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Dornish Red
13-08-18, 18:25
I can see my pulse just above my collarbone, in that little dip. I just noticed that and of course I am panicking, I am very worried about my heart (see my other topic). My pulse is racing because I am very anxious, could that be the explanation? Please tell me can you see and feel your pulse in that spot? I am freaking out so badly.

My pulse has gone down a little but I can still see it. Please tell me this is normal :(

So I am not talking about the sides of my neck, but in the middle, above the collarbone, please, please someone tell me they can see it too.

---------- Post added at 17:25 ---------- Previous post was at 17:00 ----------

Dr google says it is aortic aneurysm. :(

ankietyjoe
13-08-18, 18:27
It's common.

Dr Google is a moron.

yarodao
13-08-18, 18:32
Thanks for making this topic. Ive been obssesing about this since my first attack. It usually is invisable during morning hours but later on the day it becomes more pronounced, and i feel both my centre between collarbones and sides of neck pulsing hard.

KK77
13-08-18, 18:39
[/COLOR]Dr google says it is aortic aneurysm. :(

Dr Google is full of histrionics :lac:

It's a sign of good blood flow. You can sometimes "see" pulse in ankles too if you have good circulation.

So DO NOT Google henceforth!

Dornish Red
13-08-18, 19:19
Google says you should not be able to feel a pulse in that little dip above the collarbone, and especially not see it. Aortic aneurysm is my ultimate fear at the moment and this has really got me into a panic mode. I asked my BF if he can feel the same thing, and he cant. I can not only feel it but also see it, I never noticed this before and it is freaking me out. Dr Google says probably an aneurysm.
Thanks for your answers, makes me feel a little bit better. Please, if anyone else has the same thing, let me know. I am panicking so badly :( It really looks like it is coming from "beyond" where the aorta is supposed to be :( Am I going to die from aneurysm :(

ankietyjoe
13-08-18, 19:22
Google says blah blah blah.

You have a choice. Keep checking google for symptoms of things you don't have, or stop checking google and get on with your life.

You're fine. Move on.

Fishmanpa
13-08-18, 19:29
Google says....

:lac: If you end up seeing a doctor over this, I'll have the "Told Ya So Gang" all ready :winks:

Positive thoughts

Dornish Red
13-08-18, 19:34
:lac: If you end up seeing a doctor over this, I'll have the "Told Ya So Gang" all ready :winks:

Positive thoughts

God I wish this is true
I will ask my GP about this tomorrow. I have a very rational fear that I might have a condition that has to do with problems with aorta like aneurysms (my other topic is about that). So I am of course very alarmed by this as this can be a sign of an aneurysm.
It makes me feel better if someone else has the same thing. God I am so scared out of my mind.

ankietyjoe
13-08-18, 19:46
What you perceive as a rational concern is actually not. I just looked at another post you made and it comes across as completely irrational.

I can see the pulse in my neck, I can see the pulse in my 10 year old child's neck. When I was watching the tennis a few weeks ago I just so happened to see the pulse in one of the tennis players neck.

You are caught in an obsessive cycle of macro analysing physical 'symptoms' that are completely normal and further obsessively cross referencing them with closest fit health problems you can find on Google.

As long as you keep doing that, you WILL remain in a state of suffering and anxiety.

Dornish Red
13-08-18, 20:01
What you perceive as a rational concern is actually not. I just looked at another post you made and it comes across as completely irrational.

I can see the pulse in my neck, I can see the pulse in my 10 year old child's neck. When I was watching the tennis a few weeks ago I just so happened to see the pulse in one of the tennis players neck.

You are caught in an obsessive cycle of macro analysing physical 'symptoms' that are completely normal and further obsessively cross referencing them with closest fit health problems you can find on Google.

As long as you keep doing that, you WILL remain in a state of suffering and anxiety.

