im so afraid

[mirry]

waiting for the hospital to phone me back ,
my eyes are showing nystagmus (jumping on their own) ,
so fed up waiting for them , i googled :weep:.
This is what it says everywhere ive looked .........
(aquired means its comes on suddenly as an adult , as in my case).
-------------------------------------------------------------------
Acquired Nystagmus: A less common cause of nystagmus is disease or injury of the central nervous system. The most common cause of acquired nystagmus is head injury from motor vehicle accidents in young people. In older people the most common cause is stroke (http://www.womenfitness.net/wfmember/programs/articles/heart_disease.htm) (blood vessel blockage in the brain). Any disease of the brain (such as multiple sclerosis (http://www.womenfitness.net/wfmember/programs/articles/multiple_sclerosis.htm) or brain tumors) can cause nystagmus if the areas controlling eye movements are damaged. Because control of eye movements is affected by input from the labyrinth (the part of the inner ear that senses movement and position), inner ear disorders (such as Meniere's disease) can also lead to acquired nystagmus. Other causes include Dilantin (an antiseizure medication), toxicity, and

alcohol intoxication.



Im not the accident or the alcohol , feel terrible cos the specialist kept saying I dont think its anythng serious but we need to keep and eye on this , and that was before the jumping eye symptom.

shaking and cant stop .

[chalky]

Mirry,
Sometimes we don't do ourselves any favours by Googling or looking up medical books,etc.
Your specialist-who has taken YEARS to become that- has offered his professional opinion so please be patient and accept that he/she will look after you.
Don't put yourself under more stress than you need to.You are in good hands.
Best wishes,
Chalky.

[hunny]

Hi Mirry

From reading that I'm far more inclined to go with the inner ear disturbance causing your eye problem.Having read your posts recently,its more than likely the cause,really and truly

I know how you are feeling totally because I am also waiting for the hospital to get in touch
Huge hugs to you and I hope they call soon

H x

[anxious]

Hi Mirry,

i've had a google for you too

Abnormal rhythmic eye movements (nystagmus) usually accompany BPPV.

i'm sure i read your post saying you have been diagnosed with BPPV,
:hugs:

anx xx

[mirry]

hes diagnosed me with mav , then Bppv , and now they are thinking about my nystagmus because of direction its jumping , and said they need to keep an eye on this and they dont think its anything serious.

well that was enough for me to hear , and then my gp gets involved about my stomach problems and wanting to rule out if they are related.

Its just online , they say the most common cause is stroke or m.s alot ,
they dont say bppv as the most common cause.

my mind is going overtime , i need to stop , thanks guys ,
my hubby said , they would rush you in if they really thought there was a good chance of that and i suppose he is right.

take care

[lesleyB]

Just want to send you some hugs Mirry.
Hope you are ok
Lesleyb:hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs: :hugs:

[dawny]

mirry

lots of love and hugs for you.
please dont worry honey, i know its easy for me to say.
you are a lovely person, im thinking of you

love dawny

take care mate. xxxxxx

[mirry]

thanks Dawny :hugs: , I have just got back from gps cos ive got a ear infection now , feel like chopping my ears off , lol.

Hope your ok today :shrug:

[belle]

Hi Mirry...

So sorry you're having a crappy time :(
Hope it's all cleared up soon.

x

[beadbabe]

Hi Mirry
Long time no talk to. How are you doing?
I am happy to tell you that I also have nystagmus (the neurologist and ENT specialist are not at all bothered by it. It's only an issue if there is something else wrong with your brain. I am sure you have had all tests imaginable.

What google doesn't tell you is that nearly everyone has nystagmus on far reaching gaze.


Nystagmus can happen when your eye muscles are straining. So I'm sure it says somewhere on this site about eye muscles tensing up when you have a lot of adrenaline so by some short stretch of imagination I think this jumpy vision can be created by anxiety and tension. Mine surely has, and nystagmus can make you feel dizzy too when you are trying to focus.

Take care - my dizzy spells much improved these days but palpitations are a nightmare.

bead x:flowers:

[mirry]

hi bead , where have you been , long time no chat , lol.

Thanks for the reply , Im alot calmer about this problem now , and have to see the specialist on the 14th january again , probally more tests but its all pointing to bppv. So pleased to read your dizzys are better , why do you think this is ?

when you get the nystagmus do you find your eye twitches alot ? Mine does , it feels horrible, but i only get it when i do the hall pike test.

all the best
take care

[beadbabe]

Have been trying not to come on here as it wasn't helping me to come on here and be always focusing on my health.

But heart probs bad at mo so revisited to read about ectopics.

anyway, back to you... I don't really understand why I have nystagmus but I had it about 12 years ago and it went away completely but it returned with dizzy spells etc (2 years ago). It has taken a long time for dizzyness to go away but now it is much more vague and much less frequent (not constant) so that is a relief. I have been working at my anxiety (although recently it's getting on top of me a bit because of the palpitations all the time, so maybe this helped.

I don't know really - maybe these things work themselves out eventually. I have been taking citalopram since last April/May so maybe that has eventually helped although it took some time. At first there was little improvement.

Hope your tests go well and that it all comes back normal. BPPV isn't dangerous if that is your diagnosis so you know you'll eventually get better when your brain becomes accustomed to that. There is a good website for sufferers of BPPV and related ear problems http://www.labyrinthitis.org.uk/bppv.htm

I was convinced for a long time this was my problem too - maybe it was, but the ENT specialist would not agree! Anyway take a look I am sure you will find some good explanations on there.

Take care, bead