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braindead
15-11-17, 19:10
I letter came through my door today 5 days after discharge from the hospital. Suddenly a psychologist and a shrink now say i have EUPD after years of telling me i am BIPOLAR ????????? no wonder the meds never worked there isnt any that really work fo EUPD . I am still struggling to get my loz back on track after there hap hazard med time schedules. ( EMOTIONALLY UNSTABLE PERSONALITY DISORDER) It never rains but it poors , thank you god you are a real kick in the balls .:wacko::wacko::wacko:

pulisa
15-11-17, 20:37
I think you need to ask the team as to why they have changed your diagnosis after so many years? Also why has your nurse Sally never questioned the bipolar diagnosis despite seeing you so frequently?

I know it depends on which psychiatrist you see as to what diagnosis you get but you must be confused and frustrated.

swgrl09
15-11-17, 20:51
It is an odd way to find out a change in diagnosis... I would definitely follow up with your providers. Medications don't cure personality disorders, but they can help with some of the symptoms. But even if medications don't provide relief, there are models of therapy proven to work such as DBT (Dialectical Behavioral Therapy). Is that available to you? DBT is helpful for personality disorders, as well as bipolar disorder so it wouldn't hurt either way to look into it.

KK77
15-11-17, 21:34
I think you need to ask the team as to why they have changed your diagnosis after so many years? Also why has your nurse Sally never questioned the bipolar diagnosis despite seeing you so frequently?

I know it depends on which psychiatrist you see as to what diagnosis you get but you must be confused and frustrated.

I think the answer to that lies in the fact that we nearly lost Brian and his MHT screwed up so badly in its duty of care. I find this diagnosis convenient and questionable at best.

cattia
15-11-17, 21:38
Is it possible to get a second opinion? Even privately? Both conditions can be treated but the treatment is different so you need an accurate diagnosis. I'm sorry to hear you are having such a difficult time.

AntsyVee
15-11-17, 22:01
Brian, from what I know of you, BPD/EUPD makes more sense to me than bipolar, but I don’t have a license. And as SWgirl says, meds will only help with the symptoms. Therapy can help you learn to live with it and manage it, as with any other chronic condition, but like all things, the more you put into it, the more you’ll get out of it, provided you have an experienced, competent therapist.

MyNameIsTerry
16-11-17, 04:39
I think I would be pretty angry about this too, Brian. So, have a rant and get it out of your system. Sending someone a diagnosis for something like this just annoys me. It's lazy and uncaring. What next, a text message or WhatsApp? "You got EUPD OMG LOL" :mad: Imagine if they did that with somethig like a cancer diagnosis? Front page of every big chip paper and national outrage.

Years & years, loads of meds and now they change their minds on your diagnosis twice in a matter of weeks. I agree with the above about following this up because they are making quite different conclusions and it does make you wonder who is right.

EUPD, like all PD's, can be treated with CBT (yes, I know you are throwing a mug of tea at me right now...CBT seems to get trawled out for just about anything!) but DBT is a later version of CBT created specifically for PD's. It is offered so hopefully they can give you this. There is another called Schema Therapy which looks good too but it's much newer than DBT (DBT adds on coping with the emotions) so resources might be scarce over here outside the private sector. The NHS also use therapeutic groups specifically for PD sufferers where peer support runs the sessions & enforces the rules (hands off therapy approach) and there are plenty of these around the country now.

pulisa
16-11-17, 08:06
I think the answer to that lies in the fact that we nearly lost Brian and his MHT screwed up so badly in its duty of care. I find this diagnosis convenient and questionable at best.

I agree. It is a convenient diagnosis. The most important thing is that you get the appropriate and correct level of support. I know you are very angry but it may be worth your while to see what they can offer in terms of treatment/therapy?

braindead
22-11-17, 18:15
The problem is when i overdosed i was taken out of my care in the community care and handed tempory to the mental health older patient ward, i was put in there against my will but i would have been sectioned if i kicked off because i had TRIED TO TAKE MY OWN LIFE. I was forced to stay 3 weeks and im sure i have PTSD just living with strange life forms , some patient are cool and others are not///// people who have been on a psych ward will no what i mean. i kept my head in bed near on 24-7 to keep out the way and only had 1 -20 minute talk to there psychologist and then she must off spoken to the shrink and made there mind up i had an emotionally unstable personality disorder just like that???????? and no meds would help the condition has i had been on most in my life. I HAVE i admit but some of them worked for some time. i remember not using the hospital for 10 years , and going through my gp we had many successes with SSRIS through the years , sadly they ran there course. But theses freaks SAY i am wasting my time trying to find a med that will work . yet i did have years ago . surely if i had EUPD has they say they would never have worked, I am back home now with my community team but i dont see the shrink till 1 week tomorrow, i have has a psychologist round and she has taken me on. i asked her about the EUPD theory and she said i treat people not labels:: thats a good answer. but i feel like shit really bad with anxiety what if my shrink says the hospital is right and i do have EUPD i dont think i can carry this fight on much longer ,i need months to get my strength back i have no fight left in me:weep:

AntsyVee
22-11-17, 18:22
Don’t look at the whole mountain at once; it’s too overwhelming. Just concentrate on the next hour or the day... What can you do tonight before bed? Breathe. Try writing your thoughts down.