Can you see the pulse in the exact place I am describing? Sorry, I am just desperate for someone to tell me they have it too. I read that seeing pulse on the sides of the neck can be competely normal, but to see it in that notch above the center of the collar bone can be an alarming symptom. So I am very scared. And I didnt look for this symptom. I just looked at myself in the mirror for two seconds and noticed this.
I will be adressing my anxiety with my GP tomorrow. It has gotten so bad lately that I have put my heart in a state of constant stress, beating very fast, I can't seem to calm down for days. Thanks for trying to help, I really appreciate it.

ankietyjoe
13-08-18, 22:06
It really doesn't matter what I can see or where I can see it. What matters is you checking normal bodily functions and interpreting them as cause for concern.

I would suggest that if you're worried about it, mention it in your next GP appointment, and then when they tell you it's nothing to worry about then try your best to let it go and learn the lesson for the next time you find something to worry about. We've all been there.

Dornish Red
14-08-18, 07:04
Apparently that is aortic puls that you shouldnt be able to feel or see...panicking so badly. Cant sleep, heart is racing im sweating, I feel like I am going to explode :(

---------- Post added 14-08-18 at 02:49 ---------- Previous post was 13-08-18 at 23:37 ----------

So according to everything I have read online this is a major sign of an aneurysm. All the doctors that have been asked this question online have pointed at that. No other explanation given. They say you normally shouldnt feel a pulse in that spot. And I feel it so strongly :(
This is terrifying. Can someone please relate? Does it happen to any of you? I feel a very strong puls in that spot for the entire day. I am lying down and it feels even worse. I usually feel the pulse there and didnt know it was abnormal, until today when I realized I can even see it. It is that strong. In that spot I feel the pulse the strongest, although I can feel it on the side of the neck as well. How do I cope with this, this is so scary.
I also have to add that I sometimes have trouble swallowing and sometimes I feel a pressure on my esophagus, but I have acid reflux and probably GERD so I alwyas attributed it to that. I dont feel it all the time though

---------- Post added at 06:04 ---------- Previous post was at 02:49 ----------

While going to work this morning I felt very sick suddenly, like my blood pressure dropped. I havent slept much, didnt eat anything, and I felt like I was going to faint. Or die. My vision went dark for a minute, and I felt cold sweat on my face and neck. Felt like I was dying.
I can constantly see this pulse above the collarbone. I kept looking at other peoples necks and theirs are not pulsing.
So how can this be normal? I even read that doctors specifically feel your pulse in that area when looking for signs of an aneurysm, FFS. That's it. At this point I am pretty much certain I have Marfan syndrome and an aneurysm, which is common in people with that disorder.
This is just too convenient to be a coincidence. Later today I am seeing my GP. I hope she sends me to get my heart checked ASAP. I don't want to die.

ankietyjoe
14-08-18, 14:26
If your Doctor tells you it's nothing to worry about and completely normal, what will you do?

Dornish Red
14-08-18, 17:32
I am planning to get an echo of my heart done privately. I have way too many symptoms of a connective tissue disorder to not get my heart checked, it would be very irresponsible of me not to do so. What my GP says is not that relevant to me, since most GPs don't know much about CTDs. I owe it to myself to get my heart checked out with a cardiologist.
And with this obvious pulsating I am even more sure that there's something going on with my aorta, unfortunately.
So that's my plan. I have no idea how to tell my parents about this, I don't want to break their hearts, and since I live with them, it's hard to hide something like this. I am smiling on the outside but on the inside I am dying. I will be arranging my echo hopefully very soon. I will post an update after I visit my GP today.

Still, it would be very appreciated if someone has the same pulsating thing as me to leave a comment.

---------- Post added at 16:32 ---------- Previous post was at 13:41 ----------

GP said it is not normal to have such pulsations, but that I have them because I am so very anxious. She couldnt say anything about my heart. She agreed I have some suspicious symptoms of connective tissue disorder and agrees that I have to check my heart. This is so scary.

yarodao
14-08-18, 18:10
Listen. I know its scary. After my first panic attack my neck looked like a frogs. Expanding and deflating. It took me 2 weeks to look normal. After that im still suffering from i visable pulse in my neck.
You say you dont see it in other people. I didnt to. I live with my girlfriend and she didnt have this until one night i checked her neck and it was pulsing like mine, it was a relief.
Ive done 3echos, about 10ekg's, 1 stress test and 24 holster monitor. The docs observes only palpitations.
The pulsing is related to our subcouncious still thinking iylts on danger and raising our adrenaline levels ever so slightly.
My reccomendation is that you try to feel your pulse during morning, midday and evening, after eating and exercise. If its weak during morning hours its 99% not a problem. It can be worse after eating like for me.

