mary jane
04-07-19, 20:16
Hi everyone
I have had vulvodynia since 2013 but it went away for a year and half after medication (amitriptyline and lyrica) and came back later. My symptoms were severe buzzing of the nerves, crawling under the skin, spreading irritation of the nerves and electric shocks. no burning
MY problems started in Jan 2019, when I was trying to quit amitriptyline, had gone down from 50 mg to 30 mg and feeling great. Two months in, boom! all my 2013 symptoms came back ..I panicked so bad I started taking an older lyrica pack in my house. I went back to 50 mg (on my own, seeing my GP took 2 weeks and I panicked).
The symptoms went away again on 150 mg lyrica and 50 mg amitriptyline. Unfortunately, after 4 months they have stopped working again and although I don't have severe pain, the sensations drive me crazy. At night, when I want to go to sleep the buzzing nerves start, it's like an intrusive buzzing feeling in the vulva and it's horrifying. I have been googling and my symptoms match CRPS instead of vulvodynia. My pain started in 2013 after a small infected cyst ruptured. The intense pain started a day later.
I have been crying every day for the past 2 weeks and am feeling depressed, suicidal and paranoid. Today I even vomited from the severe anxiety. I can't sleep at night even on the amitriptyline and I don't know what to do. If I tell my GP I am depressed he may refuse further medication. At this point I would rather have cancer than possible CRPS.
I am seeing a specialist pelvic pain urogyn in 3 weeks.
Thank you and sorry for the inconsistent post
I have had vulvodynia since 2013 but it went away for a year and half after medication (amitriptyline and lyrica) and came back later. My symptoms were severe buzzing of the nerves, crawling under the skin, spreading irritation of the nerves and electric shocks. no burning
MY problems started in Jan 2019, when I was trying to quit amitriptyline, had gone down from 50 mg to 30 mg and feeling great. Two months in, boom! all my 2013 symptoms came back ..I panicked so bad I started taking an older lyrica pack in my house. I went back to 50 mg (on my own, seeing my GP took 2 weeks and I panicked).
The symptoms went away again on 150 mg lyrica and 50 mg amitriptyline. Unfortunately, after 4 months they have stopped working again and although I don't have severe pain, the sensations drive me crazy. At night, when I want to go to sleep the buzzing nerves start, it's like an intrusive buzzing feeling in the vulva and it's horrifying. I have been googling and my symptoms match CRPS instead of vulvodynia. My pain started in 2013 after a small infected cyst ruptured. The intense pain started a day later.
I have been crying every day for the past 2 weeks and am feeling depressed, suicidal and paranoid. Today I even vomited from the severe anxiety. I can't sleep at night even on the amitriptyline and I don't know what to do. If I tell my GP I am depressed he may refuse further medication. At this point I would rather have cancer than possible CRPS.
I am seeing a specialist pelvic pain urogyn in 3 weeks.
Thank you and sorry for the inconsistent post