View Full Version : Optic neuritis and MS
Hi was having a good few days but here I go again...
As you will no doubt be bored hearing I am worried about MS - have been to neuro and he says no, now waiting on MRI for my peace of mind.
One of my symptoms was a tender left eye - and thought my vision has been a bit blurry. Its very subtle (the blurring) so I'm not entirely convinced its for real. The eye tenderness had gone away a few weeks ago but has come back over the past couple of days.
I know optic neuritis is often what MS sufferers usually present with - is this optic neuritis? I'm getting really scared about this again. I read on another forum that eye pain is associated with optical neuritis.
Also have pain in my buttocks and back of my legs which is happening on and off - I really think I'm going to wake up one morning and not be able to get up.
Hi was having a good few days but here I go again...
As you will no doubt be bored hearing I am worried about MS - have been to neuro and he says no, now waiting on MRI for my peace of mind.
One of my symptoms was a tender left eye - and thought my vision has been a bit blurry. Its very subtle (the blurring) so I'm not entirely convinced its for real. The eye tenderness had gone away a few weeks ago but has come back over the past couple of days.
I know optic neuritis is often what MS sufferers usually present with - is this optic neuritis? I'm getting really scared about this again. I read on another forum that eye pain is associated with optical neuritis.
Also have pain in my buttocks and back of my legs which is happening on and off - I really think I'm going to wake up one morning and not be able to get up.
Hi,
I think optic neuritis is really painful, even your gp can tell you if its optic neuritis by looking at the back of your eye, they can tell if the optic nerve is swollen. I went to the neurologist convinced he'd say I had it and was totally amazed when he said my eyes were ok!!! I'm not an expert om MS, most of my info i from Dr. Google! but I think the blurryness you get with MS is different to what to are experiencing and a friend of a friend who has MS told me that the eye pain is acute.
I spent months waiting for MS symptoms to appear, once I read about them then I'd get them but I know it was me making my brain look for them causing them to happen. My biggest fears where going blind and wetting myself! My doctor once asked if I'd had any 'accidents' so I took it that if that happened he too would think I had MS! I haven't wet myself.............yet!! lol
My dizzyness turned out to be an inner ear thing and the tenderness behind my eyes was to do with my synuses, they go all around your eyes and forehead. When I get a cold/hayfever/bunged up the tenderness comes back so I just take sudafed or some other decongestant.
I hope your MRI gives you peace of mind, but the thing to try and remember is that your neurologist will see peple with MS everyday and will know what he's looking for, when you have health anxiety its hard to trust anybody cos you think you know your own body best but thats not always the case cos this anxiety is a viscous circle, you have a symptom , you google it, convince yourself you have a serious disease, find you have even more symptoms than you started out with, it's never ending!!
If you need to chat please feel free to pm cos I have been through everything you're going through and have come out the other end! Me and my family have a real laugh over my MS stage now - I used to make them video me walking in case my 'gait' was funny cos dr. google said it should be lol!!!!
itoldyouiwasill
27-05-08, 23:17
Optic Neurosis usually involves the loss of sight in one eye etc or something like a black hole in your vision. If you had it you would know about it for sure. Nothing you have described sounds anything like it you will be glad to know.
Hi was having a good few days but here I go again...
As you will no doubt be bored hearing I am worried about MS - have been to neuro and he says no, now waiting on MRI for my peace of mind.
One of my symptoms was a tender left eye - and thought my vision has been a bit blurry. Its very subtle (the blurring) so I'm not entirely convinced its for real. The eye tenderness had gone away a few weeks ago but has come back over the past couple of days.
I know optic neuritis is often what MS sufferers usually present with - is this optic neuritis? I'm getting really scared about this again. I read on another forum that eye pain is associated with optical neuritis.
Also have pain in my buttocks and back of my legs which is happening on and off - I really think I'm going to wake up one morning and not be able to get up.
Even though my MRI was negative ...... i think i want to see a Neuro and give them a clear description of my symptoms. Im sure they will be able to tell if they are real MS symptoms or if its MS, or some other disorder.
Hi,
I think optic neuritis is really painful, even your gp can tell you if its optic neuritis by looking at the back of your eye, they can tell if the optic nerve is swollen. I went to the neurologist convinced he'd say I had it and was totally amazed when he said my eyes were ok!!! I'm not an expert om MS, most of my info i from Dr. Google! but I think the blurryness you get with MS is different to what to are experiencing and a friend of a friend who has MS told me that the eye pain is acute.
