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jonur
11-03-18, 18:01
Hi, everyone. I'm so happy I've found this forum. I feel like I have no one else to turn to because everyone brushes me off and tells me "stop worrying so much," and don't take me very seriously.

To anyone who reads and responds to this lengthy post, thank you so much ahead of time, you're an angel.

In June of 2017, I started having really bad cramping and diarrhea on a regular basis-up to 5 times a day for a week or more straight, so I went to my doctor. She ordered a stool sample, and it came back positive for something called Ambeonous Hyst. or something (I completely butchered that spelling, but it's a parasite infection). So she said that's probably why I was having my symptoms. So she gave me medications, and then it cleared up. I would have loose stools once or twice here and there, but for the most part, that kind of movement was normal for me. I started having the same kind of symptoms with the diarrhea in August (I guess 3 months after) so I went back to the doctor and did another stool sample, and it came back positive for the parasite yet again, so I went back on stronger medication, which seemed to clear it up.

However, from September to January 2018, I had random bouts of diarrhea-chalked it up to something I ate that did not agree with me, etc., but then at the end of January, it became more regular. I was having diarrhea up to 3 times a week, maybe twice a day. But it's weird because I will be fine for a few days, and then the diarrhea would come back, my stomach would feel weird, and then next day I was fine again.

I went to Mexico for a week earlier this month and literally ate what ever I wanted-anything and everything LOL-and I was fine all week, no diarrhea. Come back home, and the diarrhea has started again. So I went to my doctor two days ago and again she wanted to stool sample, so I just dropped them this morning. She said with this infection, sometimes it could linger, or I may have been reinfected. She also said maybe I development a low tolerance to Lactose and that maybe I should cut out all dairy for a week to see if that helps, because sometimes with intentional infections, your body can't tolerate lactose the same way as it used to, even if the infection goes away. So that test I will be starting tomorrow.

Also, throughout these bouts, in August of 2017, I started gaining weight due to some stresses-in total I've gained 40 pounds-I used to run every single day and exercise and eat healthy, but stopped in August and gained a lot of weight. I'm 33 years old. For one year I was eating healthy and exercising and lost 55 pounds, but then from August until now, I've just been eating a lot of junk food, fast food, not exercising, and gained a lot of weight.

I'm just really worried about it being cancer. I haven't noticed blood in stool, but I've read that sometimes it can be microscopic. I don't know what mucus would look like even if I had it, but I do notice that there is "FOAM" associated with my diarrhea; like it literally looks like soap... sometimes random bubbles or sometimes along the edges, so that kind of worries me. Sometimes I feel tired, but I don't know if it's related.

Also, a few years back, I had an episode like this but it turned out that I had something called Giardia. But I'm thinking what if this whole time, it's just a coincidence that I had these infections, and really it was just the cancer starting from years ago!? Because I read online with the amber. hyst. parasite that I had, only 10-20% of people show symptoms of it-so maybe it just HAPPENED that I had that infection and my doctor thought all of this was because of that when really it was due to something more sinister happening.

The last few weeks, I've been extra alert with my bowel movements, always checking them-lately I've been getting nauseas after a bowel movement too and it's so annoying. I'm okay with movements for like 4 or 5 days, and then it's very loose-not so much diarrhea, but loose, and it's only once per day. But lately I've noticed that sometimes when my stool is normal, most of the color is uniform brown, but then there is dark spots in them! Like on it-but I think it's dark brown, not black.. but if I stare at it long enough, I feel like it looks black to me lol.

I went to a GI doctor twice-she told me straight up "I really don't think it's colon cancer, I'm not even worried about it, what you're describing sounds more like IBS." I went to her twice in one week because of my anxiety. She suggested I do a colonoscopy just to "see what's going on" and even in my last visit she told me "I feel like the colonoscopy would be good for you because it will give you peace of mind and make you feel better, so let's just do it."

I'm just so scared that it's something sinister and that from 3 or 4 years ago I started having symptoms and that the bacterial tests were just "coincidences" and that the bad thing has been growing in me this whole time and just getting worse and more advanced.