Dornish Red
14-08-18, 18:19
Listen. I know its scary. After my first panic attack my neck looked like a frogs. Expanding and deflating. It took me 2 weeks to look normal. After that im still suffering from i visable pulse in my neck.
You say you dont see it in other people. I didnt to. I live with my girlfriend and she didnt have this until one night i checked her neck and it was pulsing like mine, it was a relief.
Ive done 3echos, about 10ekg's, 1 stress test and 24 holster monitor. The docs observes only palpitations.
The pulsing is related to our subcouncious still thinking iylts on danger and raising our adrenaline levels ever so slightly.
My reccomendation is that you try to feel your pulse during morning, midday and evening, after eating and exercise. If its weak during morning hours its 99% not a problem. It can be worse after eating like for me.
Thanks for your input.
Do you see/feel the pulse in the same spot that I am? My pulse is still palpable in the morning, but I have been so stressed these days that I didn't feel relaxed for one second, so I can't judge.
My GP prescribed me something for my anxiety so I will see, hopefully my heartbeat goes down a little.
She listened to my heart and said everything sounds normal, but of course, an echo is the only method to see if there is anything wrong with the heart or the aorta.

yarodao
14-08-18, 19:29
Yah. The main visable pulse is like 3centimeters from my adams apple down, ofcourse my right and left side and sometimes when im stresses even uper chest(slightly bellow the collarbones). Ive been with this for 7 months.
Do you get any other feelings?

Dornish Red
14-08-18, 20:06
Yah. The main visable pulse is like 3centimeters from my adams apple down, ofcourse my right and left side and sometimes when im stresses even uper chest(slightly bellow the collarbones). Ive been with this for 7 months.
Do you get any other feelings?

When I am anxious, I feel like my heart is pounding all the way to my ears...feels like an ear fullness, or maybe pulsatile tinnitus. It could also have something to do with my chronic sinusitis that sometimes makes my head feel full of pressure.
Right now I am feeling the pulse above the collarbone, in that dip in the middle and on both sides above the collarbone, and also higher on the sides of my neck as well. I think it will take some time for me to calm down a little and to get my pulse down a bit. It is still a bit strong and fast. I have mild tachycardia that was never investigated, so I am used to my heart beating a bit faster than normal. It feels great when it finally settles down to normal rythm...
I also have chronic post nasal drip from my sinuses that come down my throat, that causes a lot of mucus in my throat and a feeling of fullness and that famous "lump" in the throat feeling. Makes me cough a lot. Also I have acid reflux and a weird esophagus, I can't burp at all and often have a lot of gas and pressure in my esophagus because of that, and sometimes, especially when I am nervous, I have trouble swallowing. Feels like food gets stuck in my esophagus. This can also be a symptom of an aortic aneurysm and that really scares me, but I hope it has nothing to do with that.
Do you get any choking or weird sensations in your throat?

yarodao
14-08-18, 22:41
Egh i have problems with my stomach so yah i tend to have problems with that.
Do an echo and all will be clear.
For me it took 3 and im still not fully reassured especially when the palpitations kick in.
I to was afriad of an aortic aneurysm but after 3 checks my aorta was the same size. Also if you had an aortic aneurysm your belly would pulsate like hell i mean like someones punching you through it and you wpuld most likeli have a baseballs sized lump there.