I spent months waiting for MS symptoms to appear, once I read about them then I'd get them but I know it was me making my brain look for them causing them to happen. My biggest fears where going blind and wetting myself! My doctor once asked if I'd had any 'accidents' so I took it that if that happened he too would think I had MS! I haven't wet myself.............yet!! lol
My dizzyness turned out to be an inner ear thing and the tenderness behind my eyes was to do with my synuses, they go all around your eyes and forehead. When I get a cold/hayfever/bunged up the tenderness comes back so I just take sudafed or some other decongestant.
I hope your MRI gives you peace of mind, but the thing to try and remember is that your neurologist will see peple with MS everyday and will know what he's looking for, when you have health anxiety its hard to trust anybody cos you think you know your own body best but thats not always the case cos this anxiety is a viscous circle, you have a symptom , you google it, convince yourself you have a serious disease, find you have even more symptoms than you started out with, it's never ending!!
If you need to chat please feel free to pm cos I have been through everything you're going through and have come out the other end! Me and my family have a real laugh over my MS stage now - I used to make them video me walking in case my 'gait' was funny cos dr. google said it should be lol!!!!
I had the inner ear infection too ....which commenced April 21st 08. 10 days later i noticed the leg and arm involuntary movements, or jerking as ive called it...... and then the muscle twitching started.
Now ive noticed my distance vision is a tad out of focus ..... and i have to squint to get a clear image.... also noticed i cant reconise peoples faces from a distance. However i cant actaully remember if i had this problem before i started reading up on MS. Dont think i did. However it comes and goes. I can see in the distance fine today.
Prior to that i have had strange feelings in my eye .... it felt blury but was more of a feeling that actual bluryness..... the optom said it was dry eye ....... who has given me drops but they are not working. Have an apointment with her on Friday.
I also feel its never ending ... im getting really sick of it.
Hi was having a good few days but here I go again...
As you will no doubt be bored hearing I am worried about MS - have been to neuro and he says no, now waiting on MRI for my peace of mind.
One of my symptoms was a tender left eye - and thought my vision has been a bit blurry. Its very subtle (the blurring) so I'm not entirely convinced its for real. The eye tenderness had gone away a few weeks ago but has come back over the past couple of days.
I know optic neuritis is often what MS sufferers usually present with - is this optic neuritis? I'm getting really scared about this again. I read on another forum that eye pain is associated with optical neuritis.
Also have pain in my buttocks and back of my legs which is happening on and off - I really think I'm going to wake up one morning and not be able to get up.
As I have mentioned before the pains in your buttocks and down the backs of your legs sound very much like sciatica. I don't think the problem you are getting with them and your eye problem at related in any way at all.:)
Acrosplat,
The 'blurry' thing you get is probably your labyrinthitris, my vision is sometimes very out of focus on far away things, i too have to squint alot!
Thanks guys, do you think its really possible to have a few separate things going on at the one time - such as, say, sciatica and anxiety?
Thanks guys, do you think its really possible to have a few separate things going on at the one time - such as, say, sciatica and anxiety?
This is my worry Veebee. You and I share so many symptoms/fears!!!
Today I'm aching like mad. My right forearm, legs and base of back and neck mainly. This is along with the never ending elbow and shoulder joint aches that are my constant companions. :weep:
I'me seeing a Musclo-Skeletal specialist next week so am hopeful for a clearer view after that.
Thanks guys, do you think its really possible to have a few separate things going on at the one time - such as, say, sciatica and anxiety?
Yes it is quite possible. I suffer from at least 5 different things which I am on medication for and really exist. So don't worry:yesyes:
Hi was having a good few days but here I go again...
As you will no doubt be bored hearing I am worried about MS - have been to neuro and he says no, now waiting on MRI for my peace of mind.
One of my symptoms was a tender left eye - and thought my vision has been a bit blurry. Its very subtle (the blurring) so I'm not entirely convinced its for real. The eye tenderness had gone away a few weeks ago but has come back over the past couple of days.
I know optic neuritis is often what MS sufferers usually present with - is this optic neuritis? I'm getting really scared about this again. I read on another forum that eye pain is associated with optical neuritis.
Also have pain in my buttocks and back of my legs which is happening on and off - I really think I'm going to wake up one morning and not be able to get up.
I was just recently diagnosed with Optic Neuritis. Fortunately after going through an MRI and an XRay the doctors told me that it wasn't a tumour or MS. I started having symptoms last December with the vision in my right eye becoming slightly blurry and kind of shadowy (hard to explain). I originally thought it was from spending too much time in front of computers. I didn't have any pain until about a month ago and I only feel it when I look into my peripherals. They are referring me to a neurologist. MS and a brain tumour was the biggest worry but there are other things that cause optic neuritis including mononucleosis and diabetes for example. I have more testing to go through before I find out what the root cause is and how to go about treating it.
