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j2
05-12-19, 01:26
A couple of months ago I posted that my son was airlifted to hospital with a brain abscess. He spent a week in ICU and then was released. We were told the abscess would decrease over time with powerful IV antibiotics. He just had an MRI on Monday and the growth has not decreased at all but none of his symptoms are back. He is having a needle stuck in his brain tomorrow to either drain the abscess or biopsy the mass. Basically I am freaking out that this is a tumor and I am emotionally swirling the drain and I am in full panic mode. If anyone has any experience with this, please let me know. Thanks and God bless you all.

KK77
05-12-19, 01:48
Can't offer any medical advice but wishing your son a speedy recovery. Sounds like he's in good hands but appreciate how worried you must be.

Please keep us updated.

Scaredtoo
05-12-19, 02:23
A couple of months ago I posted that my son was airlifted to hospital with a brain abscess. He spent a week in ICU and then was released. We were told the abscess would decrease over time with powerful IV antibiotics. He just had an MRI on Monday and the growth has not decreased at all but none of his symptoms are back. He is having a needle stuck in his brain tomorrow to either drain the abscess or biopsy the mass. Basically I am freaking out that this is a tumor and I am emotionally swirling the drain and I am in full panic mode. If anyone has any experience with this, please let me know. Thanks and God bless you all.

I’m praying for you and your son.

Fishmanpa
05-12-19, 03:04
Keeping you, your son and family in....

Positive thoughts

always scared
05-12-19, 03:25
I don't have any medical advise but I do know what you're going through. Sending some hugs. Will be thinking of you and your son. Please keep us posted

NancyW
05-12-19, 03:33
the growth has not decreased at all but none of his symptoms are back.

1. No growth
2. No symptoms

It's right for them to investigate but the above facts are positive.

9 months ago my son had a lump removed from his neck, initial pathology suggested cancer, I've never been so frightened in my life. Thank God the final pathology proved it was not. I still could fall to the ground and sob when I think about it, I know how you are feeling.

My wish for you is quick results so that you can either know what you're dealing with or have peace of mind. Until then do what you must to stop your brain from spinning out of control imagining the worst... I repeated a very short prayer over and over to block the thoughts, maybe that will work for you. I'm sorry you're going through this.

Please keep in touch

Quinn1
05-12-19, 03:33
Thinking of you and your dear Son.:hugs:

ErinKC
05-12-19, 04:02
Thinking of you and your son!! <3

pulisa
05-12-19, 08:48
I do hope today that you will have more definite news as to whether you are dealing with an abscess or a mass. Fingers tightly crossed that the lesion is an abscess which can be drained today. It's an awful time for you and your family....please keep us updated. Nothing you can do to influence the results but it's very positive that your little boy has no recurring symptoms.

Try to stay strong for your little boy.

j2
05-12-19, 09:58
It is 4a.m. here in the states and we are off to the hospital. I have barely slept and can barely focus. I feel so selfish as I need answers and can't stop crying. I need to be strong for him but I am weak, so very weak. Thank you for the prayers.

j2

Quinn1
05-12-19, 10:07
No,you are a strong woman,:hugs:

BlueIris
05-12-19, 10:55
Wishing you and your son the very best of luck for today.

MrLurcher
05-12-19, 10:58
There is no worse feeling than worrying over your child. Best of wishes today j2, hope your son is coping ok.

glassgirlw
05-12-19, 14:21
Prayers for you and your son today! Please update when you know more. I know it’s next to impossible but try to think as many positive thoughts as you can!

j2
06-12-19, 02:46
Well, it is not an abscess, it is a tumor of some kind. I have been crying for hours and resisting googling. The biopsy will take 11 days. I am a mess, I am shattered and I am trying to be positive but at everything turn this just keeps getting worse. I need to be strong but he is old enough to know this is really bad and I am not able to help him. If there is a God, I need him. I am so lost.

always scared
06-12-19, 03:00
I am so very sorry that this is happening. It is such a nightmare. Unfortunately I know exactly what you are going through. My heart aches for you. It's truly the worst words any parent can hear.
Try to stay positive (I know its easier said than done) It could be a very treatable tumour. Did they say what kind it might be?
Again I am so sorry. I really wish I could say something to comfort you. You will be strong for your son believe me.

j2
06-12-19, 03:19
They said some words like glioma but I am afraid to google. I know it hasn't grown in almost 2 months but I tried to get the doctor to tell me this was a sign it was benign but I couldn't get him to commit to that. I don't know what to do.