Dornish Red
14-08-18, 22:49
Stomach problems are my life lol
My worry about the aneurysm is not so much in the abdomen, but near my heart. Thats why this pulsating thing where it "shouldnt be" is scaring me. Since I show a significant amout of symptoms of some type of a connective tissue disorder, there is a possibility that my aorta is not fine, but I am hoping that it is, or that the damage is minimal.
I am glad you had an echo that was all clear. I would do anything to have mine be clear as well. It would put an end to so much suffering, I am talking about 2 years of living in denial and fear to go and get checked. This is honestly the worst period of my life, I just hope to put an end to this suffering, and that the outcome is good. I really feel like I could start living my life again after all this, and start planning my future, which I cant at this point.

KK77
15-08-18, 00:58
Egh i have problems with my stomach so yah i tend to have problems with that.
Do an echo and all will be clear.
For me it took 3 and im still not fully reassured especially when the palpitations kick in.
I

Do you mean to say you had 3 echo scans and you're still not "sure" about an aortic aneurysm?

Dornish Red
15-08-18, 14:25
If you are wondering, that is the dip above the middle of your collarbone. Can you feel it there? Can you see the area pulsating?
Please share if you can feel your pulse there, and/or see it.
Sorry for starting another topic, I thought it should be more specific than the other one.
My fear is aortic aneurysm, and apparently that is a symptom. I have some connective tissue disorder symptoms and this is a major fear for me.
I also have trouble swallowing, feeling like food is getting stuck in my esophagus, and that is another symptom of an aneurysm.
I will probably be getting an echo of my heart next week (recommended by my GP because of my other symptoms regarding a possible connective tissue disorder) and I am having trouble coping with all this. I can constantly feel my pulse in that area, and above my collarbone on both sides, and I can't stop thinking about this. I can also see it.
Please share if you have the same thing/something similar. I am desperate. I am on anxiety medication but it can only do so much for me. Honestly, having the worst week ever in my life.
I keep looking at my family wondering how am I going to tell them I might have a life threathening condition. Possibility is real. Any input would be helpful. Can you guys please try to see if there is a pulse for you in that spot, and share. Thanks.

yarodao
15-08-18, 15:24
Do you mean to say you had 3 echo scans and you're still not "sure" about an aortic aneurysm?

Not an aneurysm. Im sure i dont have one its easely detectable.
But sometimes dark thoughts creep in.

Dornish Red
15-08-18, 22:05
I know I am probably being annoying for everyone here and I am sorry. I am just trying to cope somehow.
Would appreciate anyone's input if you experience something similar.

Dornish Red
16-08-18, 12:53
Today is such a bad day. I am trying to arrange an echo at a private clinic but no one is answering my calls. I dont want any other clinic because this was a recommendation for a doctor with actual knowledge of connective tissue disorders.
Very frustrating, I want to get it done as soon as I can because honestly I feel like I will have a mental breakdown.
Feeling sleepy, faint, little dizzy, heart is pounding and I still feel vibrations above my collarbones, I feel like I am slightly drunk or something, could this be a panic attack or a reaction to my anxiety medication? I feel like I am going to faint all day. Not really coping with all this very well...and I have to work. Feeling so incredibily low. Like I am falling into an endless pit of despair.

yarodao
16-08-18, 16:20
You are not annoying.
Inform us of the echo.
If you are worried uploas a video of your notch here. It might be nothing and youre just blowing it out of proportion.

ankietyjoe
16-08-18, 16:44
What do you expect people to tell you here that they didn't already tell you in your other thread about exactly the same thing?

Weren't you supposed to see your Doctor today?

nomorepanic
16-08-18, 23:46
Hi

This is just a courtesy reply to let you know that your thread was merged with another of your threads.

Please when posting on similar topics add it onto your previous post rather than starting a new one.

It is nothing personal it is just to make it easier for people to follow your story and to give you advice as a whole.

melfish
17-08-18, 01:00
I'd be more worried about not feeling a pulse

Dornish Red
17-08-18, 08:31
What do you expect people to tell you here that they didn't already tell you in your other thread about exactly the same thing?

Weren't you supposed to see your Doctor today?

