notsureanymore
19-05-21, 08:03
Hi all im 30 years old male originally from England but currently living in Australia
im having a hard time and its been strange to put my thoughts out on the net but here goes i an have extreme fears of having an incurable and deadly disease MND also known as ALS sounds like fun i know:D ive recently had a neuro appointment and he said everything was good my reflex were fine i didn't present with weakness or atrophy that he could see he advised everything looks good but i can come back in 6 weeks for an EMG just to confirm. i know the chances at my age of having this are insanely low and i don't have anyone in the family with it but i just cant seem to let it go..... i dont know how to tell people how i feel about this cause i know it sounds insane i lose sleep i plan my death/funeral (not suicidal) im scared to sleep sometimes cause im scared to wake up feeling something not working. the reason all these thoughts started is from the random twitching ive been experiencing throughout my whole body mostly on my left side also(predominantly calf) tho also the random sporadic pains/soreness i feel throughout my body and like a moron i went and searched up online the symptoms and here i am i guess.
sorry for the wall text for an intro i know this probably foolish to think about having some incurable illness but i feel better getting this off my chest and being honest whenever someone asks how are you? i just say good cause i dont know how to respond i think im dying sometimes anyway i digress thanks for reading
im having a hard time and its been strange to put my thoughts out on the net but here goes i an have extreme fears of having an incurable and deadly disease MND also known as ALS sounds like fun i know:D ive recently had a neuro appointment and he said everything was good my reflex were fine i didn't present with weakness or atrophy that he could see he advised everything looks good but i can come back in 6 weeks for an EMG just to confirm. i know the chances at my age of having this are insanely low and i don't have anyone in the family with it but i just cant seem to let it go..... i dont know how to tell people how i feel about this cause i know it sounds insane i lose sleep i plan my death/funeral (not suicidal) im scared to sleep sometimes cause im scared to wake up feeling something not working. the reason all these thoughts started is from the random twitching ive been experiencing throughout my whole body mostly on my left side also(predominantly calf) tho also the random sporadic pains/soreness i feel throughout my body and like a moron i went and searched up online the symptoms and here i am i guess.
sorry for the wall text for an intro i know this probably foolish to think about having some incurable illness but i feel better getting this off my chest and being honest whenever someone asks how are you? i just say good cause i dont know how to respond i think im dying sometimes anyway i digress thanks for reading