Dimdim101
04-11-19, 20:59
About 4 months ago I was worrying a lot about a little lump behind my collarbone. I went overseas and basically got over my fears but they’ve been re triggered as a mutual friend has just been diagnosed with stage 4 Hodkin’s lymphoma. She mentioned her symptoms had been slowly progressing for almost a year and things really became an issue when she found some lumps in the collarbone area that were very swollen and didn’t go away. She mentioned they were rubbery and painless, and she could move them (whereas I always thought they would be hard like a rock). She also didn’t have many other symptoms apart from a cough for over a year due to masses in her lungs (I had a weird cough for 2 months or so but that’s gone now).
I really only worry because I have a lymph node that I can feel on both sides behind my collarbone that are painless (rubbery I don’t know what that really means so can’t confirm?) - they don’t stick out - I need to press behind to feel them and I am quite naturally thin - but I worry that like her it is slowly progressing and I’m noticing the early stages and before I know it I will be diagnosed with lymphoma. I need to press behind the collarbone to feel them both... the one on the left usually moves in front of my collarbone with my arm movements and then rolls back over behind it, while the other one stays behind the right collar bone unless I move it.
Despite her very large lymph nodes, it still took 3 months for her to be confirmed with lymphoma (and even after receiving a needle biopsy which came back negative!). She was reassured it was nothing but then it was, so that really makes me feel there’s nothing I can do - no testing will actually reassure me, so I’m just not sure where to go from here. Especially with her symptoms slowly progressing over a year, I feel like only after a year or more of this will I calm down :(
My lymph nodes haven’t changed at all in the last 4 months, it’s just that I’m worried that they can be felt at all in the collar bone region because apparently that’s always a bad sign (however they are very small - one is pea sized, the other is a bit bigger, more bean sized). It’s the bigger one that scares me since I worry it may be a little over 1cm in length (but <1cm in width). But again hasn’t changed in over 4 months...
Does anyone else have lymph nodes behind their collarbone that they can feel? I have read a couple of forums here mentioning that some people can feel collarbone lymph nodes, but I’m not sure if they feel the same as mine or are as large.
I always though lymphoma would progress quickly but with her symptoms starting a year earlier that scares me - when she started having her cough maybe she had little collar bone nodes like me and just didn’t notice until they really swelled up. I don’t know! I’m really freaking out
I really only worry because I have a lymph node that I can feel on both sides behind my collarbone that are painless (rubbery I don’t know what that really means so can’t confirm?) - they don’t stick out - I need to press behind to feel them and I am quite naturally thin - but I worry that like her it is slowly progressing and I’m noticing the early stages and before I know it I will be diagnosed with lymphoma. I need to press behind the collarbone to feel them both... the one on the left usually moves in front of my collarbone with my arm movements and then rolls back over behind it, while the other one stays behind the right collar bone unless I move it.
Despite her very large lymph nodes, it still took 3 months for her to be confirmed with lymphoma (and even after receiving a needle biopsy which came back negative!). She was reassured it was nothing but then it was, so that really makes me feel there’s nothing I can do - no testing will actually reassure me, so I’m just not sure where to go from here. Especially with her symptoms slowly progressing over a year, I feel like only after a year or more of this will I calm down :(
My lymph nodes haven’t changed at all in the last 4 months, it’s just that I’m worried that they can be felt at all in the collar bone region because apparently that’s always a bad sign (however they are very small - one is pea sized, the other is a bit bigger, more bean sized). It’s the bigger one that scares me since I worry it may be a little over 1cm in length (but <1cm in width). But again hasn’t changed in over 4 months...
Does anyone else have lymph nodes behind their collarbone that they can feel? I have read a couple of forums here mentioning that some people can feel collarbone lymph nodes, but I’m not sure if they feel the same as mine or are as large.
I always though lymphoma would progress quickly but with her symptoms starting a year earlier that scares me - when she started having her cough maybe she had little collar bone nodes like me and just didn’t notice until they really swelled up. I don’t know! I’m really freaking out