s32bauer
08-12-17, 16:31
:weep:
This is the first time that I've posted on the forum. It's a rather long post, so I'm not expecting anyone to read through all of it.
Around the end of August, I had a few hours where I felt a little lightheaded and nauseous, but not bad enough to stop me doing my usual. I was due to have an endoscopy on 4th September to investigate a tight sensation I'd had in my throat for about a year. I figured I'd perhaps just got myself worked up about it.
The endoscopy went ahead and they said the only thing of note was a bit of redness, and they gave me Omeprazole. Because of the anxiety I had it done under general anaesthetic. I felt ill for the days after, which I put down to the anaesthetic. Day after day I gradually felt a bit better until the Saturday morning I felt almost back to normal and was able to walk in to town. Then the Saturday afternoon, that all changed.
I felt so light headed and sick that I had to pull over in the car and lay on the back seat. My heart was going and I felt like I was going to pass out. The friends I was with Google the symptoms and said it sounded like a panic attack. I have also had a Petechiae rash and when I called 111 I was told to go to hospital.
Since then, I have never got back to normal. Over three months, so many family days out missed, had to cancel honeymoon twice.
I've had numerous tests, most of which were normal. I'd even started to pay for private tests as I was worried about brain cancer (had headaches at the beginning), it revealed a cyst in my sinus and they requested an urgent ct scan as they were worried it might have been on the bone, but apparently it's not.
I had started to go back to work for a few hours a week after three months off. My gp started me on b12 injections which made me feel much better but not for long.
As I was starting to get so much more positive, I then started to get stomach issues. I paid privately to go to a gastroenterologist and was told that he didn't think there was anything of concern and that it was just my anxiety. I thought this strange as I'd never had a weird stomach for a month before (stomach issues started just over a month ago, whereas the lightheadedness and nausea has been there from the beginning back at start of September).
It started with a dull ache under my left ribs and my back. I had that earlier this year and it just went away. Then it started to go across to under my right rib cage, and now down to my intestines sort of area. I used to go to the toilet once a day but haven't been for a week now. I've lost over three stone since this all started. I was on lansoprazole but have stopped that today.
The gastroenterologist had almost convinced me that it was the anxiety, although I was still scared given he hadn't done any tests.
Then everything got worse.
The doctor had done a faecal calprotectin test which wasn't back by the time I saw the gastroenterologist. I called the doctor and the receptionist told me there was an abnormal result and I had to speak to a doctor. I was told the normal level was below 50, but mine was 436 approximately.
I have been devastated by this. My gp has referred me for an urgent colonoscopy but they have said it might only just be before Christmas.
From what I can see, an elevated result like this is most likely due to cancer, ulcerative colitis or chrones disease. Obviously the cancer is very very bad, but even the other two say how I would have a higher risk of cancer in the future, and very strong possibility I would need surgery at some stage.
I keep hoping that this has been a very long bad dream, and that I'll just wake up. Every hour seems like a week, and knowing how long it's going to take to get tests done, I'm petrified of the test (I'm scared about the prep and being sick, and worried about bleeding and internal injuries which I know are rare), I'm worried if they find something and what it will be, worried about other tests they will need to do, worried they will miss something).
I just try to sleep every time I can so I'm not awake to think about it. I have been offered tablets for the anxiety but in the past they have all made me feel worse for at least a month before kicking in, and I don't want to just mask over it either.
Right now I'm so scared that I have cancer to the point of picturing how I'll be told and what to tell family.
I'm almost inconsolable.
This is the first time that I've posted on the forum. It's a rather long post, so I'm not expecting anyone to read through all of it.
Around the end of August, I had a few hours where I felt a little lightheaded and nauseous, but not bad enough to stop me doing my usual. I was due to have an endoscopy on 4th September to investigate a tight sensation I'd had in my throat for about a year. I figured I'd perhaps just got myself worked up about it.
The endoscopy went ahead and they said the only thing of note was a bit of redness, and they gave me Omeprazole. Because of the anxiety I had it done under general anaesthetic. I felt ill for the days after, which I put down to the anaesthetic. Day after day I gradually felt a bit better until the Saturday morning I felt almost back to normal and was able to walk in to town. Then the Saturday afternoon, that all changed.
I felt so light headed and sick that I had to pull over in the car and lay on the back seat. My heart was going and I felt like I was going to pass out. The friends I was with Google the symptoms and said it sounded like a panic attack. I have also had a Petechiae rash and when I called 111 I was told to go to hospital.
Since then, I have never got back to normal. Over three months, so many family days out missed, had to cancel honeymoon twice.
I've had numerous tests, most of which were normal. I'd even started to pay for private tests as I was worried about brain cancer (had headaches at the beginning), it revealed a cyst in my sinus and they requested an urgent ct scan as they were worried it might have been on the bone, but apparently it's not.
I had started to go back to work for a few hours a week after three months off. My gp started me on b12 injections which made me feel much better but not for long.
As I was starting to get so much more positive, I then started to get stomach issues. I paid privately to go to a gastroenterologist and was told that he didn't think there was anything of concern and that it was just my anxiety. I thought this strange as I'd never had a weird stomach for a month before (stomach issues started just over a month ago, whereas the lightheadedness and nausea has been there from the beginning back at start of September).
It started with a dull ache under my left ribs and my back. I had that earlier this year and it just went away. Then it started to go across to under my right rib cage, and now down to my intestines sort of area. I used to go to the toilet once a day but haven't been for a week now. I've lost over three stone since this all started. I was on lansoprazole but have stopped that today.
The gastroenterologist had almost convinced me that it was the anxiety, although I was still scared given he hadn't done any tests.
Then everything got worse.
The doctor had done a faecal calprotectin test which wasn't back by the time I saw the gastroenterologist. I called the doctor and the receptionist told me there was an abnormal result and I had to speak to a doctor. I was told the normal level was below 50, but mine was 436 approximately.
I have been devastated by this. My gp has referred me for an urgent colonoscopy but they have said it might only just be before Christmas.
From what I can see, an elevated result like this is most likely due to cancer, ulcerative colitis or chrones disease. Obviously the cancer is very very bad, but even the other two say how I would have a higher risk of cancer in the future, and very strong possibility I would need surgery at some stage.
I keep hoping that this has been a very long bad dream, and that I'll just wake up. Every hour seems like a week, and knowing how long it's going to take to get tests done, I'm petrified of the test (I'm scared about the prep and being sick, and worried about bleeding and internal injuries which I know are rare), I'm worried if they find something and what it will be, worried about other tests they will need to do, worried they will miss something).
I just try to sleep every time I can so I'm not awake to think about it. I have been offered tablets for the anxiety but in the past they have all made me feel worse for at least a month before kicking in, and I don't want to just mask over it either.
Right now I'm so scared that I have cancer to the point of picturing how I'll be told and what to tell family.
I'm almost inconsolable.