View Full Version : Bad News
LouiseAndy
29-11-19, 11:28
So as some of you know, I had issues with my coil earlier I the year. Well there months later I finally had what was suppose to be my four week update (they said I might not be soon till after new years a few weeks ago lol)
But like ive just been told by the damage the coil did to my body. I won't be able to have kids. I'm very upset and shock now.
They took my heart rate abe blood pressure bwfore i even went in and it was at 143 so I can't imagine what it is now. I'm in so much shock. Sorry I don't have much detail, I will day more later im jusy so taken aback and need to say it.
Louise, I am so so sorry to hear this. I went back and read your thread about the coil. What an ordeal and what a devastating result.
Louise, I wasn't part of your 'coil thread' and hadn't even read it before (as know nowt about them), so went back and read the whole thing now. I honestly can't believe what you had to put up with for so many weeks and months, the amount of bleeding, the struggle to even get to the point of finding out what was wrong, the amount of pain, the fear you must have been feeling (I felt very emotional for you reading it)- then to have to wait so so long for them to removed the broken section !!! I am quite honestly in awe of your bravery and fortitude, to keep working and carrying on as you were - you must have been so anaemic and feeling simply dreadful all the time. I wanted to say that you are a very strong woman.
Now, the news today - this is indeed shocking. I know you've not given details here, but are they really sure the uterine damage is that extensive ? Your devastation probably can't even be put into words right now, and I hope you have people around you in real life who can support you. Do take care.
Oh, my goodness, I'm so very sorry!
LouiseAndy
29-11-19, 17:34
Thank you all so so much for the replies. I know this was very badly written but I was so taken aback and I need to say it.
Basically after ages of messing around with the coil, when they finally removed it (don't want to go into details to be honest as it was a very traumatic time) things weren't done right and they caused a lot of issues- that my Doctor today thought I knew about. This whole time I've been going through issues with the coil, I've never meet the same doctor twice. So today he was talking to me like I knew- which I didn't. I couldn't even take most of it in to be honest, I went to the appointment alone as I didn't expect this at all- they knew since August there was issues and no one got in contact with me.
I'll explain more another time, as I'm trying to get my head around it myself and for anyone here who I hope never faces a issue like this. I will probably have to have a operation in January- that has a 15 percent chance of fixing things but it's mainly to fix up other issues they caused.
Because I had been passed around so much, this is why I have such a distrust now. Like I have a cardiologist appointment in two weeks and apart of me feels like I'm going to drop any day because I've had issues for so long-- just alot of bad thoughts. Full of dread that it's to much, I know I have to calm as /if/ there is a issue this stress won't help.
I called my GP as I was so upset and confused, she actually was very taken aback also and got upset on the phone with me. It's strange because I always said I didn't really want kids but I guess because this wasn't my choice and just how poorly it was handled I'm really shocked.
LouiseAndy
29-11-19, 17:35
Louise, I am so so sorry to hear this. I went back and read your thread about the coil. What an ordeal and what a devastating result.
Thank you for the reply Erin x I'm trying to get my head around it, it's really given me mistrust issues now sadly. Thank you for even taken the chance to read this but also my other thread ❤️
LouiseAndy
29-11-19, 17:38
Louise, I wasn't part of your 'coil thread' and hadn't even read it before (as know nowt about them), so went back and read the whole thing now. I honestly can't believe what you had to put up with for so many weeks and months, the amount of bleeding, the struggle to even get to the point of finding out what was wrong, the amount of pain, the fear you must have been feeling (I felt very emotional for you reading it)- then to have to wait so so long for them to removed the broken section !!! I am quite honestly in awe of your bravery and fortitude, to keep working and carrying on as you were - you must have been so anaemic and feeling simply dreadful all the time. I wanted to say that you are a very strong woman.
Now, the news today - this is indeed shocking. I know you've not given details here, but are they really sure the uterine damage is that extensive ? Your devastation probably can't even be put into words right now, and I hope you have people around you in real life who can support you. Do take care.
