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Niksig
24-10-17, 13:52
The thought of tomorrow is slowly driving me insane! after 3 years tomorrow we get my sons official diagnosis weve already been told he most likely has Aspergers but tomorrow is the day we find out for sure.
I know after 3 years I should be relieved were finally getting answers and we can get him extra support in school but I just cant stop thinking about it.

Ive been around autism and LD my whole life and ive worked in a care home for LD and mental health so I really don't know why its affecting me so much. my feelings will NEVER change for my son I will always love him no matter what and I wouldn't change him for the world.

So the whole point of this post is to see if anyone else has had this happen and what happens next with regards to getting extra support at the school and therapies?

Sorry for rambling I'm a bit of a mess today x:wacko:

.Poppy.
24-10-17, 22:52
I don't have experience with this, but remember that he is still the same child. A diagnosis doesn't change that.

I kind of felt the same way when I was diagnosed with depression - anxiety I knew I had, but the dx of "depression" just seemed really scary for some reason. Until I realized that the label didn't change me, but it did allow me to get help, which then DID change me - for the better.

I'm sure tomorrow will go well. Hugs. XX

Niksig
25-10-17, 21:02
Thank you it went well =)

I know his diagnosis doesn't change him and I wouldn't want it to hes the most caring and kind little boy ever.
the whole process has kicked my anxiety off so bad all the meetings and assessments constantly worrying about if hes getting upset or anxious.

Weve been told today he has autism and will receive funding for the school to hire somebody to support him in class which will help him so much because he struggles being left with a task to do on his own.

weve been given a lot of information today to help us help him which is good =)

pulisa
25-10-17, 21:26
I have 2 adult children on the autistic spectrum. My son had individual help throughout his school life and my daughter went to a special school for autistic children. It really does help to get the right support early on at school. Getting the diagnosis is significant but it doesn't change anything-he's still your little boy who just happens to have Asperger's. Make sure you are aware of what is happening at school and let school know how he is at home-it's important to work together as a team and keep communicating.

Niksig
26-10-17, 10:03
Thank you x
Thankfully the school have always been on side with us but obviously could only help so much without a statement
He's been on the special needs register at school for a little while but we still haven't had any dealings with the senco the therapist yesterday suggested we arrange a meeting with the head and the senco to discuss the meeting we had yesterday and to let them know the therapist report is on the way with the diagnosis.
To be honest I'm not even sure what I was anxious about we've been expecting this for a long time and it would never change how I feel about him he's the most amazing boy, so kind and loving I think it was because it was so final but at least now we can work towards getting him the 1:1 support he deserves at school. He's so smart but needs support understanding what he has to do so he will defiantly benefit from somebody sitting with him in class.

pulisa
26-10-17, 13:15
One to one support is so important for your little boy and I'd advise you to make sure that the senco is fully aware of what an ASD diagnosis means. There may be outreach support available from specialist teachers of autistic children if you feel that the support is inadequate from your son's school. A Statement will be in his best interests but you will have the yearly battle to make sure that it is kept relevant and addresses all your son's needs.

Niksig
26-10-17, 14:58
I'm all ready to fight for him I know it's going to be a battle but anything that is going to help is worth fighting for.
On Monday I'm going straight to the head to arrange a meeting with her and the senco to make sure something is now put in place for him

pulisa
26-10-17, 17:50
The official diagnosis and Statement of special educational needs will be enough to ensure that he gets support but you must make sure that whoever supports him has training in ASD.

Niksig
26-10-17, 18:34
going to have a sit down meeting with them to make sure they have what he needs at school =)