MyNameIsTerry
06-12-19, 03:43
I'm really sorry to here this. You must be in pieces. I do hope you hope you have some real life support around you to get help you through this awful time :hugs:

Wishing your son all the best in recovery from this and back home where you can all be enjoying life together and putting this behind you.

NancyW
06-12-19, 04:26
J2 I've been thinking about you all day and looking for your update.. I so wish you'd have answers sooner than 11 days. Waiting is literally torture.

I did look for you and there are "gliomas" are benign.

I'm hanging onto the fact that it had not grown and his symptoms did not come back.

I feel so terrible for you, the feeling of sheer terror is still so fresh in my mind with my own son.

Please stay with us, let us be your sounding board and support you best we can.

Would you be ok posting his first name? I would like to pray for him.

MyNameIsTerry
06-12-19, 04:49
11 days seems a long time for a biopsy though. Is there a reason it can't be turned around quicker at the lab?

Like Nancy I had a look also and there is hope to hang onto. Like you were thinking it could be a low grade type and the doctor may be wary of not saying for sure until he/she has all the facts in front of them given this is such a serious situation. The doctor may have also implied that as a possibility too and given you are (very understandably) not taking everything in right now that might be another reason why they are playing it cautious.

j2
06-12-19, 04:50
His name is Gavin. I wish I had faith.

BlueIris
06-12-19, 05:17
Not sure what to tell you other than it's not the worst case scenario until they tell you it is.

Thinking of you and Gavin, and hoping with all my heart that things work out for you.

Scaredtoo
06-12-19, 12:13
I am praying for Gavin and I can tell you my faith in God is abundant.

“ I know that worrying gets me nowhere. Yet I still allow worry and anxiety to consume me.
In times such as these, Lord, I ask you to grant me a great amount of strength, faith, and courage to fight off the doubt and fear within my minds. Faith casts out fear while fear casts out faith.”

As a mom I don’t have the words to
Ease your troubled heart and mind but please know you are not alone. Praying for benign results.

j2
06-12-19, 14:10
I have been crying all night. He is asking if he is going to die. I am not enough for him right now.

BlueIris
06-12-19, 14:30
You're being all you can be, and nobody can ask more of you than that.

eevee
06-12-19, 14:51
I’m so sorry that this is happening :( The fact that it isn’t growing and the symptoms aren’t returning is promising. I’ll be thinking and praying for him.

KK77
06-12-19, 15:27
Sending strength and positive thoughts your way.

Carys
06-12-19, 16:15
J2, you are what he needs right now.....because you are his parent, who he loves and who loves him, and that is what he needs. I am also thinking of you and Gavin, and sending all hopes possible for a benign resolution, or something that needs easy treatment. As a parent I can imagine to a small extent your absolute mind and body engulfing fear and pain, but I'm not in your position and it must be raw, terrifying and feel its beyond copeable. Spill your thoughts and feeling out here, it is only a small thing, but we will listen. I don't have religious faith either, of the sort you refer to, but I have faith in people, doctors and professionals to do the very best for your boy. I mean no disrespect to anyone who has religious faith, everyone is different, but instead of expecting prayers to make a difference instead put your faith in people around you who are working miracles day in and day out as it is my opinion that they are the ones who matter.

Scass
06-12-19, 19:09
I’m thinking of you and Gavin. I hope that he’ll be ok.

pulisa
06-12-19, 19:43
J2, you are what he needs right now.....because you are his parent, who he loves and who loves him, and that is what he needs. I am also thinking of you and Gavin, and sending all hopes possible for a benign resolution, or something that needs easy treatment. As a parent I can imagine to a small extent your absolute mind and body engulfing fear and pain, but I'm not in your position and it must be raw, terrifying and feel its beyond copeable. Spill your thoughts and feeling out here, it is only a small thing, but we will listen. I don't have religious faith either, of the sort you refer to, but I have faith in people, doctors and professionals to do the very best for your boy. I mean no disrespect to anyone who has religious faith, everyone is different, but instead of expecting prayers to make a difference instead put your faith in people around you who are working miracles day in and day out as it is my opinion that they are the ones who matter.