I'm sorry for the long post, I just feel like everyone around me tells me "don't think the worst, don't be negative, etc., etc.," but I can't help but worry about it. If you made it this far, thank you so much for reading...

katyfitz
11-03-18, 19:59
Hey if ever you need to talk private message me please. I completely understand. You’re not alone x

Melonpony
12-03-18, 21:08
Hi, everyone. I'm so happy I've found this forum. I feel like I have no one else to turn to because everyone brushes me off and tells me "stop worrying so much," and don't take me very seriously.

To anyone who reads and responds to this lengthy post, thank you so much ahead of time, you're an angel.

In June of 2017, I started having really bad cramping and diarrhea on a regular basis-up to 5 times a day for a week or more straight, so I went to my doctor. She ordered a stool sample, and it came back positive for something called Ambeonous Hyst. or something (I completely butchered that spelling, but it's a parasite infection). So she said that's probably why I was having my symptoms. So she gave me medications, and then it cleared up. I would have loose stools once or twice here and there, but for the most part, that kind of movement was normal for me. I started having the same kind of symptoms with the diarrhea in August (I guess 3 months after) so I went back to the doctor and did another stool sample, and it came back positive for the parasite yet again, so I went back on stronger medication, which seemed to clear it up.

However, from September to January 2018, I had random bouts of diarrhea-chalked it up to something I ate that did not agree with me, etc., but then at the end of January, it became more regular. I was having diarrhea up to 3 times a week, maybe twice a day. But it's weird because I will be fine for a few days, and then the diarrhea would come back, my stomach would feel weird, and then next day I was fine again.

I went to Mexico for a week earlier this month and literally ate what ever I wanted-anything and everything LOL-and I was fine all week, no diarrhea. Come back home, and the diarrhea has started again. So I went to my doctor two days ago and again she wanted to stool sample, so I just dropped them this morning. She said with this infection, sometimes it could linger, or I may have been reinfected. She also said maybe I development a low tolerance to Lactose and that maybe I should cut out all dairy for a week to see if that helps, because sometimes with intentional infections, your body can't tolerate lactose the same way as it used to, even if the infection goes away. So that test I will be starting tomorrow.

Also, throughout these bouts, in August of 2017, I started gaining weight due to some stresses-in total I've gained 40 pounds-I used to run every single day and exercise and eat healthy, but stopped in August and gained a lot of weight. I'm 33 years old. For one year I was eating healthy and exercising and lost 55 pounds, but then from August until now, I've just been eating a lot of junk food, fast food, not exercising, and gained a lot of weight.

I'm just really worried about it being cancer. I haven't noticed blood in stool, but I've read that sometimes it can be microscopic. I don't know what mucus would look like even if I had it, but I do notice that there is "FOAM" associated with my diarrhea; like it literally looks like soap... sometimes random bubbles or sometimes along the edges, so that kind of worries me. Sometimes I feel tired, but I don't know if it's related.

Also, a few years back, I had an episode like this but it turned out that I had something called Giardia. But I'm thinking what if this whole time, it's just a coincidence that I had these infections, and really it was just the cancer starting from years ago!? Because I read online with the amber. hyst. parasite that I had, only 10-20% of people show symptoms of it-so maybe it just HAPPENED that I had that infection and my doctor thought all of this was because of that when really it was due to something more sinister happening.

The last few weeks, I've been extra alert with my bowel movements, always checking them-lately I've been getting nauseas after a bowel movement too and it's so annoying. I'm okay with movements for like 4 or 5 days, and then it's very loose-not so much diarrhea, but loose, and it's only once per day. But lately I've noticed that sometimes when my stool is normal, most of the color is uniform brown, but then there is dark spots in them! Like on it-but I think it's dark brown, not black.. but if I stare at it long enough, I feel like it looks black to me lol.

I went to a GI doctor twice-she told me straight up "I really don't think it's colon cancer, I'm not even worried about it, what you're describing sounds more like IBS." I went to her twice in one week because of my anxiety. She suggested I do a colonoscopy just to "see what's going on" and even in my last visit she told me "I feel like the colonoscopy would be good for you because it will give you peace of mind and make you feel better, so let's just do it."

I'm just so scared that it's something sinister and that from 3 or 4 years ago I started having symptoms and that the bacterial tests were just "coincidences" and that the bad thing has been growing in me this whole time and just getting worse and more advanced.

