FamilyPicnic
31-03-19, 16:33
I am now suffering from my third episode in a period of a little over a year of a strange cluster of symptoms (plus I've had 2 minor episodes). I'm curious if anyone has any clue at all what this could be or if you have ever experienced anything like this.
Headache, imbalance at times (feels like I'm walking on pillows), extreme noise sensitivity, difficulty walking especially if talking or chewing at the same time, can't eat crunchy food because the noise makes me feel like I will topple over, and the most puzzling symptom of all is that when I lightly touch the left side of my face (under my eye and around my ear) I get an extremely strange uncomfortable sensation, difficult to explain this, kind of like the touch is being exaggerated 100 times and it echos into my brain - it's not painful, just uncomfortable. These symptoms last about a month before leaving as mysteriously as they start.
When I'm at my worst with this I can barely walk or work or even talk because of the noise sensitivity. Walking downstairs is particularly difficult it seems because there is more pressure exerted on my feet and each step seems to hit my brain harder (I know I sound like a nut case, but I'm not!!). ENT couldn't find anything wrong and said migraine, neurologist barely examined me, brushed me off and said migraine, PCP just goes along with what they said, alternative physician said vitamin/mineral deficiency and wanted to sell me his very fancy expensive supplements (no thanks!). Lyme test was negative, blood work is generally okay, MRI was normal except for borderline chiari malformation (I'm told it's too small to cause any problems). I can't even find a name for some of my symptoms. Wondering if anyone has any clues?
Headache, imbalance at times (feels like I'm walking on pillows), extreme noise sensitivity, difficulty walking especially if talking or chewing at the same time, can't eat crunchy food because the noise makes me feel like I will topple over, and the most puzzling symptom of all is that when I lightly touch the left side of my face (under my eye and around my ear) I get an extremely strange uncomfortable sensation, difficult to explain this, kind of like the touch is being exaggerated 100 times and it echos into my brain - it's not painful, just uncomfortable. These symptoms last about a month before leaving as mysteriously as they start.
When I'm at my worst with this I can barely walk or work or even talk because of the noise sensitivity. Walking downstairs is particularly difficult it seems because there is more pressure exerted on my feet and each step seems to hit my brain harder (I know I sound like a nut case, but I'm not!!). ENT couldn't find anything wrong and said migraine, neurologist barely examined me, brushed me off and said migraine, PCP just goes along with what they said, alternative physician said vitamin/mineral deficiency and wanted to sell me his very fancy expensive supplements (no thanks!). Lyme test was negative, blood work is generally okay, MRI was normal except for borderline chiari malformation (I'm told it's too small to cause any problems). I can't even find a name for some of my symptoms. Wondering if anyone has any clues?