View Full Version : Multiple Sclerosis (MS) Fears
MisguidedDoddle
11-06-19, 11:08
Hi All,
I;m having a pretty hard time dealing with feelings that I have MS. It is mainly the fact that every now and then I get weird twitches and spasms in my face and legs, and that my right leg feels like stiff and awkward to move- I am moving with a bit of a gait.
Now I feel like this could be for many different reasons. I had a very stressful time last week, got little sleep and didnt eat too much. I also sat with my legs in unusual positions, my right big toe also eroded quite a lot of the base of my sole through friction! I am hoping these are the reasons my legs feel bad. But it feels strange that the gait is coming on more now, that it hasn't gone away after a week, and that I am getting these strange sensations on my legs and face. I am going to the doctors tomorrow, going to try and focus on my anxiety as the main reason I am there, but this is also genuinely very much concerning me. I am finding it had to eat or relax at all, and I am going into times of frequent panic at work and generally feeling really quite awful.
Any support would be really, really appreciated!
Thanks in Advance,
Misguided Doddle
Hi!
Please try not to worry? MS is rare, weird bodily sensations aren't. It sounds as though you've had a really rough time lately, which won't be helping.
Why not book a GP appointment to discuss your fears? You can explain what you're feeling and ask for help with the excessive anxiety.
MisguidedDoddle
11-06-19, 11:28
It's mainly the slightly weird walk and tension in my right leg which is causing worry, though of course I've been putting that leg through quite a lot of tension recently!
I have indeed, this is the last week of my placement and last week was very very intense, so it is a bit of an odd time. i have lots of time off after this so hopefully that will help me to relax.
I have got a GP appointment booked for tomorrow at 11:30, I'll be sure to keep you posted of the results! Thanks for the help and reassurance, it means a lot.
May I ask what sort of placement you're on? If it's Health and Social care, you're going to be on your feet all the time, that's going to make things feel weird.
MisguidedDoddle
11-06-19, 11:45
I do programming at an investment bank. I sat in lots of weird positions last week, like crossing one leg under the other whilst jiggling the right leg, frantically moving my big toe eroding my show, slouching etc. I also have a 2 hour commute on a train (4 hours total there and back), so my posture isn't so great then either. But I have only noticed this slightly lopsided walk in within the last week, though it does line up with the stress and weird positions
Believe me, that'll do it, yes.
MisguidedDoddle
12-06-19, 07:47
Having the doctors appointment today. Quite a bit nervous about it all. I forgot whether I booked it for 11:10 or 11:30! Regardless I will keep you posted about the results. In all honesty I am very much hoping she doesnt find any cause to send me off to tests, and tells me what I am experiencing is normal. I would be more worried if she offers me tests because that to me suggests she thinks something is wrong!
I'll be thinking of you. Genuinely don't think you have anything to worry about, though.
MisguidedDoddle
12-06-19, 09:16
Thanks, a lot for the support. It means a lot. My dad just got angry at me for not being able to tell him why I have anxiety and shouting at me for not feeling better after he tried to give me solutions. So I have got to make my own way to the doctors now. Which doesn't help with the general stress and anxiety of the situation. Support from forum peeps means a lot right now
I'm so sorry. Not sure how old you are, but my parents used to basically punish me for my anxiety and depression too. They did get better, but it took a very long time, unfortunately.
Don't worry if they send you for tests. I had a bunch during my MS scare. Blood tests etc. Their initial assessment they said I didn't have MS.
Keep in mind, if they think it's something (which it won't be), they could be seeing if it's something such as a vitamin deficiency etc.
I had blood tests, nerve conductivity study, brain MRI etc.
Nothing.
MisguidedDoddle
12-06-19, 11:49
I'm 21! I am on my placement year so staying at home.
I just come back from the doctors, initially feeling relieved. They think it is very unlikely I have MS, so did not refer me to any tests. They did say I could go to the opticians for an eye test if I wanted, but that would be for my reassurance, not because they thought I needed it. She said to self refer for CBT and gave me an anxiety leaflet she was working on.