My regular eye doctor (not the opthamologist) was the one who first saw the swelling on my optic nerve when getting a checkup - you could actually see the swelling on the digital images they took.
Before I had the results I was very paranoid about it being ms. I still don't know the root cause but at least the worst are out of the way. Last time I use Google to check my symptoms.
I was just recently diagnosed with Optic Neuritis. Fortunately after going through an MRI and an XRay the doctors told me that it wasn't a tumour or MS. I started having symptoms last December with the vision in my right eye becoming slightly blurry and kind of shadowy (hard to explain). I originally thought it was from spending too much time in front of computers. I didn't have any pain until about a month ago and I only feel it when I look into my peripherals. They are referring me to a neurologist. MS and a brain tumour was the biggest worry but there are other things that cause optic neuritis including mononucleosis and diabetes for example. I have more testing to go through before I find out what the root cause is and how to go about treating it.
My regular eye doctor (not the opthamologist) was the one who first saw the swelling on my optic nerve when getting a checkup - you could actually see the swelling on the digital images they took.
Before I had the results I was very paranoid about it being ms. I still don't know the root cause but at least the worst are out of the way. Last time I use Google to check my symptoms.
Hi jubjub88
Sorry to hear about the Optic Neuritis...... I do have a question.... If Optomitrists and Gps look into your eyes .... they can see if you have Optic Neuritis or not ????
Im going this Friday so ill find out.
I think they can (from Dumpling's earlier reply) and I know that the neurologist checked my eyes at my exam. Can anyone confirm pls?
biscuit1079
31-07-08, 20:43
I think this is an old post, but I just found these forums.
I'm 25 years old, and was diagnosed today with optic neuritis. I hate google because now I'm in a panic. I have no other signs of MS, and am waiting for an appointment for an MRI to rule it out. I'm terrified :( I live across the country from my family, and I'm out here all alone. I don't know what I'll do if I have MS :( Has anyone ever heard of someone having this and not getting MS?? I googled it.. stupid google because now I'm more panicked than ever... I've found numbers of up to 90% of people that get optic neuritis end up with Ms...
sorry for rambling, I'm just scared :(
Hi Biscuit
Just seen your post and I feel terrible that my post has caused you to worry.
I just want to let you know that when I was posting a lot, I was incredibly stressed - at the height of my anxiety. I read a lot of rubbish thanks to google and got totally hysterical and didn't even think about what kind of impact my ramblings would have on someone else. This caused me to over analyse ever sensation I had in my body to the point of utter obsession.
I have no professional knowledge of MS, or any knowledge about how people present with it initially - only what I have read on dodgy websites. What I am trying to say is please don't take what I have written and add it to your worry - in all honesty I was not in my right mind when I wrote it.
If you read down the post you will see that one of the other posters has had optical neuritis - they had the tests done and everything came back fine. Try to think about this - a real experience - rather than the online guff that masquerades as fact.
Please do not google. You sound very scared and the best advice I can give you is to not google. Its what I did and I basically went from having numb hands (caused by anxiety) to self diagnosing MS. Info on the internet can be a dangerous thing, stay away from it and speak to your doctor about your worries - doc is really the only person with the right knowledge.
Again, I am truly sorry for adding to your worries. If you need to talk, please get in touch.
biscuit1079
02-08-08, 17:20
I'm feeling a little better now. My dad is coming out to visit me for five days from back east. Yesterday I started 1250mg of oral prednisone to speed the healing in my eye. I was terrified of taking 25 pills all at once, but I called the neurologist and spoke to the pharmacist too and they assured me it was ok to take that much.
I still don't know when I get the MRI. I have no other signs of MS, but I can't stop researching online. It's so depressing. There is no family history of MS at all.. and I'm not really self diagnosing things because I honestly have no other symptoms. Other than my eye, I feel bad.
Another interesting link I discovered is that I know I have rheumatoid arthritis, which is an auto immune problem. Most things I've read said that optic neuritis is also auto immune related, as well as MS. I guess we'll just have to see.
Has anyone had experience with the high dose oral prednisone? It hasn't made me sick, moody etc and I'm only on it for another two days. How fast does it usually work in getting vision back? I felt a little better when I woke up today, but as it got lighter outside I noticed my vision really wasn't any better.
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