MyNameIsTerry
23-11-17, 02:41
I still think she needs to give reassurance on diagnosis though but agree treating the person is best.

Antidepressants are used for treating many things, there is no reason why they can't be used to treat symptoms of PD's or to help with mood based neurotransmitters. But they certainly don't agree the PD itself, that's learnt behaviour and needs to be changed.

swgrl09
23-11-17, 02:44
If your shrink ends up agreeing that you have a personality disorder, then maybe that opens the door to finding treatment that will actually help you? It could be a positive outcome out of all of this.

braindead
23-11-17, 18:50
If your shrink ends up agreeing that you have a personality disorder, then maybe that opens the door to finding treatment that will actually help you? It could be a positive outcome out of all of this.

thats a good answer but i cannot think beyond the mental pain at the moment but thanks

---------- Post added at 18:50 ---------- Previous post was at 18:17 ----------


Don’t look at the whole mountain at once; it’s too overwhelming. Just concentrate on the next hour or the day... What can you do tonight before bed? Breathe. Try writing your thoughts down.

before bed i wish ???????????
, plenty of bed no sleep/ I no don't stay in the safe bed get up and about, i dont even have the strength to move about.

AntsyVee
23-11-17, 19:07
I’ve been there Brian, so gone I couldn’t even get out of bed. I ended up having to put signs on my ceiling encouraging me to do so. I made it; you will too.

Open the note pad on your phone. Try writing some of your thoughts down.

swgrl09
24-11-17, 00:54
Even if you have to take it every hour at a time, that's okay. It's hard to see the way out when you are stuck in the worst of it, but that doesn't mean it doesn't exist. It can be "I'm going to sit in a different room today for 5 minutes" if that's what you can handle. Just change things up a little.

pulisa
24-11-17, 08:31
At least you have a community team who are prepared to visit and work with you, Brian. You haven't been labelled as "treatment resistant" and you have a psychologist who wants to help you. I would love my daughter to have this input but it isn't available for her. I wouldn't rule any therapy- or any help at all which is offered - out. You may be feeling totally exhausted and overwhelmed at the moment but you have people who love you to rally for.

braindead
24-11-17, 17:56
At least you have a community team who are prepared to visit and work with you, Brian. You haven't been labelled as "treatment resistant" and you have a psychologist who wants to help you. I would love my daughter to have this input but it isn't available for her. I wouldn't rule any therapy- or any help at all which is offered - out. You may be feeling totally exhausted and overwhelmed at the moment but you have people who love you to rally for.

your right but with the constant gut-churning i am wasting away , everything you eat goes straight through

pulisa
24-11-17, 18:00
Well you don't want to be constipated after a fissure repair. Has your lorazepam been reduced or stopped?

braindead
25-11-17, 18:03
IF the 6 MG of LORAZEPAM had been stopped after 40 years i would be dead.Yes its up at the moment but soon go back down to 6mg .WHY ON EARTH would anyone stop at 69 year olds 6 mg of lorazepam after 40years, what would that prove, i am already fighting for my life.ALL other ADs meds have been stopped but beside this flash DIAGNOSIS of E U P D i still have chronic anxiety and depression how that gets under control without meds is 1 of life's mysteries:shrug:

pulisa
25-11-17, 19:31
It was only a question-I didn't think you would have been taken off it completely especially in view of the fact that your ADs have been withdrawn.

Is it the fact that you aren't on any meds which most distresses you or the fact that you have a BPD diagnosis?

braindead
26-11-17, 17:31
It was only a question-I didn't think you would have been taken off it completely especially in view of the fact that your ADs have been withdrawn.

Is it the fact that you aren't on any meds which most distresses you or the fact that you have a BPD diagnosis?

I would say both ,i still have depression and anxiety, so what treats them with no meds , and 1 day a week bpd therapy seems so little. i cannot carry on with this level of depression and anxiety how the hell do ya:weep:

braindead
04-12-17, 18:08
I have managed a very low dose of Lexapro 5mg not a lot but with Lexapro, less is more 20 mg will have your guts out. Thats same has 40 mg citalopram which strangely hates my body , but Lexapro his younger the more expensive med took 6 chemists before a script was found, my update i am a bag of bones m food goes straight through, the fissure was mended i have 2 of the IRIS team come to my house every day including weekends to see i haven't killed myself or have bad thoughts if i do its hospital for safety, every muscle in my body aches.THE personality disorder the hospital labeled me with a trait is some kill themselves, fancy telly a near 70 year old that

KK77
04-12-17, 18:18
I have managed a very low dose of Lexapro 5mg not a lot but with Lexapro, less is more 20 mg will have your guts out. Thats same has 40 mg citalopram which strangely hates my body , but Lexapro his younger the more expensive med took 6 chemists before a script was found, my update i am a bag of bones m food goes straight through, the fissure was mended i have 2 of the IRIS team come to my house every day including weekends to see i haven't killed myself or have bad thoughts if i do its hospital for safety, every muscle in my body aches.THE personality disorder the hospital labeled me with a trait is some kill themselves, fancy telly a near 70 year old that

Don't take labels seriously myself, Brian. What's important is that you slowly but surely get better and that mind and body improves. Any med should be low dose IMO because you've suffered both mental and physical trauma recently and you don't want to rock the boat unnecessarily.

Hope recovery continues.