I'm sorry for the long post, I just feel like everyone around me tells me "don't think the worst, don't be negative, etc., etc.," but I can't help but worry about it. If you made it this far, thank you so much for reading...Has your GI specialist brought up microscopic colitis as a possibility? It sounds highly likely to me.

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---------- Post added at 20:08 ---------- Previous post was at 19:50 ----------


Hi, everyone. I'm so happy I've found this forum. I feel like I have no one else to turn to because everyone brushes me off and tells me "stop worrying so much," and don't take me very seriously.

To anyone who reads and responds to this lengthy post, thank you so much ahead of time, you're an angel.

In June of 2017, I started having really bad cramping and diarrhea on a regular basis-up to 5 times a day for a week or more straight, so I went to my doctor. She ordered a stool sample, and it came back positive for something called Ambeonous Hyst. or something (I completely butchered that spelling, but it's a parasite infection). So she said that's probably why I was having my symptoms. So she gave me medications, and then it cleared up. I would have loose stools once or twice here and there, but for the most part, that kind of movement was normal for me. I started having the same kind of symptoms with the diarrhea in August (I guess 3 months after) so I went back to the doctor and did another stool sample, and it came back positive for the parasite yet again, so I went back on stronger medication, which seemed to clear it up.

However, from September to January 2018, I had random bouts of diarrhea-chalked it up to something I ate that did not agree with me, etc., but then at the end of January, it became more regular. I was having diarrhea up to 3 times a week, maybe twice a day. But it's weird because I will be fine for a few days, and then the diarrhea would come back, my stomach would feel weird, and then next day I was fine again.

I went to Mexico for a week earlier this month and literally ate what ever I wanted-anything and everything LOL-and I was fine all week, no diarrhea. Come back home, and the diarrhea has started again. So I went to my doctor two days ago and again she wanted to stool sample, so I just dropped them this morning. She said with this infection, sometimes it could linger, or I may have been reinfected. She also said maybe I development a low tolerance to Lactose and that maybe I should cut out all dairy for a week to see if that helps, because sometimes with intentional infections, your body can't tolerate lactose the same way as it used to, even if the infection goes away. So that test I will be starting tomorrow.

Also, throughout these bouts, in August of 2017, I started gaining weight due to some stresses-in total I've gained 40 pounds-I used to run every single day and exercise and eat healthy, but stopped in August and gained a lot of weight. I'm 33 years old. For one year I was eating healthy and exercising and lost 55 pounds, but then from August until now, I've just been eating a lot of junk food, fast food, not exercising, and gained a lot of weight.

I'm just really worried about it being cancer. I haven't noticed blood in stool, but I've read that sometimes it can be microscopic. I don't know what mucus would look like even if I had it, but I do notice that there is "FOAM" associated with my diarrhea; like it literally looks like soap... sometimes random bubbles or sometimes along the edges, so that kind of worries me. Sometimes I feel tired, but I don't know if it's related.

Also, a few years back, I had an episode like this but it turned out that I had something called Giardia. But I'm thinking what if this whole time, it's just a coincidence that I had these infections, and really it was just the cancer starting from years ago!? Because I read online with the amber. hyst. parasite that I had, only 10-20% of people show symptoms of it-so maybe it just HAPPENED that I had that infection and my doctor thought all of this was because of that when really it was due to something more sinister happening.

The last few weeks, I've been extra alert with my bowel movements, always checking them-lately I've been getting nauseas after a bowel movement too and it's so annoying. I'm okay with movements for like 4 or 5 days, and then it's very loose-not so much diarrhea, but loose, and it's only once per day. But lately I've noticed that sometimes when my stool is normal, most of the color is uniform brown, but then there is dark spots in them! Like on it-but I think it's dark brown, not black.. but if I stare at it long enough, I feel like it looks black to me lol.

I went to a GI doctor twice-she told me straight up "I really don't think it's colon cancer, I'm not even worried about it, what you're describing sounds more like IBS." I went to her twice in one week because of my anxiety. She suggested I do a colonoscopy just to "see what's going on" and even in my last visit she told me "I feel like the colonoscopy would be good for you because it will give you peace of mind and make you feel better, so let's just do it."

