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View Full Version : Lumps in abdomen - Sarcoma worry.



BigPlay
02-05-18, 10:43
First time post on this forum! Have been reading for a few months now. I'm 24.

The below is a long preamble...

Back in early Dcember 2017 I started getting left hand side stomach pains, sore rib on the left hand side. I vomited a few times randomly over the course of the month, and was convinced I had stomach cancer. My Doctor prescribed omeprazole which helped extensively.
I was still worried however, so my Doctor referred me to a specialist to have a endoscopy. It was during this time I found out I had HA. I took many days off work, had panic attacks in the middle of the night etc. All the normal stuff, heart racing, tingling fingers, blocked up throat etc.

It was found that I had chronic erosive gastritis in the antrum - basically a break down in the stomach lining. Bad, but not cancer! My HA minimized masiclvy

About this time I started to get discomfort in my left flank, back and just above my groin. I mentioned this to the gastroenterologist, and he thought it was muscular.

This persisted, so I went back to my Doctor. He sent me away for lumbar spine X-Ray and a groin ultrasound.

It was found that I had a inguinal hernia, 7mm in size. Got booked in with a general surgeon, and we decided not to operate, due to it not causing me paint where it was located. I mentioned the flank discomfort to him also, and also got told it was muscular.

I started going to Physo, and have for the last 5 weeks. I don't feel like it is doing much.

Now, to the main concern! I went on holiday last week, and the pains stepped up to be quite sharp! I felt my stomach, and located in roughly the same space I found some lumps, in fact I found lots of little ones.

I went to my Dr, and he said he felt one 1cm, and said it was likely a lipoma. I've Dr Google'd this, and from what I can see lipomas are 'floating' in the fat? This is feels more in the muscle, but feel quite distinct.

The Dr referred me to the same general surgeon I saw before for an opinion, and potentially to do more tests if he saw fit (he is a really good surgeon), however the earliest he could see me was months away!

I had massive panic attacks that night (30April-1May), and first thing booked another appointment. I went in, and asked for a list of surgeons that he could refer me to, and an ultrasound (I don't think he can arrange MRI's). He also got me to a bloodtest (waiting on results now). I then went through the list and found a surgeon who could see me next week, and called the Dr to send through the referral. That is booked in for the 9th May.

The earliest they can do my ultrasound is the 8th May. At least that will be done and I won't have to wait for another week to have it.

I hope the surgeon will schedule an MRI and a Biopsy.

Anyway, now while I am waiting for all this, I keep thinking it is deadly sarcoma or liposarcoma, and metastasizing, and I'm really annoyed that the Dr's are taking so long! (This is all private BTW, I have some basic health insurance).

Any idea's how I can last out the next few weeks waiting for things? I'm having slight pain and discomfort, however i'm not taking painkillers. Maybe I should. If it is some form of tumor/cancer, i'm not sure how I will cope. I'm not afraid of dying, however the journey to get there (chemo/radiation/surgery/pain) doesn't sound the greatest!

ServerError
02-05-18, 11:08
If your doctor thinks it's a lipoma, and you're not going to see the specialist for months, you can be pretty confident it's a lipoma. If anything suspicious was suspected, you'd be seen much quicker.

As my doctor said to me, anyone with any degree of body fat is going to have lipomas.

BigPlay
02-05-18, 11:20
If your doctor thinks it's a lipoma, and you're not going to see the specialist for months, you can be pretty confident it's a lipoma. If anything suspicious was suspected, you'd be seen much quicker.

As my doctor said to me, anyone with any degree of body fat is going to have lipomas.

I don't think he realized that the specialist would take 3 months... it's only a week away now after I chose a different one. I have a bit of body fat, but not a whole lot. My gastritis did cause me to lose a bit due to not feeling like food, however it has been stable for the last couple of months now. It is possible they were there before, however i'm reasonably sure they are new.

Fishmanpa
02-05-18, 12:48
I'm sure he realized it would take that long as he didn't feel it was of any concern. Regardless, you've taken things into your own hands now and will find out soon enough. I'm with your doctor on this one.

Positive thoughts

BigPlay
03-05-18, 11:30
Blood test resuts came in:

Liver normal
Kidney's normal
CRP, CBC, WBC normal
Vitamin C normal.
Ferritin (iron) high!

It was 367 and it shouldn't be above 300. I've heard this is a tumor marker? At the beginning of the year when I had my gastritis it was 407 so maybe not too much to worry about?

I've felt my 'bumps' and realised that many of them have matching bumps on the other side, although smaller.

Hmm. Looking forward to next week when I can get this all sorted.

BigPlay
07-05-18, 22:57
Had the ultrasound today. The ultrasound tech didn't say much the whole time, and said the report would be sent to my doctor.

nhelen79
08-05-18, 01:31
Please hang in there and do not think too much. I’ve been through similar thing beofre on my left calf. It turned out nonspecific inflamed tissue. What I remember is that the doctor said that sarcoma is so rare you have a better chance winning the lottery. Doctors know what they feel. Yours is believed a lipoma. It will be.