I echo what Carys says. Have faith in the doctors who have the expertise to provide the very best treatment plan for Gavin. You don't know what you are dealing with yet and this is the worst part. You are able to speculate on the very worst case scenario when there is fear and uncertainty yet no definitive biopsy result. Gavin will need you to be positive for his sake no matter how terrified you are. He needs you to be in control and someone who can answer his questions in order to keep his own fears in check. You will have to pretend to be coping with all this in front of him which will be really hard but you will do it for Gavin.

SarahNah
06-12-19, 19:56
I don't have much experience with like this-just wanted to say I'll be thinking of both you and Gavin during this time xxx

Fishmanpa
06-12-19, 20:40
When my wife was ill with a very rare type of encephalitis, they found a mass on her thymus gland. The chances were it was cancerous based on the pathology of her illness and the causes. Turned out to be benign. The same thing applies with a glioma. Hang onto that hope. When push comes to shove, you'll be there, trust me.

Keeping you and Gavin in....

Positive thoughts

pray4me
06-12-19, 22:17
I don't post on here much. I am really sorry that your family is going through this. I hope things turn out ok for all of you.

NervUs
06-12-19, 23:02
I am so sorry, truly no words. This is every parent's worst nightmare, and it is a gut punch to think of Gavin's fear and the long wait ahead You are who he has and who he needs. I don't pray but I am thinking of you.

Hypo27
07-12-19, 00:23
I’m truly so sorry you are going through this. I’m praying hard for you and your family I can’t begin to imagine what your going through...

j2
07-12-19, 02:38
I am glad I have so many people in my corner here on this site. I talked to surgeon today and he is telling us that the pathologist with have results 16th, then the oncologist and the surgeon will put together a plan for early next year. The surgeon wants to aggressively cut parts of his brain and he keeps talking about complications and having to do things like relearn to speak or walk or God knows what. I have been able to hold it together most of the day but right now I am spiraling my wonderful, smart, kind little guy having this thing in his head that is trying to kill or forever disable him. I am sorry.

MyNameIsTerry
07-12-19, 02:54
You have nothing to apologise for, we would all be in distress too. If it comes to relearning areas of life he will get expert support and kids are amazingly agile compared to adults when it comes to learning. But until you reach then what can you do but put faith in those that work miracles daily? He may not experience what they say but they have to prepare you for the tough road ahead.

There is still hope. :hugs:

NancyW
07-12-19, 03:06
J2 you mentioned being in the states, we have outstanding hospitals and specialists. Are you in a large city? Well known hospital?

It sounds like regardless of the results they want to get it out of there. That makes sense since it was causing him symptoms.

I still feel encouraged that between the initial tests and the recent test it did not grow. Whatever it is doesn't appear to be growing fast.

I just cant stop thinking about you and Gavin. Some of us are praying to God, some are directing faith in the drs, no matter we are all sending you positive energy. Of course best case is benign pathology but if not, best outcome possible and a return to the business of being an awesome little guy.

xo

NervUs
07-12-19, 21:07
I am glad I have so many people in my corner here on this site. I talked to surgeon today and he is telling us that the pathologist with have results 16th, then the oncologist and the surgeon will put together a plan for early next year. The surgeon wants to aggressively cut parts of his brain and he keeps talking about complications and having to do things like relearn to speak or walk or God knows what. I have been able to hold it together most of the day but right now I am spiraling my wonderful, smart, kind little guy having this thing in his head that is trying to kill or forever disable him. I am sorry.