Though there is this initial wave of relief I do still feel like there are things I forgot to tell her, or that I maybe didn't communicate to her too well. So I feel like my anxiety could cling onto that next it comes around.
She said that everyone has a gait to a certain extent and that I was likely just focusing on it more now. She did seem hesitant to say that stress and weird positions could make it worse, but definitely did say I needed more arch support and new shoes. So I am coming away from it feeling semi-relieved. I feel like there are some things that I am not totally satisfied with and my anxiety could run away with. I always knew it wouldn't cure me of my anxiety and completely reassure me. Its all just very difficult isn't it!
Seriously, sort out that CBT referral as soon as possible. If you do the homework they give you, it can make a huge difference.
MisguidedDoddle
12-06-19, 12:09
I will do, I shall keep this thread updated. Just have to work out whether to get the CBT for my university place or my parents place. It may be a good idea to get a blood test for vitamin deficiencies too, I believe boots does both opticians appointments and blood tests? Again, thanks for all the support.
Having the doctors appointment today. Quite a bit nervous about it all. I forgot whether I booked it for 11:10 or 11:30! Regardless I will keep you posted about the results. In all honesty I am very much hoping she doesnt find any cause to send me off to tests, and tells me what I am experiencing is normal. I would be more worried if she offers me tests because that to me suggests she thinks something is wrong!
Even if they do send you for tests i would not stress too much. For MS they will give you an MRI. They are looking for scarring on the brain. This on its own isnt enough for a diagnosis as perfectly healthy people can have this. Took me 9 years for a diagnosis as they need 2 episodes to confirm.
I had a lumber puncture as well but i think that was because of the MRI result.
I doubt very much you have anything to worry about but even if you did have it, most people with MS live perfectly normal lives. They have their problems but doesnt everyone? Please dont waste time worrying about this. Enjoy today and worry about what if, if it comes.
MisguidedDoddle
14-06-19, 13:54
Even if they do send you for tests i would not stress too much. For MS they will give you an MRI. They are looking for scarring on the brain. This on its own isnt enough for a diagnosis as perfectly healthy people can have this. Took me 9 years for a diagnosis as they need 2 episodes to confirm.
I had a lumber puncture as well but i think that was because of the MRI result.
I doubt very much you have anything to worry about but even if you did have it, most people with MS live perfectly normal lives. They have their problems but doesnt everyone? Please dont waste time worrying about this. Enjoy today and worry about what if, if it comes.
That is all very true. My anxiety is the main driver, I know regardless of whether if I am or am not diagnosed my anxiety will still chase me. This isn't the end of the anxiety road whatever happens. I just feel so tired that I have to keep dealing with this. With life feeling like a struggle when nothing has actually even happened yet. I just hate feeling like this
It's exhausting, isn't it? I promise you won't always feel this bad, though.
MisguidedDoddle
19-06-19, 10:00
Saturday I had the eye test, got the all clear there. I am going to the physio Tuesday to ask about my walk and the general tension in the lower body and neck, then have a doctors appointment next Friday. Also had the preliminary phone call from ThinkAction, they'll be getting back to me sometime next week about what kind of therapy/resources they can provide me. Feeling mixed at the moment, but better than I was last week
MisguidedDoddle
24-06-19, 07:41
Starting to feel pretty bad again. I have this constant feeling of my throat being full. Whenever I eat anything I start feeling really sick and hot afterwards. I think its LPR, which is also known as silent reflux. I'm really worried that it's because a muscle is failing due to ms. A couple of times yesterday I felt a sharp burning pain across my left jaw, and also had a little bit of tingling around there. Worse thoughts are getting to me now I feel. I'm beginning to feel like I will never be stable again, or get out of this rut.
You will.
You're describing exactly what its like for everyone with HA.
I had it terrible 3 years ago. Much much better now.
MisguidedDoddle
09-07-19, 20:45
Just a quick update. In feeling vastly better anxiety wise. I dont really get tingles and my leg feels fine now. Still having issues with the throat, but I no long think that's linked with ms. Its annoying but I'm not perceiving it as life changing anymore! Thanks for the support everyone, and simply hearing my anxious thoughts
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