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View Full Version : Bulbar AlS Terrified!


Dcf93
22-07-21, 20:51
Hello All,

I really need some help/opinions. The past 8 months I have been having horrible Bulbar symptoms that I am convinced are related to ALS. My voice has become noticeably more nasally, I知 short of breath, and my soft palate has not been function correctly. I have been having difficulty swallowing, it looks like saliva is leaking from the sides of my Palate and my voice squeaks when I talk sometimes and it feels like the palate has not been vibrating evenly. Over the past month I have developed the sensation of food going up my noise and a burning sensation in the nostrils. I saw a neruo last week who gave me a full neurological assessment and claimed that there was no evidence of Bulbar pathology but I知 convinced he missed something, prior to this I have been to the ER twice, urgent care 3 times and an ENT when I first started developing symptoms. All that was found was maybe some evidence of LPR.

I am at the end of my rope, having crying spells everyday. This is ruining my life!

Should I push for an EMG? I have another appointment with a ENT next Friday.

Could it be anxiety? Please help!

I am a 27 year old male with no family history of neurological problems. I do suffer from Migraine with Aura
jojo2316
22-07-21, 21:41
Eeeeeerrrrrm. Yes it could be anxiety. But I suspect my telling you this won’t help since a neurologist telling you didn’t!!
Dcf93
23-07-21, 01:55
Eeeeeerrrrrm. Yes it could be anxiety. But I suspect my telling you this won稚 help since a neurologist telling you didn稚!!

I know I知 being irrational, I知 just having every symptom of it, it feels like liquids get stuck between my throat and my nose when I swallow. I知 just not convinced the mind is strong enough to give you symptoms that mimic a specific disease to a T. I hope I知 wrong though lol
jojo2316
23-07-21, 13:28
I know I’m being irrational, I’m just having every symptom of it, it feels like liquids get stuck between my throat and my nose when I swallow. I’m just not convinced the mind is strong enough to give you symptoms that mimic a specific disease to a T. I hope I’m wrong though lol

The mind is absolutely strong enough. When I went to a neurologist about als concerns she told me a good proportion of people she sees have somatic neurological disorders…… entirely “real” in terms of symptoms but created entirely in the mind. In fact I also read a book on it.
jojo2316
23-07-21, 13:30
https://www.worldofbooks.com/en-gb/books/suzanne-o-sullivan/it-s-all-in-your-head/9780099597858?keyword=&gclid=Cj0KCQjw0emHBhC1ARIsAL1QGNd14GpMmgdiQoB-JM2WgT8euUhp4g8S5lDfCSrVmG5RYRb0oK5GQuAaAg9jEALw_w cB