gailveronica
12-03-19, 13:29
Hi, y'all!
I've posted here a bit, talking about left-sided tingling (my doctor did a brain MRI, found some lesions on my brain, I have a neurologist appt in April - but this is unrelated, she thinks). I've been sick for about 2 1/2 weeks now, with lightheadedness, extreme weakness (legs feel like they're trudging through quicksand), weak arms, fatigue (but can't sleep), nausea, diarrhea, etc. Initially an urgent care told me I had an ear infection and put me on amoxicillin for 7 days. That didn't do much for me, so I went to the Emergency Room. They ran some blood tests and urine tests and had radiology/neurology double-check my MRI and they said I was fine, just a viral infection taking its time getting out of my system.
So this past Friday I went for my ER follow-up at my doctor, and I'm not feeling much better and I also found a small (around 1.5-2cm), hard node near my right hip. My doctor said this is a bit high to be a lymph node, but even if it is, it doesn't feel concerning to her. She did some blood tests (Lyme, ANA, Epstein-Barr) and I was positive for Epstein-Barr, for both past infection (I've had mono before) and current infection (which I think is weird, right? can you get mono again??). Also my SED/ESR rate is 28 (should be 1-20 mm/hr) and my CRP is 0.8 (should be 0.0-0.5). So she started me on steroids to treat the active Epstein-Barr (mono) virus for this week and I go back next week for another blood draw.
I'm positive I have lymphoma. All this started with a numb/tingling chin and leg and when I read about that online, I read that it almost certainly is metastatic lymphoma. I also have a lump (ultrasound said lipoma) behind my right knee. All my blood tests are fine and normal - except the Epstein Barr and ESR/CRP, which I've read can be elevated in lymphoma.
At this point I've seen:
My primary care doctor (multiple times)
Two ER doctors (both came in during rounds and examined me)
3 Urgent Care doctors
Radiology has looked at: Brain MRI (2 white matter lesions, tbd), Spine X-ray (all clear), Ultrasound of lump behind right knee (lipoma)
I know I've gone overboard, but I can't shake the feeling something is very wrong. I know lymphoma symptoms usually involve fever and night sweats (of which I have neither) but can also just involve fatigue and a single swollen node (of which I have both).
I'm really in bad shape, I'm feeling very sick and I've had mono before, and this doesn't feel like mono to me. It feels like something sinister :( How do I shake this feeling?
I've posted here a bit, talking about left-sided tingling (my doctor did a brain MRI, found some lesions on my brain, I have a neurologist appt in April - but this is unrelated, she thinks). I've been sick for about 2 1/2 weeks now, with lightheadedness, extreme weakness (legs feel like they're trudging through quicksand), weak arms, fatigue (but can't sleep), nausea, diarrhea, etc. Initially an urgent care told me I had an ear infection and put me on amoxicillin for 7 days. That didn't do much for me, so I went to the Emergency Room. They ran some blood tests and urine tests and had radiology/neurology double-check my MRI and they said I was fine, just a viral infection taking its time getting out of my system.
So this past Friday I went for my ER follow-up at my doctor, and I'm not feeling much better and I also found a small (around 1.5-2cm), hard node near my right hip. My doctor said this is a bit high to be a lymph node, but even if it is, it doesn't feel concerning to her. She did some blood tests (Lyme, ANA, Epstein-Barr) and I was positive for Epstein-Barr, for both past infection (I've had mono before) and current infection (which I think is weird, right? can you get mono again??). Also my SED/ESR rate is 28 (should be 1-20 mm/hr) and my CRP is 0.8 (should be 0.0-0.5). So she started me on steroids to treat the active Epstein-Barr (mono) virus for this week and I go back next week for another blood draw.
I'm positive I have lymphoma. All this started with a numb/tingling chin and leg and when I read about that online, I read that it almost certainly is metastatic lymphoma. I also have a lump (ultrasound said lipoma) behind my right knee. All my blood tests are fine and normal - except the Epstein Barr and ESR/CRP, which I've read can be elevated in lymphoma.
At this point I've seen:
My primary care doctor (multiple times)
Two ER doctors (both came in during rounds and examined me)
3 Urgent Care doctors
Radiology has looked at: Brain MRI (2 white matter lesions, tbd), Spine X-ray (all clear), Ultrasound of lump behind right knee (lipoma)
I know I've gone overboard, but I can't shake the feeling something is very wrong. I know lymphoma symptoms usually involve fever and night sweats (of which I have neither) but can also just involve fatigue and a single swollen node (of which I have both).
I'm really in bad shape, I'm feeling very sick and I've had mono before, and this doesn't feel like mono to me. It feels like something sinister :( How do I shake this feeling?