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Vigilante
29-07-18, 22:11
I know this likely sounds crazy but this fear that I'm dying of CJD has not left me for a few years now.

I have unexplainable visual symptoms, random jumbled racing thoughts like random words, sentences, music in my head all day? Anyone experienced that?

My visual symptoms started in Jan 2016, since then I have had 2 x CT brain scans, 2 x MRI with and without contrast, the latest being about 1 month ago, all scans have been normal.

I have seen many ophthalmologists including 2 x Neuro opthals who claim what I have is visual snow syndrome.

I guess I'm looking for some reassurance as I'm struggling, would I be correct in thinking cjd would have killed me if I had for 2.5 years already and also mri would have shown some kind of changes?

Fishmanpa
29-07-18, 22:22
You do realize it's a fact that you wouldn't be here if this started in 2016?

Positive thoughts

TheLostSaga
29-07-18, 22:32
Most assuredly, if you did have CJD - it would have shown itself by now - so you're totally in the clear on that front.

I can only vouch for myself, however ever since I can remember I've had music playing in my head constantly, in fact whenever someone says a phrase or a word, more often than not my brain will immediately think of a song with those same words in them.

I also have a very hard time controlling my thoughts, particularly when tired - but some days it feels like I am not in control of my own mind, I tend to chalk it up to my anxiety.