louwilliams
17-03-08, 16:44
Hi-and yes sorry its ANOTHER long one.
well today i've been back into A&E-to no avail......AGAIN. 4th time in 3 weeks.
I spent the entire weekend in bed (Friday afternoon to Monday morning-only getting out of bed to use the bathroom) and i've had my children here the whole time. as a few of you will know, my partner Mark is not the most understanding bloke in the world and we argue like mad over this illness but he really came through for me this weekend and looked after the girls brilliantly (fed them, took them out and even persuaded them to have a bath! lol)
Joking aside, i've honestly just had enough of this now and I can't stand it anymore. I sat in bed last night, after everyone was asleep, and cried my eyes out. Mark woke up and asked me what was wrong and I said "if this is how my life is gonna be, then there's no point" and I really meant it. My children have no kind of quality of life with me (they are 9&10 and this morning I forced myself out of bed to make their breakfast and went straight back to bed after arranging for their dad to take them to school) The pain I am in is riduculous, this constant lurching, sickening knot in my stomach, chest pains as well as ectopics. I am sick of taking Daizepam and am worrying i will get addicted to it.
I went into A&E this morning, to be greeted with the most horrid, snide triage nurse I have ever come across. earlier this week I had received a letter from the hospital saying I had been referred for a 24hr ecg trace and they would let me know when my appointment was. I showed this to the nurse and she said "well dont think you can jump the queue just cause youve come in here-this is an accident and EMERGENCY unit you know" I felt horrendous and was told to go to the waiting room. Eventually I was seen, the routine ecg was done BP taken and blood sugar done bla bla bla all came back normal as usual.
Now the doctor says that he thinks i could have gallstones (which would explain the stomach knot and pains) and has referred me for an ultrasound on my stomach. So all in all I am waiting for a 24hr ECG trace, an ultrasound on my stomach, and Echo scan on my heart (for the ectopics) and the results for the 24hr urine test. I got a bit upset and said surely he could do something else, as I cant live like this day in day out, and he said that yes there is but he couldnt do them all at once-i have been given tablets (rantidine or summat?) which will take another 3/4 weeks to kick in and he said in the mean time to take 3 x 2mg diaz a day for the next 2 weeks. the apointments will take anything between 3 and 6 weeks (so he says)
Sorry for the rant but ive had enough. my quality of life, if you can call it that, is complete crap, my kids have no life with me and my relationship with my partner is rapidly going under. I even phoned the mental health unit to see if I could admit myself just in case this was all in my head???
seriously........whats the point? Can someone give me any reassurance that the knot in my stomach is not life threatening, that the ectopics and palp's arent gonna stop my heart instantly and that the chest pains arent a heart attack. I know I need a good slap but this really has got out of control now.
well today i've been back into A&E-to no avail......AGAIN. 4th time in 3 weeks.
I spent the entire weekend in bed (Friday afternoon to Monday morning-only getting out of bed to use the bathroom) and i've had my children here the whole time. as a few of you will know, my partner Mark is not the most understanding bloke in the world and we argue like mad over this illness but he really came through for me this weekend and looked after the girls brilliantly (fed them, took them out and even persuaded them to have a bath! lol)
Joking aside, i've honestly just had enough of this now and I can't stand it anymore. I sat in bed last night, after everyone was asleep, and cried my eyes out. Mark woke up and asked me what was wrong and I said "if this is how my life is gonna be, then there's no point" and I really meant it. My children have no kind of quality of life with me (they are 9&10 and this morning I forced myself out of bed to make their breakfast and went straight back to bed after arranging for their dad to take them to school) The pain I am in is riduculous, this constant lurching, sickening knot in my stomach, chest pains as well as ectopics. I am sick of taking Daizepam and am worrying i will get addicted to it.
I went into A&E this morning, to be greeted with the most horrid, snide triage nurse I have ever come across. earlier this week I had received a letter from the hospital saying I had been referred for a 24hr ecg trace and they would let me know when my appointment was. I showed this to the nurse and she said "well dont think you can jump the queue just cause youve come in here-this is an accident and EMERGENCY unit you know" I felt horrendous and was told to go to the waiting room. Eventually I was seen, the routine ecg was done BP taken and blood sugar done bla bla bla all came back normal as usual.
Now the doctor says that he thinks i could have gallstones (which would explain the stomach knot and pains) and has referred me for an ultrasound on my stomach. So all in all I am waiting for a 24hr ECG trace, an ultrasound on my stomach, and Echo scan on my heart (for the ectopics) and the results for the 24hr urine test. I got a bit upset and said surely he could do something else, as I cant live like this day in day out, and he said that yes there is but he couldnt do them all at once-i have been given tablets (rantidine or summat?) which will take another 3/4 weeks to kick in and he said in the mean time to take 3 x 2mg diaz a day for the next 2 weeks. the apointments will take anything between 3 and 6 weeks (so he says)
Sorry for the rant but ive had enough. my quality of life, if you can call it that, is complete crap, my kids have no life with me and my relationship with my partner is rapidly going under. I even phoned the mental health unit to see if I could admit myself just in case this was all in my head???
seriously........whats the point? Can someone give me any reassurance that the knot in my stomach is not life threatening, that the ectopics and palp's arent gonna stop my heart instantly and that the chest pains arent a heart attack. I know I need a good slap but this really has got out of control now.