Oh god! I know this is impossible to do-- and I feel like a fool for even saying it-- but try not to let doctors get ahead of you. They haven't done the biopsy and don't really know what they're dealing with. For whatever reason, yours is spewing information without all the facts. But, sometimes, what the front line doctors think at first turn out not to be the recommended course of action. The specialists you go to after biopsy are the ones that will have the plan. I am sure your doctor is trying to help, and get you in the frame of mind to understand that this will be a major surgery and adjustment. But, whatever is said at this stage is not gospel. It must be excruciating to just have to sit and wait for this to play out, but it will take moment by moment to really know all the details and effects on your son. Maybe you can find some strength in practicing not letting your fears jump the gun? I am thinking of you.

ta333
08-12-19, 01:18
J2, I'm really sorry to hear this. Hopefully it's just a simple tumor that won't need too much treatment besides surgery. Don't jump to conclusions before you get the biopsy results, even if the doctor says otherwise. I had a family member with a tumor, & the doctor told us the tumor was a certain thing & then the pathology came out to be something much more benign. You & Gavin are in my family's prayers.

NancyW
08-12-19, 01:20
For whatever reason, yours is spewing information without all the facts.

But, whatever is said at this stage is not gospel.

NervUs .. on point.

This is where we were with our son. The surgeon said, "it was a tumor, it appears to be a low grade cancer".

He even had referral papers for radiation.

Final pathology... benign.

Sparky16
09-12-19, 04:31
At my previous employer, I had a co-worker whose daughter had a brain tumor which was removed via surgery when she was 4. That was about 15 years ago. She is now in college and doing well! Don't underestimate how durable kids are.

j2
09-12-19, 15:40
NancyW, I been too scared to google all the terms. Are you saying that low grade is different than benign? Also thanks for all the comments and thoughts. I need to hear from people like me.

NancyW
09-12-19, 16:50
Please don't google, I didn't either, too scared and I have sworn off of it because it always does more harm than good.

Yes it's different, low grade cancer is still cancer but not aggressive, and treatable, curable.

Benign is no cancer.

RadioGaGa
09-12-19, 21:15
j2

Just to say my thoughts are with you, your son and family at this extremely difficult time. I can't even begin to imagine what it must be like going through this, and I'm sure going from a suspected abscess to a confirmed tumour was devastating to say the least.

Please stay off Google, as it will not give any sort of helpful information at this time. It's worth noting that brain tumours in children are often of a different variety to that seen in adults. Children's tumours are often very treatable and can have a very good outlook.

Again, my thoughts and prayers are with you at this dreadful time. I'll keep you all in my prayers.

NancyW
10-12-19, 20:49
Thinking about you today, how is Gavin feeling?

always scared
13-12-19, 00:12
Just popping in today to see how you are holding up.

Thinking of you and your son. Sending some positive and healing vibes <3

NancyW
17-12-19, 00:32
I hope J2 comes back to update us, they were to get results today. 🙏

j2
17-12-19, 14:51
We met with oncology and nuero yesterday. According to pathology, the tumor is probably benign but they are saying nobody will commit to a concrete diagnosis until it is removed and the whole thing is looked at by a pathologist. The nuerosurgeon went over the procedure to remove it. In general, a logical person would be relatively encouraged by the results and the plan. I, of course can only focus on the negative. I have long ago quit sleeping and I am trying so hard to be there for my little guy but I am such wreck that in the doctor appts, the doctor is asking if I am alright. I am not doing well. Anyway, another apptment tomorrow and another mri the day after that.

BlueIris
17-12-19, 14:54
Thinking of you and Gavin, and hoping all goes well.

NancyW
17-12-19, 16:18
I'll be positive for you, this is very good news.

I think the way our anxious minds work, we are afraid to have hope, afraid to let go of the worry and anxiety, in an odd way, it feels protective.

I am convinced that drs hold on to the worst case scenario until they are 1000% positive it's not the case.

I know it's not over and brain surgery is not taken lightly but today I feel after it's over you and your awesome little guy who some of us here have taken into our hearts, will get back to your normal life..

Truthfully in our situation, my son has done better moving on, I on the other hand believe it left me with PTSD.

Thank you for keeping in touch J2 :-)

Elen
17-12-19, 17:44
I'll be positive for you, this is very good news.