I dont know, as you can see I am in a very bad place now
Highly raised suspicions of a connective tissue disorder (that causes aortic aneurysms in young people) + a very alarming symptom of an aneurysm (palpable + visible aortic puls in the suprasternal notch) = of course I am out of my mind with worry. This is serious because there is a very rational concern here.

Yes, I went to see my GP. She agreed I show signs of some connective tissue disorder, and wants to investigate. She listened to my heart but when I asked her about the pulse in this specific spot she told me I am anxious so I can feel it everywhere. She didn't even felt it or cared for it. I should have explained better and ask her to feel it, I know, but I was so stressed I could barely talk. She said I should do an echo of my heart because she can't say anything about my aorta via stethoscope, she just said that my heart sounds fine, no murmur.

This is a very hard time for me and my family, they are very worried as well. The possibility of me having a connective tissue disorder is very real. My sister shows symptoms as well.
I am having my mom arrange an echo for me because I am not in a condition to do that. I am on medication because of the anxiety and depression I am feeling at the moment, but it can only do so much.

Just imagine, being in fear of possibly having a condition that can cause aorta problems, and then suddenly realizing that you have a major symptom of it, that is so incredibly scary.

Thats why I opened these topics hoping that someone maybe feels the same thing and is OK, to make me feel a bit better. I hope you understand.

I know my anxiety is probably aggravating this symptom but I constantly feel this pulse, like it is fluttering in my throat, I can palpate it and even see it. You have to admit that is scary. And I am not imagining it, when I asked other people they can see it too.

I would still really love to hear if anyone else has this visible/palpable pulse in this area, or if they saw it in other people maybe.

I am doing my best to stay positive in this situation but it is very hard. I know we shouldnt listen to Dr Google, but I read actual doctors answers online about this questions saying this is not normal and highly suspicious and should be investigated.
So I hope you understand my situation a bit better now. This is not me and my anxiety making up symptoms, I have some concerns that are very very real.
Thanks for everyone here who is talking to me, and trying to help.
I am hoping to get an echo on monday.
Trying to function normally, went to work, but having a hard time concentrating on anything. Constant feeling of a bounding pulse in my throat.

---------- Post added at 07:26 ---------- Previous post was at 07:24 ----------


You are not annoying.
Inform us of the echo.
If you are worried uploas a video of your notch here. It might be nothing and youre just blowing it out of proportion.

I will as soon as I get it.
As for the notch, I am most certainly not imagining it, I asked other people and they can clearly see it. It is possible that my anxious heart is aggravating it, but still, it is there, palpable, and visible. And scaring the crap out of me.

---------- Post added at 07:31 ---------- Previous post was at 07:26 ----------


I'd be more worried about not feeling a pulse

Haha yes feeling your pulse by itself should be a good thing, but it is worrysome when you feel it somewhere you "shouldnt" :)

yarodao
17-08-18, 16:03
Just came back from my psychiatrist because i needed some meds. Asked her about neck and notch pulsations and she told me it happens all the time and people even say thatbthey feel like its harder to swallow food and it seems to get stuck in their neck. She prescribed me some meds for that. Just informing you dornish. It maybe aint what you think it is.

melfish
17-08-18, 16:34
If this neck pulse were any sort of reliable indicator of an aortic aneurysm, don't you think they'd use it as a cost-effective mass-screening tool? No more expensive, time-consuming MRIs required for diagnosis. Just a few fingers on a neck, and voila!

Dornish Red
18-08-18, 11:38
Well it is not a diagnostic criteria, but it is an indication.

Thank you all for your input and for trying to help me. I will be getting an echo on monday.
This is honestly the worst weekend I ever had in my life.
Prospects of having an aneurysm and a diagnosis of a connective tissue disorder is so very frightening, this is the hardest thing I ever went through in my life.
My parents are terrified as well. It is a very hard time for all of us. Trying to stay positive but it is very hard.

Dornish Red
18-08-18, 20:13
Do any of you have a feeling of food/liquid getting stuck in your chest? Not in throat, but chest?
When I take a sip of a drink, I feel it getting stuck in my esophagus. Like in my chest. Like it has trouble getting down there. Do any of you experience that?