I'm just so scared that it's something sinister and that from 3 or 4 years ago I started having symptoms and that the bacterial tests were just "coincidences" and that the bad thing has been growing in me this whole time and just getting worse and more advanced.

I'm sorry for the long post, I just feel like everyone around me tells me "don't think the worst, don't be negative, etc., etc.," but I can't help but worry about it. If you made it this far, thank you so much for reading...Get the colonoscopy and ask to be checked for microscopic colitis.

Sent from my SM-G955U using Tapatalk

jonur
12-03-18, 21:33
Thank you for your responses.

I am going to do the colonoscopy this Thursday-I am so freaking afraid that it's going to be something bad. My regular doctor called me this morning because last week I had to do blood work, like CBC and some tests for celiac disease.

She called me this morning and said my blood counts, liver, pancreas, kidneys, etc., all came back normal functioning. She said the celiac disease panel came back borderline high for gliadin-she said the other panels were normal except for this one panel for gliadin so she said she will fax results to my GI to ask if I need endoscopy or not.

I told her I am worried about the C and she kept saying "it's not that I promise, stop worrying about that... is C on the list, of course it always is, but that's not what i'm worried about or looking for," so she seems pretty stern about it not being C.

Ugh what do you guys think? I asked her if the borderline high number for gliadin could be an indiciation of something more sinister than celiac and she said "Nooo" just like that and she said "your GI might not even want to investigate it because it's just the one test and it can be false positive."

Do you guys think I should be freaking about the C word?

Melonpony
13-03-18, 05:53
Thank you for your responses.

I am going to do the colonoscopy this Thursday-I am so freaking afraid that it's going to be something bad. My regular doctor called me this morning because last week I had to do blood work, like CBC and some tests for celiac disease.

She called me this morning and said my blood counts, liver, pancreas, kidneys, etc., all came back normal functioning. She said the celiac disease panel came back borderline high for gliadin-she said the other panels were normal except for this one panel for gliadin so she said she will fax results to my GI to ask if I need endoscopy or not.

I told her I am worried about the C and she kept saying "it's not that I promise, stop worrying about that... is C on the list, of course it always is, but that's not what i'm worried about or looking for," so she seems pretty stern about it not being C.

Ugh what do you guys think? I asked her if the borderline high number for gliadin could be an indiciation of something more sinister than celiac and she said "Nooo" just like that and she said "your GI might not even want to investigate it because it's just the one test and it can be false positive."

Do you guys think I should be freaking about the C word?100% NO. It is definitely not C. Trust your doctor, and if you can't do that, trust your test results! If it was C, yoyr bloodwork would be nutso.

Sounds like you might have a gluten intolerance (but not full blown celiac), microscopic colitis (IMO, and it's what I ended up having w similar symptoms), or IBS (although doubtful).

Seriously you don't have C. You would know by indicators at this point. I know it's hard, but let that idea go!

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Jenni855
13-03-18, 12:49
Could be post infectious IBS. I really don't think it is bowel cancer.

jonur
13-03-18, 16:06
Thank you guys so much for responding, it really helped my mind at ease.

When I read these kinds of things it calms me down and I know later on throughout the day the anxiety will creep back up, so I'll come back here and read.

I just have to STOP Googling-that's what got me into this mess-if I hadn't Googled and went on C forums and read about all the IBS etc "mis diagnosis" in young people etc., I don't think this situation would have triggered anything... and then the whole "UGH but what if this time I'm right?" keeps coming back too.

I just have to trust the advice-and then Thursday get a colonoscopy done and just get it over with. Thank you guys.

Melonpony
13-03-18, 19:03
Thank you guys so much for responding, it really helped my mind at ease.

When I read these kinds of things it calms me down and I know later on throughout the day the anxiety will creep back up, so I'll come back here and read.

I just have to STOP Googling-that's what got me into this mess-if I hadn't Googled and went on C forums and read about all the IBS etc "mis diagnosis" in young people etc., I don't think this situation would have triggered anything... and then the whole "UGH but what if this time I'm right?" keeps coming back too.