Leslie735
08-05-18, 03:30
I have little lumps in my abdomen, too. I figured it's just fat lumps. Good luck with your appointment!!

BigPlay
09-05-18, 00:31
Okay, so had the appointment. Ultrasound hasn't come through yet. He said they were just fatty lumps from what he could feel.

He could see that I was anxious is scheduling an MRI to check there is nothing else.

BigPlay
15-05-18, 11:37
Ultrasound results came though, no masses / hernias etc. They also ultrasounded my bladder, kidney's etc and everything looks fine.

I'm starting to think the lumps may have been there for a while and I've only just noticed them.

The MRI place was supposed to call me to book an appointment, but haven't and it's been over a week. Is it okay to call the specialist's office to follow up or is that being overly paranoid?

Fishmanpa
15-05-18, 12:50
Is it okay to call the specialist's office to follow up or is that being overly paranoid?

Your anxiety is messing with you. No need to follow up. The MRI is for your reassurance as everything is normal.

Positive thoughts

BigPlay
16-05-18, 07:18
I'm trying Fishmanpa!

I decided to call up anyway, and the specialist's PA had sent through the referral on the day I went in. She said she would have expected a reply within a day.

She resent the referral, and asked me to call the scan place directly - I did, and the earliest they can book me in is the 7th of June. They said they get 100's of referrals a day so it is easy to loose them!

Frustrating! I realize that everyone makes mistakes, but would have thought the medical industry would be a bit better than that! It just means more waiting, and more sleepless nights due to HA!

/rant over.

Fishmanpa
16-05-18, 12:29
It just means more waiting, and more sleepless nights due to HA!

Why? Blood work is normal and Ultra Sound is normal. An additional NON URGENT MRI ordered for reassurance and you're still sweating it? That's HA for you! Thing is, I'll wager you'll get an all clear from the MRI too and still think they missed something. Perhaps the $$ spent on the MRI could be better put to use with real life professional help with your anxiety?

Positive thoughts

BigPlay
30-05-18, 08:09
Still waiting, less than a week to go till the scan.

I have been able to sleep for the past weeks, but last night was bad.

I'm still getting pain in the places previously mentioned, however now I also have sore ribs on the left hand side, sore back in the middle between shoulder blades and more pain in my left hip. I'm going to ask the specialist about it when I go for the test results.

ToasterOvens
30-05-18, 16:33
I agree with Fish. Ultrasound is usually the gold standard for lumps and bumps. Having both a clear blood test and ultrasound is pretty conclusive.

I made the call to go to a psychologist instead of getting tests a while back. Very similar situation to you. Just a different body part. I do not regret it in the slightest. The psychologist brought up things that made me think entirely differently about how I was living my life. One of the best decisions I've ever made.

BigPlay
07-06-18, 05:16
Update (of sorts)

Had x2 MRI's today, one on lumbar spine, one for small intestine.

Earliest I can get the results is on the 15th. Only one week :-)

Feeling pretty good at the moment. The new pain is still there - my mind goes to pancreatic cancer straight away, even if I only have one symptom of many! Not finding it too hard to push out of my mind.

BigPlay
15-06-18, 06:50
Got the results of the MRI.

Everything is normal, 100% healthy. That is making me less worried as there is no giant tumor or anything!! I had a look at the photos on his screen, and I would have to agree that it all looks good. Looked very good even though I'm no expert.

Which is annoying, as I'm still having the pain. Surgeon said to wait a few weeks, and if I'm still having the pain to call up and he will book in a colonoscopy (had noticed (once) a bit of blood, and continuing mucus) - I guess it could still be some inflammation or similar causing the pain.

I'll give it a few weeks and see how I am. I really don't want to have to live with the pain forever as i'm only 24!

Fishmanpa
15-06-18, 12:25
Got the results of the MRI.

Everything is normal, 100% healthy. That is making me less worried as there is no giant tumor or anything!! I had a look at the photos on his screen, and I would have to agree that it all looks good. Looked very good even though I'm no expert.

Courtesy of your friendly neighborhood "Told Ya So Gang" :)

https://media.giphy.com/media/Wf8lxu79Yv5za/giphy.gif

Positive thoughts

Leslie735
15-06-18, 19:31
Great news!! Yea!!!!

Fish: I giggled lol! I love your "I told ya so's" I'm hoping to get one next week when I follow up on my lymph node.
"

BigPlay
18-07-19, 10:00
Wow, this was over a year ago now.

The lumps on my abdomen are called 'muscles'. Apparently most people have them and they help us move and things. I wish now the 'lumps' would have grown, I would have been so ripped right now!

Reading my posts from a year ago is like reading somebody else's writing.... good to reflect from time to time.

Flapj
18-07-19, 13:52
Wow, this was over a year ago now.

The lumps on my abdomen are called 'muscles'. Apparently most people have them and they help us move and things. I wish now the 'lumps' would have grown, I would have been so ripped right now!

Reading my posts from a year ago is like reading somebody else's writing.... good to reflect from time to time.

It can be therapeutic to go back and read earlier posts of your own. Can I ask what brought you back to the forum?