Dornish Red
18-08-18, 20:44
Do you ever get a feeling that food/liquid gets stuck in your esophagus? Not troath, but further down there, like in your chest?
When I take bigger a sip of liquid I feel like it gets stuck somewhere along the way, in my chest, and then proceeds down to my stomach
Do any of you have this?

Scass
18-08-18, 21:04
It’s very common with an anxiety.


Sent from my iPhone using Tapatalk

Dornish Red
18-08-18, 21:17
Is it really?
I read mostly about food getting stuck in throat.
I currently am being checked if I have an aortic aneurysm, (on monday) and I read that this could be a symptom. So I am looking for reassurance if anyone else get this feeling as well

jray23
18-08-18, 21:21
Sometimes, sure.

Sent from my Moto G (5) Plus using Tapatalk

Dornish Red
18-08-18, 22:16
Could it be related to fizzy drinks? I am currently having a beer and feel this with every sip.
I also have acid reflux and weird esophagus problems (cant burp, so lots of gas gets stuck there, esophagus twitching etc)

Fishmanpa
18-08-18, 22:41
Could it be related to fizzy drinks? I am currently having a beer and feel this with every sip.
I also have acid reflux and weird esophagus problems (cant burp, so lots of gas gets stuck there, esophagus twitching etc)

Perhaps carbonated beverages aren't something to drink when having those symptoms? :shrug:

Positive thoughts

Dornish Red
18-08-18, 23:15
Perhaps carbonated beverages aren't something to drink when having those symptoms? :shrug:

Positive thoughts

You are probably right
I was just trying to relax going out havimg a drink and distract myself
But I have been having these sensations in my esophagus for quite some time

nomorepanic
18-08-18, 23:38
Hi

This is just a courtesy reply to let you know that your thread was merged with another of your threads.

Please when posting on similar topics add it onto your previous post rather than starting a new one.

It is nothing personal it is just to make it easier for people to follow your story and to give you advice as a whole.

Dornish Red
20-08-18, 13:13
Just came back from my echo
Talked a lot with the intern who did it, she said everything looks completely normal and that my heart is healthy and the aorta that is visible with an echo looks normal
I still have the visible pulse in my suprasternal notch and trouble swallowing. Regarding the pulsation she said it could be due to stress and also she said I should get my thyroid hormones checked
Of course, part of my anxious mind tells me "what if you have an aneurysm in the part of the aorta that she could not see", but I am doing my best to trust the doctor and calm myself down
I will have my thyroid levels checked and also ask my GP for a referral to someone who will help me with my anxiety and maybe prescribe me something that will help calm down my bounding pulse since the echo found nothing wrong

Fishmanpa
20-08-18, 13:22
:lac: If you end up seeing a doctor over this, I'll have the "Told Ya So Gang" all ready :winks:


Just came back from my echo
Talked a lot with the intern who did it, she said everything looks completely normal and that my heart is healthy and the aorta that is visible with an echo looks normal

Courtesy of your friendly neighborhood "Told Ya So Gang" :winks:

https://media.giphy.com/media/Wf8lxu79Yv5za/giphy.gif

Positive thoughts

Dornish Red
20-08-18, 13:59
I am so glad I can laugh at that :D
Thank you so much, and everyone else who tried to calm me down.
Fear of having a connective tissue disorder has been a part of my life for so long, and fear for my heart really caused the worst spiral of anxiety I have even been in, as you can see from all the posts I made here. I am eager to get help with my anxiety now more then ever, because I don't ever ever want to feel like this again. Hopefully I can find a good doctor who will perscribe something that will help. This has been honestly the worst week of my life. I am so glad that it is over now and I feel better.
I still have some other health problems (got arthritis at age 25, yup, lots of fun), and have to do some blood tests and see a rheumatologist, so I still could have some type of a connective tissue disorder, but I feel better now that I know that my heart is fine and I am not going to die any time soon. I will probably get another echo next year, just to be sure nothing has changed.