Thank you so, so much for the words Carys. I don't feel like I'm strong or brave at all. I feel quite scared now and it's broken all the work I've put into my anixety/HA over the last few years. I know we have to carry on but I'm feeling rather weak now. I know these things happen and such, I sadly was a case where they just kept passing the book around and around.
My friends and family are being amazing, they have been this whole time. Bringing me to the emergency room and such over and over again. Trying to help me get my voice to deal with this. While I'm so upset with this outcome, I'm very aware I'm lucky to have these people are me- plus you all who take the time to reply and read xxx Thank you again Carys for the words. They mean so much ❤️
LouiseAndy
29-11-19, 17:39
Oh, my goodness, I'm so very sorry!
Thank you so much BlueIris ❤️
Oh Louise, I had to read your post several times to take it in myself. You must be in shock and completely taken aback. I'm so sorry you had to go through all of that. x
My goodness Louise I am so sorry to hear that. I remember what an awful time you had.
I really hope that the operation can help.
Please make sure you take someone with you to all appointments to discuss this now. It’s a disgrace the way you have been treated x
LouiseAndy
29-11-19, 21:37
Thank you Carnation & Scass thank you both so much for the reply and your words. They mean so much to me during this time.
I'm really after falling with my health anixety, like it was bad before but u haven't been able to move all day. I'm so sure like I'm going to have a heart attack now or something because like it's like something clicked in my mind saying that's the case?? I know this is such doom thinking but I'm so upset. People around me don't really know how to react and I can't blame them tbh
I am so sorry to hear this
I'm sorry to hear this :( Frankly, based on all the issues you had since it was put in, I would talk to an attorney.
Positive thoughts
LouiseAndy
30-11-19, 03:01
I am so sorry to hear this
Thank you ❤️
LouiseAndy
30-11-19, 03:05
I'm sorry to hear this :( Frankly, based on all the issues you had since it was put in, I would talk to an attorney.
Positive thoughts
My GP actually brought that up today, she said it was a disgrace. I remember one time I went to her office and I couldn't even walk with the pain- she rang a number of people in front of me and they kept saying it wasn't their issues or wasn't urgent. I wasn't really in the mindset to talk about it today but she wants me to come see her next week to talk about it Abit more- just everything they said to me.
Also I apologise for posting such a ramble on about fearing heart worries now, yet my mind is really shaken now. I'm hoping I can bring myself around from it soon. Ive made alot of progress in the past and I want to keep that going....like today my Mam sat at the kitchen table with me for a few hours just talking over how this had impacted me and I lucky for her....sorry for ranting so much lol. Alot of words just came out there- I may have forgotten to say it but thank you for the reply ❤️
I agree with Fishmanpa. It really did sound like you were given the run around.
My GP actually brought that up today, she said it was a disgrace. I remember one time I went to her office and I couldn't even walk with the pain- she rang a number of people in front of me and they kept saying it wasn't their issues or wasn't urgent. I wasn't really in the mindset to talk about it today but she wants me to come see her next week to talk about it Abit more- just everything they said to me
Definitely do it, go back and let her decide what the evidence is of medical negligence! I am staggered by the story, the lack of care you've had - its shambolic from start to finish, and catastrophic at the end - and I can TOTALLY see why this is impacting on your ability to trust professionals (apart from your lovely GP of course).
just talking over how this had impacted me and I lucky for her....
Not sure about this bit ?
LouiseAndy
30-11-19, 19:02
Thank you all so, so much for the support! It's been so lovely for you all to take the time to reply to me during this time. I think I may have worded some things badly! My mind was Abit all over the place. Today I spent most of the day out with my Mam, she's very into the Christmas mood so that was nice! I'm going to a friend's house now. I'm trying to keep up the good times and not be to overwhelmed by this xxx
LouiseAndy
01-12-19, 17:59
Aw thank you Carnation!! That's such a lovely thing to say but I'm really not xx
Today been hard, I'm nearing the end of a 14 hour shift. I got my period as well yesterday- which I try to remind myself in turn can raise your heart beat and make you feel all types of bad like I do!! It feels a bit like being cheated because even with all these issues I still have to deal with my period lol x it's still not fun, I've been very jumpy and just hyperaware of every body feeling today! My cardiologist appointment coming up soon- so hoping I can push past this soon!