I think the way our anxious minds work, we are afraid to have hope, afraid to let go of the worry and anxiety, in an odd way, it feels protective.

I am convinced that drs hold on to the worst case scenario until they are 1000% positive it's not the case.

I know it's not over and brain surgery is not taken lightly but today I feel after it's over you and your awesome little guy who some of us here have taken into our hearts, will get back to your normal life..

Truthfully in our situation, my son has done better moving on, I on the other hand believe it left me with PTSD.

Thank you for keeping in touch J2 :-)

Agree with Nancy, this all sounds like positive news. Fingers crossed for you and Gavin

Scass
17-12-19, 18:14
Thank you so much for updating us with today’s news. I’m sure there’s no right or wrong way to handle this. I go cold when I think of what you must be going through. It sounds positive, there’s still lots to be done, and we are all thinking of you & Gavin.

j2
17-12-19, 18:29
I wish I could hug you all. I alternate between crying and hoping. My wife must think I am mad. You are all so wonderful. I will keep you posted as this continues.

Thank you

Jujube
18-12-19, 14:30
Praying every day for Gavin and your family.

ErinKC
18-12-19, 15:02
I'm thinking of you every day! My 5 year old was just in the hospital for 5 days with something much less frightening and it was absolute hell for me. There is nothing worse than watching our kids be sick or scared. I totally understand your lack of sleep and complete overwhelm. I was like a zombie the entire time. But - and this is SO much easier said than done since I could hardly take my own advice - you will be a better help to your son and your family if you're well. So, do your absolute best to get some rest if you can.

My therapist used the analogy of the oxygen masks on an airplane when I was so unwell with anxiety postpartum. She said, when you're on a plane they tell you to put your own oxygen mask on first before helping the people around you because you can't help anyone else if you're not breathing!

I hope you continue to get answers and good news! <3

j2
19-12-19, 02:45
Today's fresh scare is that even though the pathologist report on the biopsy says the mass isn't malignant, there is one number about the cells that has them worried. We have had 4 appointments in 3 days and are scheduled for surgery to remove it on the 2nd of the January. I so appreciate all of you. I fear I don't have your strength though. Bless you all.

NancyW
19-12-19, 03:15
It sounds to me like Gavin's team if drs are leaving no stone unturned.

I'm very glad you've got a surgery date.

J2 I think it's going to be ups and downs for a bit. Please remember it's really ok to lean on others for support.

Sending you, Gavin and your wife love and prayers from Northeast Ohio.

Fishmanpa
19-12-19, 03:23
Keeping Gavin, you and your family in....

Positive thoughts

Sparky16
19-12-19, 03:34
It sounds like they are being very thorough, which is good. I hope you and your family can take a break from all these appointments over the holidays and get some rest.

pulisa
19-12-19, 08:49
Today's fresh scare is that even though the pathologist report on the biopsy says the mass isn't malignant, there is one number about the cells that has them worried. We have had 4 appointments in 3 days and are scheduled for surgery to remove it on the 2nd of the January. I so appreciate all of you. I fear I don't have your strength though. Bless you all.

There won't be a 100% definitive analysis of the mass until after it's been removed but it's very positive that the pathologist has rated it non-malignant at this stage according to the biopsy.
Keep Gavin well and away from bugs and infections because he needs to be fit to have his surgery on 2 Jan. Keep away from other people who have coughs and colds because you don't want to pick something up and pass it on to Gavin..It'll be worth it.
Sending you my very best wishes. Waiting for surgery is horrible but you just have to get through the hours until the op. Then of course the hard work is all part of recovery and getting better and stronger.

j2
22-12-19, 00:01
A well meaning nurse tells me today that some masses can have both benign and non-benign tissue. I know she meant well, but I almost fainted. The biopsy had multiple samples and all were benign except one they think is benign but want to be sure. I was holding on to this initial diagnosis as things being benign but now I now know that this mass can have both types of cells and I am even worse than before. I am falling apart. I am no good to my son right now and he is the one facing this.

NancyW
22-12-19, 01:06
This time of doubt and waiting is nothing short of torture.

