notsureanymore
19-05-21, 13:03
hi all I'm really not sure how to start this or even how to word it properly i feel like saying or even writing it makes me feel like I'm a crazy person to some extent but ill try I'm 30 year old male living in Australia originally from England and I'm not sure what's wrong with me or even if there is something wrong with me. I feel anxious I'm scared to fall asleep and wake up and there is something wrong with me/stopped working. I keep checking my reflexes do calf and heel raises I'm hyper aware of my body checking for dents and atrophy.
So ill start with what's wrong with me I keep twitching whole body twitches but most of the time its my left calf that twitches and sometimes my left arm/hand i also have a dent on the top of my hand the back of my hand right bellow the middle finger knuckle and my veins are a lot more pronounced on my left hand compared to my right I'm honestly terrified I have ALS also known as MND i dont have any weakness i feel like i can do everything sometimes i twitch and shake and there has been this sporadic pain sometimes in my calf or arm or hand on either sides though
so i went to my general doctor here didn't help i went to him with the my twitching and explained how its keeping me up at night at first i thought nothing of it and then he goes it may be something like MND so ill send you to a neurologist and of course from there I super freaked out and thought the worse am I going to wither away and die and all that. so I had my neuro appointment on the 13th of may it came i saw him i did the neuro reflex tests i did the Hoffman and Babinski test and the general strength tests and everything was good normal nothing showing or to be indicated MND he said to me I don't think you have it but if you like in 6 weeks time we can do an EMG its the gold star of tests for checking so i agreed and now i have to wait for better or worse but until then i keep having this sense of dread and fear the twitching pain/cramps that affect me and it really affects me.
thanks for letting me type here and air out my thoughts and fears its hard for me to talk to people i don't wanna come across as a crazy person i do make this promise though to myself and others that i will make sure once i have my EMG tests done and everything that i will let everyone know what the results are. much love to you all
So ill start with what's wrong with me I keep twitching whole body twitches but most of the time its my left calf that twitches and sometimes my left arm/hand i also have a dent on the top of my hand the back of my hand right bellow the middle finger knuckle and my veins are a lot more pronounced on my left hand compared to my right I'm honestly terrified I have ALS also known as MND i dont have any weakness i feel like i can do everything sometimes i twitch and shake and there has been this sporadic pain sometimes in my calf or arm or hand on either sides though
so i went to my general doctor here didn't help i went to him with the my twitching and explained how its keeping me up at night at first i thought nothing of it and then he goes it may be something like MND so ill send you to a neurologist and of course from there I super freaked out and thought the worse am I going to wither away and die and all that. so I had my neuro appointment on the 13th of may it came i saw him i did the neuro reflex tests i did the Hoffman and Babinski test and the general strength tests and everything was good normal nothing showing or to be indicated MND he said to me I don't think you have it but if you like in 6 weeks time we can do an EMG its the gold star of tests for checking so i agreed and now i have to wait for better or worse but until then i keep having this sense of dread and fear the twitching pain/cramps that affect me and it really affects me.
thanks for letting me type here and air out my thoughts and fears its hard for me to talk to people i don't wanna come across as a crazy person i do make this promise though to myself and others that i will make sure once i have my EMG tests done and everything that i will let everyone know what the results are. much love to you all