I just have to trust the advice-and then Thursday get a colonoscopy done and just get it over with. Thank you guys.Most of the reason young people are misdiagnosed is bc they are assumed to be too young for CC. So, their Drs aren't looking and they dont get the blood tests you received...my GI specialist said that if I were in my 20s, she would have given me the IBS diagnosis and moved on. But, I'm in my 40s, so she thought I should check for microscopic colitis (she did not think C at all), since it's common in over 40 women. ABANDON GOOGLE!

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jonur
15-03-18, 20:53
Hi everyone,

I just wanted to provide an update. So I had my colonoscopy done this morning-beforehand I was SUPER nervous and started crying (LOL), and my doctor said "listen don't be nervous... I could write the report right now and say everything is normal because I know there isn't going to be anything scary," and then I passed out haha.

So the doctor came to see me afterward and she said "everything looked normal, I did find one very small polyp, and it could be the type that would never turn to cancer (or something along those lines)," and she said she removed it and sent it off for biopsy. She also said "a part of your colon was a little blurry/inflamed, but it could have been from the prep, so I took some samples from that and sent it off too, so just come see me in 2 weeks."

And I was like "should I be worried?" and she said "I honestly think you just have IBS." and I was like "So I can go home today and not worry about colon cancer?
And she said "You absolutely do not have colon cancer" and then hugged me.

You would think I would be happy with this news, right? What's scaring me if that they found a polyp!!!! Like why couldn't it have just been normal and clear with nothing to remove? What if there is cancer in that polyp-or now I have to go like every year for colonoscopy because I have a higher sick now of getting colon cancer or something randomly turning up and growing into cancer in the next year or two-I can't tell if my anxiety is worst from before or after.. my family and friends are all saying "you should be relieved, great news, we all told you!" so I have to fake a smile and pretend like I'm not worried anymore.

What do you guys think?

Honeynut
15-03-18, 21:03
I’d say don’t panic about the what ifs at this point. I know someone who had bleeding polyps and none of them were cancerous. The doctor telling you that you absolutely don’t have it is a good sign and you should definitely be relieved with that news. I believe it takes a few years for a polyp to form and turn into cancer so regular colonoscopies are the way to prevent that happening and if you have to do that, at least you know what to expect.

If I were you I’d relax and just wait for your appointment, if the polyp was anything then at least it’s been removed and is no longer there. Just try and not stress over it and keep reminding yourself that the doctor told you that you don’t have cancer

jonur
16-03-18, 18:11
Thank you for your response! I know that is exactly what I'm supposed to be doing and I keep telling myself that and I'm good for about 10 minutes and then it all comes back again!

I cried earlier because of the fear.. of thinking well if I had this one polyp now, who knows what it's going to look like in 5 years, what if I just continue to grow them without realizing and then the next time I do for a colonoscopy that it actually does turn out to be cancer.

I'm afraid I'm going to spend the rest of my life fearful of my bowel movements, listening to every sound, feeling every sensation in my stomach, etc., and just ruining my quality of life, and that is no way to live. I just keep wishing when I woke up yesterday the GI doctor would have just been like "all normal, no polyps, go home, it's just IBS."

UGH!

jonur
18-03-18, 17:50
Hi guys,

I'm having a really hard time today with anxiety and my emotions and I don't have anyone to talk about with it because I feel like everyone in my life is just annoyed about hearing about this.

I'm still having some diarrhea, and even though my colonoscopy was a few days ago and doctor said I don't have colon cancer, or that the polyp they removed was nothing too serious to worry about, they still sent it for biopsy and I can't help but think all my symptoms are still from colon cancer and it was just missed during the colonoscopy.

I can't seem to shake this off! I'm trying to think rationally-the last few days, I really have been eating terrible (McDonalds twice, Cheesecake Factory, etc), so I'm thinking maybe that's what's causing my loose stools, but I still can't help but freak out!!! I literally don't want to do anything anymore-this has consumed me-nothing is exciting me anymore or giving me motivation.

My anxiety is two-fold-one thinking that I have CC and that's what causing my symptoms and it was just missed, or when that calms down, I'm thinking that because I already had a polyp at age 33, that from now until my next screen, I could be growing another one inside of me that will turn into very late stage cancer by the time I get screened again and that will be too late.

I don't know what to do.