I wish there were words to help but you will not be at peace until it's out and you have final pathology.

I am sorry you're going through this, it's gut wrenching to think about.

In my heart and with everything that's transpired to date, I know he's fine but it will be awhile yet before you will feel it and believe it.

You will be forever changed J2, this is a traumatic experience.

Elsa_Alkaseltzer
22-12-19, 02:47
I’m so, so sorry. It astounds me what some people will say ... they clearly don’t understand how the anxious mind works. I almost fainted at an appointment last summer because of some unnecessary info the doc blurted out. You just wish you could hit rewind and not hear it. But regardless of what this nurse said today, your son’s results still are very, very encouraging. Her unintentionally careless comment cannot change the facts. I did a little Googling so you don’t have to, and most brain tumors are benign. Your son’s biopsies seem to confirm he will fall in this majority. I know uncertainty is so hard, but the odds really are in your favor. I look forward to this nightmare being over for you, and I’m so very sorry you and your family are going through this. Don’t be hard on yourself. You’re obviously a very loving dad. ❤️

NancyW
23-12-19, 19:38
Thinking about you and your family J2, Merry Christmas from across the pond.

LouiseAndy
23-12-19, 20:51
Thinking of your family and you during this Holiday season xx

j2
23-12-19, 21:14
Thanks for the holiday wishes. Today's fresh hell is that Gavin is very likely to have a speech deficiency after his surgery. They are hopeful that it will be temporary but crap I am so tired of bad news. The poor kid just can't catch a break. Every time my phone rings, I have collapse on the inside.

NancyW
23-12-19, 21:34
My son was likely to have permanent facial paralysis with the surgery to remove the tumor in his neck.

It did not happen.

j2
23-12-19, 21:59
Nancy, thanks for the good news and I am glad for you and your son. I really don't know what I would do without you guys.

MyNameIsTerry
24-12-19, 02:43
They will be preparing you for possibilities so it's very important to get out of them why they are saying these things and whether they see it as more than something they can treat.

When my cousin was in a specialist children's hospital for months with inflammation on the brain his parents were prepared for various things that could happen. The staff were brilliant though and supported them through stages that were frightening to any parent yet expected as part of the illness to the doctors. They had to prepare them for the potential of brain damage but it was so minor in the end that it never bothered him and nearly 30 years on he has a family of his own and a good management job. But just hearing those words evoked the obvious emotions as I'm sure the many things you are hearing do too.

I hope you receive all the support from everyone there is through this tough time. And I hope Gavin can have some distractions through the festive period so he can be a kid again and run about & play. Some laughter and good family scenes from Gavin enjoying himself will hopefully help you through this tough time.

Jujube
26-12-19, 02:22
Many prayers for Gavin and your family today.

Carys
27-12-19, 17:27
I hope everyone is coping ok, also thinking of you today x

jojo2316
28-12-19, 21:25
Wishing you and your family all the very best of luck. I am thinking of you and little gavin. He is strong and brave and he is going to amaze you.

NancyW
01-01-20, 14:05
Thinking of you all J2. Please let us know how Gavin is doing.

Carys
01-01-20, 16:01
Hey there, a quickie message from me too - this year may be feeling like is starting on the most awful 'downer' for you (understatement!) but things can change quickly and positively as the weeks chug along. I hope you are looking back on this awful experience very soon, with your healthy lad.

pulisa
01-01-20, 20:50
Wishing Gavin a speedy recovery from tomorrow's op and strength to you and your family as the post-op work begins. It will be tough but you will cope with anything because he's your son and you are fighting for him and his healthy future.

BlueIris
01-01-20, 20:59
Wishing you both the very best of luck for tomorrow - you'll be in my thoughts.

LouiseAndy
02-01-20, 01:34
Thinking of you during this time xx

ErinKC
02-01-20, 02:06
Good luck to Gavin and all of your tomorrow!! Good vibes coming from Maryland.

Jujube
02-01-20, 11:26
Praying for Gavin and your family today.

ta333
02-01-20, 12:21
Good luck today. Continuing to pray for you all.

ckelley116
02-01-20, 12:29
Good luck to you today! Keeping your family in my thoughts!

