Constantly feel like my jaw is tight
Feel like my tongue is too big for my mouth
Constantly biting my tongue
and random body jerks (no one even notices them but I do, they happen during the day, but I have a lot a night before I go to sleep that also makes me fear that I have Parkinson's or als but I also know that night jerks are normal because I have had them before but not to this extent...i still sleep pretty good so I try not to worry about the jerks so much. )
I have many people tell me it's anxiety and it's so hard to believe because I have never dealt with this before. I'm so convinced I'm sick it just blows my mind when I get blood work done everything is fine, Calcium, Potassium, Magnesium, B12 all normal. I did have low vitamin D but I recently had that tested again and that was normal as well. Can my brain really make me feel like I have ALS, Parkinsons, and MS?? I hate this...since my balance issues started my hips and knees are constantly hurting and so is my back (but I've always had back issues) I keep googling and everything leads back to those three things ALS, Parkinsons, MS....oh and by the way, I'm 26. One day I'm 100% convinced its ALS, then another day its Parkinsons, and then another its flippin MS! I need help on kicking this cycle...I pray that my neuro visit in 2 weeks will help and give me the all clear, but I'm also scared Ill find out I have some scary disease. I know I shouldn't be worried if the neuro wasn't worried about my first MRI but you hear and read so many scary stories idk what to do.
Anyone else going through the same thing? Sorry, this is so long I just needed to get it all out there.
I'm new here (well new to posting anyway, I've been reading the forum for some months now) I know we all cant "diagnose" each other but it's nice to know that you aren't alone. So here it goes....
This all started in May of this year (mothers day to be exact) I had my first panic attack....the next three weeks were plagued with ER visits, intrusive thoughts, and mental breakdowns. Started to see a therapist and was able to keep it under control. Just when I thought I was on the right track and that anxiety could plague me no more...the twitching started (about a month later).
At first, it was just mild calf cramps that I just brushed off and then the twitching or "fasciculations" started in my thumb and then soon it was all over my body, it drove me mental...so I did what anyone would do (right?) and consulted Dr. Google (P.S. I know this is an awful habit and i need to stop..Im working on it lol) and low and behold....ALS....and down the rabbit hole I fell. It got to the point where I was crying every night because I was thinking my kids would only remember me as the mom who couldn't do anything. I even tried to plan out my last remaining years because I was so convinced I was only going to be alive for 3 more years.
I kind of talked myself off that ledge for a little while but then MS came into play, I was getting random spots of numbness, muscle twitches, vertigo, balance issues, and my vision would go in and out. I started a new job two weeks ago and on my second day I got a bout of vertigo so bad I almost fell...so to the ER I headed...I was there for almost 4 hours and had an MRI done....I expressed my fears of MS and he did a few tests and ordered the MRI..after that was done he told me he initially feared I had a brain tumor (trust me I thought so too) but he told me my MRI was fine, but I did have little white spots...that were "unspecific" and were unrelated to my current symptoms so it pointed away from MS. Wrong thing to say to me, I freaked out! He had to come back in and tell me that the neuro said I looked like I suffered from migraines (which I don't). So here I am freaking out that I'm going to go to the neuro on the 17th of this month and get my death sentence...and I can't think straight.
Here are my current symptoms:
Muscle Twitching (3 months) all over, feet, calves, tongue, lips, cheek, eye, arms, stomach, thighs, butt...literally anywhere your can twitch I twitch.
Balance issues (just feel like I'm always walking to one side, 1 month)
Random spots of numbness and tingling (only lasts a few min at a time)
Shaky Hands (hence my Parkinsons fear)
Increased Saliva (at least I think so)
Constantly feel like my jaw is tight
Feel like my tongue is too big for my mouth
Constantly biting my tongue
and random body jerks (no one even notices them but I do, they happen during the day, but I have a lot a night before I go to sleep that also makes me fear that I have Parkinson's or als but I also know that night jerks are normal because I have had them before but not to this extent...i still sleep pretty good so I try not to worry about the jerks so much. )
I have many people tell me it's anxiety and it's so hard to believe because I have never dealt with this before. I'm so convinced I'm sick it just blows my mind when I get blood work done everything is fine, Calcium, Potassium, Magnesium, B12 all normal. I did have low vitamin D but I recently had that tested again and that was normal as well. Can my brain really make me feel like I have ALS, Parkinsons, and MS?? I hate this...since my balance issues started my hips and knees are constantly hurting and so is my back (but I've always had back issues) I keep googling and everything leads back to those three things ALS, Parkinsons, MS....oh and by the way, I'm 26. One day I'm 100% convinced its ALS, then another day its Parkinsons, and then another its flippin MS! I need help on kicking this cycle...I pray that my neuro visit in 2 weeks will help and give me the all clear, but I'm also scared Ill find out I have some scary disease. I know I shouldn't be worried if the neuro wasn't worried about my first MRI but you hear and read so many scary stories idk what to do.
Anyone else going through the same thing? Sorry, this is so long I just needed to get it all out there.