Scaredtoo
19-03-18, 15:26
You’re nervous and scared because you have anxiety. And anxiety produces that fight or flight syndrome. You have to focus on the fact your doctor said no way to CC. US doctors NEVER say that unless they are sure. Polyps are not terribly uncommon and the fact that they found one is just a positive in part because they will monitor you more frequently, which isnt a bad thing. And that’s only maybe. Lots and lots of people have polyps and never know it and they never turn sinister. The more you pay attention to your symptoms the worse they will become and that is a fact. I really do believe you are okay and that the biopsies (which aren’t uncommon, often they do biopsies during a colonoscopy) just show inflammation or some other minor issue. Please try to relax and believe in your doctor. You’re going to be okay

tana49
19-04-18, 18:20
Hi
My mum has had to have a colonoscopy every year for the last 25 years. She usually has a polyp or two removed each time. she is 86 and in great shape. You'll be fine, you are fine, please believe your doctor. x

jonur
23-04-18, 19:30
Thank you all so much for your replies.

So I finally got passed the whole polyp thing because when I went for my follow up, the GI said it was literally NOTHING to worry about and that I don't have to get screened again until I'm 50.. she said even if they never found it, it was the kind that would never ever have turned to the C word.

However, yesterday I had some very loose stools I guess because of what I was eating the day before.. after the 3rd time, I noticed blood on the toilet paper. It wasn't bright red, it was like a pinkish color almost. I was like "CALM DOWN, you just got checked last month, you're fine."

But then this morning it happened again. So I took a photo and called GI and she had me come in today. She said to me "I'm not worried at all, you had internal hemmroids that I saw in colonoscopy" and she showed me picture. She said "I agree with you, it does look like blood but it's not anything scary," after I showed her the picture.

HOWEVER-she kept saying how she was confident it's not anything bad because of the colonoscopy from a month ago-but what if she missed something? What if it was a missed polyp, like the flat ones and she missed it (they are easy to miss apparently) and that's what's causing the bleeding????

I'm so mad because I was doing SO well with this and now I am all over the place again. I've had hemm. bleeding before like 8 years ago but it was always bright red blood on the paper-not this pinkish brown.

I've read stories where after colonsocopies people get checked again 6 months down the line and they have stage 3 cancer that was missed.

What should I do guys??? I started therapy for my anxiety last month, been going weekly, but I feel like the tools she gave me isn't helping me with this right now. Do you guys think I should ask for another colonoscopy or something??? Or get a second opinion? I don't want to keep wasting time and $ and anxiety over this.. I know I should just be rational but I am scared.

jonur
27-04-18, 16:35
Anyone?

I've been freaking out all week and my session with my therapist didn't really help. She was going the route of "let's make a plan if it gets to that point" etc and that just freaked me out more. Bless her though, she meant well.

Scass
27-04-18, 18:18
Hi,
It’s a tough one because you basically don’t trust your GP. Even if you have another colonoscopy are you going to trust those results too?
Of course you read about the bad stories online, but how many good ones have you read and discarded?

Last month I had a scan that showed a polyp in my gallbladder. My GP said nothing to worry about. I believe her, and that’s that. I expect if I delved into google & typed polyp in gallbladder I would scare myself terribly. So I won’t.

Could you try trusting your GP? Trust that she’s correct. Try not googling your symptoms for a few days, and try to focus on relaxing yourself, and maybe helping yourself with your anxiety


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Fishmanpa
27-04-18, 18:26
Anyone?

I've been freaking out all week and my session with my therapist didn't really help. She was going the route of "let's make a plan if it gets to that point" etc and that just freaked me out more. Bless her though, she meant well.


I know I should just be rational

What your therapist said was straight up rational. In other words, it's not something until they say it is and you've been told it's nothing to be concerned with.

Positive thoughts

jonur
28-04-18, 03:05
Thanks, guys. I'm trying to really let this go. It's just been the hardest period ever with my HA, it's at an all-time high.

If it wasn't for the blood that randomly started happening, I would have been able to completely put this behind me like I did a few days after my colonoscopy. I have to stop reading things online like you guys said and just stay positive and trust my doctor.

Hopefully I can get through this..

jonur
28-04-18, 20:36
Okay having a total anxiety at work and it is embarrassing.

I don’t know what to do ugh. Have to stay in the bathroom until I calm down. I hate this