Capercrohnj
02-01-20, 14:15
Good luck gavin!

always scared
02-01-20, 16:47
Thinking of you and your family today. Hope all goes well.

StephA
02-01-20, 19:05
Praying and thinking good thoughts for y’all! (((((HUGS)))))

jules321
05-01-20, 18:38
Keeping you and your son in my thoughts, J2.

j2
06-01-20, 01:20
Well, after 7 hours of brain surgery to remove the mass, Gavin is out of the ICU and the MRI shows the mass has been removed. We now wait 7-21 days to find out the pathology report. The concerns about his speaking ability turned out to be unwarranted as he is speaking just fine. I know I should be more happy as he made it through the operation and is speaking just fine but I can't stop thinking about what the pathology report is going to say. You all have been wonderful with your notes of support. I get strength from you lovely and wonderful strangers. Thank you.

ErinKC
06-01-20, 01:28
This is really great news! I've been checking back for updates! I hope they get you the report sooner rather than later so you don't have too long of an agonizing wait. But, how amazing that he made it through that long surgery, they got all of the tumor, and his speech wasn't affected!!

Fishmanpa
06-01-20, 01:36
That's very encouraging! Continued and as always....

Positive thoughts

Jujube
06-01-20, 01:57
So glad to hear Gavin came through the surgery successfully with his speech intact. Here's to nothing but more good news!

NancyW
06-01-20, 03:15
Thank you! Thank you! for updating us J2. You haven't been off my mind.

I know it isn't quite over but the surgery was big.. and scary. There's no way to downplay that. It's over and thank goodness his speech is fine.
I think they have to tell us so that we can't come back and say... you never told me.

Hopefully that pathology report comes back soon, the wait is torture. I know you're afraid to let your guard down.

How is Gavin feeling?

jules321
06-01-20, 04:05
I'm so glad to read your check-in and that the surgery was successful and is behind you all. Wonderful news re his speech. I know there is more ahead with the path report, and I'm so sorry you have such a long wait. In the meantime, please write or lean here as much as is needed. You're in my thoughts.

Sparky16
06-01-20, 04:19
I'm so glad Gavin's surgery went well. I hope he will be back home soon. One step at a time.

Scass
06-01-20, 05:00
So pleased to see your update. Thinking of you all.

BlueIris
06-01-20, 05:23
So glad the surgery went okay! Hoping for more good news soon.

katniss
06-01-20, 05:54
Thank you for the update! So happy that Gavin has had his surgery and is on the road to recovery. Equally happy that his speech was unaffected. I know you have a wait ahead of you and as a parent you can’t stop worrying but all I can say is that we are all sending happy healthy positive vibes to you and your family

pulisa
06-01-20, 08:37
The major op is over and Gavin's recovery is going as well as it possibly can but I know you won't be able to feel any sense of relief until you get the path report. The waiting must be agonising but has to be endured somehow. Thinking of you and hoping the wait is shorter than expected.

Carys
06-01-20, 11:03
Thanks for the update, I have been checking on and off here also. What a terrifying experience, the worst experience I could imagine having to face, your child having brain surgery - and its hardly surprising that you are still terrified waiting for those results. I know there is little we can do to ease the feelings for you, but hope that just knowing so many are thinking of you gives you a little strength.

MyNameIsTerry
06-01-20, 21:28
Thanks for the update at a time when you must be exhausted. I hope they get the results to you as soon as possible with good news so you can all move on with your lives.

Pkstracy
08-01-20, 05:09
J, I am so sorry . I just saw this thread about Gavin, I am glad the surgery went well, will offer up blessings to the Goddess and light a candle for your family.

Scaredtoo
12-01-20, 06:01
Praying for positive results. Glad your son came through surgery well. I know this is agony for you I’m sure. It would be for any parent. Praying your wait for results is short lived.

