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MightyPC
25-06-20, 10:15
Ive not been right since contracting a bladder infection in February which cleared after two separate lots of antibiotics. I was also given 2 courses for sinus issues, so 4 weeks worth within a 12 week period! During this time, my tummy ballooned and I had bouts of diarrhoea, bloating, severe gas and noisy rumblings. Despite the infection going, I’ve been passing microscopic blood, protein, had horrendous chest burning and pain, sweats, chills, dry cough, productive cough, dizziness, headaches, congestion, breathing issues - especially in bed, intermittent back pain and upper right tummy pain, fatigue, burning in eyes, mouth and nose, loss of appetite, swollen hot legs, bloating, stomach discomfort, stinking farts and toilet and feeling generally under par. Convinced I had Covid, as work members believe they had it over Christmas and New Year - we are in events so a lot of overseas travel. I had a member of our Italian team in the office during the week throughout Jan and Feb, with her returning to Milan at weekends. My missus son and a few of his close friends and two clients had pneumonia at Christmas for 3 months too. Covid was relatively unheard of in the general domain in the UK during this time. I’ve had 3 swab tests which were negative but my GP said could be false negative and to assume I have it. I’ve been to A&E numerous times feeling really rough and all blood work and chest x rays have been clear apart from urine as mentioned earlier. I was referred to have a camera into my bladder which was clear and an ultrasound on my veins in my neck, again clear. I paid for an abdominal ultrasound which was clear too. I also feel as if I have water retention in my arms, wrists, fingers, legs, ankles, back of head and face. My arms are defiantly bigger and feel like I have a blood pressure cuff if I clench them. My cardio decided to see me urgently and says I have no water retention - which I disagree. He thinks I’m suffering from anxiety as does my missus but thinks something is going on. He decided not to do an echo as a stress test at Christmas was very good. He reluctantly decide to do a BNP test which I assume was clear as not heard from him. Totally understanding that I can’t get to see my GP except talk on the phone which is pointless as they cannot see what I am explaining, my GP called me after receiving a letter from the cardio and ordered a Urine test to be sent to the lab and full list of bloods to be taken - which is a lot.

FBC
LFT
KFT including Urea
Serum Folate
Vitamin B12
CRP
Thyroid
Bone profile
HaB1c
Ferritin
PSA
Urate
Covid antibody test

I’ve also had two D dimer tests

Had these done on Monday morning and received a text on Monday afternoon that bloods were clear apart from a slight increase in blood sugar but not diabetic and slightly raised bilirubin - in 40s which I always have. The A&E dr said it was marginally raised and if I had an issue it would be a lot higher and other levels would be out. So, no Covid and kidneys and liver working. I hope to speak with my GP on Friday.

My concern is I have a severe problem with the liver, kidney or both and that I’m going to end up in failure. Could the bilirubin be a sign of cirrhosis or liver damage? An US wouldn’t show this. In the past I’ve had a coarse liver finding on US, which is now normal, and I use to drink every weekend for 10 or so years. Hardly touch the stuff now for about 8 or so years. Could the kidney be struggling but still working? My protein level In the urine was 30. My understanding is if it hits 70 you need dialysis. I’m starting to get itchy now too. Some background. I had a severe heart attack 3 years ago and recovered very well. No one in family has cardiac issues but it was found I have a faulty gene Lipoprotein A, which put me at high risk of cardio disease. I’m now 49. My life had been normal and good and I’ve not worried about it at all. I have had some protein issues in the past which I believe was caused by a high dose statin I was given. GP thinks it was the heart attack, which I dispute as the pill needed to be gradually introduced to avoid kidney issues. I was put on the high dose straight away and suffered badly. I have a high tolerance to meds.

Sorry for the long drawn out post but I felt that I needed to get everything down and reach out to others for some advice. This really is affecting my life. People are fed up with hearing me going on and feeling ill all the time. My missus has said she is finding it hard to live with and will no longer talk about it, so I feel very alone. Counselling is not the answer, I need answers to why I’m feeling like this but I also think that test after test is not the answer either unless it’s warranted. I could see a gastro or kidney specialist - I just don’t know. Any advice would be really appreciated.

MightyPC
25-06-20, 10:34
Would an US show ascities? Is there any tests that show water retention in arms or legs?

MightyPC
27-06-20, 09:04
So confirmation received that all bloods are okay, I haven’t had Covid despite many many symptoms, but protein and some microscopic blood Is still showing in the urine. GP will speak with renal team and advise next step. Fingers crossed I will get to the bottom of this soon. I have some raised bilirubin but they seem to think this is is Gilberts, but it still concerns me that it could be a liver issue as I’ve had protein in pee before but no water retention.

Jessxxx1
27-06-20, 10:30
Just to say I have high bilirubin as well... Always have... It's a genetic thing for quite a lot of people. Also, ascites definitely shows up on ultrasound - I have had this really badly and had clear large black patches of fluid all over my abdomen on ultrasound. Could this all be a side effect of the antibiotics you have been on?

MightyPC
27-06-20, 13:40
Thanks for your message Jess. My abdomen US was clear. Liver shown as normal. My thoughts are that all this has escalated from the onset of the UTi and succession of antibiotics. Honesty, all the c statins that I have experienced during the past 14 or so weeks I would have put my house on having had or have Covid. The antibody test I had is the Roche one, so reliable the gold standard. Every test I’m having is negative apart from protein and blood in the urine and raised bilirubin which I’ve had for a long time. I hope I can get to bc the bottom of this as it’s making me quite down and fearing the worst. My face has also puffed up - all so strange.

MightyPC
27-06-20, 14:09
I finished the last lot of antibiotics at beginning of May. The macrobid which was for UTI I finished just after Easter. Really appreciate your message Jess and I hope that you are feeling well