I'm also going to see my doctor on Friday to discuss the whole legal thing further and I've also been in contact with my therapist and will be seeing her some day next week!!
Once again, thank you to every one here who's taken the time to read or reply xxx
Thats awful, so very sorry to hear that. It was always your choice to have children or not, and now that choice has been taken from you.
I do hope that they can do something to help you. You've been on a long and distressing journey.
LouiseAndy
03-12-19, 21:13
Hi everyone!
So I made a bit of a big last minute choice and since I'm off college until exams (got lots of time yet) my friend and me booked a last minute get away lol. Off to Poland we went! I didn't even have time to think since I just needed to clear my mind, my anixety was bad before the flight but it's always been! I was doing super good all of yesterday and today! It's only in the last hour the anixety had rolled in Abit, it's hard to breath, feeling dizzy etc etc ( alot of ha thoughts right now, typical heart attack or something along those lines but look I've had thought loads and I'm still here )but I'm here! I'm so glad I did it. I got some really good stuff in the Christmas market and we went to a amazing museum today.
I've got therapy on Monday, I'm meeting my GP Friday and I've got my cardiologist appointment on Thursday! I'm just gonna do lots of deep breathing now and try to relax my body Abit!
LouiseAndy
03-12-19, 21:14
Thats awful, so very sorry to hear that. It was always your choice to have children or not, and now that choice has been taken from you.
I do hope that they can do something to help you. You've been on a long and distressing journey.
Thank you so much Darksky! �� I guess that was one of the hardest parts, like I'm 23. I wasn't thinking of kids and stuff yet so it's hard to know through them it might now even be a choice now
Hope you're having a great time. European Christmas markets are the best:yesyes: Enjoy yourself!
LouiseAndy
07-12-19, 19:27
Thank you Darksky! It was a lovely experience! I think ibrought back some type of plane cold! You know all those gems in the air.
My GP called me yesterday and we went over all the details of how they've handled my case- it's alot of details but it make it really simple. We decided to wait until after the operation in January before doing anything...just because she said knowing the health system. If they got wind of me doing to do anything legal. They push the opp waaayyy down. So more details to come on that in around Februaryish!
I'm also very nervous for my cardiologist appointment on Tuesday, I'm been having alot of heart issues and such. I guess it's soon and I'll have the answer soon anyway! Just alot of thoughts knocking around now about it.
I think you are handling everything incredibly well. :hugs:
LouiseAndy
08-12-19, 18:27
I think you are handling everything incredibly well. :hugs:
Thank you for the kind words Carnation truly- but I haven't been doing so well. I end up sitting in the stock room today and having a mix of a crying fit and a panic attack. My co worker covered for me but it was rather embrassing.
I guess getting my period and it all feeling so pointless now just really got to me. I also have my cardiologist appointment next week and I'm so scared of something going wrong again or them messing me around. I know I have to trust them- that it's all I can do but I'm feeling so alone and just like my body is against me. I know like you and others have said in the past so wonderful advice to me but I'm really lost and just scared right now.
I know it's very scary LouiseAndy. The feelings scare all of us. The more you realise it is anxiety and not something else, the quicker it will settle.
It's not fair that you have to feel this way, I know that, but you can deal with this. Be kind to yourself, get rest when you need it and learn to understand how anxiety works. :hugs:
LouiseAndy
10-12-19, 20:57
Thank you Carnation x honsetly your words mean so much to me!
I had the first appointment today, they did a ecg and I have a holter monitor on until Thursday and they doing a a echo then also! I'm been feeling really awful all day, my heart is all over the place and I feel awful. I'm trying to forget about the monitor but it isn't always easy!
I know I'll know by Thursday what's going on hopefully but I feel so bad now and I had such a bad night I'm so scared of being let down once again by the system- which is a joke anyway but I'm really at a stand still.
Those monitors will always make you feel edgy.
Try to keep your mind busy with gentle chores. x
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