Daisy_chains
08-07-07, 07:14
Hello everybody.
I recently posted (my very first post!) about my anxiety about travelling down to London (a 4 hour car journey) to Great Ormond Street for treatment of Neuroblastoma...Im now HOME!!!!!:winks:
We started out early on Monday morning about 7am, and for the first hour my anxiety was at about a "5" on the scale of 1 - 10. I took an anti-emetic tablet which made me sleepy, but i didnt actually fall asleep. I was so suprised that my anxiety almost vanished for the rest of the journey and i felt almost as relaxed as what i do n a journey nearer to home! I started becomign more bothered about the actual hospital appointment than the getting there, which is very unlike me! I was STUNNED!
The appointment went well too! My new Oncologist has reffered me for 2 new clinical trials, the first one starting next Tuesday at the Royal Liverpool Childrens hospital (which is about 2 hours from where i live). If all else fails, i will return to London for a different Chemotherapy concoction, and possibly full body radiation depending on MIBG and CT scan results.
Coming home was a slight disaster! We got a little lost, and realised that we had been travelling down the A roads a bit too long, and were actually meant to be on the motorway LOL. My mum kept seeing signs for Cambridge and was panicking, so we stopped at a the next service station and got out the map (which we probably should have done ALOT sooner!:shades: ) .......anyway.....the 4 hour car journey turned out to be a 9 hour car journey!!!!! Yes, 9 HOURS! I panicked alot more on the way home than i did on the way there, which is understandable seeing as we got extremely lost, and i felt quite sick!!! But i am SO proud of myself for going, it seems quite unreal.
Tomorrow we plan to take an hours train journey into Manchester to do some shopping (as i have never been before!) and im really looking forward to it. I think my Neuroblastoma is a blessing in a way, i dont think i will ever stop trying to overcome Agraphobia now!!!
:D
Daisy x
I recently posted (my very first post!) about my anxiety about travelling down to London (a 4 hour car journey) to Great Ormond Street for treatment of Neuroblastoma...Im now HOME!!!!!:winks:
We started out early on Monday morning about 7am, and for the first hour my anxiety was at about a "5" on the scale of 1 - 10. I took an anti-emetic tablet which made me sleepy, but i didnt actually fall asleep. I was so suprised that my anxiety almost vanished for the rest of the journey and i felt almost as relaxed as what i do n a journey nearer to home! I started becomign more bothered about the actual hospital appointment than the getting there, which is very unlike me! I was STUNNED!
The appointment went well too! My new Oncologist has reffered me for 2 new clinical trials, the first one starting next Tuesday at the Royal Liverpool Childrens hospital (which is about 2 hours from where i live). If all else fails, i will return to London for a different Chemotherapy concoction, and possibly full body radiation depending on MIBG and CT scan results.
Coming home was a slight disaster! We got a little lost, and realised that we had been travelling down the A roads a bit too long, and were actually meant to be on the motorway LOL. My mum kept seeing signs for Cambridge and was panicking, so we stopped at a the next service station and got out the map (which we probably should have done ALOT sooner!:shades: ) .......anyway.....the 4 hour car journey turned out to be a 9 hour car journey!!!!! Yes, 9 HOURS! I panicked alot more on the way home than i did on the way there, which is understandable seeing as we got extremely lost, and i felt quite sick!!! But i am SO proud of myself for going, it seems quite unreal.
Tomorrow we plan to take an hours train journey into Manchester to do some shopping (as i have never been before!) and im really looking forward to it. I think my Neuroblastoma is a blessing in a way, i dont think i will ever stop trying to overcome Agraphobia now!!!
:D
Daisy x