NancyW
13-01-20, 20:15
Hoping to hear results soon.. thinking of you and your family J2.

j2
13-01-20, 23:51
After a 7 hour brain surgery to remove the mass and several days in the hospital, my son is home and we have already received the pathology results that the mass was benign. : )

Of course he will need an mri every 3 months for the next couple of years and I am extremely worried that it will come back since they said there is a 10% chance it will return. Either way, I can breath a little better now. He will miss a few more weeks of school but all in all, for the first time in months, I feel a little better. Thank you all so much for commenting and helping a tired, crazy and anxious parent through this. It isn't over and I may never be the same but the immediate terror is over.

God bless you all.

Jujube
14-01-20, 00:06
Great news, J2. I hope you find time to take care of yourself while you care of Gavin.

KK77
14-01-20, 01:06
So pleased to hear that 'mass' was benign and wishing Gavin a speedy recovery.

All the best to you and your family.

Fishmanpa
14-01-20, 01:12
After a 7 hour brain surgery to remove the mass and several days in the hospital, my son is home and we have already received the pathology results that the mass was benign. : )

:yahoo: I can't tell you how pleased I am to hear this! As a survivor, I recognize real vs. anxiety, especially being a forum veteran ;) I clearly recognize from personal experience when something is concerning. Often you'll see me write about the "Told Ya So Gang" when I'm 100% certain of an outcome. I know this case was concerning. One thing I also say when it concerns the Big C is "It's not cancer until they say it is". It was a mantra I had drilled into me during my time on the cancer boards. I can't tell you again how pleased I am to see the mantra bring a benign diagnosis. When things seem to be all against you regardless of the reasons, one must always have a shred of hope to hang onto. I want you to grab onto that thought. As things move forward and the test appointments loom in the near future, hang onto the fact that the biopsy said benign and there's a 90% chance this won't return.

Considering the circumstances and your anxiety. Give yourself a pat on the back. You did great! Keep that as something to hang onto as well. Know that when push comes to shove, you can handle whatever is thrown at you ;)

Positive thoughts

NervUs
14-01-20, 02:55
What a relief, j2! I am so thrilled for Gavin and your family!!!

NancyW
14-01-20, 03:24
Oh J2 I am beyond happy for all of you.

The day my son called me and said.. "mom dr Y called, it's not cancer" I screamed, I cried hysterically, I got scared thinking I heard him wrong, I could not stop crying and for weeks I randomly burst out in tears. I get where you are at.

It's so incredibly traumatic when it's your child.

My son has to go back too.. he's been back a couple times and will go back in June. Just to be sure.

One of my clients said.. "God blessed your family"

God blessed yours too J2.

always scared
14-01-20, 03:49
That is amazing news

BlueIris
14-01-20, 04:44
So happy for you and Gavin, J2, congratulations!

ta333
14-01-20, 12:22
So happy to hear this!! May Gavin have a speedy recovery & may there be no more tumors in your future. And please take some time to take care of you j2. God Bless you all.

ErinKC
14-01-20, 15:48
Oh thank god!! That news just made me tear up. I'm so incredibly happy to hear this!!!

Scass
14-01-20, 16:30
Brilliant news. So pleased for you all x

Carys
14-01-20, 19:19
Fabby-tastic !!!!! :D

j2
15-01-20, 00:44
I am overwhelmed by your support. I wish there was a way to repay your support and kindness. You will never know how much this means to me.

AntsyVee
15-01-20, 02:37
:) Just pay it forward, and share what you've learned with others. Your family's story is very inspirational. It shows that just because you get some bad news, it doesn't always mean the worst. And what FMP said earlier, we are all much stronger than we think we are.

Good to hear everything is okay :hugs:

pulisa
15-01-20, 08:37
Such great news! Take good care of yourselves as a family now-you have all been through so much xx

ErinKC
15-01-20, 15:40
I am overwhelmed by your support. I wish there was a way to repay your support and kindness. You will never know how much this means to me.

I had just come back to this thread to tell you that your story and you and your son's strength has been a real source of comfort to me. I'm facing a much less terrifying surgery in the upcoming months and when I start to feel scared I think of your son going through a 7 hour brain surgery. So, I'm sure your story and experience has and will help many on here!

Sparky16
16-01-20, 00:15
Wonderful news! :yahoo: