Lana
15-09-23, 19:38
Hello all; in a past couple of weeks I developed very random itching, sometimes feels like crawling on skin, sometimes like real itching, sometimes stinging. It happens on my stomach,then randomly on my back, then my head...Since I suffer , obviously , from severe HA, I put that together with my elevated blood pressure ( actually jumps up and down, like it would be 136/85, and then in the evening sometimes 109/65 - totally crazy), and I now think that I may be getting Polycythemia Vera which my mother had! Hers lasted for many years, but got progressively worse, and turned into myelofibrosis, which is a rare blood cancer.
Now, when she was treated long ago, I asked her hematologist if this was hereditary, and he clearly said No. I checked on reputable medical websites and it is not considered hereditary. But my last bloodwork was 2 and a half years ago ( was completely normal at the time). It is pretty unlikely that I would develop true symptoms within this period, because, polycythemia vera is usually discovered from a routine blood test - what I am trying to say is that it can exist for years with no symptoms, and my last blood tests did not show it.
But know I think I have other symptoms - do not even want to mention them. Also, I am 62 which does not help.
I have appointment next Thursday, September 21st. I cannot sleep, and I am in a complete panic mode, truly, truly scared. Very hard to function. Just want some comforting words and prayers for me for next Thursday. Thank you for reading.
Now, when she was treated long ago, I asked her hematologist if this was hereditary, and he clearly said No. I checked on reputable medical websites and it is not considered hereditary. But my last bloodwork was 2 and a half years ago ( was completely normal at the time). It is pretty unlikely that I would develop true symptoms within this period, because, polycythemia vera is usually discovered from a routine blood test - what I am trying to say is that it can exist for years with no symptoms, and my last blood tests did not show it.
But know I think I have other symptoms - do not even want to mention them. Also, I am 62 which does not help.
I have appointment next Thursday, September 21st. I cannot sleep, and I am in a complete panic mode, truly, truly scared. Very hard to function. Just want some comforting words and prayers for me for next Thursday. Thank you for reading.